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Not Eating
Hi Everyone, I've not been on here for a while but could do with some advice. My partner has been in hospital twice over the last 3 years with alcoholic hepatitis (the second time his liver was failing but the steroids seemed to work) and he was back to normal. Almost a year on from his last hospital
Hi Everyone, I've not been on here for a while but could do with some advice. My partner has been in hospital twice over the last 3 years with alcoholic hepatitis (the second time his liver was failing but the steroids seemed to work) and he was back to normal. Almost a year on from his last hospital
MissS_Zebra9
in
British Liver Trust
2 months ago
Liver stent
Hi.im new here .my husband was diagnosed with cirrhosis Nash last year.. fluid gathers very quickly and every 3/4weeks he has it drained.doctor is talking about a liver stent.has anyone had this and had it been successful.thanks
Hi.im new here .my husband was diagnosed with cirrhosis Nash last year.. fluid gathers very quickly and every 3/4weeks he has it drained.doctor is talking about a liver stent.has anyone had this and had it been successful.thanks
Gweans
in
British Liver Trust
3 months ago
organizing
I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and Rare Liver Diseases Director, Kristin Hatcher, from the Global Liver Institute. She is trying to lobby for a routine liver panel to be part
I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and Rare Liver Diseases Director, Kristin Hatcher, from the Global Liver Institute. She is trying to lobby for a routine liver panel to be part
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
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blood test results for liver. Advice welcome please
maybe I don’t need to be on this page, but thought I’d put the question out there. Up until recently my husband’s blood test results have always been pretty good. But around the time he was diagnosed with chronic degenerative spinal disease, his liver results have gone a bit awry. However, at the
maybe I don’t need to be on this page, but thought I’d put the question out there. Up until recently my husband’s blood test results have always been pretty good. But around the time he was diagnosed with chronic degenerative spinal disease, his liver results have gone a bit awry. However, at the
Doraflora
in
British Liver Trust
3 months ago
The Seat of the Soul_Lili
Hello, my name is Arlene Hernandez and my 32 year old daughter has been on dialysis since she was in her early 20's. She received her first transplant in 2020 but it failed. We are now facing painful times because she is in dire need of a kidney transplant. She has a someone who is going through the
Hello, my name is Arlene Hernandez and my 32 year old daughter has been on dialysis since she was in her early 20's. She received her first transplant in 2020 but it failed. We are now facing painful times because she is in dire need of a kidney transplant. She has a someone who is going through the
lassirenas
in
Kidney Donation
7 months ago
Media Request: West Devon
TheTavistock Times would like to speak to someone living with non alcohol related liver disease, alcohol related
liver
disease or viral hepatitis who has received a
liver
transplant
. If you're able to help, please email: Joanna.Pazucha@britishlivertrust.org.uk Thank you 🙏
TheTavistock Times would like to speak to someone living with non alcohol related liver disease, alcohol related
liver
disease or viral hepatitis who has received a
liver
transplant
. If you're able to help, please email: Joanna.Pazucha@britishlivertrust.org.uk Thank you 🙏
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Liver disease, mast cells and antihistamine
I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a treatment.. I wondered if anything was known about autoimmune liver diseases, mast cells and antihistamines. I found this 2017 research paper https://
I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a treatment.. I wondered if anything was known about autoimmune liver diseases, mast cells and antihistamines. I found this 2017 research paper https://
Readlots
in
PBC Foundation
3 months ago
Why am I being tested for Hep B?
I have had Budd Chiari for nearly 14 years, I have a shunt and luckily everything has been going fine since then. I have an app every 6 months for an ultrasound scan, then my outpatient app and bloods taken. I had an appointment yesterday and like normal I was in and out quite quickly as the scan showed
I have had Budd Chiari for nearly 14 years, I have a shunt and luckily everything has been going fine since then. I have an app every 6 months for an ultrasound scan, then my outpatient app and bloods taken. I had an appointment yesterday and like normal I was in and out quite quickly as the scan showed
Holsb
in
British Liver Trust
3 months ago
Lumps, bumps & hernias
I'm posting to find out if anyone else has similar issues to myself. I have cirrhosis, was diagnosed around 9 years ago, have no ascites or varices, but I do have portal vein hypertension and a grossly enlarged spleen. About a year ago I started noticing small veins on my stomach, I think they are called
I'm posting to find out if anyone else has similar issues to myself. I have cirrhosis, was diagnosed around 9 years ago, have no ascites or varices, but I do have portal vein hypertension and a grossly enlarged spleen. About a year ago I started noticing small veins on my stomach, I think they are called
tonicwater
in
British Liver Trust
3 months ago
Fibroscan result waiting time?
Please can somebody tell me how long it takes to receive results for a fibroscan? I started this journey in November 2023 after asking for a general check-up at my GP surgery because of some non-liver related issues. I had no awareness at all that my liver could be damaged. After a few rounds of blood
Please can somebody tell me how long it takes to receive results for a fibroscan? I started this journey in November 2023 after asking for a general check-up at my GP surgery because of some non-liver related issues. I had no awareness at all that my liver could be damaged. After a few rounds of blood
Trotter2024
in
British Liver Trust
3 months ago
Stage 4 fibrosis of the Liver
I contracted Hepatitis A in 2020, undiagnosed for 2 months. Six months later I was told I had NALD and last year I was sent for ultrasound scans and blood tests to check for cancer. In March this year, I was told I had Stage 4 Fibrosis of the liver. Does anyone know if this can be reversed, any treatments
I contracted Hepatitis A in 2020, undiagnosed for 2 months. Six months later I was told I had NALD and last year I was sent for ultrasound scans and blood tests to check for cancer. In March this year, I was told I had Stage 4 Fibrosis of the liver. Does anyone know if this can be reversed, any treatments
Wi-llow
in
British Liver Trust
3 months ago
'Wednesday Word"
Since my question yesterday was concerning 'brain fog', I thought my word for today should be [u][i]
encephalopathy
[/i][/u] - here are specifics about the word This is a blanket term referring to any brain dysfunction. It can commonly be called 'brain fog'. However, [u][i]
encephalopathy
Since my question yesterday was concerning 'brain fog', I thought my word for today should be [u][i]
encephalopathy
[/i][/u] - here are specifics about the word This is a blanket term referring to any brain dysfunction. It can commonly be called 'brain fog'. However, [u][i]
encephalopathy
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Fibroscan results - can someone help please?
I was diagnosed with 'probable cirrhosis' 6 years ago, based on a US and LFTs. I was drinking heavily at the time, so it was a shock rather than a surprise, and I took it at face value. I've been seeing a gastro team ever since, but have never been given a prognosis or any indication of whether the
I was diagnosed with 'probable cirrhosis' 6 years ago, based on a US and LFTs. I was drinking heavily at the time, so it was a shock rather than a surprise, and I took it at face value. I've been seeing a gastro team ever since, but have never been given a prognosis or any indication of whether the
SueDenim100
in
British Liver Trust
3 months ago
fibroscan score 7.9 f1 finrosis
I don’t understand this report as 7.9 Kos should indicate f2 fibrosis not f1 also the did not give me a cap score Not overweight very fit active no alcohol or any kind of hepatitis not hereditary conditions either So quite confused
I don’t understand this report as 7.9 Kos should indicate f2 fibrosis not f1 also the did not give me a cap score Not overweight very fit active no alcohol or any kind of hepatitis not hereditary conditions either So quite confused
TacosPizzaIcecream
in
British Liver Trust
3 months ago
Liver tumor
Hi there, I have been diagnosed 2 years ago with a rear benign condition in my peritoneum. Because of this, I have MRIs and CT scans every 4-5 months. In January, my doctors found out a new lesion in my liver. I had a MRI if my liver in March. They come back to me and said that the lesion not changed
Hi there, I have been diagnosed 2 years ago with a rear benign condition in my peritoneum. Because of this, I have MRIs and CT scans every 4-5 months. In January, my doctors found out a new lesion in my liver. I had a MRI if my liver in March. They come back to me and said that the lesion not changed
dibk
in
British Liver Trust
3 months ago
Please join!
For all of our new members, PLEASE make sure one of the first things you do after your diagnosis is to join The PBC Foundation. It's free. There is so much accurate and up to date information there on the disease itself, glossary of terms you might not be familiar with. place to record your lab results
For all of our new members, PLEASE make sure one of the first things you do after your diagnosis is to join The PBC Foundation. It's free. There is so much accurate and up to date information there on the disease itself, glossary of terms you might not be familiar with. place to record your lab results
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Follow up ultrasound for cirrhosis, shown polyp In gallbladder
Hi, looking if anyone has experience/ info on this? is it common, linked to cirrhosis ? It’s completely thrown me as I’ve been feeling healthy since diagnosis last year. This was my first US since. I was hoping for news that my liver looked slightly better than original scan, as I’ve worked my backside
Hi, looking if anyone has experience/ info on this? is it common, linked to cirrhosis ? It’s completely thrown me as I’ve been feeling healthy since diagnosis last year. This was my first US since. I was hoping for news that my liver looked slightly better than original scan, as I’ve worked my backside
DaveQ67
in
British Liver Trust
3 months ago
Stopping Injections After 3 Loading Doses
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hidden
in
Pernicious Anaemia Society
3 months ago
Wednesday Word
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
F3 Fibrosis Regression
hi all First post and have to say, read a lot of posts and can only thank everyone who contributes and helps educate others about their own personal way forward. So here is my question. How long does it realistically take ( with doing everything possible ) to regress from F3 severe fibrosis to F2?
hi all First post and have to say, read a lot of posts and can only thank everyone who contributes and helps educate others about their own personal way forward. So here is my question. How long does it realistically take ( with doing everything possible ) to regress from F3 severe fibrosis to F2?
Smif56
in
British Liver Trust
3 months ago
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