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Moderna Vaccine Side Effects
Has anyone had the Moderna vaccine and experienced a worsening of their edema or joint swelling? Mine is usually limited to my lower body and joints, but now even my face is retaining extra fluid. Sound familiar? I had all the other side effects. Not a fun ride, but sans tiredness and the headache
Has anyone had the Moderna vaccine and experienced a worsening of their edema or joint swelling? Mine is usually limited to my lower body and joints, but now even my face is retaining extra fluid. Sound familiar? I had all the other side effects. Not a fun ride, but sans tiredness and the headache
katidid
in
LUPUS UK
3 years ago
Anybody take Bactrim?
Hi, I was just put on Bactrim, which is an anti biotic, to go with my high dose of Prednisone. Rheumatologist says it is to keep from getting pneumonia.
Hi, I was just put on Bactrim, which is an anti biotic, to go with my high dose of Prednisone. Rheumatologist says it is to keep from getting pneumonia.
Trevgrrl
in
PMRGCAuk
3 years ago
Abnormal CBC reports after 1st dose of covid vaccine. Immature Granulocytes is 0.40bil/L and 7.1%.
It’s been 14 months I had my kidney transplant surgery. I took my 1st dose of Pfizer 19 days back. Today got my blood work done and the results are abnormal. Doctor said it might be due to reaction with steroids. Please let me know if anyone else experienced similarly. Also now I am scared to take the
It’s been 14 months I had my kidney transplant surgery. I took my 1st dose of Pfizer 19 days back. Today got my blood work done and the results are abnormal. Doctor said it might be due to reaction with steroids. Please let me know if anyone else experienced similarly. Also now I am scared to take the
Vk12
in
Kidney Transplant
3 years ago
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Hair Loss & Anniversary.
I was taken off Calcitriol months ago and found the old meds when I was cleaning out my trial and error meds box. I started squeezing a capsule in with my regular generic shampoo. I noticed my hair started growing faster and little sprouts where new hair is growing in. It took about a month. I am very
I was taken off Calcitriol months ago and found the old meds when I was cleaning out my trial and error meds box. I started squeezing a capsule in with my regular generic shampoo. I noticed my hair started growing faster and little sprouts where new hair is growing in. It took about a month. I am very
Hidden
in
Kidney Transplant
3 years ago
Very confused 🤷♀️
Hi, So not really endo related but I had a liver scan today and after the doctor had finished he said, that my liver was a little fatty and also he noticed something in my liver he was not sure if it was a cyst or something else. He then said he was not sure if he just wanted to do the scan again
Hi, So not really endo related but I had a liver scan today and after the doctor had finished he said, that my liver was a little fatty and also he noticed something in my liver he was not sure if it was a cyst or something else. He then said he was not sure if he just wanted to do the scan again
Xroisinellenx
in
Endometriosis UK
3 years ago
Coming out of lockdown safely
Hello everyone, I haven’t been on after I had my transplant in 2018. Since then, I have been campaigning for organ donation and raising awareness about organ donation too. I started an online campaign event platform inviting different renal health professionals to come speak and provide advice and
Hello everyone, I haven’t been on after I had my transplant in 2018. Since then, I have been campaigning for organ donation and raising awareness about organ donation too. I started an online campaign event platform inviting different renal health professionals to come speak and provide advice and
Hilly038
in
Kidney Transplant Patient Support
3 years ago
Undiagnosed and positive ANA
I joined in 2013 with a positive ANA Test 1:80 Nucleolar pattern suggesting schleroderma. I had follow up tests and no diagnosis. I’ve had 3 failed Endoscopes, as I woke up from sedation grabbing the camera, so Gastro has never found out, why I choke when eating, barium swallow confirmed GERD, I have
I joined in 2013 with a positive ANA Test 1:80 Nucleolar pattern suggesting schleroderma. I had follow up tests and no diagnosis. I’ve had 3 failed Endoscopes, as I woke up from sedation grabbing the camera, so Gastro has never found out, why I choke when eating, barium swallow confirmed GERD, I have
angelharley
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
🤞🏻 Upcoming appointments
Well my son has his appointment for 1st COVID vaccination on the 12/5 but my hubby still to have his 2nd. I have high hopes for appointments next week 🤞🏻I really need this operation for a rectocele repair, it has become so really bad I’d class it as urgent. If the consultant isn’t operating yet there
Well my son has his appointment for 1st COVID vaccination on the 12/5 but my hubby still to have his 2nd. I have high hopes for appointments next week 🤞🏻I really need this operation for a rectocele repair, it has become so really bad I’d class it as urgent. If the consultant isn’t operating yet there
Bronn
in
LUPUS UK
3 years ago
Renal Osteodystrophy and weight loss with loss of muscle mass
Please, is there anyone who have had a kidney transplant but after a long time on dialysis been diagnosed with Osteodystrophy (rugger jersey spine) and now having issues with loosing weight and muscle mass? Only this is happening to me and would like to know what would possibly cause this? I.e the medication
Please, is there anyone who have had a kidney transplant but after a long time on dialysis been diagnosed with Osteodystrophy (rugger jersey spine) and now having issues with loosing weight and muscle mass? Only this is happening to me and would like to know what would possibly cause this? I.e the medication
PcTrucker
in
Kidney Transplant
3 years ago
Egfr results
I had an appt with my renal consultant on the 26th April which was canx & re-scheduled for 10th May. I went onto patient view & checked my bloods etc from previous week. I am not sure if I am worrying unnecessarily but my creatine was 125 & egfr was 38. I checked back on previous results & my 1st
I had an appt with my renal consultant on the 26th April which was canx & re-scheduled for 10th May. I went onto patient view & checked my bloods etc from previous week. I am not sure if I am worrying unnecessarily but my creatine was 125 & egfr was 38. I checked back on previous results & my 1st
juli-pa
in
Vasculitis UK
3 years ago
Abnormal Iron Studies Results
A couple of weeks ago I experienced severe debilitating pain in the lower abdomen and lower back. I had developed a stomach upset that including a couple of gastric symptoms 24hrs earlier. Because of the severe nature of the pain I made an urgent appointment to see a Dr at my local practice the same
A couple of weeks ago I experienced severe debilitating pain in the lower abdomen and lower back. I had developed a stomach upset that including a couple of gastric symptoms 24hrs earlier. Because of the severe nature of the pain I made an urgent appointment to see a Dr at my local practice the same
golfnutter
in
PMRGCAuk
3 years ago
scared appreciate any help
I Have had a form of rls all my life. I got kidney failure and while on dialisis for 5 years all the meds that I was normal on I became worse on (requip and believe it or not prozac ) and xanax and oxycontin cause of severe nerve damage from spinal cord issue from birth that was not found til i was
I Have had a form of rls all my life. I got kidney failure and while on dialisis for 5 years all the meds that I was normal on I became worse on (requip and believe it or not prozac ) and xanax and oxycontin cause of severe nerve damage from spinal cord issue from birth that was not found til i was
ESRDRLS
in
Restless Legs Syndrome
3 years ago
improved catheter
I have been having great difficulty urinating and most recently it has become scary. I live in the middle of nowhere, a trip to a competent hospital is 2 hours and a good one with a urologist on-call is 3 hours (if we drive the Rover without regard for speed limits) So it can be very scary to have retention
I have been having great difficulty urinating and most recently it has become scary. I live in the middle of nowhere, a trip to a competent hospital is 2 hours and a good one with a urologist on-call is 3 hours (if we drive the Rover without regard for speed limits) So it can be very scary to have retention
spencoid2
in
Advanced Prostate Cancer
3 years ago
Denied Transplant due to Calcification. Need help.
I have a friend that has been denied a 2nd kidney transplant b/c they say his arteries have calcification over them. They are unable to put it on the left side where the first transplant was, and as I said, the other side has calcification so he was denied. He's looking for a hospital that can do
I have a friend that has been denied a 2nd kidney transplant b/c they say his arteries have calcification over them. They are unable to put it on the left side where the first transplant was, and as I said, the other side has calcification so he was denied. He's looking for a hospital that can do
Helpingfriend
in
Kidney Transplant
3 years ago
What to do when in remission?
PSA now at >0.1 and T > 10 after seven months after four trips to University of Heidelberg and no ADT besides Dutasteride and Finasteride what can be done to keep the demon from awakening? Provenge, Bicalutemide, and supplements. Supplements are hard to choose since there are so many and costly. Is
PSA now at >0.1 and T > 10 after seven months after four trips to University of Heidelberg and no ADT besides Dutasteride and Finasteride what can be done to keep the demon from awakening? Provenge, Bicalutemide, and supplements. Supplements are hard to choose since there are so many and costly. Is
lewicki
in
Advanced Prostate Cancer
3 years ago
Tired
Like many of you I’m sure, but just speaking for myself, I am so incredibly tired of dialysis and kidney disease. I try to just get through a day at a time but it just seems like an endless bad dream ! I still work but have reached a point where I am to tired to do much else. As a former athlete and
Like many of you I’m sure, but just speaking for myself, I am so incredibly tired of dialysis and kidney disease. I try to just get through a day at a time but it just seems like an endless bad dream ! I still work but have reached a point where I am to tired to do much else. As a former athlete and
Frankie24
in
Kidney Dialysis
3 years ago
Salvage Cryoablation
So..my UroOnc wants to pursue cryoablation after my failed radiotherapy (EBRT/LDR Brachytherapy ). I don't know yet if I can have focal only cryo or have to have whole prostate ablation. I know the ED outcome is bad, but has anyone else had this treatment and how are you doing afterward? Any other
So..my UroOnc wants to pursue cryoablation after my failed radiotherapy (EBRT/LDR Brachytherapy ). I don't know yet if I can have focal only cryo or have to have whole prostate ablation. I know the ED outcome is bad, but has anyone else had this treatment and how are you doing afterward? Any other
Deadstick
in
Advanced Prostate Cancer
3 years ago
Protein in Urine should I be concerned?
I have high levels of protein in my Urine, I’ve felt like I have had a urine infection, but other than Protein and a sore back on my left side when I need to pee, there a no indications of an infection. I have Lupus panniculitis/profundus and my GP doesn’t appear interested. What can I do and should
I have high levels of protein in my Urine, I’ve felt like I have had a urine infection, but other than Protein and a sore back on my left side when I need to pee, there a no indications of an infection. I have Lupus panniculitis/profundus and my GP doesn’t appear interested. What can I do and should
CJT37
in
LUPUS UK
3 years ago
High potassium
Recently I got a blood test done the potassium is 5.6 the kidney function was fine the vit d was little low see below so worried Values and Investigations (Latest Value)26-Apr-2021 HbA1c levl - IFCC standardised - (dhb) - Normal37 mmol/mol 26.00 - 41.00mmol/mol.less than 58 mmol/mol control GOOD58
Recently I got a blood test done the potassium is 5.6 the kidney function was fine the vit d was little low see below so worried Values and Investigations (Latest Value)26-Apr-2021 HbA1c levl - IFCC standardised - (dhb) - Normal37 mmol/mol 26.00 - 41.00mmol/mol.less than 58 mmol/mol control GOOD58
Manchestermum
in
NRAS
3 years ago
Which high blood pressure medication does not affect RLS ?
Hi I have just been diagnosed as having high blood pressure and have been given Felodipine as my treatment but have noticed that it seems to be aggravating my RLS. Is there other medication which would be more suitable?
Hi I have just been diagnosed as having high blood pressure and have been given Felodipine as my treatment but have noticed that it seems to be aggravating my RLS. Is there other medication which would be more suitable?
glamourcat
in
Restless Legs Syndrome
3 years ago
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