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Update on hubby Nov 2022
Hubby saw Hepatology Registrar yesterday. We have some great news to share. Hubbys liver is no longer Decompensated, it is now compensated 🎉 so he has gone from stage 4 ARLD to stage 3 ARLD 🎉. The hepatic encephalopathy systems have gone, so he is no longer on that medication. The Ascites & Odeoma
Hubby saw Hepatology Registrar yesterday. We have some great news to share. Hubbys liver is no longer Decompensated, it is now compensated 🎉 so he has gone from stage 4 ARLD to stage 3 ARLD 🎉. The hepatic encephalopathy systems have gone, so he is no longer on that medication. The Ascites & Odeoma
mumof3girls
in
British Liver Trust
2 years ago
ICU stay
I was admitted to hospital at the end of April after months of nausea, vomiting, diarrhoea and fatigue. I remember the ambulance but not entering the hospital. I was placed in an induced coma and ventilated for five days due to extensive brain swelling, respiratory distress, suspected abdominal sepsis
I was admitted to hospital at the end of April after months of nausea, vomiting, diarrhoea and fatigue. I remember the ambulance but not entering the hospital. I was placed in an induced coma and ventilated for five days due to extensive brain swelling, respiratory distress, suspected abdominal sepsis
Kilsby75
in
ICUsteps
2 years ago
Kidney Transplant
Has anyone else here had more than one transplant?
Has anyone else here had more than one transplant?
Leekee
in
Kidney Transplant
2 years ago
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Bizarre fibro scan reading
So after decades of alcohol abuse I had a CT scan of my liver 2 years ago. The report said " The parenchyma demonstrates increased echogenicity and coarse echotexture. Appearances are suggestive of early cirrhotic changes.." and also received a text message from the doctor saying "your liver scan confirms
So after decades of alcohol abuse I had a CT scan of my liver 2 years ago. The report said " The parenchyma demonstrates increased echogenicity and coarse echotexture. Appearances are suggestive of early cirrhotic changes.." and also received a text message from the doctor saying "your liver scan confirms
jimbo1234
in
British Liver Trust
2 years ago
People of HealthUnlocked - COPD: Preparing for a Double Lung Transplant
COVID-19 disproportionately impacted some more than others. Although we were all thrust into uncertainty when the pandemic hit, arguably, those with lung conditions were at the forefront of concern. Today, Bernadette tells us about her story of living with chronic obstructive pulmonary disease (COPD)
COVID-19 disproportionately impacted some more than others. Although we were all thrust into uncertainty when the pandemic hit, arguably, those with lung conditions were at the forefront of concern. Today, Bernadette tells us about her story of living with chronic obstructive pulmonary disease (COPD)
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
2 years ago
Problem with spleen and platelets
Hi all, I’ve not posted before, but have been reading these posts daily since mid April when I came out of hospital having been admitted as an emergency with badly bleeding varicies a week earlier. I found out that I had quietly developed decompensated Cirrhosis from a diagnosis of fatty liver about
Hi all, I’ve not posted before, but have been reading these posts daily since mid April when I came out of hospital having been admitted as an emergency with badly bleeding varicies a week earlier. I found out that I had quietly developed decompensated Cirrhosis from a diagnosis of fatty liver about
JAM44
in
British Liver Trust
2 years ago
interpreting results
Hi, hope you are all coping OK. I just have a little query. I was diagnosed during covid lockdown and it was a complete shock. Fatty liver had only ever been mentioned as an aside when looking for other things. My latest letter from my consultant says "compensated Nash cirrhosis,
Hi, hope you are all coping OK. I just have a little query. I was diagnosed during covid lockdown and it was a complete shock. Fatty liver had only ever been mentioned as an aside when looking for other things. My latest letter from my consultant says "compensated Nash cirrhosis,
sheperd86
in
British Liver Trust
2 years ago
"Very abnormal LFT" + urgent fast track ultra-sound referral?
Morning all, I was wondering if anyone could offer some insight (or reassurance!) into some recent results I've had. My LFT were flagged as high back in June, Dr thought it could be due to really low vitamin D levels but after a 12 week high dose course of that (which is now fine) my liver function
Morning all, I was wondering if anyone could offer some insight (or reassurance!) into some recent results I've had. My LFT were flagged as high back in June, Dr thought it could be due to really low vitamin D levels but after a 12 week high dose course of that (which is now fine) my liver function
Stephskie2005
in
British Liver Trust
2 years ago
How to become an advocate for kidney health
NKF advocates have won a number of policy campaigns both in Congress and state capitals across the country - but we're not done yet. We discussed some recent wins and upcoming challenges for the kidney advocate community with Jeff Currey, a Connecticut State Representative and kidney transplant recipient
NKF advocates have won a number of policy campaigns both in Congress and state capitals across the country - but we're not done yet. We discussed some recent wins and upcoming challenges for the kidney advocate community with Jeff Currey, a Connecticut State Representative and kidney transplant recipient
JackieJ_NKF
Partner
in
Kidney Donation
2 years ago
Possible brain lymphoma
Hi, my husband is waiting for a biopsy to check a lesion in his brain. His neurosurgeon told us it seems like lymphoma from MRI scan image, which is common among people on immunosuppressant after organ transplant. I have been feeling completely broken since he had emergency MRI two weeks ago. Our
Hi, my husband is waiting for a biopsy to check a lesion in his brain. His neurosurgeon told us it seems like lymphoma from MRI scan image, which is common among people on immunosuppressant after organ transplant. I have been feeling completely broken since he had emergency MRI two weeks ago. Our
Springbunny
in
British Liver Trust
2 years ago
double lungs transplant
I was diagnosed with pulmonary sarcoidosis in 2020. My condition has worsened over the years to were I now have to been on oxygen all the time m ..I've recently been put on the list for a double lungs transplant after undergoing different test at Birmingham queens hospital .. After reading there
I was diagnosed with pulmonary sarcoidosis in 2020. My condition has worsened over the years to were I now have to been on oxygen all the time m ..I've recently been put on the list for a double lungs transplant after undergoing different test at Birmingham queens hospital .. After reading there
Purpal
in
Lung Conditions Community Forum
2 years ago
Regression of Varices
Hi all, Following up on my mom's condition, she was diagnosed with PBC resulting in Cirrhosis two years ago. She was diagnosed quite late when there was already synthetic dysfunction and peripheral edema. Before treatment started she underwent endoscopy which revealed stage 1 esophageal varices. She
Hi all, Following up on my mom's condition, she was diagnosed with PBC resulting in Cirrhosis two years ago. She was diagnosed quite late when there was already synthetic dysfunction and peripheral edema. Before treatment started she underwent endoscopy which revealed stage 1 esophageal varices. She
Shon1234
in
PBC Foundation
2 years ago
Joining the Group
Hi, Folks. I am joining as a newly diagnosed SLL patient, currently under treatment with BTKi and Gazyva. So far, I have read through many posts and have been comforted by your experiences and ways of coping with our ongoing immunity issues. I honestly feel very confident that these new treatments
Hi, Folks. I am joining as a newly diagnosed SLL patient, currently under treatment with BTKi and Gazyva. So far, I have read through many posts and have been comforted by your experiences and ways of coping with our ongoing immunity issues. I honestly feel very confident that these new treatments
tleachhsv
in
CLL America Support
2 years ago
blood test results
Hi, I’m hoping someone can give some reassurance. receptionist from gp surgery called today with repeat blood test results to say my GGT levels were high and to avoid alcohol. I’ve booked a telephone consultation with a gp Monday to discuss these results. I had bloods done in august which they said my
Hi, I’m hoping someone can give some reassurance. receptionist from gp surgery called today with repeat blood test results to say my GGT levels were high and to avoid alcohol. I’ve booked a telephone consultation with a gp Monday to discuss these results. I had bloods done in august which they said my
Calll
in
British Liver Trust
2 years ago
after kidney transplants
I am 8 months post on 8/14 it has been almost too easy and I am so thankful but my numbers have always been low for a living donor. My doctors tell me everybody is different and no to get caught up in my numbers. I feel great so I suppose if my team is not concerned I should not be either. They have
I am 8 months post on 8/14 it has been almost too easy and I am so thankful but my numbers have always been low for a living donor. My doctors tell me everybody is different and no to get caught up in my numbers. I feel great so I suppose if my team is not concerned I should not be either. They have
Porter20
in
Kidney Transplant
2 years ago
Seeking one volunteer to work conference booth in November
Blue Faery is seeking a volunteer to work our conference booth at the annual AASLD Liver Meeting in Washington DC from Friday, November 4 to Monday, November 7. Learn more about the meeting here: https://www.aasld.org/the-liver-meeting
You must be outgoing, energetic, and willing to speak to anyone
Blue Faery is seeking a volunteer to work our conference booth at the annual AASLD Liver Meeting in Washington DC from Friday, November 4 to Monday, November 7. Learn more about the meeting here: https://www.aasld.org/the-liver-meeting
You must be outgoing, energetic, and willing to speak to anyone
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
2 years ago
Tests before a liver transplant
I've been told that I will have a
liver
transplant
. I've been told also that I need test done.... heart.... lungs ect. Can anyone tell me what the test are and length of time doin the tests please. As you can imagine I'm s%%ting it. Lol. Thanks x
I've been told that I will have a
liver
transplant
. I've been told also that I need test done.... heart.... lungs ect. Can anyone tell me what the test are and length of time doin the tests please. As you can imagine I'm s%%ting it. Lol. Thanks x
marknash67
in
British Liver Trust
2 years ago
34yr old mum in need of support with liver cirrhosis...
Hi I'm new to this group. I'm desperate for support as am scared... not for myself but my 2 kids. I'm 34yrs old-diagnosed at 18 with diabetes,under- active thyroid, NASH,retinopathy and neurological issues. I coped and brought my kids up. In 2019 I lost 5 stone within a year. My liver healed and LFT
Hi I'm new to this group. I'm desperate for support as am scared... not for myself but my 2 kids. I'm 34yrs old-diagnosed at 18 with diabetes,under- active thyroid, NASH,retinopathy and neurological issues. I coped and brought my kids up. In 2019 I lost 5 stone within a year. My liver healed and LFT
Hidden
in
British Liver Trust
2 years ago
ATG treatment /Rabbit antigens
Hi as previously explained I am awaiting bone marrow transplant. Have been told I will need rabbit antigens or ATG ahead of the process. From what the consultant has said it can cause lots of side effects eg high temp amongst other things. Has anybody else had this treatment? Thanks Joanne
Hi as previously explained I am awaiting bone marrow transplant. Have been told I will need rabbit antigens or ATG ahead of the process. From what the consultant has said it can cause lots of side effects eg high temp amongst other things. Has anybody else had this treatment? Thanks Joanne
Platelets2022
in
Leukaemia Support
2 years ago
UNOS Regions
I'm considering being referred to another hospital for a preemptive transplant but both are in the same USOS Region. They are different states, one in KS and the other in MO. The one in KS is closest but the one in MO says they have a shorter wait time AND the website has all sorts of information on
I'm considering being referred to another hospital for a preemptive transplant but both are in the same USOS Region. They are different states, one in KS and the other in MO. The one in KS is closest but the one in MO says they have a shorter wait time AND the website has all sorts of information on
horsie63
in
Kidney Transplant
2 years ago
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