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PMR Relapses
I was diagnosed with PMR in October of 2019 and keep having relapses when I try to descend on my methylprednisolone. I started out at 20 mg. and am now at 8 mg., but every time I try to go down to less than 8mg., I have painful, debilitating relapses after about 3 weeks. I’m so depressed about staying
I was diagnosed with PMR in October of 2019 and keep having relapses when I try to descend on my methylprednisolone. I started out at 20 mg. and am now at 8 mg., but every time I try to go down to less than 8mg., I have painful, debilitating relapses after about 3 weeks. I’m so depressed about staying
SandraLinks
in
PMRGCAuk
4 years ago
Lightheadedness, dizzy spells,
Doctors have ruled out brain abnormalities, inner ear problems. Besides cancer treatment, taking 20 mg of Telmisartan daily, 4/10 mg Flomax evenings. Two tabs Caltrate 600 daily, two tablets Cosamine DS daily, 5000 mg vitamin B lingual every third day, and 2 bitter almonds per day. Only started bitter
Doctors have ruled out brain abnormalities, inner ear problems. Besides cancer treatment, taking 20 mg of Telmisartan daily, 4/10 mg Flomax evenings. Two tabs Caltrate 600 daily, two tablets Cosamine DS daily, 5000 mg vitamin B lingual every third day, and 2 bitter almonds per day. Only started bitter
Flyfisherbug
in
Advanced Prostate Cancer
4 years ago
PTT trials for 50 participants at 8 locations* in the US. Out of nowhere. Bilateral will be offered if you qualify. (*Thank you Rebtar.)
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
MBAnderson
in
Cure Parkinson's
4 years ago
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What is a normal decrease in GFR?
Finally had a chat with my GP about my blood test results. Had a test done in March 2020 - GFR was 80. 2nd test December 2020 GFR was 65. 2 weeks later test was done again without eating any meat and drinking at least 4 litres of water 24hrs before and rose to 68. He said GFR shouldn't have dropped
Finally had a chat with my GP about my blood test results. Had a test done in March 2020 - GFR was 80. 2nd test December 2020 GFR was 65. 2 weeks later test was done again without eating any meat and drinking at least 4 litres of water 24hrs before and rose to 68. He said GFR shouldn't have dropped
meggiemog
in
Early CKD Support
4 years ago
Creatine is 1.51 really worried had transplant in 2001 its been 20 years
Hi everyone hope everyone is doing well i have a question I had my kidney transplant in 2001 and I always been stable 4 years to now my creatine has been up and down im really concern im thinking that I don't have much time with my kidney do u guys think I should be concern that my creatine is now 1.51
Hi everyone hope everyone is doing well i have a question I had my kidney transplant in 2001 and I always been stable 4 years to now my creatine has been up and down im really concern im thinking that I don't have much time with my kidney do u guys think I should be concern that my creatine is now 1.51
jennifer24
in
Kidney Transplant
4 years ago
Doctor thinks I have PV
I wrote a post a few months ago about my gp having cause for concern with my RBC. I have nephrotic syndrome (kidney disease) have had it since I was 8 I’m now 24 I was meant to have a jak2 test back in November but clearly they never did it. I was referred to haematologist and he called me for a phone
I wrote a post a few months ago about my gp having cause for concern with my RBC. I have nephrotic syndrome (kidney disease) have had it since I was 8 I’m now 24 I was meant to have a jak2 test back in November but clearly they never did it. I was referred to haematologist and he called me for a phone
Phoebe776
in
MPN Voice
4 years ago
Paraffin oil? Desperate worried mummy :(
Hi I’m new, I’m glad I found this site I have been feeling stressed and pretty sad watching how much my 4 year old struggles with his bowels. Has anyone’s child tried paraffin oil ? Gp suggested I try this mixed with chocolate sauce. I’m in Nz seems to be very limited support. Waiting for paediatrician
Hi I’m new, I’m glad I found this site I have been feeling stressed and pretty sad watching how much my 4 year old struggles with his bowels. Has anyone’s child tried paraffin oil ? Gp suggested I try this mixed with chocolate sauce. I’m in Nz seems to be very limited support. Waiting for paediatrician
LuckyStar40
in
ERIC
4 years ago
Sleeping kidney after transplant
Hi, My partner has just had a kidney transplant 6 days ago. He is 31 years old. He had 9% function before he received the kidney and wasn’t on dialysis beforehand. He’s in hospital and due to Covid he’s alone and I can’t go. He’s not great at talking to Doctors and I’m not getting any information. His
Hi, My partner has just had a kidney transplant 6 days ago. He is 31 years old. He had 9% function before he received the kidney and wasn’t on dialysis beforehand. He’s in hospital and due to Covid he’s alone and I can’t go. He’s not great at talking to Doctors and I’m not getting any information. His
Kwatts87
in
Kidney Transplant
4 years ago
Now to try topotecan
Hello everyone, I’m new here and wonder if anyone has had a similar experience. I was diagnosed with probable ovarian cancer in September 2019, although the histology was, apparently, not easy to classify. I had a few rounds of carboplatin/paclitaxel, which help things at bay for a while, then 3 doses
Hello everyone, I’m new here and wonder if anyone has had a similar experience. I was diagnosed with probable ovarian cancer in September 2019, although the histology was, apparently, not easy to classify. I had a few rounds of carboplatin/paclitaxel, which help things at bay for a while, then 3 doses
Fishfinger4
in
My Ovacome
4 years ago
Kidney Transplant Recipient
Hi my name is Rachel I had a kidney transplant in December 2019
Hi my name is Rachel I had a kidney transplant in December 2019
Beachvibe
in
Kidney Disease
4 years ago
My Father is in ICU on a ventilator for 8days, with dialysis - All help welcome!🙏🏼
Hi Eveyone, So glad I found this forum and reading peoples journeys with this horrendous diesease. My dad was admitted on NYE with high temp and Symptoms and went from cpap to being put on a ventilator. This now being the eighth day in ICU. He has diabetes so had kidney failure and is on dialysis.
Hi Eveyone, So glad I found this forum and reading peoples journeys with this horrendous diesease. My dad was admitted on NYE with high temp and Symptoms and went from cpap to being put on a ventilator. This now being the eighth day in ICU. He has diabetes so had kidney failure and is on dialysis.
Sensationalsoldier
in
ICUsteps
4 years ago
Needing a little short-term assistance while recovering
After 2 weeks hospitalized post transplant, my friend is home after his kidney transplant, and removal of both diseased kidneys. He lives alone. His adult daughter was here from out of state for 3 weeks including his 2 week stay after transplant. I've come down for another week to help him out. My
After 2 weeks hospitalized post transplant, my friend is home after his kidney transplant, and removal of both diseased kidneys. He lives alone. His adult daughter was here from out of state for 3 weeks including his 2 week stay after transplant. I've come down for another week to help him out. My
Southernfriends
in
Kidney Transplant
4 years ago
Can i take Creatine with compensated Cirrhosis?
Hi everybody, Happy New year. I was just wondering if anybody could advise me on the use of Creatine for someone with compensated Cirrhosis. I've been teetotal for almost 4 years since diagnosis and in the last year and a half have been exercising and building muscle. My recent liver scan showed everything
Hi everybody, Happy New year. I was just wondering if anybody could advise me on the use of Creatine for someone with compensated Cirrhosis. I've been teetotal for almost 4 years since diagnosis and in the last year and a half have been exercising and building muscle. My recent liver scan showed everything
richoanajess
in
British Liver Trust
4 years ago
Alternative biologics
Due to bad side effects of acitretin it has been suggested that I use either adalimumab or risankizubab of which it is reported that the latter has higher efficacy Side effects of adalimumab appear to be predominantly headache and various bowel issues. Has anyone any experience of risankizumab?
Due to bad side effects of acitretin it has been suggested that I use either adalimumab or risankizubab of which it is reported that the latter has higher efficacy Side effects of adalimumab appear to be predominantly headache and various bowel issues. Has anyone any experience of risankizumab?
Fishing1949
in
Beyond Psoriasis
4 years ago
Taken off Baricitinib and feeling much worse!
I was taken off Olumiant/Baricitinib (at least for a while) due to high creatinine numbers. I was taking it with Arava and an occasional NSAID. Honestly, I also ate way too much chicken around the time of the blood test. I wonder if anyone here experienced high creatinine numbers due to Baricitinib.
I was taken off Olumiant/Baricitinib (at least for a while) due to high creatinine numbers. I was taking it with Arava and an occasional NSAID. Honestly, I also ate way too much chicken around the time of the blood test. I wonder if anyone here experienced high creatinine numbers due to Baricitinib.
ubound
in
NRAS
4 years ago
Vaccine
Hi I work in the NHS and have had SLE lupus nephritis since 2015. I'm on steroids and hydroxy I'm very confused about which vaccine to have as I have read so many different opinions. My GP has no idea so I'm turning to the lupus community Thank you
Hi I work in the NHS and have had SLE lupus nephritis since 2015. I'm on steroids and hydroxy I'm very confused about which vaccine to have as I have read so many different opinions. My GP has no idea so I'm turning to the lupus community Thank you
ajanjua
in
LUPUS UK
4 years ago
Getting PD surgery soon and would love some advice!!
Good Afternoon everyone this is my second go at dialysis after having a transplant for 15 years fail :( positive thing is how long the transplant lasted so I cant complain. Anyways I started HD again for the past 2 years and now Im giving PD dialysis a chance and will have surgery on the 27th of January
Good Afternoon everyone this is my second go at dialysis after having a transplant for 15 years fail :( positive thing is how long the transplant lasted so I cant complain. Anyways I started HD again for the past 2 years and now Im giving PD dialysis a chance and will have surgery on the 27th of January
delila1977
in
Dialysis Support
4 years ago
Trying to understand what’s ‘normal’ when testing for liver disease
What are the ideal blood test renal readings for a male aged 67 who is not overweight and in reasonable health but with high blood pressure ( under treatment) of 140/85?
What are the ideal blood test renal readings for a male aged 67 who is not overweight and in reasonable health but with high blood pressure ( under treatment) of 140/85?
Jamble
in
Early CKD Support
4 years ago
New to group - Advice on blood test results
Hi all I have had to have a couple of routine blood tests over the past 6 months due to bowel issues. I have just had a look at my test results and I am slightly concerned about my creatine and eGFR levels. I am a healthy and fit 29 year old female, no health problems (as far as I know!), in July my
Hi all I have had to have a couple of routine blood tests over the past 6 months due to bowel issues. I have just had a look at my test results and I am slightly concerned about my creatine and eGFR levels. I am a healthy and fit 29 year old female, no health problems (as far as I know!), in July my
Leylap31
in
Early CKD Support
4 years ago
HAPPY NEW YEAR EVERYONE!!!
Its been a while since I've been on here, since I have been taking Jynarque I have been feeling really good no pain and my kidney function is doing great! That said, I have been dealing with extreme fatigue the doctors haven't been able to find the root cause and so I continue to struggle. This has
Its been a while since I've been on here, since I have been taking Jynarque I have been feeling really good no pain and my kidney function is doing great! That said, I have been dealing with extreme fatigue the doctors haven't been able to find the root cause and so I continue to struggle. This has
PaigeyPaigeForLife
in
PKD Charity for Autosomal Dominant PKD
4 years ago
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