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Had lung surgery - would you be willing to share your experience?
We have been asked to share this survey that is being carried out to seek the views of people who have had surgery across the UK and Europe. The survey is being carried out by an organisation called LUCE and supported by a distinguished UK based surgeon. The short questionaire can be completed
We have been asked to share this survey that is being carried out to seek the views of people who have had surgery across the UK and Europe. The survey is being carried out by an organisation called LUCE and supported by a distinguished UK based surgeon. The short questionaire can be completed
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
2 months ago
Bra after lung surgery?
What bras did you find most comfortable post surgery or maybe I should be asking, what bras did you find most tolerable? (Not initially after but a few weeks after surgery). Thanks in advance for your responses. I'm asking on behalf of someone else. Also, we are currently working to create a lung cancer
What bras did you find most comfortable post surgery or maybe I should be asking, what bras did you find most tolerable? (Not initially after but a few weeks after surgery). Thanks in advance for your responses. I'm asking on behalf of someone else. Also, we are currently working to create a lung cancer
Miranda_GO2
Partner
in
Lung Cancer Support
2 months ago
Interested in joining GO2's Mind Over Matter group?
What is Mind Over Matter (also known as MOM)?
In this group, you will learn tips and tools to handle the big feelings that often come up after a cancer diagnosis and treatment. This 5-week group can help you deal with the fears, worries, and sadness that come up for many people.
Who can join
What is Mind Over Matter (also known as MOM)?
In this group, you will learn tips and tools to handle the big feelings that often come up after a cancer diagnosis and treatment. This 5-week group can help you deal with the fears, worries, and sadness that come up for many people.
Who can join
Miranda_GO2
Partner
in
Lung Cancer Support
2 months ago
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First Time With Aspergillosis
MRSA bacteremia, C.Diff, sepsis x4, Multiple GI bleeds,
Lung
disease
Including COPD, chronic atelectasis, and now aspergillus. I also have a lot of other organ issues due to my mitochondrial disorder.
MRSA bacteremia, C.Diff, sepsis x4, Multiple GI bleeds,
Lung
disease
Including COPD, chronic atelectasis, and now aspergillus. I also have a lot of other organ issues due to my mitochondrial disorder.
Diffuse_Confuse
in
Aspergillosis and Rare Fungal Infection Support
4 months ago
Post radiotherapy for lung cancer
Can someone please share with me their experience after going thru radiotherapy for lung cancer? My dad had a radiotherapy for his lung cancer in Oct 2023. The radiotherapy went well with him not going thru any adverse side effects. However, now, 7 months later, he is experiencing shortness of breath
Can someone please share with me their experience after going thru radiotherapy for lung cancer? My dad had a radiotherapy for his lung cancer in Oct 2023. The radiotherapy went well with him not going thru any adverse side effects. However, now, 7 months later, he is experiencing shortness of breath
Hokiun
in
The Roy Castle Lung Cancer Foundation
3 months ago
Worried about pulmonary fibrosis if radiating the metastasis in my shoulder blade
"Pulmonary fibrosis is a
lung
disease
that occurs when
lung
tissue becomes damaged and scarred. This thickened, stiff tissue makes it harder for the lungs to work properly. Pulmonary fibrosis worsens over time.
"Pulmonary fibrosis is a
lung
disease
that occurs when
lung
tissue becomes damaged and scarred. This thickened, stiff tissue makes it harder for the lungs to work properly. Pulmonary fibrosis worsens over time.
Mascouche
in
Advanced Prostate Cancer
3 months ago
Please join us Tuesday,May 21st, for our Living Room discussion on Is a Clinical Trial Right for You?
Hello, Please join us in our San Carlos office Tuesday May 21st in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jorge J. Nieva, MD, Associate Professor of Clinical Medicine, Keck School of Medicine of USC, Medical Oncologist
Hello, Please join us in our San Carlos office Tuesday May 21st in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jorge J. Nieva, MD, Associate Professor of Clinical Medicine, Keck School of Medicine of USC, Medical Oncologist
Michelezeh
Partner
in
Lung Cancer Support
3 months ago
New approval for treatment of Small Cell Lung Cancer (SCLC)
FDA Approves Imdelltra (tarlatamab-dlle) for Extensive Stage Small Cell Lung Cancer Written by colleague, Matthew Reiss, MSE, PhD, Manager, Precision Medicine & Navigation, GO2 for Lung Cancer On May 16, 2024, the U.S. Food and Drug Administration (FDA) granted Imdelltra (tarlatamab-dlle) accelerated
FDA Approves Imdelltra (tarlatamab-dlle) for Extensive Stage Small Cell Lung Cancer Written by colleague, Matthew Reiss, MSE, PhD, Manager, Precision Medicine & Navigation, GO2 for Lung Cancer On May 16, 2024, the U.S. Food and Drug Administration (FDA) granted Imdelltra (tarlatamab-dlle) accelerated
Miranda_GO2
Partner
in
Lung Cancer Support
3 months ago
Lung cancer stage 4
Just curious - have had cancer 6 times now, breast cancer x 3; bowel; lung; 5 times all operated on & fine, now this 6th time caused by the radiotherapy I had 25 years ago for my breast cancer caused my squamous lung cancer, not operable + of course no radiotherapy as I've had the max - was only discovered
Just curious - have had cancer 6 times now, breast cancer x 3; bowel; lung; 5 times all operated on & fine, now this 6th time caused by the radiotherapy I had 25 years ago for my breast cancer caused my squamous lung cancer, not operable + of course no radiotherapy as I've had the max - was only discovered
younginmind
in
Lung Conditions Community Forum
3 months ago
Pulmonary Node revealed with PET scan not growing
During my treatment for PC the first Pet scan showed a pulmonary node. There were no Mets beyound the prostate. Three DRs., Urologist, Oncologist and Pulmonary, did not attribute the node to the PC, since it was so far removed and there were no other mets revealed. A subsquent MRI 3 months later indicated
During my treatment for PC the first Pet scan showed a pulmonary node. There were no Mets beyound the prostate. Three DRs., Urologist, Oncologist and Pulmonary, did not attribute the node to the PC, since it was so far removed and there were no other mets revealed. A subsquent MRI 3 months later indicated
Eadgbe
in
Advanced Prostate Cancer
3 months ago
Appointments
Hi not been on here for a long time as I've had nothing to say ,but I've a question I was diagnosed with non specific interstitial
lung
pneumonitis /hypersensitivity spectrum interstitial
lung
disease
in 2020 heavy scaring to both lungs my consultant was brilliant in the first 2 yrs scans breathing
Hi not been on here for a long time as I've had nothing to say ,but I've a question I was diagnosed with non specific interstitial
lung
pneumonitis /hypersensitivity spectrum interstitial
lung
disease
in 2020 heavy scaring to both lungs my consultant was brilliant in the first 2 yrs scans breathing
ProudYorky
in
Living with Interstitial Lung Disease (ILD)
6 months ago
Please join INHERIT Study
Join the INHERIT Study to help us better understand the genetic risk for lung cancer, and what can be done for prevention and treatment. Our goals are to learn more about: -Inherited or genetic risk for developing lung cancer in certain people or families -Changes in lung cancer tumors in people with
Join the INHERIT Study to help us better understand the genetic risk for lung cancer, and what can be done for prevention and treatment. Our goals are to learn more about: -Inherited or genetic risk for developing lung cancer in certain people or families -Changes in lung cancer tumors in people with
Miranda_GO2
Partner
in
Lung Cancer Support
4 months ago
Aspergillus post lung transplant.
Hi all, Haven’t been in touch for a while now but mercifully still here. Lungaversary last month which I can only describe as a stormy recovery. Trichosporon infection In clamshell wound delayed discharge by 4 weeks. 1 month in ICU with terrifying hallucinations which still haunt me today. Sternum
Hi all, Haven’t been in touch for a while now but mercifully still here. Lungaversary last month which I can only describe as a stormy recovery. Trichosporon infection In clamshell wound delayed discharge by 4 weeks. 1 month in ICU with terrifying hallucinations which still haunt me today. Sternum
Mrbojangles
in
Lung Conditions Community Forum
4 months ago
Bronchoscopy
My mom was diagnosed with pneumonia 2 weeks ago. Unfortunately 10 days of antibiotics were ineffective. She had a bronchoscopy today and while waiting for results, I was wondering if anybody else was in the same situation and what did the bronchoscopy show?
My mom was diagnosed with pneumonia 2 weeks ago. Unfortunately 10 days of antibiotics were ineffective. She had a bronchoscopy today and while waiting for results, I was wondering if anybody else was in the same situation and what did the bronchoscopy show?
nyla668
in
Lung Conditions Community Forum
4 months ago
A BIG THANKYOU To All
can’t thank you all for all the answers on my tumours too many to answer individual all you lovely people making me think positively when you all have your own health problems such a great site this is for help ..have bad COPD and other problems too so will let you all know after next CT scan wishing
can’t thank you all for all the answers on my tumours too many to answer individual all you lovely people making me think positively when you all have your own health problems such a great site this is for help ..have bad COPD and other problems too so will let you all know after next CT scan wishing
primrose71
in
Lung Conditions Community Forum
5 months ago
Exercise post surgery
Hi, I appreciate there are other more serious matters of concern but I would just like to know what types of exercise and when you started after lung surgery. I am bored with physio and less motivated to walk everyday!
Hi, I appreciate there are other more serious matters of concern but I would just like to know what types of exercise and when you started after lung surgery. I am bored with physio and less motivated to walk everyday!
GGoyster
in
The Roy Castle Lung Cancer Foundation
5 months ago
gabapentin
I had a lung operation in January to remove dead tissue ( left lobe). I was prescribed gabapentin capsules but whenever I take them I have shortness of breath my chest feels a little tight and also I feel like I want to cough. I stop taking them and things start to settle down again especially after
I had a lung operation in January to remove dead tissue ( left lobe). I was prescribed gabapentin capsules but whenever I take them I have shortness of breath my chest feels a little tight and also I feel like I want to cough. I stop taking them and things start to settle down again especially after
AllyB27
in
Lung Conditions Community Forum
5 months ago
lung transplant discussion
last week i went to south manchester hospital to discuss what i consider to be a (need) for a lung transplant I informed the doctor that id been thinking about it for a long time & done a lot of research about it in full detail & it seemed that he was impressed At the moment it was an indepth discussion
last week i went to south manchester hospital to discuss what i consider to be a (need) for a lung transplant I informed the doctor that id been thinking about it for a long time & done a lot of research about it in full detail & it seemed that he was impressed At the moment it was an indepth discussion
horseygirl_0103
in
Lung Conditions Community Forum
5 months ago
Lung cancer
Diagnosed with lung cancer very high in lung, Doctor says it's very difficult to get for biopsy, and then tells me that as I weigh 130 kg I might not be suitable for radiotherapy, is this right?
Diagnosed with lung cancer very high in lung, Doctor says it's very difficult to get for biopsy, and then tells me that as I weigh 130 kg I might not be suitable for radiotherapy, is this right?
Marydoll55
in
The Roy Castle Lung Cancer Foundation
5 months ago
Lung Transplantation
Hello, I just wanted to ask the community whether they had been through the process of being assessed for a lung transplant or not? What was your experience with the assessment? Did you get accepted as a transplant candidate? What condition did you have that led you to get assessed? Where their any
Hello, I just wanted to ask the community whether they had been through the process of being assessed for a lung transplant or not? What was your experience with the assessment? Did you get accepted as a transplant candidate? What condition did you have that led you to get assessed? Where their any
mrblue12
in
Lung Conditions Community Forum
5 months ago
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