C3 glomerulopathy

[Kavithauk]

Hi, my niece diagonosed C3 glomerulopathy and her both kidneys almost non functional. Currently on dialysis. Anyone here who has the same diagnose or who is expertise in this topic help me to explain what will be the treatment options as the doctor said she is not suitable for transplant due to recurrence.

She has still genuine report pending. Based on that the doctor suggest us what to do. What is the remedy if she is not suitable for transplant? Only life long dialysis is the option? Please someone guide and shed some light in her case. Thanks

[KidneyCoach]

The remedy is dialysis. There is no cure. Transplant is not a cure, only a treatment. She can still live a good life with dialysis. Check out this book and also kidneyschool.org I've been on dialysis for 20 years. It's been a crazy ride but I've had some great experiences. Blessings

Book

[Kavithauk in reply to KidneyCoach]

Thank you. Awaiting for gene report. Hoping for good. But your answer is the bitter truth. Will buy and read the kindle version for her. Thanks again