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Forum Updates from 29 February 2024
Hello I would like to share the news with you all that our Charity Forums have recently been rebranded and renamed to reflect the condition to which each Forum provides information and support with. The Health Unlocked Team have assured us that all existing members will be unaffected by these changes
Hello I would like to share the news with you all that our Charity Forums have recently been rebranded and renamed to reflect the condition to which each Forum provides information and support with. The Health Unlocked Team have assured us that all existing members will be unaffected by these changes
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
2 months ago
B12 made symptoms go away
Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and tremor feeling inside me. I took B12 sublingual for 2 or 3 weeks and the symptoms subsided. But then I stopped taking the B12 supplements and I have
Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and tremor feeling inside me. I took B12 sublingual for 2 or 3 weeks and the symptoms subsided. But then I stopped taking the B12 supplements and I have
MEguy
in
Pernicious Anaemia Society
7 months ago
Moderate Calcification
Good morning all, I was recently invited for a lung check and have been recalled as the scan showed moderate Calcification. As I like to be proactive and believe this is due to fatty diet, are there any recommendations for menus that will halt (improve?) This condition. My brother dies with this condition
Good morning all, I was recently invited for a lung check and have been recalled as the scan showed moderate Calcification. As I like to be proactive and believe this is due to fatty diet, are there any recommendations for menus that will halt (improve?) This condition. My brother dies with this condition
1AnneMcC
in
Healthy Eating
2 months ago
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blood test results
Hi all. I am age 24 male. History with excessive alcohol for the past 5 years. I recently got a full blood work carried out at my GP and my liver enzymes came back as ok, but I don’t really understand what any of it means. I tried calling my GP and it’s like trying to milk blood out of a stone
Hi all. I am age 24 male. History with excessive alcohol for the past 5 years. I recently got a full blood work carried out at my GP and my liver enzymes came back as ok, but I don’t really understand what any of it means. I tried calling my GP and it’s like trying to milk blood out of a stone
Uplight99
in
British Liver Trust
7 months ago
Post Amiodarone and waiting for ablation
I was on Amiodarone for 12 months after diagnosis of persistent AF post Covid and stopped taking it in October '23. I had a cardioversion in June and as far as I'm aware I'm still in sinus rhythm. I'm on the list for an ablation at the John Radcliffe in Oxford. I had a couple of blood tests, at my
I was on Amiodarone for 12 months after diagnosis of persistent AF post Covid and stopped taking it in October '23. I had a cardioversion in June and as far as I'm aware I'm still in sinus rhythm. I'm on the list for an ablation at the John Radcliffe in Oxford. I had a couple of blood tests, at my
JoDogBlue
in
Atrial Fibrillation Support
2 months ago
How much can one body take?
As if 2 strokes in 15 months plus a double lung transplant isn’t enough I have now been told I suffered a mild ( thank the Lord mild) heart attack recently which I wasn’t aware of. “Possible inferior infarct- age undetermined “ is their medical term for a myocardial arrest. Suppose on a positive note
As if 2 strokes in 15 months plus a double lung transplant isn’t enough I have now been told I suffered a mild ( thank the Lord mild) heart attack recently which I wasn’t aware of. “Possible inferior infarct- age undetermined “ is their medical term for a myocardial arrest. Suppose on a positive note
Mrbojangles
in
Lung Conditions Community Forum
1 year ago
Pressure onback causing AF
I lay on my left side today and nasty afib came on within a couple minutes same on back. I then tried lying on right side and i felt ok with my EMAY ecg saying bradycardia. I qent to GP and she will book me in for xray back and front.Colin
I lay on my left side today and nasty afib came on within a couple minutes same on back. I then tried lying on right side and i felt ok with my EMAY ecg saying bradycardia. I qent to GP and she will book me in for xray back and front.Colin
Alphakiwi
in
Atrial Fibrillation Support
2 months ago
Nausea - Levo/Thyroid symptom?
I am at a complete and utter loss. Why as I optimise dose do I feel nauseated for days now? As of a few weeks ago I’ve been alternating doses of 75mcg own day, followed by 100mcg of Levothyroxine only for hypothyroidism (Hashimoto). Same brand throughout treatment thus far. Perhaps it’s nothing to
I am at a complete and utter loss. Why as I optimise dose do I feel nauseated for days now? As of a few weeks ago I’ve been alternating doses of 75mcg own day, followed by 100mcg of Levothyroxine only for hypothyroidism (Hashimoto). Same brand throughout treatment thus far. Perhaps it’s nothing to
HealthStarDust
in
Thyroid UK
7 months ago
CT scan instead of gastroscopy / colonoscopy with all PA tests normal
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
Applethorpe
in
Pernicious Anaemia Society
4 months ago
Rheumatology consultant with specialist interest in Lupus
Hello, is anyone in the Humberside/ Lincolnshire area under a n NHS Rheumatologist that has a special interest in SLE. ( Lupus) I have moved house and need to find a new rheumatologist. Many thanks
Hello, is anyone in the Humberside/ Lincolnshire area under a n NHS Rheumatologist that has a special interest in SLE. ( Lupus) I have moved house and need to find a new rheumatologist. Many thanks
Jenfy34
in
LUPUS UK
4 months ago
IBS and Coeliac
I have managed my Coeliac disease since 2009 but last year had a colonoscopy which confirmed my new symptoms were IBS D!! I struggle to know what to eat and feel my quality of life has taken a dive. I have never been someone who gets down but this is seriously effecting my mental health. Two weeks ago
I have managed my Coeliac disease since 2009 but last year had a colonoscopy which confirmed my new symptoms were IBS D!! I struggle to know what to eat and feel my quality of life has taken a dive. I have never been someone who gets down but this is seriously effecting my mental health. Two weeks ago
Mollydav
in
IBS Network
4 months ago
multaq and increased heart beat
Hi everyone haven’t posted for a while,but reading the site daily. Had my third ablation in October 2023 mostly for atypical flutter,procedure wasn’t long but quite extensive judging from post procedure troponin elevations over 20,000.Placed on Multaq afterwards as I already failed all other meds and
Hi everyone haven’t posted for a while,but reading the site daily. Had my third ablation in October 2023 mostly for atypical flutter,procedure wasn’t long but quite extensive judging from post procedure troponin elevations over 20,000.Placed on Multaq afterwards as I already failed all other meds and
55zuzanka61
in
AF Association
2 months ago
Adrenaline buzz
(As well as PMR/GCA/LVV and interstitial
lung
disease
I’m currently being investigated for Parkinson’s.) What I’m wondering is whether I’ll still get that adrenaline ‘buzz’ or if it will be affected by the long term use of Pred? Guess I’ll soon find out, but I don’t know if anyone knows?
(As well as PMR/GCA/LVV and interstitial
lung
disease
I’m currently being investigated for Parkinson’s.) What I’m wondering is whether I’ll still get that adrenaline ‘buzz’ or if it will be affected by the long term use of Pred? Guess I’ll soon find out, but I don’t know if anyone knows?
JanetRosslyn
in
PMRGCAuk
1 year ago
eye sight affected with af
hello again to all, been off the site for a long while but like to check in now and again. My af usually only lasts a few seconds several times a day but I do get what I call bad episodes where it really affects my daily life I.e very tired more than a fair bit. The other night while moving from settee
hello again to all, been off the site for a long while but like to check in now and again. My af usually only lasts a few seconds several times a day but I do get what I call bad episodes where it really affects my daily life I.e very tired more than a fair bit. The other night while moving from settee
rubble4356
in
AF Association
2 months ago
Lynne
Hi,My name is Lynne and I am new to the Forum and to Asthma! Looking back I have been breathless going up two flights of stairs at home for a while,but another respiratory virus in November left me with fatigue,cough and breathlessness. My G.P started me on inhalers while waiting for a Spiro test.
Hi,My name is Lynne and I am new to the Forum and to Asthma! Looking back I have been breathless going up two flights of stairs at home for a while,but another respiratory virus in November left me with fatigue,cough and breathlessness. My G.P started me on inhalers while waiting for a Spiro test.
Budd1ngart1st
in
Asthma Community Forum
2 months ago
What the Heck? I thought boosting Short Chain Fatty Acids (SCFAs) was a Good Thing?
So... I'm digging into PDTom's post: Propionic acid (sodium propionate) - Does anyone have any experience? https://healthunlocked.com/cure-parkinsons/posts/150101092/propionic-acid-sodium-propionate-does-anyone-have-any-experience
And the feedback seems to be "Go Propionic Acid!" so I start
So... I'm digging into PDTom's post: Propionic acid (sodium propionate) - Does anyone have any experience? https://healthunlocked.com/cure-parkinsons/posts/150101092/propionic-acid-sodium-propionate-does-anyone-have-any-experience
And the feedback seems to be "Go Propionic Acid!" so I start
Bolt_Upright
in
Cure Parkinson's
7 months ago
My son’s PSA rose a bit today.
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
Cactus297
in
Advanced Prostate Cancer
7 months ago
My first endocrinologist visit
Hi everyone, On the 27th I have my first appointment with an endo. He ordered blood tests for me before he even spoke to me or knew what dose of pred I was taking. (I'm taking 7 mg a day now. Was doing 6.5 for a week but decided better to go back to 7 and stay for a while as I was feeling so bad with
Hi everyone, On the 27th I have my first appointment with an endo. He ordered blood tests for me before he even spoke to me or knew what dose of pred I was taking. (I'm taking 7 mg a day now. Was doing 6.5 for a week but decided better to go back to 7 and stay for a while as I was feeling so bad with
sferios
in
PMRGCAuk
7 months ago
When's the "best" time to do the scan?
Well, it appears the salvage radiation done in January '23 (RP in 2019) may have been unsuccessful, as my latest PSA came back at 0.06, 3 months prior was 0.02. Obviously not yet actionable and not yet definitive for failure, but the indication that the barbarian hordes might be regrouping is apparent
Well, it appears the salvage radiation done in January '23 (RP in 2019) may have been unsuccessful, as my latest PSA came back at 0.06, 3 months prior was 0.02. Obviously not yet actionable and not yet definitive for failure, but the indication that the barbarian hordes might be regrouping is apparent
Cackalacky_cyclist
in
Advanced Prostate Cancer
7 months ago
Is it common to get laryngitis with aps?
I have what seems like laryngitis for 4 weeks now. I'm struggling to talk for long. I'm seeing my ENT doctor Thursday for my ears and hope he will help with my throat (probably won't because it's ear clinic). Just wanted to say I haven't had any sort of virus before this I'm just wondering if aps can
I have what seems like laryngitis for 4 weeks now. I'm struggling to talk for long. I'm seeing my ENT doctor Thursday for my ears and hope he will help with my throat (probably won't because it's ear clinic). Just wanted to say I haven't had any sort of virus before this I'm just wondering if aps can
Charts
in
Hughes Syndrome APS Forum
4 months ago
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