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To continue or not....that is the question
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
Dawson21
in
CLL Support
2 years ago
Are my expectations too high?
I was diagnosed 15 months ago. I was started on prednisolone then added methotrexate then sulfasalazine then abatacept. I am now taking all four plus co codamol and naproxen occasionally. I would have expected to be able to function but my hands are still very stiff and painful and am very fatigued.
I was diagnosed 15 months ago. I was started on prednisolone then added methotrexate then sulfasalazine then abatacept. I am now taking all four plus co codamol and naproxen occasionally. I would have expected to be able to function but my hands are still very stiff and painful and am very fatigued.
Oscardoggy
in
NRAS
2 years ago
Online doctor's service ordered to pay £13k for providing unregistered services
We often see members asking about pharmacies which offer some form of consultation before prescribing and supplying prescription-only or pharmacy medicines. This story is about one with a very questionable way of working:
[i]Online doctor's service ordered to pay £13k for providing unregistered
We often see members asking about pharmacies which offer some form of consultation before prescribing and supplying prescription-only or pharmacy medicines. This story is about one with a very questionable way of working:
[i]Online doctor's service ordered to pay £13k for providing unregistered
helvella
Thyroid UK
in
Thyroid UK
2 years ago
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Vitamins
Hi all just wondering what yous think about these to take daily. I also have a magnesium oxide (266mg) and zinc gluconate (10mg) combined. I've also got Vitk2 (50ug) sunflower oil Magnesium and b6 (1.4mg and 375mg) 1000iu vit d3 Cod liver oil omega 3 extra strength ( cod oil 266mg, fish oil concentrate
Hi all just wondering what yous think about these to take daily. I also have a magnesium oxide (266mg) and zinc gluconate (10mg) combined. I've also got Vitk2 (50ug) sunflower oil Magnesium and b6 (1.4mg and 375mg) 1000iu vit d3 Cod liver oil omega 3 extra strength ( cod oil 266mg, fish oil concentrate
Darcey14
in
Thyroid UK
2 years ago
Alternative to naproxen
Alternative to naproxen Hi I’ve been taking naproxen for some years now for RA, but I also have CKD ( chronic kidney disease). After going for my six monthly checkup with the RA specialist, she has suggested I stop naproxen and switch to co-codamol, which I reluctant to do. Has any one been in the
Alternative to naproxen Hi I’ve been taking naproxen for some years now for RA, but I also have CKD ( chronic kidney disease). After going for my six monthly checkup with the RA specialist, she has suggested I stop naproxen and switch to co-codamol, which I reluctant to do. Has any one been in the
Chris_O
in
NRAS
2 years ago
8 days post ablation
What a week?! I had an RF ablation at the start of last week but felt, what I thought, was excessive pain in my chest (particularly when lying on my back) 2/3 days after but just stuck with it thinking it was a standard recovery symptom for RF as I’d only had cryo done before. However on Thursday night
What a week?! I had an RF ablation at the start of last week but felt, what I thought, was excessive pain in my chest (particularly when lying on my back) 2/3 days after but just stuck with it thinking it was a standard recovery symptom for RF as I’d only had cryo done before. However on Thursday night
Safc1983
in
AF Association
2 years ago
Holistic treatments
Morning all, So am waiting a lap to confirm suspicion of endo. Stopped Pill 3 years ago to try for a baby. 2 years ago got diagnosed with a 6cm cyst with blood but not a endometrioma. Interestingly the male SHO told me it was small and shouldn't have been in so much pain - only found out it was 6cm
Morning all, So am waiting a lap to confirm suspicion of endo. Stopped Pill 3 years ago to try for a baby. 2 years ago got diagnosed with a 6cm cyst with blood but not a endometrioma. Interestingly the male SHO told me it was small and shouldn't have been in so much pain - only found out it was 6cm
bee109
in
Endometriosis UK
2 years ago
Toughest Pred reduction so far ..... any advice or tips please
Hello lovely folk, I am interested in your thoughts, wisdom and experience. I have been reducing my Pred, super slowly, for over 2 years. I have been reducing by .5mg, usually every 6-8 weeks. I am used to the first 2 weeks on the full lower dose being uncomfortable, then the next 3-6 weeks being
Hello lovely folk, I am interested in your thoughts, wisdom and experience. I have been reducing my Pred, super slowly, for over 2 years. I have been reducing by .5mg, usually every 6-8 weeks. I am used to the first 2 weeks on the full lower dose being uncomfortable, then the next 3-6 weeks being
Prof99
in
PMRGCAuk
2 years ago
Going away this weekend and in pain. What shall I do?
Started PMR journey on 15mg pred last May 2021. 15mg was great. Down to 7mg but last few weeks am struggling. I had a bad cough/cold most of January and put my aches and pains down to that. I have a (strange - not pulled muscle) lower back and pelvic girdle type pain. It feels a bit like stiffness and
Started PMR journey on 15mg pred last May 2021. 15mg was great. Down to 7mg but last few weeks am struggling. I had a bad cough/cold most of January and put my aches and pains down to that. I have a (strange - not pulled muscle) lower back and pelvic girdle type pain. It feels a bit like stiffness and
MiloCollie
in
PMRGCAuk
2 years ago
Help with Fibromyalgia
Hi all I'm on here trying to help my 27yr old son who has chronic fibromyalgia, he is on 8x 30/500mg Co-codamol a day but struggles terrible of a night with sleep and severe pain, any help would be so grateful.
Hi all I'm on here trying to help my 27yr old son who has chronic fibromyalgia, he is on 8x 30/500mg Co-codamol a day but struggles terrible of a night with sleep and severe pain, any help would be so grateful.
Fairytale50
in
Fibromyalgia Action UK
2 years ago
Non drowsy pain medication?
Hi all, I have endo between uterus and bowel, my left ovary is stuck to my pelvis and bowel and I have adeno as well. I've only tried ibuprofen, paracetemol, naproxen, codeine and co-codamol (over the counter strength) for pain relief and co-codamol works best to take the edge off. Unfortunately it
Hi all, I have endo between uterus and bowel, my left ovary is stuck to my pelvis and bowel and I have adeno as well. I've only tried ibuprofen, paracetemol, naproxen, codeine and co-codamol (over the counter strength) for pain relief and co-codamol works best to take the edge off. Unfortunately it
Kricam78
in
Endometriosis UK
2 years ago
Myosure procedure
Hello, I’m awake and in excruciating pain following a myosure procedure three days ago. They removed a polyp and some tissue and I had 6 injections inside me. Does anyone have any advice as ibuprofen and co codamol are not touching the pain and I don’t know what to do? Anyone else in excruciating pain
Hello, I’m awake and in excruciating pain following a myosure procedure three days ago. They removed a polyp and some tissue and I had 6 injections inside me. Does anyone have any advice as ibuprofen and co codamol are not touching the pain and I don’t know what to do? Anyone else in excruciating pain
Sazle
in
Endometriosis UK
2 years ago
Vitamin D in winter months
Vitamin D2 is ingested from a healthy balanced diet and can be derived from everyday foods such as: Egg yolks and fatty fish like; trout, mackerel, salmon or tuna, as well as cod liver oil, or fortified milk, juices and cereals. Vitamin D3 however, is most efficiently produced when our skin is exposed
Vitamin D2 is ingested from a healthy balanced diet and can be derived from everyday foods such as: Egg yolks and fatty fish like; trout, mackerel, salmon or tuna, as well as cod liver oil, or fortified milk, juices and cereals. Vitamin D3 however, is most efficiently produced when our skin is exposed
SkcinHQ
Partner
in
Skin Cancer UK
2 years ago
Zapain and Paracetamol
Hi everyone. Does anyone take these painkillers together. I have been prescribed Zapain 30/500 . two tablets at night, but in the daytime to take one Zapain and one paracetamol 500. I understand that Zapain is a generic, has anyone found it inferior to the Co-Codamol. Thank you to everyone who
Hi everyone. Does anyone take these painkillers together. I have been prescribed Zapain 30/500 . two tablets at night, but in the daytime to take one Zapain and one paracetamol 500. I understand that Zapain is a generic, has anyone found it inferior to the Co-Codamol. Thank you to everyone who
cmjoyce
in
Arthritis Action
2 years ago
Neuropathic symptoms? In excruciating pain and not being taken seriously
Hello everyone, A bit of background: I have been on a very long waiting list with the NHS to see gynacology, I finally got seen in November and I was told my symptoms were suspected endometriosis and I was put on the waiting list for a laparoscopy. I'm still waiting and haven't heard anything 11 weeks
Hello everyone, A bit of background: I have been on a very long waiting list with the NHS to see gynacology, I finally got seen in November and I was told my symptoms were suspected endometriosis and I was put on the waiting list for a laparoscopy. I'm still waiting and haven't heard anything 11 weeks
Jaa64678
in
Endometriosis UK
2 years ago
SIDE EFFECTS OF ANAGRELIDE
Update from previous post. Saw Haematologist yesterday, unable to have Interferon, only option open to me is Anagrelide. What are your experiences of this medication please. I'm ET JAk2, take Aspirin, 15 mg Prednisone and co codamol or similar pain relief for spinal stenosis. At present take Ruxolitinib
Update from previous post. Saw Haematologist yesterday, unable to have Interferon, only option open to me is Anagrelide. What are your experiences of this medication please. I'm ET JAk2, take Aspirin, 15 mg Prednisone and co codamol or similar pain relief for spinal stenosis. At present take Ruxolitinib
Heather270240
in
MPN Voice
2 years ago
The long wait for laparoscopy
Hi all! I had my first outpatient meeting with gynaecology yesterday, where I've been referred for a laparoscopy to try to diagnose and treat what's suspected bladder endo. Unfortunately with covid and the current nhs strain the wait times are likely over a year and no further treatment has been offered
Hi all! I had my first outpatient meeting with gynaecology yesterday, where I've been referred for a laparoscopy to try to diagnose and treat what's suspected bladder endo. Unfortunately with covid and the current nhs strain the wait times are likely over a year and no further treatment has been offered
AnonyMousey99
in
Endometriosis UK
2 years ago
Constant headache
Constant headache For the past week I have had a pretty bad headache. I have seen a doctor who examined me for GCA . He didn’t think it was so prescribed co-codamol. At night I wake the pains in the head and under my tongue almost like a cramp. If I take a pain killer I can last till the morning
Constant headache For the past week I have had a pretty bad headache. I have seen a doctor who examined me for GCA . He didn’t think it was so prescribed co-codamol. At night I wake the pains in the head and under my tongue almost like a cramp. If I take a pain killer I can last till the morning
Flrchrs
in
PMRGCAuk
2 years ago
Medication changes
Hello, just wondering if anyone can let me know what treatments/medications changed or added when they had taken co-codamol full dose, gabapentin full dose and amitriptilyne 25mg with a change of dihydrocodeine at night instead of codeine and they have been getting extra pain at night (sacro-iliac/periformis
Hello, just wondering if anyone can let me know what treatments/medications changed or added when they had taken co-codamol full dose, gabapentin full dose and amitriptilyne 25mg with a change of dihydrocodeine at night instead of codeine and they have been getting extra pain at night (sacro-iliac/periformis
greekqueen
in
Pain Concern
2 years ago
Co trimoxazole
Hi, And a good New year to All. How long should a person take co trimoxazole?? Any knowledge is appreciated. Thanks
Hi, And a good New year to All. How long should a person take co trimoxazole?? Any knowledge is appreciated. Thanks
sorefeetsoldier
in
Vasculitis UK
2 years ago
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