HAPPY NEW YEAR EVERYONE!!!: Its been a... - PKD Charity for A...

PKD Charity for Autosomal Dominant PKD

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HAPPY NEW YEAR EVERYONE!!!

PaigeyPaigeForLife profile image

Its been a while since I've been on here, since I have been taking Jynarque I have been feeling really good no pain and my kidney function is doing great! That said, I have been dealing with extreme fatigue the doctors haven't been able to find the root cause and so I continue to struggle. This has made my life very difficult to have a full life as I spent lots of time in bed.

I have seen specialist and been tested for everything within their scope, my Nephrologist mentioned about me being admitted to the National Institute of Health as they are a research hospital. I am hoping to hear more about this as we enter the new year.

Cheers to you all and hoping that we all get the medical assistance we need.

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PaigeyPaigeForLife
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4 Replies
Spaceace profile image
Spaceace

Happy New Year to you too .I hope that you continue to get stronger in 2021.

Stay positive.

Kenchappa profile image
Kenchappa

Happy new year

Keep posting your Jynarque /Tolvaptan experience 😃

PaigeyPaigeForLife profile image
PaigeyPaigeForLife in reply toKenchappa

I sure will, I am between insurance right now so off Jynarque right now.

AshokSeja profile image
AshokSeja

Stay strong. You will be fine.

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