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caregiver for family member
My mil is a 65-year-old woman who has been on dialysis for over a year. She has had CKD for 20+ years, along with diabetes, HTN, and arthritis. I was looking for community online support because sometimes we feel information overloaded. She has been suffering from severe itching, and nothing seems to
My mil is a 65-year-old woman who has been on dialysis for over a year. She has had CKD for 20+ years, along with diabetes, HTN, and arthritis. I was looking for community online support because sometimes we feel information overloaded. She has been suffering from severe itching, and nothing seems to
sehaj
in
Kidney Disease
7 months ago
Hi everyone and Happy New Year
my name is Jill and it’s been along while since I’ve posted anything. I was diagnosed in 1999. Aged 39. Despite being very unwell for months and being ‘fobbed ’ off by my Gp. By the time I was diagnosed I had Saddle Nose deformity. Like alot of you even as a nurse I was very scared and felt alone
my name is Jill and it’s been along while since I’ve posted anything. I was diagnosed in 1999. Aged 39. Despite being very unwell for months and being ‘fobbed ’ off by my Gp. By the time I was diagnosed I had Saddle Nose deformity. Like alot of you even as a nurse I was very scared and felt alone
Essex-jill
in
Vasculitis UK
7 months ago
Milk thistle
Good morning, I was just wondering if anyone has tried milk thistle to try and improve cirrhosis of the liver and to add bile salts to the body?
Good morning, I was just wondering if anyone has tried milk thistle to try and improve cirrhosis of the liver and to add bile salts to the body?
Hidden
in
British Liver Trust
4 months ago
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Not Eating
Hi Everyone, I've not been on here for a while but could do with some advice. My partner has been in hospital twice over the last 3 years with alcoholic hepatitis (the second time his liver was failing but the steroids seemed to work) and he was back to normal. Almost a year on from his last hospital
Hi Everyone, I've not been on here for a while but could do with some advice. My partner has been in hospital twice over the last 3 years with alcoholic hepatitis (the second time his liver was failing but the steroids seemed to work) and he was back to normal. Almost a year on from his last hospital
MissS_Zebra9
in
British Liver Trust
4 months ago
Liver stent
Hi.im new here .my husband was diagnosed with cirrhosis Nash last year.. fluid gathers very quickly and every 3/4weeks he has it drained.doctor is talking about a liver stent.has anyone had this and had it been successful.thanks
Hi.im new here .my husband was diagnosed with cirrhosis Nash last year.. fluid gathers very quickly and every 3/4weeks he has it drained.doctor is talking about a liver stent.has anyone had this and had it been successful.thanks
Gweans
in
British Liver Trust
4 months ago
organizing
I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and Rare Liver Diseases Director, Kristin Hatcher, from the Global Liver Institute. She is trying to lobby for a routine liver panel to be part
I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and Rare Liver Diseases Director, Kristin Hatcher, from the Global Liver Institute. She is trying to lobby for a routine liver panel to be part
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
blood test results for liver. Advice welcome please
maybe I don’t need to be on this page, but thought I’d put the question out there. Up until recently my husband’s blood test results have always been pretty good. But around the time he was diagnosed with chronic degenerative spinal disease, his liver results have gone a bit awry. However, at the
maybe I don’t need to be on this page, but thought I’d put the question out there. Up until recently my husband’s blood test results have always been pretty good. But around the time he was diagnosed with chronic degenerative spinal disease, his liver results have gone a bit awry. However, at the
Doraflora
in
British Liver Trust
4 months ago
Erectile disfunction
Hi, since I have had a
liver
transplant
I have struggled to maintain an erection.My consultant has sent me for tests, I think they tested my testosterone levels but everything seems okay. Since my transplant in October 2021. I have got cirrhosis again.
Hi, since I have had a
liver
transplant
I have struggled to maintain an erection.My consultant has sent me for tests, I think they tested my testosterone levels but everything seems okay. Since my transplant in October 2021. I have got cirrhosis again.
Refs
in
British Liver Trust
1 year ago
Liver disease, mast cells and antihistamine
I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a treatment.. I wondered if anything was known about autoimmune liver diseases, mast cells and antihistamines. I found this 2017 research paper https://
I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a treatment.. I wondered if anything was known about autoimmune liver diseases, mast cells and antihistamines. I found this 2017 research paper https://
Readlots
in
PBC Foundation
4 months ago
4 months post transplant
Is been at least 4 months post
liver
transplant
. I would like to know from patients with experience how long it'll take for me to stop getting tired easily and still shaky sometimes? I also have on and off severe headaches and my appetite is the worse.....
Is been at least 4 months post
liver
transplant
. I would like to know from patients with experience how long it'll take for me to stop getting tired easily and still shaky sometimes? I also have on and off severe headaches and my appetite is the worse.....
Kamx
in
British Liver Trust
2 years ago
Why am I being tested for Hep B?
I have had Budd Chiari for nearly 14 years, I have a shunt and luckily everything has been going fine since then. I have an app every 6 months for an ultrasound scan, then my outpatient app and bloods taken. I had an appointment yesterday and like normal I was in and out quite quickly as the scan showed
I have had Budd Chiari for nearly 14 years, I have a shunt and luckily everything has been going fine since then. I have an app every 6 months for an ultrasound scan, then my outpatient app and bloods taken. I had an appointment yesterday and like normal I was in and out quite quickly as the scan showed
Holsb
in
British Liver Trust
4 months ago
Lumps, bumps & hernias
I'm posting to find out if anyone else has similar issues to myself. I have cirrhosis, was diagnosed around 9 years ago, have no ascites or varices, but I do have portal vein hypertension and a grossly enlarged spleen. About a year ago I started noticing small veins on my stomach, I think they are called
I'm posting to find out if anyone else has similar issues to myself. I have cirrhosis, was diagnosed around 9 years ago, have no ascites or varices, but I do have portal vein hypertension and a grossly enlarged spleen. About a year ago I started noticing small veins on my stomach, I think they are called
tonicwater
in
British Liver Trust
4 months ago
Fibroscan result waiting time?
Please can somebody tell me how long it takes to receive results for a fibroscan? I started this journey in November 2023 after asking for a general check-up at my GP surgery because of some non-liver related issues. I had no awareness at all that my liver could be damaged. After a few rounds of blood
Please can somebody tell me how long it takes to receive results for a fibroscan? I started this journey in November 2023 after asking for a general check-up at my GP surgery because of some non-liver related issues. I had no awareness at all that my liver could be damaged. After a few rounds of blood
Trotter2024
in
British Liver Trust
4 months ago
Stage 4 fibrosis of the Liver
I contracted Hepatitis A in 2020, undiagnosed for 2 months. Six months later I was told I had NALD and last year I was sent for ultrasound scans and blood tests to check for cancer. In March this year, I was told I had Stage 4 Fibrosis of the liver. Does anyone know if this can be reversed, any treatments
I contracted Hepatitis A in 2020, undiagnosed for 2 months. Six months later I was told I had NALD and last year I was sent for ultrasound scans and blood tests to check for cancer. In March this year, I was told I had Stage 4 Fibrosis of the liver. Does anyone know if this can be reversed, any treatments
Wi-llow
in
British Liver Trust
5 months ago
'Wednesday Word"
Since my question yesterday was concerning 'brain fog', I thought my word for today should be [u][i]
encephalopathy
[/i][/u] - here are specifics about the word This is a blanket term referring to any brain dysfunction. It can commonly be called 'brain fog'. However, [u][i]
encephalopathy
Since my question yesterday was concerning 'brain fog', I thought my word for today should be [u][i]
encephalopathy
[/i][/u] - here are specifics about the word This is a blanket term referring to any brain dysfunction. It can commonly be called 'brain fog'. However, [u][i]
encephalopathy
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Fibroscan results - can someone help please?
I was diagnosed with 'probable cirrhosis' 6 years ago, based on a US and LFTs. I was drinking heavily at the time, so it was a shock rather than a surprise, and I took it at face value. I've been seeing a gastro team ever since, but have never been given a prognosis or any indication of whether the
I was diagnosed with 'probable cirrhosis' 6 years ago, based on a US and LFTs. I was drinking heavily at the time, so it was a shock rather than a surprise, and I took it at face value. I've been seeing a gastro team ever since, but have never been given a prognosis or any indication of whether the
SueDenim100
in
British Liver Trust
5 months ago
fibroscan score 7.9 f1 finrosis
I don’t understand this report as 7.9 Kos should indicate f2 fibrosis not f1 also the did not give me a cap score Not overweight very fit active no alcohol or any kind of hepatitis not hereditary conditions either So quite confused
I don’t understand this report as 7.9 Kos should indicate f2 fibrosis not f1 also the did not give me a cap score Not overweight very fit active no alcohol or any kind of hepatitis not hereditary conditions either So quite confused
TacosPizzaIcecream
in
British Liver Trust
5 months ago
What is naturopathic nutritional therapy?
In 2012, after 3 years of study at the College of Naturopathic Medicine in London, out into the world I went, as a newly qualified Naturopathic Nutritional Therapist. A time when banking and a daily commute from Crystal Palace into Canary Wharf, in London, were still the mainstay of my fabric, but not
In 2012, after 3 years of study at the College of Naturopathic Medicine in London, out into the world I went, as a newly qualified Naturopathic Nutritional Therapist. A time when banking and a daily commute from Crystal Palace into Canary Wharf, in London, were still the mainstay of my fabric, but not
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
8 months ago
Liver tumor
Hi there, I have been diagnosed 2 years ago with a rear benign condition in my peritoneum. Because of this, I have MRIs and CT scans every 4-5 months. In January, my doctors found out a new lesion in my liver. I had a MRI if my liver in March. They come back to me and said that the lesion not changed
Hi there, I have been diagnosed 2 years ago with a rear benign condition in my peritoneum. Because of this, I have MRIs and CT scans every 4-5 months. In January, my doctors found out a new lesion in my liver. I had a MRI if my liver in March. They come back to me and said that the lesion not changed
dibk
in
British Liver Trust
5 months ago
Please join!
For all of our new members, PLEASE make sure one of the first things you do after your diagnosis is to join The PBC Foundation. It's free. There is so much accurate and up to date information there on the disease itself, glossary of terms you might not be familiar with. place to record your lab results
For all of our new members, PLEASE make sure one of the first things you do after your diagnosis is to join The PBC Foundation. It's free. There is so much accurate and up to date information there on the disease itself, glossary of terms you might not be familiar with. place to record your lab results
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
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