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NHS failing
Well being diagnosed with Cirrhosis 22/09/2022, I had my first 6 monthly HCC scan 07/03/2023 I was strangely excited to see the hard work it had taken to lose 3 stone, completely abstain from alcohol, endoscopy exam clear & not a single symptom of my diagnosis! I was met with a STUDENT and the most uneducated
Well being diagnosed with Cirrhosis 22/09/2022, I had my first 6 monthly HCC scan 07/03/2023 I was strangely excited to see the hard work it had taken to lose 3 stone, completely abstain from alcohol, endoscopy exam clear & not a single symptom of my diagnosis! I was met with a STUDENT and the most uneducated
55spenc
in
British Liver Trust
1 year ago
Erectile disfunction
Hi, since I have had a liver transplant I have struggled to maintain an erection.My consultant has sent me for tests, I think they tested my testosterone levels but everything seems okay. Since my transplant in October 2021. I have got cirrhosis again. They are keeping an eye on me as I'm not far off
Hi, since I have had a liver transplant I have struggled to maintain an erection.My consultant has sent me for tests, I think they tested my testosterone levels but everything seems okay. Since my transplant in October 2021. I have got cirrhosis again. They are keeping an eye on me as I'm not far off
Refs
in
British Liver Trust
1 year ago
Partner out of hospital
Thank you to all the replies I've had on previous posts about my partner. He is now out of hospital but on an awful lot of medication including steroids and tablets that suppress alcohol cravings. He has been diagnosed with Alcoholic Hepatitis for the second time in 2 years. I asked the consultant
Thank you to all the replies I've had on previous posts about my partner. He is now out of hospital but on an awful lot of medication including steroids and tablets that suppress alcohol cravings. He has been diagnosed with Alcoholic Hepatitis for the second time in 2 years. I asked the consultant
MissS_Zebra9
in
British Liver Trust
1 year ago
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latest US
So my latest US has come back.. Impression: Mildly Fatty Liver Diagnosed Cirrhosis 3 years ago First Fibroscan last September 2022 8.8kpa 2 years 9 months alcohol free Ask questions and new give up hope!
So my latest US has come back.. Impression: Mildly Fatty Liver Diagnosed Cirrhosis 3 years ago First Fibroscan last September 2022 8.8kpa 2 years 9 months alcohol free Ask questions and new give up hope!
deanw41
in
British Liver Trust
1 year ago
Latest fibroscan
Hi The latest stage of my liver journey; previously diagnosed with cirrhosis but not offered any follow up by hepatology or the six month check ups, I was finally able to get the department to review my status. This was because I had the good fortune to speak to a nurse that understood that because the
Hi The latest stage of my liver journey; previously diagnosed with cirrhosis but not offered any follow up by hepatology or the six month check ups, I was finally able to get the department to review my status. This was because I had the good fortune to speak to a nurse that understood that because the
Iro1
in
British Liver Trust
1 year ago
Fibroscan of 9
I went to the BLT roadshow and had a scan and my score was 9. I’ve been a heavy drinker for years, so I knew it would be high., and I haven’t drunk since the scan on Monday. The clinician was lovely, and recommended I go to my GP to get blood tests but also said I shouldn’t be too concerned. Everything
I went to the BLT roadshow and had a scan and my score was 9. I’ve been a heavy drinker for years, so I knew it would be high., and I haven’t drunk since the scan on Monday. The clinician was lovely, and recommended I go to my GP to get blood tests but also said I shouldn’t be too concerned. Everything
Hogeyzz
in
British Liver Trust
1 year ago
Update from a worried mom.
I didn't realise it has been two months when I first posted about my son. It has now been confirmed that he is now terminal .It really bought it home when his gp rang to say he had completed the D1500 form that has to be sent to the government I think he said. Anthony went into a nursing home last Thursday
I didn't realise it has been two months when I first posted about my son. It has now been confirmed that he is now terminal .It really bought it home when his gp rang to say he had completed the D1500 form that has to be sent to the government I think he said. Anthony went into a nursing home last Thursday
Charlieathome
in
British Liver Trust
1 year ago
Devastating news yesterday
Yesterday I had an appointment with a hepatology consultant and to put it bluntly I have liver cancer, in total shock today, has anyone got any suggestions please?
Yesterday I had an appointment with a hepatology consultant and to put it bluntly I have liver cancer, in total shock today, has anyone got any suggestions please?
thedogman2676
in
British Liver Trust
1 year ago
Feeling a bit lost, fatty liver diagnosis maybe?
Hi everyone, Two weeks ago, I woke up with horrendous abdominal pain. After a trip to A&E and around the houses a bit, I was told there are some fat deposits in my liver and my liver blood tests were abnormal. As I'd ended up in a gallbladder dept, they confirmed it wasn't my gallbladder and they
Hi everyone, Two weeks ago, I woke up with horrendous abdominal pain. After a trip to A&E and around the houses a bit, I was told there are some fat deposits in my liver and my liver blood tests were abnormal. As I'd ended up in a gallbladder dept, they confirmed it wasn't my gallbladder and they
EllieBlue1
in
British Liver Trust
1 year ago
GGT readings high
Hi, I have had problems with my GGT readings being high for 10 years and most doctors have ignored it. Now i have a specialist that wants to get to the bottom of what is causing this. I would say i am a moderate drinker which i have slowed down but the readings are still high. Had CT scan and all appears
Hi, I have had problems with my GGT readings being high for 10 years and most doctors have ignored it. Now i have a specialist that wants to get to the bottom of what is causing this. I would say i am a moderate drinker which i have slowed down but the readings are still high. Had CT scan and all appears
Letpop
in
British Liver Trust
1 year ago
PBC with Cirrhosis
I was diagnosed with PBC in 2016, I had 2 ARFI scans one in 2019 and one in 2020. Both of these showed F4 result. I did not get told that this was, in fact, Cirrhosis until September 2022 by a Consultant Heptatologist at a different hospital. As you can imagine this has left me feeling overwhelmed and
I was diagnosed with PBC in 2016, I had 2 ARFI scans one in 2019 and one in 2020. Both of these showed F4 result. I did not get told that this was, in fact, Cirrhosis until September 2022 by a Consultant Heptatologist at a different hospital. As you can imagine this has left me feeling overwhelmed and
Cat1218
in
British Liver Trust
1 year ago
British liver trust Roadshows
hi just wondering what the roadshows are like and how can you get scanned. My reason for asking is I have high gamma gt over 400, raised SAP over 150, serum alt level over 170, AST over 100. I have 57 week wait to see someone at my local hospital and my GP thinks I need a fibroscan. Ultrasound scan showed
hi just wondering what the roadshows are like and how can you get scanned. My reason for asking is I have high gamma gt over 400, raised SAP over 150, serum alt level over 170, AST over 100. I have 57 week wait to see someone at my local hospital and my GP thinks I need a fibroscan. Ultrasound scan showed
Fergus883782
in
British Liver Trust
1 year ago
liver damage and varcies
hi I’ve just discovered I have varices and I have severe liver damage had no warnings just had a vien that started to be visible on my tummy I also have Crohn’s disease they haven’t said they will band my varices I have to have 6 monthly checks at the moment I also have portal hypertension they have
hi I’ve just discovered I have varices and I have severe liver damage had no warnings just had a vien that started to be visible on my tummy I also have Crohn’s disease they haven’t said they will band my varices I have to have 6 monthly checks at the moment I also have portal hypertension they have
GTGJ
in
British Liver Trust
1 year ago
High albumin?
What could cause slightly high albumin in blood? Just had some blood tests done and this was the only thing out of range. When I Google it, I only find dehydration as a possible cause. I drink a ton of water so this seems very unlikely to me. My past levels have always been within range. The doctor didn
What could cause slightly high albumin in blood? Just had some blood tests done and this was the only thing out of range. When I Google it, I only find dehydration as a possible cause. I drink a ton of water so this seems very unlikely to me. My past levels have always been within range. The doctor didn
Healthnut22
in
British Liver Trust
1 year ago
Chances of not Biliary Atresia
Hi! I am a mother of a 3 month old boy. we found out that his direct bilirubin was high ( GGT normal) when he was 3 weeks old. Since then several repeat labs were done specifically Liver enzymes. US looks normal. But his liver e zymes are high. BUT then it started to decrease, direct bilirubin from
Hi! I am a mother of a 3 month old boy. we found out that his direct bilirubin was high ( GGT normal) when he was 3 weeks old. Since then several repeat labs were done specifically Liver enzymes. US looks normal. But his liver e zymes are high. BUT then it started to decrease, direct bilirubin from
Hope1222
in
Children's Liver Disease Foundation
1 year ago
Help for a loved one
How do we as a family help a loved one awaiting liver transplant assessment, as clearly very unwell.
How do we as a family help a loved one awaiting liver transplant assessment, as clearly very unwell.
Agapanthus20
in
British Liver Trust
1 year ago
Second Scan on liver.
Hi everyone it’s been a while I’ve been on here. First time I had my scan on my liver they said early Cirrhosis well I want a second opinion showed the doctor my results he asked me who said you have cirrhosis? I mentioned the test results and showed him the paperwork so I had another one done and he
Hi everyone it’s been a while I’ve been on here. First time I had my scan on my liver they said early Cirrhosis well I want a second opinion showed the doctor my results he asked me who said you have cirrhosis? I mentioned the test results and showed him the paperwork so I had another one done and he
Hidden
in
Hepatitis C Trust
1 year ago
Elevated ALT a problem?
Hello, I'm 33 year old female, who was diagnosed with fatty liver after pregnancy. I can't find any more info about my fatty liver, it just says fatty infiltration. My BMI is within range. I drink maybe once a month as I'm too worried about my liver, I just don't enjoy drinking. I have been told
Hello, I'm 33 year old female, who was diagnosed with fatty liver after pregnancy. I can't find any more info about my fatty liver, it just says fatty infiltration. My BMI is within range. I drink maybe once a month as I'm too worried about my liver, I just don't enjoy drinking. I have been told
DamagingGiraffe
in
British Liver Trust
1 year ago
Natural remedies. Essential oils.
Have any of you used essential oils to help with PBC. I have been researching the use of oils to help detox and dilate the ducts to help with releasing the bile. I want to take info to my Dr for discussion. Medication side effects have been so severe that I only take milk thistle. My ALT and AST are
Have any of you used essential oils to help with PBC. I have been researching the use of oils to help detox and dilate the ducts to help with releasing the bile. I want to take info to my Dr for discussion. Medication side effects have been so severe that I only take milk thistle. My ALT and AST are
pbc-zero
in
PBC Foundation
1 year ago
Pain in both shoulders and right side at the back
Can anybody shed some light on why I get pain like a burning sensation in the liver and then radiating to the right hand of the back and pelvis, had a fibroscan 2 weeks ago results are 272 cap 13.7 kpa nurse said I had fibrosis of the liver, I am not a drinker I eat fairly healthy 51 years old, I am
Can anybody shed some light on why I get pain like a burning sensation in the liver and then radiating to the right hand of the back and pelvis, had a fibroscan 2 weeks ago results are 272 cap 13.7 kpa nurse said I had fibrosis of the liver, I am not a drinker I eat fairly healthy 51 years old, I am
Sweet-love
in
British Liver Trust
1 year ago
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