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Ascites
Hi in June 2019 whilst on holiday in Italy my tummy swelled up a n d I felt unwell on return to England was taken to hospital when my tummy was drained and I was diagnosed with liver cirrhosisI have never been a big drinker so was very shocked since then I don't have a drink and very careful with salt
Hi in June 2019 whilst on holiday in Italy my tummy swelled up a n d I felt unwell on return to England was taken to hospital when my tummy was drained and I was diagnosed with liver cirrhosisI have never been a big drinker so was very shocked since then I don't have a drink and very careful with salt
Rookery31
in
British Liver Trust
3 months ago
Prescription drug induced Fibrosis
Hi. Wondering if anyone on here has had the above diagnosis. The drug involved was Nitrofuratan. The Consultant has told me the scarring will not heal.
Hi. Wondering if anyone on here has had the above diagnosis. The drug involved was Nitrofuratan. The Consultant has told me the scarring will not heal.
Suekee2
in
British Liver Trust
3 months ago
care options for H.E and decompensated cirrhosis
Hey, hoping for some advice on care options for someone suffering with cirrhosis and H.E My dad was diagnosed this January, but clearly quite late on - he has since had 4 hospital admissions due to severe (stage 3) H.E and one time he went into coma (stage 4). This latest admission lasted 2 weeks
Hey, hoping for some advice on care options for someone suffering with cirrhosis and H.E My dad was diagnosed this January, but clearly quite late on - he has since had 4 hospital admissions due to severe (stage 3) H.E and one time he went into coma (stage 4). This latest admission lasted 2 weeks
Concerneddaughter33
in
British Liver Trust
3 months ago
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Coarsened Hepatic Echotexture
This finding is from the newest elastography. I thought I was doing everything right. KPA in 2022 was 10.5 F2-F.3, now it's 5.5 F0-F0-F1. I quit drinking alcohol in 2020, went on Mediterranean diet, and walk 1-3 miles per day. The only vice I have is baked goods, cookies, cake, and candy. 2022
This finding is from the newest elastography. I thought I was doing everything right. KPA in 2022 was 10.5 F2-F.3, now it's 5.5 F0-F0-F1. I quit drinking alcohol in 2020, went on Mediterranean diet, and walk 1-3 miles per day. The only vice I have is baked goods, cookies, cake, and candy. 2022
Evelyn22
in
British Liver Trust
4 months ago
Re Introduction Hi everyone
Hi everyone My name is sara brown.I joined this community a long time ago because I was diagnosed with ILD in 2019 but havent posted for years so I thought Id better re-introduce myself A lot has happened to me -I have been put on Oxygen 24/7 at home which does limit my going out for example
Hi everyone My name is sara brown.I joined this community a long time ago because I was diagnosed with ILD in 2019 but havent posted for years so I thought Id better re-introduce myself A lot has happened to me -I have been put on Oxygen 24/7 at home which does limit my going out for example
horseygirl_0103
in
Living with Interstitial Lung Disease (ILD)
7 months ago
Urso Calculator
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Wednesday's 'Word'
[u][i]
NAFLD -
[/i][/u] Non alcoholic fatty liver disease. This is very common, characterized by deposits of fat in the liver cells. When these deposits cause inflammation and fat cells build up, it is known as [u][i]
NASH
[/i][/u] or non alcoholic steatohepatitis. It is often very common
[u][i]
NAFLD -
[/i][/u] Non alcoholic fatty liver disease. This is very common, characterized by deposits of fat in the liver cells. When these deposits cause inflammation and fat cells build up, it is known as [u][i]
NASH
[/i][/u] or non alcoholic steatohepatitis. It is often very common
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Liver hemangiona
hi, I’ve just been told I have a small lover hemangiona. My mum passed away in September and her post mortem revealed advanced cancer of the gall bladder, bile ducts and liver lessions. I am told there is nothing to worry about but I have all the same symptoms my mum use to get, jaundiced eyes, swelling
hi, I’ve just been told I have a small lover hemangiona. My mum passed away in September and her post mortem revealed advanced cancer of the gall bladder, bile ducts and liver lessions. I am told there is nothing to worry about but I have all the same symptoms my mum use to get, jaundiced eyes, swelling
helnetball
in
British Liver Trust
4 months ago
Fibroscan Result - False?
Good Morning Everyone, I have been diagnosed with early cirrhosis last summer (July 2023) and have a Child Pugh A and a meld of 9. I have done two Elastology ultrasounds - first in July was 11.8 kpa and the second Nov 1st was 9.0 kpa. My liver enzymes are all in line and came back in line within
Good Morning Everyone, I have been diagnosed with early cirrhosis last summer (July 2023) and have a Child Pugh A and a meld of 9. I have done two Elastology ultrasounds - first in July was 11.8 kpa and the second Nov 1st was 9.0 kpa. My liver enzymes are all in line and came back in line within
Confused2024
in
British Liver Trust
4 months ago
Taste alteration
Hi, Has anyone experienced loss of taste after transplant? My partner says everything tastes absolutely horrendous. Will this come back?!
Hi, Has anyone experienced loss of taste after transplant? My partner says everything tastes absolutely horrendous. Will this come back?!
Gemmax
in
British Liver Trust
4 months ago
delay..
I need to apologize to so many of our newer members. Beginning in this role February 1st, I am still learning. I just found out, being new as the facilitator of this amazing group, how to find the names of the 'new' members..... let me introduce myself to all of you. Hi - and welcome! My name is
I need to apologize to so many of our newer members. Beginning in this role February 1st, I am still learning. I just found out, being new as the facilitator of this amazing group, how to find the names of the 'new' members..... let me introduce myself to all of you. Hi - and welcome! My name is
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Lung Transplant appointment 28/11/23 Cancellled for the 2nd time due to Failure of Patient Transport
I was supposed to be having my lung transplant assessment today (28/11) at 2.45 but as before the NWAS didnt turn up. The manager at the Transplant section phoned & told me if I didnt come to the hospital they wouldn't see me. We had to explain we were waiting for the ambulance - he then cancelled the
I was supposed to be having my lung transplant assessment today (28/11) at 2.45 but as before the NWAS didnt turn up. The manager at the Transplant section phoned & told me if I didnt come to the hospital they wouldn't see me. We had to explain we were waiting for the ambulance - he then cancelled the
Sara_2611
in
Lung Conditions Community Forum
7 months ago
A medical professionals responsibility
Last year before Christmas I had a routine blood test that showed a reduced platelet count. Went from 160 18 months ago to 139. I had been going though a period of very heavy drinking (day and night) in the two months prior to the test. I went to see the Doctor as he called and asked me to come in that
Last year before Christmas I had a routine blood test that showed a reduced platelet count. Went from 160 18 months ago to 139. I had been going though a period of very heavy drinking (day and night) in the two months prior to the test. I went to see the Doctor as he called and asked me to come in that
PeterSmith1998
in
British Liver Trust
4 months ago
MELD and UKELD score
Hello everyone, I have Autoimmune hepatitis and have progressed to cirrhosis. I have a MELD score of 23 but i’m not sure how to get my UKELD score. I googled a calculator for UKELD score but it took me to a MELD calculator. My hepatologist is seeing me in 3 minths and I just want to find out where I
Hello everyone, I have Autoimmune hepatitis and have progressed to cirrhosis. I have a MELD score of 23 but i’m not sure how to get my UKELD score. I googled a calculator for UKELD score but it took me to a MELD calculator. My hepatologist is seeing me in 3 minths and I just want to find out where I
Trish02
in
British Liver Trust
4 months ago
The whites of your eyes?
Sorry to bother but these last several days the whites of my eyes are grayish and bloodshot when I wake. Not yellow though. They get better as the day goes on but its curious to me and slightly worrisome. Will be weeks before I can see my liver dr. Has anyone else had this? Is it a common side effect
Sorry to bother but these last several days the whites of my eyes are grayish and bloodshot when I wake. Not yellow though. They get better as the day goes on but its curious to me and slightly worrisome. Will be weeks before I can see my liver dr. Has anyone else had this? Is it a common side effect
CuriousFish
in
British Liver Trust
4 months ago
confused?
Just want to say that although I am confused I am also thankful with the results I received following an US. Making this short I have been diagnosed with Cryptogenic cirrhosis following abnormal bloods and Fibroscan. As per NICE guidelines I have bloods taken every 6 months and US. I have also had
Just want to say that although I am confused I am also thankful with the results I received following an US. Making this short I have been diagnosed with Cryptogenic cirrhosis following abnormal bloods and Fibroscan. As per NICE guidelines I have bloods taken every 6 months and US. I have also had
0range5520
in
British Liver Trust
4 months ago
AST/ALT Ratio
I've just joined as I've been worrying myself sick with online data regarding AST/ALT ratio. My liver function test results came back within range but when I use the ratio calculator it says I have liver cerrhosis or chronic hepatitis. Thanks for any help.
I've just joined as I've been worrying myself sick with online data regarding AST/ALT ratio. My liver function test results came back within range but when I use the ratio calculator it says I have liver cerrhosis or chronic hepatitis. Thanks for any help.
Mack89
in
British Liver Trust
4 months ago
Child Pugh A5 UKELD 46
hi I received ultrasound results although not sure what they mean and no follow up arranged. . Can anyone advise? Cirrhosis - cryptogenic/Azathioprine-induced Ultrasound shows features in keeping with stable cirrhosis; with a splenomegaly (15cm), but no focal lesions and no ascites. Your most recent
hi I received ultrasound results although not sure what they mean and no follow up arranged. . Can anyone advise? Cirrhosis - cryptogenic/Azathioprine-induced Ultrasound shows features in keeping with stable cirrhosis; with a splenomegaly (15cm), but no focal lesions and no ascites. Your most recent
Bucket13
in
British Liver Trust
4 months ago
Relief for swollen feet ....
Hello, An update, my son has been put forward for an assessment for a
liver
transplant
. There may be light at the end of the tunnel and we know there is still a long way to go, it gives us hope.I was wondering if anyone has any tips on any relief for very swollen feet due to oedema..
Hello, An update, my son has been put forward for an assessment for a
liver
transplant
. There may be light at the end of the tunnel and we know there is still a long way to go, it gives us hope.I was wondering if anyone has any tips on any relief for very swollen feet due to oedema..
Charlieathome
in
British Liver Trust
1 year ago
latest news on liver transplants fo4 young people
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
Harriet-sarah
in
British Liver Trust
11 months ago
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