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Liver transplant
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Coping
My story starting in 2020,light headed,weight loss,in and out if the toilet.When i eventually went to the hospital was tokd Cirrhosis,been in and out since,they never explained diet so i have had a couple of burst blood vessels not nice. Now i am aware this us my 1st week of rabbit food!! No booze for
My story starting in 2020,light headed,weight loss,in and out if the toilet.When i eventually went to the hospital was tokd Cirrhosis,been in and out since,they never explained diet so i have had a couple of burst blood vessels not nice. Now i am aware this us my 1st week of rabbit food!! No booze for
Rawai
in
British Liver Trust
4 months ago
Has methotrexate caused liver damage
I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a liver fibroscan tommorrow to check for fatty liver. Very anxious but will need to take it one step at a time. Any guidance and advice welcome
I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a liver fibroscan tommorrow to check for fatty liver. Very anxious but will need to take it one step at a time. Any guidance and advice welcome
Beanyynwa
in
NRAS
4 months ago
for all new members of late.....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
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first line treatment with bendamustin and rithoximab
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
09123836306
in
CLL Support
4 months ago
highest liver - don’t know why think it’s thyroid
Hi any idea why so high Zero alcohol drugs or sex I did hve carbs for a week as needed to put on weight I had Hida scan 5 days before test - gallbladder fine I stopped all supplements except NAC for a week I used to take milk thistle before and my Enzymes were lower . Everyone warns against
Hi any idea why so high Zero alcohol drugs or sex I did hve carbs for a week as needed to put on weight I had Hida scan 5 days before test - gallbladder fine I stopped all supplements except NAC for a week I used to take milk thistle before and my Enzymes were lower . Everyone warns against
Chouchou1234
in
Thyroid UK
4 months ago
Fibroscan results
Find Your Fibrosis ScoreDisease Diagnosis Liver Stiffness Result Your Liver Cholestatic Disease 2 to 7 kPa Is normal. 7 to 9 kPa Has moderate scarring. 9 to 17 kPa Has severe scarring. 17 kPa or higher Has cirrhosis.
Find Your Fibrosis ScoreDisease Diagnosis Liver Stiffness Result Your Liver Cholestatic Disease 2 to 7 kPa Is normal. 7 to 9 kPa Has moderate scarring. 9 to 17 kPa Has severe scarring. 17 kPa or higher Has cirrhosis.
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
48 hour assessment test for transplant
I am going to have a
liver
transplant
assessment in two weeks time. I am so pleased to have made it to assessment but what are the odd of being taken on and being put forward for transplant thanks for any advice ali
I am going to have a
liver
transplant
assessment in two weeks time. I am so pleased to have made it to assessment but what are the odd of being taken on and being put forward for transplant thanks for any advice ali
Mitmab
in
British Liver Trust
1 year ago
Wednesday's 'Word'
[u][i]
Hepatocytes -
[/i][/u] These are simply the cells of the liver. Each of these cells performs all of the functions of the liver - there is no difference in what any of them do for us. Liver failure occurs when there are not enough functioning hepatocytes to do all the functions they are
[u][i]
Hepatocytes -
[/i][/u] These are simply the cells of the liver. Each of these cells performs all of the functions of the liver - there is no difference in what any of them do for us. Liver failure occurs when there are not enough functioning hepatocytes to do all the functions they are
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Healthy liver to Cirrhosis
Hello, approximately two years ago I was submitted to hospital with Jaundice after a binge drinking session. I was given an Ultrasound, and told that my results were “clear” and that my liver was normal sized and regular in outline. I was released the next day and given a prescription of Thymine .
Hello, approximately two years ago I was submitted to hospital with Jaundice after a binge drinking session. I was given an Ultrasound, and told that my results were “clear” and that my liver was normal sized and regular in outline. I was released the next day and given a prescription of Thymine .
DJK78
in
British Liver Trust
4 months ago
Ascites
Hi in June 2019 whilst on holiday in Italy my tummy swelled up a n d I felt unwell on return to England was taken to hospital when my tummy was drained and I was diagnosed with liver cirrhosisI have never been a big drinker so was very shocked since then I don't have a drink and very careful with salt
Hi in June 2019 whilst on holiday in Italy my tummy swelled up a n d I felt unwell on return to England was taken to hospital when my tummy was drained and I was diagnosed with liver cirrhosisI have never been a big drinker so was very shocked since then I don't have a drink and very careful with salt
Rookery31
in
British Liver Trust
4 months ago
Prescription drug induced Fibrosis
Hi. Wondering if anyone on here has had the above diagnosis. The drug involved was Nitrofuratan. The Consultant has told me the scarring will not heal.
Hi. Wondering if anyone on here has had the above diagnosis. The drug involved was Nitrofuratan. The Consultant has told me the scarring will not heal.
Suekee2
in
British Liver Trust
4 months ago
care options for H.E and decompensated cirrhosis
Hey, hoping for some advice on care options for someone suffering with cirrhosis and H.E My dad was diagnosed this January, but clearly quite late on - he has since had 4 hospital admissions due to severe (stage 3) H.E and one time he went into coma (stage 4). This latest admission lasted 2 weeks
Hey, hoping for some advice on care options for someone suffering with cirrhosis and H.E My dad was diagnosed this January, but clearly quite late on - he has since had 4 hospital admissions due to severe (stage 3) H.E and one time he went into coma (stage 4). This latest admission lasted 2 weeks
Concerneddaughter33
in
British Liver Trust
4 months ago
Liver transplant aborted
I was called for my first
transplant
the next day at 4am, It was a DCD
liver
. On arrival at the hospital I was tested (blood, chest xray, ecg) and told I would have to wait to see how things developed.
I was called for my first
transplant
the next day at 4am, It was a DCD
liver
. On arrival at the hospital I was tested (blood, chest xray, ecg) and told I would have to wait to see how things developed.
Shep666
in
British Liver Trust
1 year ago
Coarsened Hepatic Echotexture
This finding is from the newest elastography. I thought I was doing everything right. KPA in 2022 was 10.5 F2-F.3, now it's 5.5 F0-F0-F1. I quit drinking alcohol in 2020, went on Mediterranean diet, and walk 1-3 miles per day. The only vice I have is baked goods, cookies, cake, and candy. 2022
This finding is from the newest elastography. I thought I was doing everything right. KPA in 2022 was 10.5 F2-F.3, now it's 5.5 F0-F0-F1. I quit drinking alcohol in 2020, went on Mediterranean diet, and walk 1-3 miles per day. The only vice I have is baked goods, cookies, cake, and candy. 2022
Evelyn22
in
British Liver Trust
4 months ago
Urso Calculator
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Wednesday's 'Word'
[u][i]
NAFLD -
[/i][/u] Non alcoholic fatty liver disease. This is very common, characterized by deposits of fat in the liver cells. When these deposits cause inflammation and fat cells build up, it is known as [u][i]
NASH
[/i][/u] or non alcoholic steatohepatitis. It is often very common
[u][i]
NAFLD -
[/i][/u] Non alcoholic fatty liver disease. This is very common, characterized by deposits of fat in the liver cells. When these deposits cause inflammation and fat cells build up, it is known as [u][i]
NASH
[/i][/u] or non alcoholic steatohepatitis. It is often very common
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Holiday insurance
Anyone been going on holiday not sure about insurance answered as best I can but varices question stuck o now no acites swelling gone down one report from 2021 decsaid grade one varices but none now never had tied or tipped or whatever goes with varices no bleeding n no
liver
transplant
mentioned not
Anyone been going on holiday not sure about insurance answered as best I can but varices question stuck o now no acites swelling gone down one report from 2021 decsaid grade one varices but none now never had tied or tipped or whatever goes with varices no bleeding n no
liver
transplant
mentioned not
Morkmindy
in
British Liver Trust
1 year ago
Liver hemangiona
hi, I’ve just been told I have a small lover hemangiona. My mum passed away in September and her post mortem revealed advanced cancer of the gall bladder, bile ducts and liver lessions. I am told there is nothing to worry about but I have all the same symptoms my mum use to get, jaundiced eyes, swelling
hi, I’ve just been told I have a small lover hemangiona. My mum passed away in September and her post mortem revealed advanced cancer of the gall bladder, bile ducts and liver lessions. I am told there is nothing to worry about but I have all the same symptoms my mum use to get, jaundiced eyes, swelling
helnetball
in
British Liver Trust
4 months ago
Fibroscan Result - False?
Good Morning Everyone, I have been diagnosed with early cirrhosis last summer (July 2023) and have a Child Pugh A and a meld of 9. I have done two Elastology ultrasounds - first in July was 11.8 kpa and the second Nov 1st was 9.0 kpa. My liver enzymes are all in line and came back in line within
Good Morning Everyone, I have been diagnosed with early cirrhosis last summer (July 2023) and have a Child Pugh A and a meld of 9. I have done two Elastology ultrasounds - first in July was 11.8 kpa and the second Nov 1st was 9.0 kpa. My liver enzymes are all in line and came back in line within
Confused2024
in
British Liver Trust
4 months ago
What does having a NEW KIDNEY feel like?
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Imaanforever
in
Kidney Dialysis
7 months ago
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