Does anyone has this rare kidney disease (familial hypercalciuria, hypomagnesemia and nephrocalsinosis)?

[Serlo92]

I have been diagnosed with a very rare kidney disease since day 1 which called familial hypercalciuria, hypomagnesemia and nephrocalsinosis. Not a single doctor figured out a way to treat my condition or in other words nothing worked for me like: (sodium citrate, potassium citrate, potassium bicarbonate). Does anyone has this condition? I’m trying to prevent dialysis and kidney failure with a healthy diet only.