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Terrible Pain and Aches
Hi everyone :) I've had terrible aches and pains lately. Mainly in my lower body hips and down. I'm at 7mg of Pred these days. Yesterday I had to take Co-codamol (prescription strength) which I found in a box. They were a bit old but worked a bit and I was able to function a bit but with no lifting
Hi everyone :) I've had terrible aches and pains lately. Mainly in my lower body hips and down. I'm at 7mg of Pred these days. Yesterday I had to take Co-codamol (prescription strength) which I found in a box. They were a bit old but worked a bit and I was able to function a bit but with no lifting
Hidden
in
PMRGCAuk
2 years ago
Pain advice
Hi I’ve got endometriosis specifically adhesions around bowel and pelvic area I had an MRI scan on NHS beginning of April but still waiting for a consultation appointment to come through to discuss results and treatment options For the last few months though I’m finding there are more and more day
Hi I’ve got endometriosis specifically adhesions around bowel and pelvic area I had an MRI scan on NHS beginning of April but still waiting for a consultation appointment to come through to discuss results and treatment options For the last few months though I’m finding there are more and more day
cathhomer
in
Endometriosis UK
2 years ago
New and still learning how to deal with PMR
Hi, I was diagnosed just over a year ago with PMR. Just recently I have had two bad flares and in-between these I tested positive for Covid. The first recent flare was end of March, almost coinciding with my year anniversary of being diagnosed with PMR and suspected GCA due to symptoms I experienced
Hi, I was diagnosed just over a year ago with PMR. Just recently I have had two bad flares and in-between these I tested positive for Covid. The first recent flare was end of March, almost coinciding with my year anniversary of being diagnosed with PMR and suspected GCA due to symptoms I experienced
Songbird6
in
PMRGCAuk
2 years ago
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Testosterone-based treatments for endo
Hi. I am having my first appointment with specialist endo consultant on Monday. I am non-binary and 43. I was diagnosed with endo when an endometrioma was found on my right ovary during elective laparoscopic tubal ligation sterilisation surgery I had at the same time as endometrial ablation. After nearly
Hi. I am having my first appointment with specialist endo consultant on Monday. I am non-binary and 43. I was diagnosed with endo when an endometrioma was found on my right ovary during elective laparoscopic tubal ligation sterilisation surgery I had at the same time as endometrial ablation. After nearly
MalachiteAli
in
Endometriosis UK
2 years ago
New PMR Sufferer
Hi, as a new PMR sufferer, I am keen to hear from similar sufferers of the condition! I consider my symptoms as moderate and I appear to be managing my condition reasonably well with 15mg of Prednisolone. I also supplement my diet with Magnesium and Vitamin D, a daily dose of Cod Liver oil. I actively
Hi, as a new PMR sufferer, I am keen to hear from similar sufferers of the condition! I consider my symptoms as moderate and I appear to be managing my condition reasonably well with 15mg of Prednisolone. I also supplement my diet with Magnesium and Vitamin D, a daily dose of Cod Liver oil. I actively
LTDWJ
in
PMRGCAuk
2 years ago
It's not working.
At the third attempt to reduce Prednisolone down the Osteoradionecrosis in my Right jaw has flared up causing intense pain, sleeplessness and inability to eat. The great Vision of my various professionals is for me to reduce to 5mg and then commence Hydrocortisone 5mg morne/10mg nocte as apparently Hydrocortisone
At the third attempt to reduce Prednisolone down the Osteoradionecrosis in my Right jaw has flared up causing intense pain, sleeplessness and inability to eat. The great Vision of my various professionals is for me to reduce to 5mg and then commence Hydrocortisone 5mg morne/10mg nocte as apparently Hydrocortisone
AncientMariner
in
PMRGCAuk
2 years ago
Supplements
Hi Everyone , Had a few suggestions of supplements I could take which will help me dealing with my arthritis. These were Cod liver oil capsules- great for taking care of your joints Glucosamine and Condroitin - also great for taking care of your joints . Finally Coenzyme Q10 which improves your energy
Hi Everyone , Had a few suggestions of supplements I could take which will help me dealing with my arthritis. These were Cod liver oil capsules- great for taking care of your joints Glucosamine and Condroitin - also great for taking care of your joints . Finally Coenzyme Q10 which improves your energy
Bluegolf1975
in
NRAS
2 years ago
Been on B12 injections for nearly two years yet have the most awful flare up.
As many of you will already know Iam injecting daily to keep symptoms at bay. For the last 4 days I have been in agony with a flare up of gout and stinging and burning back in my legs. I have also got the old foggy head back and for the life of me cant understand why ? ? ? 😭 Has anybody
As many of you will already know Iam injecting daily to keep symptoms at bay. For the last 4 days I have been in agony with a flare up of gout and stinging and burning back in my legs. I have also got the old foggy head back and for the life of me cant understand why ? ? ? 😭 Has anybody
Jillymo
in
Pernicious Anaemia Society
2 years ago
Chronic abdominal pain
Diagnosed with bile gastritis reflux 6 months ago after scope Pain still the same upper abdominal pain and bloating Currently on lansoprazole, atorvastatin and clopidogrel on prescription. I buy Co-codamol 8/500 from chemist for the pain which I take when it gets too bad . Not sure if there’s anything
Diagnosed with bile gastritis reflux 6 months ago after scope Pain still the same upper abdominal pain and bloating Currently on lansoprazole, atorvastatin and clopidogrel on prescription. I buy Co-codamol 8/500 from chemist for the pain which I take when it gets too bad . Not sure if there’s anything
Nesting
in
Oesophageal & Gastric Cancer
2 years ago
Feeling forced to take pain medication
For nearly 15 years I have refused to take any pain relief except from paracetamol this was mainly due to being a single parent with 4 very young boys and didn’t want to not be in control of myself or become dependent on any form of pain relief. 2 years ago I was in a really bad way regarding the amount
For nearly 15 years I have refused to take any pain relief except from paracetamol this was mainly due to being a single parent with 4 very young boys and didn’t want to not be in control of myself or become dependent on any form of pain relief. 2 years ago I was in a really bad way regarding the amount
Lornap1
in
NRAS
2 years ago
Fibromyalgia and Lisfranc
Hi , I’m looking help regarding medication or health alternatives to manage pain. Here’s a bit of background after years of going to doctor I was diagnosed with fibromyalgia in March 2020. In one way it was a relief because I honestly though I was going round the bend and I think my family though
Hi , I’m looking help regarding medication or health alternatives to manage pain. Here’s a bit of background after years of going to doctor I was diagnosed with fibromyalgia in March 2020. In one way it was a relief because I honestly though I was going round the bend and I think my family though
Hamer5
in
Fibromyalgia Action UK
2 years ago
Carboplatin/ Gemcitabine
Hello ladies I want to share my experience of carbo/gem and ask if you have had similar experiences or if you can shed some light on the problems I have had. I had the first gem/carbo last Thursday. I was fine at first but by Sunday I had excruciating abdominal pain. I rang the oncology triage on the
Hello ladies I want to share my experience of carbo/gem and ask if you have had similar experiences or if you can shed some light on the problems I have had. I had the first gem/carbo last Thursday. I was fine at first but by Sunday I had excruciating abdominal pain. I rang the oncology triage on the
Duskygem
in
My Ovacome
2 years ago
Bowel trouble post laparoscopy.
Hello, I underwent diagnosis laparoscopy for endometriosis on Thursday morning and am recovering at home having had stage 1 endometriosis removed from my bladder. Feeling rather tender from the procedure as you can imagine and have been given co-codamol as painkillers. However, this has of course effected
Hello, I underwent diagnosis laparoscopy for endometriosis on Thursday morning and am recovering at home having had stage 1 endometriosis removed from my bladder. Feeling rather tender from the procedure as you can imagine and have been given co-codamol as painkillers. However, this has of course effected
graceeredpath
in
Endometriosis UK
2 years ago
Unexplained Leg and Thigh Pain
Morning all, not sure that this anything to do with the forum and I wasn't going to mention it until my long chat with the doctor yesterday morning. Since Thursday I have been suffering from excruciating pain in my right leg, which appears to start in/around my knee and which then radiates up to my thigh
Morning all, not sure that this anything to do with the forum and I wasn't going to mention it until my long chat with the doctor yesterday morning. Since Thursday I have been suffering from excruciating pain in my right leg, which appears to start in/around my knee and which then radiates up to my thigh
Bcol
in
PMRGCAuk
2 years ago
It's back what supplements are ok?
Hi all, Budge up everyone, I need a place at the PMR table again. My last Pred was taken in December 2016 or so I thought. My osteo arthiritis flared a couple of weeks ago but after three days of Flarin it didn't calm down. I noticed after a while a few familiar shoulder twinges and booked a telephone
Hi all, Budge up everyone, I need a place at the PMR table again. My last Pred was taken in December 2016 or so I thought. My osteo arthiritis flared a couple of weeks ago but after three days of Flarin it didn't calm down. I noticed after a while a few familiar shoulder twinges and booked a telephone
BirmLiz
in
PMRGCAuk
2 years ago
Sciatica hell
Hi. I have been diagnosed (over phone!) either sciatica. It crept upon me over a few days, no obvious cause, I've now had it 2 weeks. Its so very painful - a gnawing deep ache across right buttock down back of leg into calf. Can't get comfortable anywhere and difficulty walking without holding on
Hi. I have been diagnosed (over phone!) either sciatica. It crept upon me over a few days, no obvious cause, I've now had it 2 weeks. Its so very painful - a gnawing deep ache across right buttock down back of leg into calf. Can't get comfortable anywhere and difficulty walking without holding on
Lunadoo
in
Pain Concern
2 years ago
Help with unexplained weight loss
Hello all, I am waiting upon the fitting of an ICD. In the meantime, as a type II diabetic, I have been having terrible problems with my guts. Lost 20lbs in just a month. Seems my medications had pushed me into Ketosis which probably is the cause. This came on top of painful cramps and griping in my
Hello all, I am waiting upon the fitting of an ICD. In the meantime, as a type II diabetic, I have been having terrible problems with my guts. Lost 20lbs in just a month. Seems my medications had pushed me into Ketosis which probably is the cause. This came on top of painful cramps and griping in my
Brunovsky
in
British Heart Foundation
2 years ago
Cerrelle constant bleeding
I was given the progesterone only pill because I can’t take the combination pill as I have aurora migraines and it increases the risk of stroke. Well I have been bleeding constantly for two weeks. I’ve been on it for 5 weeks. I can handle the annoyance of a constant period but not the pain and discomfort
I was given the progesterone only pill because I can’t take the combination pill as I have aurora migraines and it increases the risk of stroke. Well I have been bleeding constantly for two weeks. I’ve been on it for 5 weeks. I can handle the annoyance of a constant period but not the pain and discomfort
ZebraZone
in
Endometriosis UK
2 years ago
Please help. Where do I go next?
I had my first gynaecology appointment this morning and have come away feeling like I haven’t been listened to and my symptoms are not real. I am considering my next steps and whether to go back to my GP. I had been waiting 1.5 years for this appointment and feel very upset that I may now not get any
I had my first gynaecology appointment this morning and have come away feeling like I haven’t been listened to and my symptoms are not real. I am considering my next steps and whether to go back to my GP. I had been waiting 1.5 years for this appointment and feel very upset that I may now not get any
sweetpea2288
in
Endometriosis UK
2 years ago
Painkillers
I have cirrhosis and my back has just given out on me (I have a dodgy disc) I know my pain relief options are limited but I need something as it is extrememly painful. What is the latest advice about what painkillers are best for the liver? Co-codamol is what I have here (and paracetamol) but I know
I have cirrhosis and my back has just given out on me (I have a dodgy disc) I know my pain relief options are limited but I need something as it is extrememly painful. What is the latest advice about what painkillers are best for the liver? Co-codamol is what I have here (and paracetamol) but I know
theoldboiler
in
British Liver Trust
2 years ago
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