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Digestive symptoms post dialysis
my husband has been on center hemodialysis for about a year and a half. None of the medical staff seem to be able to understand or help with the extreme throat/esophageal discomfort he feels for close to 24 hours following dialysis., with no appetite. I wondered if anyone else has experienced this. He
my husband has been on center hemodialysis for about a year and a half. None of the medical staff seem to be able to understand or help with the extreme throat/esophageal discomfort he feels for close to 24 hours following dialysis., with no appetite. I wondered if anyone else has experienced this. He
22171
in
Kidney Dialysis
1 year ago
Dialysis, what are the cons?
I'm a way off from having to have dialysis but am wondering about the cons of it. I know the pros but would like to hear from dialysis patients what it's like, the cons, the diet, labs, etc. Not really sure but I have a feeling that it's not as cozy or as simple as it looks to be. Also, maybe from
I'm a way off from having to have dialysis but am wondering about the cons of it. I know the pros but would like to hear from dialysis patients what it's like, the cons, the diet, labs, etc. Not really sure but I have a feeling that it's not as cozy or as simple as it looks to be. Also, maybe from
jodaer
in
Kidney Dialysis
1 year ago
latest news on liver transplants fo4 young people
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
Harriet-sarah
in
British Liver Trust
1 year ago
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Travel and Ibrance
I was diagnosed with MBC in June, 2023. I am on Ibrance and letrozole. My medical history is complicated by having had a donor stem cell transplant in 2018 for T cell lymphoma. My immune system was compromised from that but now with Ibrance I'm not sure what to expect in terms of traveling and
I was diagnosed with MBC in June, 2023. I am on Ibrance and letrozole. My medical history is complicated by having had a donor stem cell transplant in 2018 for T cell lymphoma. My immune system was compromised from that but now with Ibrance I'm not sure what to expect in terms of traveling and
Artesa
in
SHARE Metastatic Breast Cancer
6 months ago
stem cell for et?
Would stem cell transplant be an option for ET? I cannot take the Hydrea or Anagralide. Thanks for your feed back
Would stem cell transplant be an option for ET? I cannot take the Hydrea or Anagralide. Thanks for your feed back
Preacherswife
in
MPN Voice
6 months ago
PSADT question...plus Xofigo and comorbidities
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
WeatherLook
in
Advanced Prostate Cancer
1 year ago
serum inorganic phosphate
Hello, I hope you are all keeping as well as possible. Last week I had some blood results back and have an appointment this Friday to talk to my GP about raised serum inorganic phosphate. This was measured one year ago and was in the normal range at 1.26mmoI/L. It is now 1.84mmI/L and in the abnormal
Hello, I hope you are all keeping as well as possible. Last week I had some blood results back and have an appointment this Friday to talk to my GP about raised serum inorganic phosphate. This was measured one year ago and was in the normal range at 1.26mmoI/L. It is now 1.84mmI/L and in the abnormal
Pangolin43
in
PMRGCAuk
1 year ago
And so it begins......home dialysis
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
Bassetmommer
in
Kidney Dialysis
1 year ago
AXSL1 gene mutation
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
merlisa
in
MPN Voice
6 months ago
SCT journey update No.2
Hi all, following on from my last post, have just heard from my clinical nurse that they have found three very good donor matches on the registers!! Have been somewhat impatient waiting but as this situation is so new and different for everyone, has been difficult to gauge what is right or wrong. Anyway
Hi all, following on from my last post, have just heard from my clinical nurse that they have found three very good donor matches on the registers!! Have been somewhat impatient waiting but as this situation is so new and different for everyone, has been difficult to gauge what is right or wrong. Anyway
LFCLove
in
MPN Voice
6 months ago
cirrhosis and high kidney levels!
hi my husband has cirrhosis and he got his routine bloods last week and repeated I. Monday both sets of bloods had kidney function readings of 199! The hospital phone late yesterday evening looking him to come first thing this morning to repeat blood and get fluids Has anyone else had these problem
hi my husband has cirrhosis and he got his routine bloods last week and repeated I. Monday both sets of bloods had kidney function readings of 199! The hospital phone late yesterday evening looking him to come first thing this morning to repeat blood and get fluids Has anyone else had these problem
Cfmol
in
British Liver Trust
1 year ago
Kidney Stones
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
Parlorman
in
Advanced Prostate Cancer
1 year ago
CYSTOSCOPY NEGATIVE August 2023
Hey Ladies and Gents. The urologist/oncologist says we can stop the monthly chemo infusions since my urinary bladder looks free of any neoplasm. And next April (2024), if it holds, I’ll be cancer free for three years and can get back on the lung transplant list. “Let your last thinks all be thanks
Hey Ladies and Gents. The urologist/oncologist says we can stop the monthly chemo infusions since my urinary bladder looks free of any neoplasm. And next April (2024), if it holds, I’ll be cancer free for three years and can get back on the lung transplant list. “Let your last thinks all be thanks
Sharp5Flat13
in
Lung Conditions Community Forum
1 year ago
Still on hold for stem cell transplant
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
dwolden
in
CLL Support
6 months ago
nephrectomy
I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia
I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia
Sickey
in
MPN Voice
1 year ago
Are vegetable proteins okay?
(Skip to the last paragraph if you just want to read the question. Everything else is our path to diagnosis). Hello everyone, my son is now three years old. For about 9 months, he has complained of abdominal pain from time to time. For three months now, he has had multiple bladder infections that
(Skip to the last paragraph if you just want to read the question. Everything else is our path to diagnosis). Hello everyone, my son is now three years old. For about 9 months, he has complained of abdominal pain from time to time. For three months now, he has had multiple bladder infections that
Samil90
in
Cystinuria Support
11 months ago
Niki10.
How does one go on the
transplant
list? Am I to old to get a
Kidney
at 61?
How does one go on the
transplant
list? Am I to old to get a
Kidney
at 61?
Niki10
in
Kidney Dialysis
10 months ago
PMR Heavy Legs / Lead Legs / Low Energy
Hello, I haven't posted in a long time. I've read many articles. I didn't know what DSNS was until I went to the FAQ's and then tapering plans page. Both PMRpro and DorsetLady, and others have tapering plans (thank you PMRpro & DorsetLady). I have bounced around 15 to 5 MG for the past year. I'm currently
Hello, I haven't posted in a long time. I've read many articles. I didn't know what DSNS was until I went to the FAQ's and then tapering plans page. Both PMRpro and DorsetLady, and others have tapering plans (thank you PMRpro & DorsetLady). I have bounced around 15 to 5 MG for the past year. I'm currently
Me_2
in
PMRGCAuk
1 year ago
Update on Dipyridamole
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
WideBody
in
Restless Legs Syndrome
1 year ago
cystitisy like feelings
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Norelo8
in
My Ovacome
1 year ago
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