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for our 'newest' members....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
INVOLVEMENT OPPORTUNITY - for adults with a cirrhosis diagnosis (UK)
Opportunity for adults in the UK and diagnosed with cirrhosis to take part in the OPAL observational study sponsored by Resolution Therapeutics.
Advanced cirrhosis can progress in different ways for different people. We do not fully understand how the disease develops after someone has their
Opportunity for adults in the UK and diagnosed with cirrhosis to take part in the OPAL observational study sponsored by Resolution Therapeutics.
Advanced cirrhosis can progress in different ways for different people. We do not fully understand how the disease develops after someone has their
BritishLiverTrust1
Partner
in
British Liver Trust
2 months ago
Extreme pain in legs
Sorry for yet another post,My husband has decompensated liver cirrhosis and his legs are extremely swollen and he is at the point of not being able to walk now he's in so much pain he also has pain in his lower back, should he go to hospital? If so does anyone know what they will do?
Sorry for yet another post,My husband has decompensated liver cirrhosis and his legs are extremely swollen and he is at the point of not being able to walk now he's in so much pain he also has pain in his lower back, should he go to hospital? If so does anyone know what they will do?
Hithereeveryone
in
British Liver Trust
2 months ago
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THC , CBD
hi During my annual swaree down to South Africa , I came across a health guru, advised Me to try THC , the only problem is I’m about to finish my small bottle , I’ve been putting couple of drops under my tongue when my off period starts after madopar , why are we so stuck up in the uk , with all these
hi During my annual swaree down to South Africa , I came across a health guru, advised Me to try THC , the only problem is I’m about to finish my small bottle , I’ve been putting couple of drops under my tongue when my off period starts after madopar , why are we so stuck up in the uk , with all these
Troongolfer
in
Cure Parkinson's
2 months ago
got tested
hello, today I got following tests, ast, alt, bilirubin, ggt, leuktocytes, hemoglobin and all were normal now . then I assume that my so-called symptoms are not due to decompensated liver cirrhosis.. or how were your blood tests at diagnosis/symptoms (fatigue, spider nevi)(?) ☀️☀️
hello, today I got following tests, ast, alt, bilirubin, ggt, leuktocytes, hemoglobin and all were normal now . then I assume that my so-called symptoms are not due to decompensated liver cirrhosis.. or how were your blood tests at diagnosis/symptoms (fatigue, spider nevi)(?) ☀️☀️
Spider2
in
British Liver Trust
2 months ago
every test under the sun but no apparent cause for elevated liver numbers
Hi. I’m posting for a friend in case anyone here has experienced something similar. She’s in her early 30s and healthy. her liver panel shows elevated numbers but she has no fatty liver, negative for any hep c/b, has done all liver related autoimmune tests and all are negative. Has been to a few centers
Hi. I’m posting for a friend in case anyone here has experienced something similar. She’s in her early 30s and healthy. her liver panel shows elevated numbers but she has no fatty liver, negative for any hep c/b, has done all liver related autoimmune tests and all are negative. Has been to a few centers
Lulla
in
British Liver Trust
2 months ago
Wednesday's Word
[u][i]
albumin
[/i][/u]
-
This is a protein made by the liver, the level of which is measured as a part of your liver function tests. The albumin plays 2 important parts: 1. It carries molecules in the blood that are not water soluable. When bound to albumin, the molecule becomes water
[u][i]
albumin
[/i][/u]
-
This is a protein made by the liver, the level of which is measured as a part of your liver function tests. The albumin plays 2 important parts: 1. It carries molecules in the blood that are not water soluable. When bound to albumin, the molecule becomes water
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
spider nevi?
Hello I have recently been pregnant and I am now breastfeeding my third child. I used to drink too much alcohol but I don't anymore. For some time now I have had a rash, in the face mostly. is it a spider nevi? can't see a central point but small veins. am of course worried that my past sins may have
Hello I have recently been pregnant and I am now breastfeeding my third child. I used to drink too much alcohol but I don't anymore. For some time now I have had a rash, in the face mostly. is it a spider nevi? can't see a central point but small veins. am of course worried that my past sins may have
Spider2
in
British Liver Trust
2 months ago
Can I take him on holiday?
My partner has decompensated cirrhosis - and is currently in hospital with hyponatremia. He suffers from anxiety and finds it hard to eat - except for Ensure, which seems to be keeping him going. We hope his condition will stabilise soon though. He very much wants to go on holiday and I think that
My partner has decompensated cirrhosis - and is currently in hospital with hyponatremia. He suffers from anxiety and finds it hard to eat - except for Ensure, which seems to be keeping him going. We hope his condition will stabilise soon though. He very much wants to go on holiday and I think that
Ladypinkdoor
in
British Liver Trust
2 months ago
pale stool after yellow diarrhea
I’ve been high anxiety googling why pale stool for a couple days now following bout of yellowish diarrhea. anyone had this symptom? going to quit alcohol for good (I’ve gone years at times other 10 months, others a few…) baffling why I put myself through this worry and multiple times now. After a few
I’ve been high anxiety googling why pale stool for a couple days now following bout of yellowish diarrhea. anyone had this symptom? going to quit alcohol for good (I’ve gone years at times other 10 months, others a few…) baffling why I put myself through this worry and multiple times now. After a few
Mtseagirl
in
British Liver Trust
2 months ago
refusing treatment how fast do people decline?
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
Bluescarf123
in
British Liver Trust
2 months ago
Reiki
does anyone know if Reiki works on liver disease , especially for cirrhosis which I’ve been diagnosed with 😩? I have read Reiki does but was hoping to get it clarified. Does Crohn’s affect the liver too?? Thank you all.
does anyone know if Reiki works on liver disease , especially for cirrhosis which I’ve been diagnosed with 😩? I have read Reiki does but was hoping to get it clarified. Does Crohn’s affect the liver too?? Thank you all.
Maggie153
in
British Liver Trust
2 months ago
Decompensated liver
good morning, following on from my post a few weeks ago about my brother, a couple of weeks after I posted he was admitted into hospital again with fluid in the lungs, kept on critical care for a couple of weeks on a chest drain, It was decided by the doctors that the chest drain was serving no purpose
good morning, following on from my post a few weeks ago about my brother, a couple of weeks after I posted he was admitted into hospital again with fluid in the lungs, kept on critical care for a couple of weeks on a chest drain, It was decided by the doctors that the chest drain was serving no purpose
tomgill
in
British Liver Trust
2 months ago
possible hep c infection
I wonder if anyone can advise me please. My wonderful 76 year old mum was given a blood transfusion after the birth of me 48 years ago. Over the years her blood test has shown slightly elevated bilirubin but no further action was taken, I think we hoped it would be Gilbert’s syndrome. I know she knows
I wonder if anyone can advise me please. My wonderful 76 year old mum was given a blood transfusion after the birth of me 48 years ago. Over the years her blood test has shown slightly elevated bilirubin but no further action was taken, I think we hoped it would be Gilbert’s syndrome. I know she knows
Worrylou
in
British Liver Trust
2 months ago
Fatty liver
Just had a scan because one of my blood test readings on my liver was high,, they tell me I have fatty liver What's best food to start eating to help, I've started diet now lots of walking and drinking lots of water,, they tell me to come back in 3 years ?
Just had a scan because one of my blood test readings on my liver was high,, they tell me I have fatty liver What's best food to start eating to help, I've started diet now lots of walking and drinking lots of water,, they tell me to come back in 3 years ?
AJ3959
in
British Liver Trust
2 months ago
offlaner56
I thought I was just a social drinker, and I have a few drinks after work or when I was playing soldiers. I've been recently diagnosis with fibrosis stage three and I'm coming to terms with how to live with the situation. And over the years it is caught up with me and my body is telling me I've been
I thought I was just a social drinker, and I have a few drinks after work or when I was playing soldiers. I've been recently diagnosis with fibrosis stage three and I'm coming to terms with how to live with the situation. And over the years it is caught up with me and my body is telling me I've been
Offlander56
in
British Liver Trust
2 months ago
Offlander56
I've been diagnosed with fibrosis stage three ,and I am trying to get my head round the whole thing. I've been told I've got a fatty liver plus using alcohol, I didn't think I drunk that much and I've learnt there is a stigma if you get a liver disease you're an alcoholic. Questions I would
I've been diagnosed with fibrosis stage three ,and I am trying to get my head round the whole thing. I've been told I've got a fatty liver plus using alcohol, I didn't think I drunk that much and I've learnt there is a stigma if you get a liver disease you're an alcoholic. Questions I would
Offlander56
in
British Liver Trust
2 months ago
The effect of a B complex on raised liver enzymes with discomfort/pain
As mad as it sounds, every time I re start a B complex the liver pain returns I’ve had mildly raised liver enzymes with early morning liver discomfort, every single day for years but recently both have worsened and the discomfort became actual pain. However, on rising, the pain dissipates immediately
As mad as it sounds, every time I re start a B complex the liver pain returns I’ve had mildly raised liver enzymes with early morning liver discomfort, every single day for years but recently both have worsened and the discomfort became actual pain. However, on rising, the pain dissipates immediately
Noelnoel
in
Thyroid UK
2 months ago
Assessing liver function and interpreting liver blood tests
From NHS England's Specialist Pharmacy Service: [i]
Assessing liver function and interpreting liver blood tests
[/i] [i]Published 1 May 2024[/i] [i]Topics: Liver disorders · Training and Development[/i] [i][/i] [i]We explain how to assess liver function including the purpose of liver blood
From NHS England's Specialist Pharmacy Service: [i]
Assessing liver function and interpreting liver blood tests
[/i] [i]Published 1 May 2024[/i] [i]Topics: Liver disorders · Training and Development[/i] [i][/i] [i]We explain how to assess liver function including the purpose of liver blood
helvella
Thyroid UK
in
Thyroid UK
2 months ago
Welcome to more of our new members
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
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