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Kidney failure
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Transplant Waitlist Survey
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
KelliC_NKF
in
Kidney Dialysis
2 years ago
Mischley's diet and raw dairy?
Hi everyone! Have any of you been following Dr Laurie Mischley's diet recommendations, which include as the number 1 thing to do, to eliminate dairy? Has this helped you? I am wondering if it's not the dairy itself but what the cows are fed, other practices and how the milk is processed in conventional
Hi everyone! Have any of you been following Dr Laurie Mischley's diet recommendations, which include as the number 1 thing to do, to eliminate dairy? Has this helped you? I am wondering if it's not the dairy itself but what the cows are fed, other practices and how the milk is processed in conventional
PDFree
in
Cure Parkinson's
2 years ago
Prednisolone, can it be down to 3/4 of 5mg?
Hi! So I'm kidney transplant patient on my 11th year. I have some hormonal issues and my doctor said I should reduce my Prednisolone from 1 tab morning of 5mg to 3/4 of tab. I'm hesitating. What's your experience? (Normal scheme for me: 1 tab Prednisolone at morning, 1mg Prograf morning and evening,
Hi! So I'm kidney transplant patient on my 11th year. I have some hormonal issues and my doctor said I should reduce my Prednisolone from 1 tab morning of 5mg to 3/4 of tab. I'm hesitating. What's your experience? (Normal scheme for me: 1 tab Prednisolone at morning, 1mg Prograf morning and evening,
Lily2019
in
Kidney Transplant
2 years ago
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Heart Failure Question
Hello I am looking for some perspective I think. My husband was not treated for his AF and high heart rate for four weeks until I managed to get him to ignore the GP and go to A& E, He was diagnosed with heart failure (35%) and is now on 8 different drugs. He had a follow up procedure booked (cardioversion
Hello I am looking for some perspective I think. My husband was not treated for his AF and high heart rate for four weeks until I managed to get him to ignore the GP and go to A& E, He was diagnosed with heart failure (35%) and is now on 8 different drugs. He had a follow up procedure booked (cardioversion
Debfro34
in
AF Association
2 years ago
Pd home changing to cycler severe edema.
I am currently on pd home dialysis. I felt as if it had stopped working and my Dr recently confirmed this. I have severe lower calf edema. It’s red spotty, itchy and dry and very tight. I am starting the cycler on Monday. Has anyone else had manual exchanges stop giving them proper fluid removal?
I am currently on pd home dialysis. I felt as if it had stopped working and my Dr recently confirmed this. I have severe lower calf edema. It’s red spotty, itchy and dry and very tight. I am starting the cycler on Monday. Has anyone else had manual exchanges stop giving them proper fluid removal?
LeslieK
in
Kidney Dialysis
2 years ago
Transplant Waitlist Survey
If you have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information would affect potential recipients' decision to either accept
If you have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information would affect potential recipients' decision to either accept
KelliC_NKF
in
Kidney Transplant
2 years ago
Transplant Waitlist Survey
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what
KelliC_NKF
in
Kidney Disease
2 years ago
Feet pain post kidney transplant
I am 2 months post transplant and I’m feeling good. I love to cook so I had my donor over for lunch and I cooked a bunch of food for her. I was standing for a few hours. I had such bad feet pain that afternoon/evening. It felt like it was radiating into my toes. Has anyone ever experienced this?
I am 2 months post transplant and I’m feeling good. I love to cook so I had my donor over for lunch and I cooked a bunch of food for her. I was standing for a few hours. I had such bad feet pain that afternoon/evening. It felt like it was radiating into my toes. Has anyone ever experienced this?
Ski573
in
Kidney Transplant
2 years ago
Kidney Failure & Dialysis
And right now he's on a dialysis machine another family member said that he has
kidney
failure
but that they just want his numbers to get regulated.
And right now he's on a dialysis machine another family member said that he has
kidney
failure
but that they just want his numbers to get regulated.
Drawi
in
Kidney Dialysis
3 years ago
Bladder pain
I had bladder pain and frequency and went to a specialist as my GP did not want to prescribe more antibiotics and the labtest showed no infection. (I had had some a month or so before). In less than 10 minutes the specialist decided I had a persistent infection but also thought an alternative to antibiotics
I had bladder pain and frequency and went to a specialist as my GP did not want to prescribe more antibiotics and the labtest showed no infection. (I had had some a month or so before). In less than 10 minutes the specialist decided I had a persistent infection but also thought an alternative to antibiotics
Andann
in
IBS Network
2 years ago
Born with one kidney stage 4 ckd
I have had monitoring of my kidney function for the last 10years started of at stage 2/3 I think. I have always gone by my blood creatine levels which which are for me average between 165 to 176 average. The highest ever level was 222 when I had my daughter nearly 4 years ago. Recent blood test check
I have had monitoring of my kidney function for the last 10years started of at stage 2/3 I think. I have always gone by my blood creatine levels which which are for me average between 165 to 176 average. The highest ever level was 222 when I had my daughter nearly 4 years ago. Recent blood test check
Ruthy35
in
Early CKD Support
2 years ago
End of Treatment Options? Oncologist says Make Yourself Comfortable Suggestions
My Oncologist says she has tried all her bags of tricks and nothing has worked keeping PSA under control . Diagnosed with advanced PC in 2918 with PSA over 200 referred to Urologist put on Zolodax injections. Worked for short while then became castrate resistant , began Zitiga, PSA kept rising , began
My Oncologist says she has tried all her bags of tricks and nothing has worked keeping PSA under control . Diagnosed with advanced PC in 2918 with PSA over 200 referred to Urologist put on Zolodax injections. Worked for short while then became castrate resistant , began Zitiga, PSA kept rising , began
Willy9173
in
Advanced Prostate Cancer
2 years ago
My story. I had CKD 3 then Kidney failure went on dialysis over 5 years then a friend donated his kidney and I received a transplant 2020.
Long story I got sick and it was going into
kidney
failure
. My doctor managed to help me maintain Ckd 3 for 15 years. I wore and indwelling foley that kept some of reflux down. I went into
kidney
failure
and started dialysis for over 5 years. I received a transplant from a friend in 2020.
Long story I got sick and it was going into
kidney
failure
. My doctor managed to help me maintain Ckd 3 for 15 years. I wore and indwelling foley that kept some of reflux down. I went into
kidney
failure
and started dialysis for over 5 years. I received a transplant from a friend in 2020.
ESRDRLS
in
Kidney Transplant
2 years ago
What else is available?
I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am resorting to pain killers. Can anyone who has had this many lines of chemo tell me what else was available for them to try, and also how successful it
I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am resorting to pain killers. Can anyone who has had this many lines of chemo tell me what else was available for them to try, and also how successful it
27-359
in
My Ovacome
2 years ago
Ain’t that a kick in the teeth
Well, fellow travellers. I haven’t posted for a long while , but I have been lurking. Like many others, I tend to “forget” about the forum while I am too busy enjoying life and return when things are not so rosy. I am at loss to explain the purpose of this missive as it’s not particular uplifting nor
Well, fellow travellers. I haven’t posted for a long while , but I have been lurking. Like many others, I tend to “forget” about the forum while I am too busy enjoying life and return when things are not so rosy. I am at loss to explain the purpose of this missive as it’s not particular uplifting nor
aFibber55
in
Atrial Fibrillation Support
2 years ago
Possible adrenal gland removal
I am having Robotic Laparoscopic Nephrectomy on Monday. A mass was found on my left kidney and they will be removing the entire kidney. It’s been mentioned that surrounding tissues will also be removed and it leaves me concerned about the adrenal gland. I have messaged my surgeon questioning whether
I am having Robotic Laparoscopic Nephrectomy on Monday. A mass was found on my left kidney and they will be removing the entire kidney. It’s been mentioned that surrounding tissues will also be removed and it leaves me concerned about the adrenal gland. I have messaged my surgeon questioning whether
Magnolia209
in
AMN EASIER
2 years ago
cancer, coronary artery disease... melatonin question
The scientists have shown that chronic administration of melatonin at doses (10 mg/kg body weight/day) prevents mitochondrial and endoplasmic reticulum disruption, which play a critical role in the development and pathogenesis of
kidney
cell (nephron) damage, and its progression to renal
failure
."
The scientists have shown that chronic administration of melatonin at doses (10 mg/kg body weight/day) prevents mitochondrial and endoplasmic reticulum disruption, which play a critical role in the development and pathogenesis of
kidney
cell (nephron) damage, and its progression to renal
failure
."
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
Does anyone has this rare kidney disease (familial hypercalciuria, hypomagnesemia and nephrocalsinosis)?
I’m trying to prevent dialysis and
kidney
failure
with a healthy diet only.
I’m trying to prevent dialysis and
kidney
failure
with a healthy diet only.
Serlo92
in
Kidney Disease
2 years ago
PSADT is 6 months
My PSA increased from 0.19 to 0.3 in just 6 weeks. My MO is scheduling a PSMA pet to see if the cancer is localized or metastatic. I will most likely start ADT or ADT+. Recommendation are welcomed.
My PSA increased from 0.19 to 0.3 in just 6 weeks. My MO is scheduling a PSMA pet to see if the cancer is localized or metastatic. I will most likely start ADT or ADT+. Recommendation are welcomed.
old64horn
in
Advanced Prostate Cancer
2 years ago
Why do others think I'm stupid for helping our family member
He's going to require dialysis I think twice a week so far they don't think it's
kidney
failure
but where I work I took about 9 pictures in total with this very big teddy bear holding a get well soon card plus open.
He's going to require dialysis I think twice a week so far they don't think it's
kidney
failure
but where I work I took about 9 pictures in total with this very big teddy bear holding a get well soon card plus open.
Drawi
in
Kidney Dialysis
2 years ago
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