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Burning Mouth??
Has anyone experienced a burning mouth? I have B12 injections every 10 weeks and since the middle of May have had a burning mouth - on my tongue and roof of mouth - tried everything i.e. Corsydol, Listerine, changing toothpaste, two courses of candida medication, had blood tests (for anaemia, CRP and
Has anyone experienced a burning mouth? I have B12 injections every 10 weeks and since the middle of May have had a burning mouth - on my tongue and roof of mouth - tried everything i.e. Corsydol, Listerine, changing toothpaste, two courses of candida medication, had blood tests (for anaemia, CRP and
Colb53
in
Pernicious Anaemia Society
4 years ago
Shingles Shot
Is it safe to get the shingles shot if I have CLL? If yes, which one ?
Is it safe to get the shingles shot if I have CLL? If yes, which one ?
CouldBworse
in
CLL Support
4 years ago
What to do now ?
Hello, I have been on a 2mg Neupro patch for the last 6 months. It has been working well except for the last 4 nights where I fear may now be the start of augmenting. I have had restless legs for a few years now, it became exacerbated last year after a craniotomy for a brain tumour. I have always taken
Hello, I have been on a 2mg Neupro patch for the last 6 months. It has been working well except for the last 4 nights where I fear may now be the start of augmenting. I have had restless legs for a few years now, it became exacerbated last year after a craniotomy for a brain tumour. I have always taken
banjololapoppy
in
Restless Legs Syndrome
4 years ago
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PA and Mouth Ulcers?
Hello, I was diagnosed with PA around 8 months ago and ive been self injecting every week and I have seen major improvement. However, I still am getting tonsil flare ups and lots of really bad mouth ulcers. Any advice?
Hello, I was diagnosed with PA around 8 months ago and ive been self injecting every week and I have seen major improvement. However, I still am getting tonsil flare ups and lots of really bad mouth ulcers. Any advice?
Dakota17777
in
Pernicious Anaemia Society
4 years ago
Waking up from deep sedatives in ICU.
Waking up from sedation...what should I expect? My Dad went in for bypass surgery which went fine and on the day he was to come home he had a reaction to Heparin which was HIT type II rare response. They found clots in his heart and he had a heart attack shortly after in the ICU. He went in for emergency
Waking up from sedation...what should I expect? My Dad went in for bypass surgery which went fine and on the day he was to come home he had a reaction to Heparin which was HIT type II rare response. They found clots in his heart and he had a heart attack shortly after in the ICU. He went in for emergency
Eclips2luv
in
ICUsteps
4 years ago
Covid: Please help! Doctors ready to call if quits
My dad has been on a ventilator for three weeks today and has had a trach for 12 days now. My question is that the doctors think my dad may have irreparable brain damage although his CT scan was normal. His EEG showed generalized slowing but he was on a small dose of precedex during the test. The
My dad has been on a ventilator for three weeks today and has had a trach for 12 days now. My question is that the doctors think my dad may have irreparable brain damage although his CT scan was normal. His EEG showed generalized slowing but he was on a small dose of precedex during the test. The
GeordieCMD
in
ICUsteps
4 years ago
Blood Clot from Covid and not waking up
My dad, who is 68, and was in good health prior to Covid, has been in ICU since August 22nd. He has been on a ventilator since Sept 6th and had a tracheostomy on Sept 17th. He hasn't woken up since his trach apart from opening his eyes and doesn't respond to commands. His Vent was turned down to 40%
My dad, who is 68, and was in good health prior to Covid, has been in ICU since August 22nd. He has been on a ventilator since Sept 6th and had a tracheostomy on Sept 17th. He hasn't woken up since his trach apart from opening his eyes and doesn't respond to commands. His Vent was turned down to 40%
GeordieCMD
in
ICUsteps
4 years ago
Can apple cider vinegar help with b12 absorption problems?
Hiya all, I'm a little confused. My friend just showed me a YouTube video from a doctor, which says drinking apple cider vinegar can generate the stomach acid we need if we are vitamin b12 deficient, no need to take further b12. Surely it can't be that simple? Can any one explain please? Many thanks
Hiya all, I'm a little confused. My friend just showed me a YouTube video from a doctor, which says drinking apple cider vinegar can generate the stomach acid we need if we are vitamin b12 deficient, no need to take further b12. Surely it can't be that simple? Can any one explain please? Many thanks
luckymaria
in
Pernicious Anaemia Society
4 years ago
Fibromyalgia and restless legs
My mum is experiencing restless legs and arms at night. She is suffering with fibromyalgia, a chronic nerve pain condition. She's taking gabapentin and mirtazapine at night. Her mirtazapine has been increased - wondered if this was the cause? Or if magnesium tablets would help calm nerves.
My mum is experiencing restless legs and arms at night. She is suffering with fibromyalgia, a chronic nerve pain condition. She's taking gabapentin and mirtazapine at night. Her mirtazapine has been increased - wondered if this was the cause? Or if magnesium tablets would help calm nerves.
David_36
in
Restless Legs Syndrome
4 years ago
I need a doctor who will listen to me!
I am infuriated. I am experiencing augmentation after 4 years on ropinirole. I experience severe RLS at least every other night and consequently do not get any sleep at all. The RLS has even spread beyond my legs. I finally discovered (after some research on the RLS foundation website) that if I take
I am infuriated. I am experiencing augmentation after 4 years on ropinirole. I experience severe RLS at least every other night and consequently do not get any sleep at all. The RLS has even spread beyond my legs. I finally discovered (after some research on the RLS foundation website) that if I take
cjouelle
in
Restless Legs Syndrome
4 years ago
RLS and it’s woes
Hi everyone. As a RLS sufferer for years I have tried magnesium iron supplements. Acupuncture mats Gabapenten and for the lack of sleep Clonazepam. My mainstay is ropinirole now up to 2mgs per day which makes my vision blurred and augmentation. Ropinirole is failing. I find the symptoms are timely
Hi everyone. As a RLS sufferer for years I have tried magnesium iron supplements. Acupuncture mats Gabapenten and for the lack of sleep Clonazepam. My mainstay is ropinirole now up to 2mgs per day which makes my vision blurred and augmentation. Ropinirole is failing. I find the symptoms are timely
Debsamuels
in
Restless Legs Syndrome
4 years ago
Unsure if this is lupus.
Tired of my daughter being invisible. She’s 17 and suffers daily and I feel so helpless as no one seems to give us any answers. From the age of 12 she’s had episodes where she passes out. She suffers daily with migraines and constant brain fog. Three years ago she was diagnosed with cold urticaria
Tired of my daughter being invisible. She’s 17 and suffers daily and I feel so helpless as no one seems to give us any answers. From the age of 12 she’s had episodes where she passes out. She suffers daily with migraines and constant brain fog. Three years ago she was diagnosed with cold urticaria
Sarah-38
in
LUPUS UK
4 years ago
Invisible illness
Tired of my daughter being invisible. She’s 17 and suffers daily and I feel so helpless as no one seems to give us any answers. From the age of 12 she’s had episodes where she passes out. She suffers daily with migraines and constant brain fog. Three years ago she was diagnosed with cold urticaria
Tired of my daughter being invisible. She’s 17 and suffers daily and I feel so helpless as no one seems to give us any answers. From the age of 12 she’s had episodes where she passes out. She suffers daily with migraines and constant brain fog. Three years ago she was diagnosed with cold urticaria
Sarah-38
in
Foggy's "Invisible Illness" Support
4 years ago
Temgesic - letter to the Consultant - raising the profile
If you take a look at my post 'Thought for the Day' you'll understand the context of this letter we sent to Mrs P's consultant. I'm urging suffers to write down their experiences and send it to their doctors. We sent this as an email together with the evidence for Temgesic success stories. I'm hoping
If you take a look at my post 'Thought for the Day' you'll understand the context of this letter we sent to Mrs P's consultant. I'm urging suffers to write down their experiences and send it to their doctors. We sent this as an email together with the evidence for Temgesic success stories. I'm hoping
puzzler1
in
Restless Legs Syndrome
4 years ago
Sepsis & alcohol withdrawal. Father won’t respond as doctors would like coming off sedation
I can’t find anything online that’s similar to my dads situation, so I am hoping I can gain some insight here. My dad collapsed last Thursday morning 9/10. He was rushed to the hospital to have emergency surgery. They found a hole in his intestine so he went totally septic. Not only is he septic right
I can’t find anything online that’s similar to my dads situation, so I am hoping I can gain some insight here. My dad collapsed last Thursday morning 9/10. He was rushed to the hospital to have emergency surgery. They found a hole in his intestine so he went totally septic. Not only is he septic right
rhwoc
in
ICUsteps
4 years ago
Buprenorphine/Subutex
Hi all-I’ve been able to find a clinic here locally in Oklahoma City that is working with me on the withdrawal from pramipexole. The quick background on my RLS is 30plus years deep with the highest dose of prami being 3.25 mg. Buprenorphine is working. I am now at .16 mg with bouts of breakthrough occasionally
Hi all-I’ve been able to find a clinic here locally in Oklahoma City that is working with me on the withdrawal from pramipexole. The quick background on my RLS is 30plus years deep with the highest dose of prami being 3.25 mg. Buprenorphine is working. I am now at .16 mg with bouts of breakthrough occasionally
erinjee
in
Restless Legs Syndrome
4 years ago
Lyrica - side effects
Hi I’ve just been reading some of the recent posts about medication for RLS. I can honestly say the only thing that worked for myself was co codomol a 60 mg dose before bed time. I have bowel complications ( high risk of blockage ) And found that this was making me too constipated so had to stop . I
Hi I’ve just been reading some of the recent posts about medication for RLS. I can honestly say the only thing that worked for myself was co codomol a 60 mg dose before bed time. I have bowel complications ( high risk of blockage ) And found that this was making me too constipated so had to stop . I
Esme2007
in
Restless Legs Syndrome
4 years ago
Smoking and Fluoxetine
After stopping the Fluoxetine and quitting smoking my restless legs have gone completely. Think the smoking has played a big part of the problem for many years (about 20) which gave me restless legs every other day at different times but when I started taking the Fluoxetine the condition was far more
After stopping the Fluoxetine and quitting smoking my restless legs have gone completely. Think the smoking has played a big part of the problem for many years (about 20) which gave me restless legs every other day at different times but when I started taking the Fluoxetine the condition was far more
Bengal5
in
Restless Legs Syndrome
4 years ago
Sedation weaning, non responsive
Hello My mom has been on a ventilator for 3 weeks and despite the odds she’s somehow maintaining okay. Definitely not close to weaning her off yet but the nurse said they tried to lower her sedation from 3 to 1 and she didn’t respond to any pain. She also said the neurologist couldn’t get her to open
Hello My mom has been on a ventilator for 3 weeks and despite the odds she’s somehow maintaining okay. Definitely not close to weaning her off yet but the nurse said they tried to lower her sedation from 3 to 1 and she didn’t respond to any pain. She also said the neurologist couldn’t get her to open
Faithful2020
in
ICUsteps
4 years ago
Trazodone for RLS?
Hi my fellow sufferers :-( . I've been doing a lot of research online, and today I found something interesting. I've been taking Lexapro for my depression for several months now. For some reason a few weeks later my Doctor prescribed Trazodone and I didn't understand why she would prescribe two depression
Hi my fellow sufferers :-( . I've been doing a lot of research online, and today I found something interesting. I've been taking Lexapro for my depression for several months now. For some reason a few weeks later my Doctor prescribed Trazodone and I didn't understand why she would prescribe two depression
Micafe
in
Restless Legs Syndrome
4 years ago
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