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Kidney Transplant Aug 25
What should I bring to the hospital for my 2-night stay? I live in a second-floor apartment. Will I be able to do the stairs? How many immunosuppressants are you on post-transplant, and for how long? I know the Mayo transplant team (Phoenix) will tell me some of this ... I'm just curious about
What should I bring to the hospital for my 2-night stay? I live in a second-floor apartment. Will I be able to do the stairs? How many immunosuppressants are you on post-transplant, and for how long? I know the Mayo transplant team (Phoenix) will tell me some of this ... I'm just curious about
frebusmaxwell
in
Kidney Transplant
2 years ago
Emphysema
Hi, i joined this group a few months ago. I was diagnosed Dec '21 after being hospitalised because my sats were so low 70-80 at that time. Then it was a whirwind of tests before I got my complete diagnosis with the letter from my consultant with all that fev % stuff at the end of the letter. i went
Hi, i joined this group a few months ago. I was diagnosed Dec '21 after being hospitalised because my sats were so low 70-80 at that time. Then it was a whirwind of tests before I got my complete diagnosis with the letter from my consultant with all that fev % stuff at the end of the letter. i went
Zand60
in
Lung Conditions Community Forum
1 year ago
Sleepy kidney
Hi all, Am hoping someone can reasure or give me some advice. I received a transplant on the 11th April 2023 and its been a rough ride so far. I spent a week in ITU and was hooked up to dopamine for 3 weeks to help my blood pressure. My urine out has been slow, for a few days I got between 600-800ml
Hi all, Am hoping someone can reasure or give me some advice. I received a transplant on the 11th April 2023 and its been a rough ride so far. I spent a week in ITU and was hooked up to dopamine for 3 weeks to help my blood pressure. My urine out has been slow, for a few days I got between 600-800ml
Gwenkidney
in
Kidney Transplant Patient Support
1 year ago
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ARTIFICIAL LIVER
Good news , maybe we don’t have to wait for a liver transplant after all. I didn’t realise that machines existed that can carry out the function of the liver, at this stage they are external like kidney dialysis. Would think you have to hooked up permanently as the liver is always working.
Good news , maybe we don’t have to wait for a liver transplant after all. I didn’t realise that machines existed that can carry out the function of the liver, at this stage they are external like kidney dialysis. Would think you have to hooked up permanently as the liver is always working.
Oztrax
in
British Liver Trust
1 year ago
Depression and Anxiety
I am 68 years male, retired, with diabetes, liver transplant suffering from depression and anxiety. I am single, feel bored, not having hobbies, difficult to pass time alone. Not having friends to talk so missing a lot. I always think of doing suicide. Need help and support.
I am 68 years male, retired, with diabetes, liver transplant suffering from depression and anxiety. I am single, feel bored, not having hobbies, difficult to pass time alone. Not having friends to talk so missing a lot. I always think of doing suicide. Need help and support.
MOVY
in
Anxiety and Depression Support
1 year ago
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Pooled trial data favor use with background therapy for at-risk patients
by Lindsey Shapiro | June 12, 2023 Lupkynis (voclosporin) combined with background lupus treatments better preserved kidney function among
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Pooled trial data favor use with background therapy for at-risk patients
by Lindsey Shapiro | June 12, 2023 Lupkynis (voclosporin) combined with background lupus treatments better preserved kidney function among
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
11 months ago
Strategic Masking to Protect Patients from All Respiratory Viral Infections
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
lankisterguy
Volunteer
in
CLL Support
10 months ago
Black folks - contact your transplant program! Get your start date adjusted.
https://www.usatoday.com/story/news/health/2023/01/23/black-patients-
kidney
-
transplant
-lists-policy-change/11002476002/?fbclid=IwAR21HgSWqOcWFg4Usa6RqQH643c3nTW6qwM7uxX40_v7YEqmAakyTp6fbeo
https://www.usatoday.com/story/news/health/2023/01/23/black-patients-
kidney
-
transplant
-lists-policy-change/11002476002/?fbclid=IwAR21HgSWqOcWFg4Usa6RqQH643c3nTW6qwM7uxX40_v7YEqmAakyTp6fbeo
barbara55109
in
Kidney Disease
1 year ago
UTI and microscopic haematuria
After years of recurring uti and a diagnosis of cystitis cystica after camera jobby I was prescribed vagifem. This worked for 7 years until mother of infection which took 2 lots of antibiotics to subside, and has left me with microscopic haematuria. Don't want further tests, has anyone else experienced
After years of recurring uti and a diagnosis of cystitis cystica after camera jobby I was prescribed vagifem. This worked for 7 years until mother of infection which took 2 lots of antibiotics to subside, and has left me with microscopic haematuria. Don't want further tests, has anyone else experienced
Poshdog
in
PMRGCAuk
1 year ago
First time Kidney Transplant
Now that I am in my 30’s, it has declined to the point of
kidney
transplant
. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney.
Now that I am in my 30’s, it has declined to the point of
kidney
transplant
. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney.
LillyBear09
in
National Foundation for Transplants
2 years ago
Bereavement and loss.
Hello everyone. I've not been around for quite a while but thought now is the time to tell you that my husband passed away in February after his long struggle with chronic rejection of his double lung transplant which he only received in June 2021. I'm struggling coming to terms with his passing and
Hello everyone. I've not been around for quite a while but thought now is the time to tell you that my husband passed away in February after his long struggle with chronic rejection of his double lung transplant which he only received in June 2021. I'm struggling coming to terms with his passing and
Biofreak
in
Lung Conditions Community Forum
1 year ago
Gfr blood test
I have a kidney blood test on Monday at 12.15 should I eat anything before test or wait until over .
I have a kidney blood test on Monday at 12.15 should I eat anything before test or wait until over .
bevgt
in
Early CKD Support
1 year ago
New technique may reveal signs of Parkinson's disease in urine samples
https://www.news-medical.net/amp/news/20230517/New-technique-may-reveal-signs-of-Parkinsons-disease-in-urine-samples.aspx
https://www.news-medical.net/amp/news/20230517/New-technique-may-reveal-signs-of-Parkinsons-disease-in-urine-samples.aspx
Farooqji
in
Cure Parkinson's
1 year ago
transplant with no social support?
I have an appointment to discuss lung transplant but I have no real social support, just one elderly sibling. I did mention this to the girl on the phone but she was very breezy about it and just said when I'd had the transplant I wouldn't be let out of hospital until I was ok and the transplant would
I have an appointment to discuss lung transplant but I have no real social support, just one elderly sibling. I did mention this to the girl on the phone but she was very breezy about it and just said when I'd had the transplant I wouldn't be let out of hospital until I was ok and the transplant would
bundelino
in
Lung Conditions Community Forum
1 year ago
How to become an advocate for kidney health
We discussed some recent wins and upcoming challenges for the kidney advocate community with Jeff Currey, a Connecticut State Representative and
kidney
transplant
recipient, and Armand Halter, an NKF patient advocate who helped lead NKF’s efforts to pass the Connecticut version of the Living Donor Protection
We discussed some recent wins and upcoming challenges for the kidney advocate community with Jeff Currey, a Connecticut State Representative and
kidney
transplant
recipient, and Armand Halter, an NKF patient advocate who helped lead NKF’s efforts to pass the Connecticut version of the Living Donor Protection
JackieJ_NKF
Partner
in
Kidney Donation
2 years ago
Kidney failure and future treatments
Hello everyone, first of all apologies if everything is not very clear as English is not my first language (I generally speak it very well, however I'm not used to talk about medical terms). I'd love to hear about my dad's situation. My dad was diagnosed with Stage IV PC in September, 2022. PSA was
Hello everyone, first of all apologies if everything is not very clear as English is not my first language (I generally speak it very well, however I'm not used to talk about medical terms). I'd love to hear about my dad's situation. My dad was diagnosed with Stage IV PC in September, 2022. PSA was
Yabaa
in
Advanced Prostate Cancer
1 year ago
Chemo may be helping
Hi Fellow Fighters, Prior to my third round of Taxotere last Friday, I had blood work done. After 2 rounds, my PSA dropped 4.7 points. TBH, I feel like crap today, but the results are promising. My blood work also showed low cortisol levels, how concerned should I be about that? Thanks.
Hi Fellow Fighters, Prior to my third round of Taxotere last Friday, I had blood work done. After 2 rounds, my PSA dropped 4.7 points. TBH, I feel like crap today, but the results are promising. My blood work also showed low cortisol levels, how concerned should I be about that? Thanks.
MJCA
in
Advanced Prostate Cancer
1 year ago
THE “C” WORD
Before I get kicked off this forum, “C” stands for Cirrhosis. And yes on my ultrasound report it mentions the dreaded “C” word. But there really is no difference between Cirrhosis and fybrosis except the degree of fybrosis at some arbitrary stage is classed as Cirrhosis. Immediately we hear or see
Before I get kicked off this forum, “C” stands for Cirrhosis. And yes on my ultrasound report it mentions the dreaded “C” word. But there really is no difference between Cirrhosis and fybrosis except the degree of fybrosis at some arbitrary stage is classed as Cirrhosis. Immediately we hear or see
Oztrax
in
British Liver Trust
1 year ago
Does anyone have experience of Lenvatinib as a treatment for liver cancer?
I was diagnosed with liver cancer at the end of September last year, 2022. After a scan I was told that I had one large tumour and several smaller ones, that the large tumour was near the main artery and was of a size that ruled out conventional treatment, liver transplant, radiotherapy, embolisation
I was diagnosed with liver cancer at the end of September last year, 2022. After a scan I was told that I had one large tumour and several smaller ones, that the large tumour was near the main artery and was of a size that ruled out conventional treatment, liver transplant, radiotherapy, embolisation
majorda
in
British Liver Trust
1 year ago
rosuvastatin 5mg and kidney damage
Hi everyone My doctor has put me on Rosuvastatin for my cholesterol which was 5.7. M kidney function has dropped from 57 to 49 in just a few weeks. I have just read that this statin has an increased risk of kidney damage. I have now stopped taking it. We put our faith in our doctors but I really wonder
Hi everyone My doctor has put me on Rosuvastatin for my cholesterol which was 5.7. M kidney function has dropped from 57 to 49 in just a few weeks. I have just read that this statin has an increased risk of kidney damage. I have now stopped taking it. We put our faith in our doctors but I really wonder
sukki
in
Early CKD Support
1 year ago
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