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Kidney failure
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Considering Orchiectomy
New here (except I am 79). Very little knowledge of where I am or where I am going. Began PC journey with PSA 139, Gleeson 9 on 8 of the samples and 8 or 7 on the other 4. Metastisized to 4 locations in bones. Began Firmagon and Erleada. 3 months later PSA .14, Testosterone 4.7. Considering orchiectomy
New here (except I am 79). Very little knowledge of where I am or where I am going. Began PC journey with PSA 139, Gleeson 9 on 8 of the samples and 8 or 7 on the other 4. Metastisized to 4 locations in bones. Began Firmagon and Erleada. 3 months later PSA .14, Testosterone 4.7. Considering orchiectomy
RockinSidney
in
Advanced Prostate Cancer
3 years ago
LUMP IN THROAT??
Hi I have been experiencing a flare up for 3 months, they have never lasted so long before. I am always bloated and getting pain in my upper back, I now feel as though I have a lump in my throat when I swallow. I have had a very stressful year with my partner being diagnosed with metastatic breast
Hi I have been experiencing a flare up for 3 months, they have never lasted so long before. I am always bloated and getting pain in my upper back, I now feel as though I have a lump in my throat when I swallow. I have had a very stressful year with my partner being diagnosed with metastatic breast
Jayne59
in
IBS Network
3 years ago
GCA, PMR, now vasculitis
Hi folks! Diagnosed with GCA in 2015, with PMR in 2021, and now they tell me I have Vasculitis. I am to have a kidney biopsy soon and this is all too confusing. Has anyone had this problem and perhaps have some good advice for me?
Hi folks! Diagnosed with GCA in 2015, with PMR in 2021, and now they tell me I have Vasculitis. I am to have a kidney biopsy soon and this is all too confusing. Has anyone had this problem and perhaps have some good advice for me?
GinnyMa
in
PMRGCAuk
3 years ago
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Testing for antibodies after 3rd covid vaccine
Hi everyone, hope everyone had a good Christmas and new year! We recently done a trial in the uk to test our antibodies after our 3rd covid vaccine for people who have had Kidney Transplants The results came back today. Me and my friend who’ve both had kidney transplants the same week both have 0 antibodies
Hi everyone, hope everyone had a good Christmas and new year! We recently done a trial in the uk to test our antibodies after our 3rd covid vaccine for people who have had Kidney Transplants The results came back today. Me and my friend who’ve both had kidney transplants the same week both have 0 antibodies
Rmatthew
in
Kidney Transplant
3 years ago
Antibodies from covid vaccine
Hi everyone, hope everyone had a good Christmas and new year! We recently done a trial in the uk to test our antibodies after our 3rd covid vaccine for people who have had Kidney Transplants The results came back today. Me and my friend who’ve both had kidney transplants the same week both have 0 antibodies
Hi everyone, hope everyone had a good Christmas and new year! We recently done a trial in the uk to test our antibodies after our 3rd covid vaccine for people who have had Kidney Transplants The results came back today. Me and my friend who’ve both had kidney transplants the same week both have 0 antibodies
Rmatthew
in
Kidney Disease
3 years ago
New, targeted therapy inhibits specific immune cells associated with lupus nephritis
'Intervention targets T cells rather than multiple immune cell types," Prof. Chaim Putterman says. Lupus (systemic lupus erythematosus), an autoimmune disease in which the body recognizes and attacks its own tissues, can affect many organs, including the kidneys. About fifty percent of patients diagnosed
'Intervention targets T cells rather than multiple immune cell types," Prof. Chaim Putterman says. Lupus (systemic lupus erythematosus), an autoimmune disease in which the body recognizes and attacks its own tissues, can affect many organs, including the kidneys. About fifty percent of patients diagnosed
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
C3 glomerulopathy
Hi, my niece diagonosed C3 glomerulopathy and her both kidneys almost non functional. Currently on dialysis. Anyone here who has the same diagnose or who is expertise in this topic help me to explain what will be the treatment options as the doctor said she is not suitable for transplant due to recurrence
Hi, my niece diagonosed C3 glomerulopathy and her both kidneys almost non functional. Currently on dialysis. Anyone here who has the same diagnose or who is expertise in this topic help me to explain what will be the treatment options as the doctor said she is not suitable for transplant due to recurrence
Kavithauk
in
Dialysis Support
3 years ago
Do I need a specialist?
I have been diagnosed with APS following a stroke at age 40. My care is managed by a stroke consultant at a local hospital. I have minimal change disease of my kidneys (linked to the immune system) and I’m wondering about gluten intolerance. My problem is that I don’t think my consultant knows that much
I have been diagnosed with APS following a stroke at age 40. My care is managed by a stroke consultant at a local hospital. I have minimal change disease of my kidneys (linked to the immune system) and I’m wondering about gluten intolerance. My problem is that I don’t think my consultant knows that much
Patientlyoptimistic
in
Hughes Syndrome APS Forum
3 years ago
Constipation
Hi All I have IBS mixed and am constipated at present really struggling to know what’s best to take. I been taking Senna, Lactulose and Bisacodyl. However the senna and Lactulose too mild and can take days to work and the Bisacodyl can sometimes be a bit harsh and causes me to have the worst stomach
Hi All I have IBS mixed and am constipated at present really struggling to know what’s best to take. I been taking Senna, Lactulose and Bisacodyl. However the senna and Lactulose too mild and can take days to work and the Bisacodyl can sometimes be a bit harsh and causes me to have the worst stomach
Bassem1979
in
IBS Network
3 years ago
Hospital App
I went to the hospital as i had testicle pain. I was scared i had an STI of some sort. I got an examination and urine test from the doctor when i was there. The examination came back ok and the urine sample came back with no issues. Is it safe to say i dont have Chlamidya?
I went to the hospital as i had testicle pain. I was scared i had an STI of some sort. I got an examination and urine test from the doctor when i was there. The examination came back ok and the urine sample came back with no issues. Is it safe to say i dont have Chlamidya?
Health1999
in
BASHH
3 years ago
Did you stop your biologic for 4th vaccination?
Finally have my 4th jab booked for next Thursday 13th Jan and am trying to work out whether to stop the Adalimumab for two weeks before and after or not. Have had conflicting advice from sensible sources. Rheum nurse said to inject as normal as would be worse to flare and pointed to the versusarthritis
Finally have my 4th jab booked for next Thursday 13th Jan and am trying to work out whether to stop the Adalimumab for two weeks before and after or not. Have had conflicting advice from sensible sources. Rheum nurse said to inject as normal as would be worse to flare and pointed to the versusarthritis
Hidden
in
NRAS
3 years ago
Did any kidney transplant people have high antibodies
Hello I’m on the transplant list I was hoping to get a transplant before dialysis but don’t know if it will happen . I had one offer that didn’t work out I found out then I am going to be hard to match cause I have high antibodies. I wasn’t even aware there was such a thing. How long did you wait before
Hello I’m on the transplant list I was hoping to get a transplant before dialysis but don’t know if it will happen . I had one offer that didn’t work out I found out then I am going to be hard to match cause I have high antibodies. I wasn’t even aware there was such a thing. How long did you wait before
Beachgirl32
in
Kidney Transplant
3 years ago
Can I come to UK for transplant?
I am 23 and I am on dialysis from two years. I have been recommended kidney & liver transplant. Unfortunately from where i am doctors are not doing the transplant from out family donor. My younger has the same gene mutation so he is rejected for donating but my friends want to donate. I have seen UK's
I am 23 and I am on dialysis from two years. I have been recommended kidney & liver transplant. Unfortunately from where i am doctors are not doing the transplant from out family donor. My younger has the same gene mutation so he is rejected for donating but my friends want to donate. I have seen UK's
Devumair
in
Dialysis Support
3 years ago
Shaking
I received a kidney transplant in 2008. For the last few months I have been shaking a lot especially my hands. Taking 4 mg. of Prograf. Doctor increased it because level was low on blood test. Has anyone experienced this kind of shaking? Thanks
I received a kidney transplant in 2008. For the last few months I have been shaking a lot especially my hands. Taking 4 mg. of Prograf. Doctor increased it because level was low on blood test. Has anyone experienced this kind of shaking? Thanks
buddy3love
in
Kidney Transplant
3 years ago
Covid anyone?
For Christmas I received a positive Covid result. I am fully vaccinated and boosted. I had an inflamed spine from a long car ride. So i was on solumedrol 1000 mg once a month and PT(My DMT Copaxone). This was working for me. On December 20th another intravenous solumedrol. I became fatigued and had
For Christmas I received a positive Covid result. I am fully vaccinated and boosted. I had an inflamed spine from a long car ride. So i was on solumedrol 1000 mg once a month and PT(My DMT Copaxone). This was working for me. On December 20th another intravenous solumedrol. I became fatigued and had
TonyiaR7
in
My MSAA Community
3 years ago
Some Kidney Humor
The old patient went to the Nephrologist for a follow-up and to receive his test results to see if he is in
Kidney
Failure
. The doctor said, "I have bad news. You are in
Kidney
Failure
, and you also seem to have Alzheimer's."
The old patient went to the Nephrologist for a follow-up and to receive his test results to see if he is in
Kidney
Failure
. The doctor said, "I have bad news. You are in
Kidney
Failure
, and you also seem to have Alzheimer's."
Sophiebun11
in
Kidney Disease
3 years ago
Endometriosis spread to the kidney & ureter, nephrostomy fitted and more major surgery ahead… any advice or similar experience?
Since my last post I have been in and out of hospital ☹️ I had lots of blood in the urine and severe pain in my back and side. After tests and scans they found my left kidney wasn’t functioning and the ureter was blocked all down to growth of endometriosis. The surgeon confirmed in my previous surgery
Since my last post I have been in and out of hospital ☹️ I had lots of blood in the urine and severe pain in my back and side. After tests and scans they found my left kidney wasn’t functioning and the ureter was blocked all down to growth of endometriosis. The surgeon confirmed in my previous surgery
Greys90
in
Endometriosis UK
3 years ago
Bloating after transplant
Hi, I had 2nd kidney transplant 2017 after 14 years dialysis. I have trouble with stomach bloating , if it's hot at work and I swear I feel better otherwise after every meal always feel bloated for hours. 10mg pred still Tacrolimus Mycophenalte Warfarin for heart
Hi, I had 2nd kidney transplant 2017 after 14 years dialysis. I have trouble with stomach bloating , if it's hot at work and I swear I feel better otherwise after every meal always feel bloated for hours. 10mg pred still Tacrolimus Mycophenalte Warfarin for heart
Kompai
in
Kidney Transplant
3 years ago
Had my third kidney transplant
Hello everyone:) Happy Holidays! 2 weeks ago I received the phone call that they had a kidney for me ..this was very unexpected because I had been told throughout the whole pre transplant process that I would have a living donor through the paired exchange program. My husband would donate to someone
Hello everyone:) Happy Holidays! 2 weeks ago I received the phone call that they had a kidney for me ..this was very unexpected because I had been told throughout the whole pre transplant process that I would have a living donor through the paired exchange program. My husband would donate to someone
Calebzztop
in
Kidney Transplant
3 years ago
Cold medicine
I’m a kidney transplant recipient. I received my kidney 16 months ago. What OTC meds can we take for a head cold?
I’m a kidney transplant recipient. I received my kidney 16 months ago. What OTC meds can we take for a head cold?
Charly1429
in
Kidney Transplant
3 years ago
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