HAPPY NEW YEAR EVERYONE!!!: Its been a... - PKD Charity for A...

PKD Charity for Autosomal Dominant PKD

1,177 members263 posts

HAPPY NEW YEAR EVERYONE!!!

PaigeyPaigeForLife profile image

Its been a while since I've been on here, since I have been taking Jynarque I have been feeling really good no pain and my kidney function is doing great! That said, I have been dealing with extreme fatigue the doctors haven't been able to find the root cause and so I continue to struggle. This has made my life very difficult to have a full life as I spent lots of time in bed.

I have seen specialist and been tested for everything within their scope, my Nephrologist mentioned about me being admitted to the National Institute of Health as they are a research hospital. I am hoping to hear more about this as we enter the new year.

Cheers to you all and hoping that we all get the medical assistance we need.

Written by
PaigeyPaigeForLife profile image
PaigeyPaigeForLife
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Spaceace profile image
Spaceace

Happy New Year to you too .I hope that you continue to get stronger in 2021.

Stay positive.

Kenchappa profile image
Kenchappa

Happy new year

Keep posting your Jynarque /Tolvaptan experience 😃

PaigeyPaigeForLife profile image
PaigeyPaigeForLife in reply toKenchappa

I sure will, I am between insurance right now so off Jynarque right now.

AshokSeja profile image
AshokSeja

Stay strong. You will be fine.

Not what you're looking for?

You may also like...

New link for my blog

If any of you fellow PKDers are interested I have a new link to my blog....
JDelve profile image

Advice for mums with children that have ADPKD

Hi All, I’ve been a member here for a year, and not written anything, Not sure why I just did want...

I am having a hard time accepting that I have this, I am so scared

Hello everyone, I am 29 years old, diagnosed 3 years ago by accident, during a stomach ultrasound,...
Theskewer profile image

I'm old but I'm new to this site......

Well, not that old, I just turned 50 and was diagnosed with PKD/PLD at 21. It ran in the family so...
MrsKoch profile image

I'm so confused about this disease

hello everyone! I am hoping someone can shed some light on this for me. I was diagnosed with ADPKD...

Moderation team

Susan_101 profile image
Susan_101Moderator
PKDC-Admin profile image
PKDC-AdminPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.