Bad nails: Does anyone have problems with their... - LUPUS UK

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Bad nails

Jolevans profile image
14 Replies

Does anyone have problems with their nails?

The white part of the nails are getting bigger where the nail is not attached to my finger. The nails are also very thin and brittle so I can’t grow them long I just have to hide it with nail varnish as they look awful.

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Jolevans profile image
Jolevans
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14 Replies
LalSD profile image
LalSD

Hi Jolevans, have you asked professional opinion? I think if the nail is detaching, it will quite some sort of treatment. I would definitely contact my GP, send pictures and have a phone consultation, specifying the duration and it’s progress. It may be that there might be an easy solution. I hope so. Lx

Jolevans profile image
Jolevans in reply to LalSD

Hi, yes several drs have seen it and don’t seem concerned about it!

LalSD profile image
LalSD in reply to Jolevans

I had a fungal infection in my toe nails, which I treated with tea tree oil as well as mint oil, I guess the doctors would have known the fungal infection, fairly easy to identify. I used to have my nail toe nails come off from its bed regularly. It eventually settled and it was usually when I had a lupus flare. If you cut it short and leave the tea tree oil regularly keeping clean and dry, I wonder if it would help? Please do not try anything without consulting with your doctor. I hope you get better soon. Lx

Wendy39 profile image
Wendy39

Hello Jolevans

Your photo and nail issues rang a bell with me.

My toe nails look similar. Some of them are separating from the nail bed which is called onycholysis. I also have pitting and ridges. Some of my “moons” have disappeared completely.

I would say you need to see a dermatologist.

For my toes, I saw a chiropodist recently and she confirmed what she could see, from her professional point of view. She thinks it’s lupus or psoriatic arthritis causing my changes.

Unfortunately my dermatologist is actually a GP with a special interest in skin.

So I will see a Dermy privately and then see my rheumatologists.

I have been Googling a lot to work it and pictures of nails like yours and mine come up.

Take a look at this.

dermnetnz.org/topics/nail-p...

I’m afraid with my situation, I have more questions than answers.

I should also point out I’m not a doctor or medically trained, just a fellow lupus patient.

Best wishes

Wendy

Jolevans profile image
Jolevans in reply to Wendy39

Thank you Wendy39 at least I now have a name for it but treatment doesn’t look very hopeful.

Wendy39 profile image
Wendy39 in reply to Jolevans

Just to clarify, the doctors haven’t been able to tell if my nails are fungal or psoriatic in nature. Only getting toe / finger nail clippings sent to a lab will tell you. Some of mine are fungal. Some aren’t. I even got told I might have skin cancer in one toe nail and they have to remove it. Half came back no fungal infection and the other half fungal??? But basically you can’t tell by looking. It’s needs investigating. Get your GP involved, for sending nails off to lab and then ask for Dermy referral. I’ve been treating mine for over 3 years with no success. Which is relevant. Plus to confuse things even more, you can have fungal infection and psoriasis in the same nails, at the same time. It’s not easy to work through. Have you checked out the LUPUS UK publications which might help. Good luck.

whatsit profile image
whatsit

I have one nail that almost completely detached ring finger , I’ve seen a dermatologist privately , expensive drops , didn’t work , that’s two years ago , they can get better on there own mine did all but thumbs ring finger keep them dry , wear gloves to wash up , hope they recover for you x

Jolevans profile image
Jolevans in reply to whatsit

I’ve had for a very long time probably Started 15 years Ago just in 1 finger very very slowly gets worse. I’ve always worn gloves as I get eczema.

Will mention again and get referred To someone.

KayHimm profile image
KayHimm

Jolevans -

The sooner you get a diagnosis, the better. If it is a fungal infection, the new medication Jublia has been effective for me. A podiatrist may also recommend cutting your nails very short. Treatment period is about year - hard to treat.

I don’t know about other conditions, but there are many here with nail issues who can tell you what has worked.

Don’t give up. New medications continue to come out.

K

Jolevans profile image
Jolevans

Thank you

Jumper99 profile image
Jumper99

It could be psoriasis which is another autoimmune disease which can also cause some arthritis too and also can affect other areas. I would suggest seeing the GP.

BobJones85 profile image
BobJones85

Is that a fungal nail infection? If you find that it is, you could try using nail paint made from natural oils

Jolevans profile image
Jolevans

Hi BobJones,

The GP confirmed it was not fungal. It looks like it’s not treatable.

Kels1974 profile image
Kels1974

It could be psa

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