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Trying to Maintain Money and Mental Health
My spouse received a kidney transplant in November 2022. He was on dialysis for 18 months and also developed diabetic retinopathy which requires 5 surgeries prior to and after his transplant. He wants to work and going on disability would be terrible for his mental health. We are having trouble financially
My spouse received a kidney transplant in November 2022. He was on dialysis for 18 months and also developed diabetic retinopathy which requires 5 surgeries prior to and after his transplant. He wants to work and going on disability would be terrible for his mental health. We are having trouble financially
Livi5072
in
Kidney Transplant
1 year ago
My First Pacemaker Followup
Today was my first real follow up with my EP since the fitting of my pacemaker and AV node ablation done on February 13 and 27th. I have not been feeling 100% although much much better than before all of this. I guess I expected more not realizing other things are in play with me and it’s not just
Today was my first real follow up with my EP since the fitting of my pacemaker and AV node ablation done on February 13 and 27th. I have not been feeling 100% although much much better than before all of this. I guess I expected more not realizing other things are in play with me and it’s not just
DawnTX
in
AF Association
1 year ago
Bloods
Hello I am worried sick. Had LFTS taken 4 weeks ago and they are v high. My clottings results are fine and kidney function tests normal. The GP made a ‘FEB4’ calculation of 9. Which she says is very significant. I was a heavy drinker but I’ve been scared sober. I have a fibroscan on 23 June and app
Hello I am worried sick. Had LFTS taken 4 weeks ago and they are v high. My clottings results are fine and kidney function tests normal. The GP made a ‘FEB4’ calculation of 9. Which she says is very significant. I was a heavy drinker but I’ve been scared sober. I have a fibroscan on 23 June and app
TigerLilly_74
in
British Liver Trust
1 year ago
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Low BP preventing transplantation
My husband had kidney cancer in each kidney 5 years apart roughly 20 years ago. He had partial nephrectomies on each kidney. In November 2022 he progressed to Stage 5 CKD and had to start dialysis. He has low BP and is medicated to keep it up. The transplant team reviewed his case and said they cannot
My husband had kidney cancer in each kidney 5 years apart roughly 20 years ago. He had partial nephrectomies on each kidney. In November 2022 he progressed to Stage 5 CKD and had to start dialysis. He has low BP and is medicated to keep it up. The transplant team reviewed his case and said they cannot
WifeofDialysisMan
in
Dialysis Support
1 year ago
constantly have infection
hello team, I have CLL for 10 years After I started Imbruvica for the last 4 years started to have UTI or oral infection. The last time during the last 2 months have 4 times infections. Constantly on Antibiotics which is very bad. I would like to talk to my doctor Daya from NYU if I should switch
hello team, I have CLL for 10 years After I started Imbruvica for the last 4 years started to have UTI or oral infection. The last time during the last 2 months have 4 times infections. Constantly on Antibiotics which is very bad. I would like to talk to my doctor Daya from NYU if I should switch
farber
in
CLL Support
1 year ago
question about brain aneurysm and transplant
When I was in my he hospital they found a 3mm maybe a little bigger aneurysm on left side of brain. I have had one aneurysm clip back in 1998 and 1999 I had a subarachnoid hemorrhage. I had a grandma seizure and super low blood pressure they took me off all blood pressure meds I was on. The neurologist
When I was in my he hospital they found a 3mm maybe a little bigger aneurysm on left side of brain. I have had one aneurysm clip back in 1998 and 1999 I had a subarachnoid hemorrhage. I had a grandma seizure and super low blood pressure they took me off all blood pressure meds I was on. The neurologist
Beachgirl32
in
Kidney Transplant
1 year ago
Discitis nearly killed me. I suspect streptococcus B was injected into me by Hormone injection for PCa
I have PCa. I am also immune suppressed due to kidney transplant. In February I started hormone injections due to BCR. A couple of weeks later I started to get back pain. Doctor prescribed pain killers. After about 6 weeks, many blood tests, consultations and an MRI scan I was diagnosed with discitis
I have PCa. I am also immune suppressed due to kidney transplant. In February I started hormone injections due to BCR. A couple of weeks later I started to get back pain. Doctor prescribed pain killers. After about 6 weeks, many blood tests, consultations and an MRI scan I was diagnosed with discitis
Graham49
in
Advanced Prostate Cancer
1 year ago
wound vac post kidney transplant anyone?
I am 3 weeks out from my living donor transfer. I had drainage the entire time from the staples. It was swollen and reddish. I now have a would vac. Anyone else with this experience? Thank you
I am 3 weeks out from my living donor transfer. I had drainage the entire time from the staples. It was swollen and reddish. I now have a would vac. Anyone else with this experience? Thank you
LeslieK
in
Kidney Transplant
1 year ago
6 weeks ago
6 weeks ago I posted on here that my gfr had come back at 47 and creatine 102 total shock I listened to all your advice drink more water cut out red meat , salt ,exercise more eat healthier , well after 6 weeks had another blood test and gfr was 54 creatine 90 . I Know its not mega but its better
6 weeks ago I posted on here that my gfr had come back at 47 and creatine 102 total shock I listened to all your advice drink more water cut out red meat , salt ,exercise more eat healthier , well after 6 weeks had another blood test and gfr was 54 creatine 90 . I Know its not mega but its better
bevgt
in
Early CKD Support
1 year ago
Using Laughter Therapy to Cope with Dialysis
Could laughter really be the best medicine? See how dialysis patients are using laughter therapy to cope. https://www.kidney.org/newsletter/using-laughter-therapy-to-cope-dialysis
Could laughter really be the best medicine? See how dialysis patients are using laughter therapy to cope. https://www.kidney.org/newsletter/using-laughter-therapy-to-cope-dialysis
JackieJ_NKF
Partner
in
Kidney Dialysis
1 year ago
no GP kidney infection
I’ve just signed up for new GP and receptionist told me it would be a 2 week turn around. I had bad uti symptoms and went to pharmacist they suspects it’s a kidney infection as I have fever, vomiting, bloating, frequent peeing and painful peeing. Unable to hold my bladder, incontinece and gnawing back
I’ve just signed up for new GP and receptionist told me it would be a 2 week turn around. I had bad uti symptoms and went to pharmacist they suspects it’s a kidney infection as I have fever, vomiting, bloating, frequent peeing and painful peeing. Unable to hold my bladder, incontinece and gnawing back
Littlebug77
in
Endometriosis UK
1 year ago
APS and Clear Cell Renal Cell Carcinoma - Partial Nephrectomy
Hello friends witg APS- Have any of you been diagnosed with Clear Cell Renal Cell Carcinoma? A tumor was found, randomly, when I had a screening for pain. Two weeks ago I had major surgery to remove the tumor in my kidney. It was 2 inches(4.9cm) in diameter and it was taken out while through robotic
Hello friends witg APS- Have any of you been diagnosed with Clear Cell Renal Cell Carcinoma? A tumor was found, randomly, when I had a screening for pain. Two weeks ago I had major surgery to remove the tumor in my kidney. It was 2 inches(4.9cm) in diameter and it was taken out while through robotic
myarabella
in
Hughes Syndrome APS Forum
1 year ago
Hi all
This is my first post here. I'm also a member of kidney disease hub. My eGFR hovers around 30 or down a few points either way. It was 39 then my neph, in Jan, had the new eGFR test and it dropped about 10 points. Now she wants me to think about dialysis. My question for you is 1) which did you
This is my first post here. I'm also a member of kidney disease hub. My eGFR hovers around 30 or down a few points either way. It was 39 then my neph, in Jan, had the new eGFR test and it dropped about 10 points. Now she wants me to think about dialysis. My question for you is 1) which did you
jodaer
in
Kidney Dialysis
1 year ago
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Pooled trial data favor use with background therapy for at-risk patients
by Lindsey Shapiro | June 12, 2023 Lupkynis (voclosporin) combined with background lupus treatments better preserved kidney function among
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Pooled trial data favor use with background therapy for at-risk patients
by Lindsey Shapiro | June 12, 2023 Lupkynis (voclosporin) combined with background lupus treatments better preserved kidney function among
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
10 Year Anniversary
A few weeks ago I realized this is the ten-year anniversary of when I started dialysis. I started in August of 2013 in the days after I had a knee surgery. I was 14 years old. I'm now 24 years old. In the time since I started dialysis I started and finished high school, started and finished college,
A few weeks ago I realized this is the ten-year anniversary of when I started dialysis. I started in August of 2013 in the days after I had a knee surgery. I was 14 years old. I'm now 24 years old. In the time since I started dialysis I started and finished high school, started and finished college,
StormCl0ud
in
Kidney Dialysis
1 year ago
Sleepy kidney
Hi all, Am hoping someone can reasure or give me some advice. I received a transplant on the 11th April 2023 and its been a rough ride so far. I spent a week in ITU and was hooked up to dopamine for 3 weeks to help my blood pressure. My urine out has been slow, for a few days I got between 600-800ml
Hi all, Am hoping someone can reasure or give me some advice. I received a transplant on the 11th April 2023 and its been a rough ride so far. I spent a week in ITU and was hooked up to dopamine for 3 weeks to help my blood pressure. My urine out has been slow, for a few days I got between 600-800ml
Gwenkidney
in
Kidney Transplant Patient Support
1 year ago
UTI and microscopic haematuria
After years of recurring uti and a diagnosis of cystitis cystica after camera jobby I was prescribed vagifem. This worked for 7 years until mother of infection which took 2 lots of antibiotics to subside, and has left me with microscopic haematuria. Don't want further tests, has anyone else experienced
After years of recurring uti and a diagnosis of cystitis cystica after camera jobby I was prescribed vagifem. This worked for 7 years until mother of infection which took 2 lots of antibiotics to subside, and has left me with microscopic haematuria. Don't want further tests, has anyone else experienced
Poshdog
in
PMRGCAuk
1 year ago
6 month transplant anniversary!!! Whoo hoo
Today is the 6-month anniversary of my kidney transplant. All continues to go very well with the exception of low white blood cell count. This has improved some but still comes in between 3.0 and 3.75 with 4.0 being the bottom of the normal range. Inspite of my low WBC count and pulling of bactrim 7
Today is the 6-month anniversary of my kidney transplant. All continues to go very well with the exception of low white blood cell count. This has improved some but still comes in between 3.0 and 3.75 with 4.0 being the bottom of the normal range. Inspite of my low WBC count and pulling of bactrim 7
Jayhawker
in
Kidney Transplant
1 year ago
Gfr blood test
I have a kidney blood test on Monday at 12.15 should I eat anything before test or wait until over .
I have a kidney blood test on Monday at 12.15 should I eat anything before test or wait until over .
bevgt
in
Early CKD Support
1 year ago
New technique may reveal signs of Parkinson's disease in urine samples
https://www.news-medical.net/amp/news/20230517/New-technique-may-reveal-signs-of-Parkinsons-disease-in-urine-samples.aspx
https://www.news-medical.net/amp/news/20230517/New-technique-may-reveal-signs-of-Parkinsons-disease-in-urine-samples.aspx
Farooqji
in
Cure Parkinson's
1 year ago
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