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SE's on Cabazitaxel/Carboplatin Combo
Fellow chemo warriors: I'm hoping your experiences can shed some light on my latest treatment variation. Long story short: I had 3 docetaxel infusions with zero side effects. Unfortunately, the response was only partial, so last week I started on Cab/Carboplatin combo. This has been a very different
Fellow chemo warriors: I'm hoping your experiences can shed some light on my latest treatment variation. Long story short: I had 3 docetaxel infusions with zero side effects. Unfortunately, the response was only partial, so last week I started on Cab/Carboplatin combo. This has been a very different
CrocodileShoes
in
Advanced Prostate Cancer
7 months ago
PMR again ?
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
Retallack
in
PMRGCAuk
7 months ago
Gastric discomfort with Olaparib
Help needed please. I’m currently taking 300mg of Olaparib per day and am experiencing gastric discomfort and feelings of … .Wanting to burp but nothing happens .Something lodged in my food pipe (there isn’t and no problems with swallowing) . . A hollow feeling in my stomach I have been
Help needed please. I’m currently taking 300mg of Olaparib per day and am experiencing gastric discomfort and feelings of … .Wanting to burp but nothing happens .Something lodged in my food pipe (there isn’t and no problems with swallowing) . . A hollow feeling in my stomach I have been
Alfiepop
in
My Ovacome
4 months ago
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Bam. Ibs
Have been having terrible stomach pains over the last few months like a twisting cramping feeling in upper stomach area , had a telephone appointment with doctor yesterday he said up my omprozole to 2 a day try mebeverine and gaviscon he mention eibgrastro thats wat the pain could be anyone know anything
Have been having terrible stomach pains over the last few months like a twisting cramping feeling in upper stomach area , had a telephone appointment with doctor yesterday he said up my omprozole to 2 a day try mebeverine and gaviscon he mention eibgrastro thats wat the pain could be anyone know anything
Netbet22
in
IBS Network
4 months ago
Gluten free diet
Hi all, hope you’re not suffering too much today. Just wanted to bring to your attention an article I was reading today about gluten, which you can find on google. https://en.m.wikipedia.org/wiki/Non-celiac_gluten_sensitivity I’ve recently been trialing a gluten free diet, which has helped me considerably
Hi all, hope you’re not suffering too much today. Just wanted to bring to your attention an article I was reading today about gluten, which you can find on google. https://en.m.wikipedia.org/wiki/Non-celiac_gluten_sensitivity I’ve recently been trialing a gluten free diet, which has helped me considerably
Kryptonite59
in
Fibromyalgia Action UK
4 months ago
Restart
I completed couch to 5k a few years ago & loved the experience - I was then addicted to running, to the freedom, how it helped clear my mind, distressed me, made me fitter, I could go on . However in November 2022 I got the worst news ever- I had cancer - by December 25th I was laid in hospital after
I completed couch to 5k a few years ago & loved the experience - I was then addicted to running, to the freedom, how it helped clear my mind, distressed me, made me fitter, I could go on . However in November 2022 I got the worst news ever- I had cancer - by December 25th I was laid in hospital after
MissTwiggy
Graduate
in
Couch to 5K
7 months ago
Is this Hemmoriod symptoms
I had some on and off constipation issues last year and occasionally saw small red blood on toilet paper after cleaning Saw a doctor in August 23 who did the examination and diagnosed that I had anal fissure. He gave Diltiazem cream which I used for one month Seem to fixed the problem only for symptoms
I had some on and off constipation issues last year and occasionally saw small red blood on toilet paper after cleaning Saw a doctor in August 23 who did the examination and diagnosed that I had anal fissure. He gave Diltiazem cream which I used for one month Seem to fixed the problem only for symptoms
AMerchant
in
IBS Network
4 months ago
Prostatic Artery Embolization
I’m 67 year old and have been suffering with BPH for years. Don’t want to do TURP or lasers. I’m interested in doing PAE. Has anyone had this procedure done. Does it work. I had a cystoscope and the urologist found a medial lobe at the neck of the bladder. Would PAE work if the blockage is located there
I’m 67 year old and have been suffering with BPH for years. Don’t want to do TURP or lasers. I’m interested in doing PAE. Has anyone had this procedure done. Does it work. I had a cystoscope and the urologist found a medial lobe at the neck of the bladder. Would PAE work if the blockage is located there
Roenken
in
Men's Health Forum
7 months ago
WHAT ARE THE CURRENT EFFECTIVE SALVAGE TREATMENTS IN CASE OF A REOCCURRENCE IF YOU HAVE HAD SBRT,IMRT, WITH PLACEMENT OF GOLD BARS?
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
JWS13
in
Advanced Prostate Cancer
7 months ago
Depo-Medrol Injection and nausea
Hi everyone, Just wondered if anyone has had a chronic reaction to a steroid shot? I am only tiny and was given 120mg a month ago and I am literally grounded still with the worst nausea. I can barely eat and have lost 3/4 stone so am down to 7 stone ☹️ Is it possible I had too higher dose and my immune
Hi everyone, Just wondered if anyone has had a chronic reaction to a steroid shot? I am only tiny and was given 120mg a month ago and I am literally grounded still with the worst nausea. I can barely eat and have lost 3/4 stone so am down to 7 stone ☹️ Is it possible I had too higher dose and my immune
cornflake
in
NRAS
4 months ago
Iron studies blood test results
Hi thereMy results are all in normal range but I remember being told that that doesn't mean the are high enough levels if brain iron so would appreciate feedback on my levels: All units microgm\l Ferritin 77 Iron. 28 Transferrin 2.46 Transferrin saturation 45% Total iron binding capacity 62 Many thanks
Hi thereMy results are all in normal range but I remember being told that that doesn't mean the are high enough levels if brain iron so would appreciate feedback on my levels: All units microgm\l Ferritin 77 Iron. 28 Transferrin 2.46 Transferrin saturation 45% Total iron binding capacity 62 Many thanks
Scubaholic
in
Restless Legs Syndrome
4 months ago
morning agony
Hi I’ve not posted for a long time I’m still suffering badly with my ibs and 5 other stomach issues. Does anyone wake up with abdominal pain and constant bowel movements in the morning and terrible pain after. I’m at my wits end the doctors just want to give me more tablets I literally can’t take anymore.Amber
Hi I’ve not posted for a long time I’m still suffering badly with my ibs and 5 other stomach issues. Does anyone wake up with abdominal pain and constant bowel movements in the morning and terrible pain after. I’m at my wits end the doctors just want to give me more tablets I literally can’t take anymore.Amber
Oscar091
in
IBS Network
4 months ago
Rectal Pain
I've had rectal pain after bowel movements for 2 years. Pain lasts around 4-5 hours.No Dr. knows what's wrong. MRI was normal. I can't sit over 1 hour and I and when I stand for over an hour I feel like mu insides ar falling out of my vagina. I do not have Hemorrhoids. I do have a 2cm Retrocele but Drs
I've had rectal pain after bowel movements for 2 years. Pain lasts around 4-5 hours.No Dr. knows what's wrong. MRI was normal. I can't sit over 1 hour and I and when I stand for over an hour I feel like mu insides ar falling out of my vagina. I do not have Hemorrhoids. I do have a 2cm Retrocele but Drs
swanzie
in
Pelvic Pain Support Network
4 months ago
constipation!!!
Hello anyone I have got this constant gnawing ,scratching ,pinching ETC going on in my bum and for 3/4 months really bad constipation frightened to poop in case I "UNBLOCK" myself to the nasty stuff I just can't control I looked it up on DR GOOGLE and it came up with Proctalgia Fugax/ Levator Syndromeas
Hello anyone I have got this constant gnawing ,scratching ,pinching ETC going on in my bum and for 3/4 months really bad constipation frightened to poop in case I "UNBLOCK" myself to the nasty stuff I just can't control I looked it up on DR GOOGLE and it came up with Proctalgia Fugax/ Levator Syndromeas
bungi1961
in
Bowel Disease Support
5 months ago
anyone else feel wierd after discontinuing Piqray / Faslodex?
Hi all, my docs took me off Piqray and Faslodex a week ago. Since then I’ve had worse night sweats and diarrhea then when I was on the drugs! Plus a lingering headache and overall yucky feeling. I assumed it would resolve after a couple days but it’s been a full week. Has anyone else experienced that
Hi all, my docs took me off Piqray and Faslodex a week ago. Since then I’ve had worse night sweats and diarrhea then when I was on the drugs! Plus a lingering headache and overall yucky feeling. I assumed it would resolve after a couple days but it’s been a full week. Has anyone else experienced that
LDR1
in
SHARE Metastatic Breast Cancer
7 months ago
Reacting to piqray.
Don’t want to worry anyone, but just wanting to know if anyone has had this reaction to Piqray. I’m into my second week. On Piqray and Fulvestrant. At first I thought it was only my bottom, (left side) near site of injection, that was itchy. Then I started feeling a prickly feeling all over my body.
Don’t want to worry anyone, but just wanting to know if anyone has had this reaction to Piqray. I’m into my second week. On Piqray and Fulvestrant. At first I thought it was only my bottom, (left side) near site of injection, that was itchy. Then I started feeling a prickly feeling all over my body.
Timtam56
in
SHARE Metastatic Breast Cancer
7 months ago
PCB/AIH for 20 years but urine now turned browm
Hi I have lived with this condition for almost 20 years and been on Urso and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of. The past few days l have noticed that l am not
Hi I have lived with this condition for almost 20 years and been on Urso and Azathioprine medication for most of this time. Bezalip added about 5 years ago. I have always considered myself really lucky as l have no real symptoms that others complain of. The past few days l have noticed that l am not
Sandpiperx
in
PBC Foundation
7 months ago
Attempting to transition off PROLIA…
I’m feeling quite overwhelmed with the volumes of great information. I do appreciation as I got none of this from doctors I’m conflicted more than ever on how to get off PROLIA without losing bone strength & avoiding potential side effects of various Busphosphonates: AA, Zoledronic acid, Actonel.
I’m feeling quite overwhelmed with the volumes of great information. I do appreciation as I got none of this from doctors I’m conflicted more than ever on how to get off PROLIA without losing bone strength & avoiding potential side effects of various Busphosphonates: AA, Zoledronic acid, Actonel.
Arie4
in
Osteoporosis Support
9 months ago
B12 prescription cancelled by pharmacist
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Willow404
in
Pernicious Anaemia Society
4 months ago
Angular Cheilitis?
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Haz58
in
NRAS
4 months ago
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