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Referred by GP but renal team won't see me
I was diagnosed with CKD last November but, like so many others, my kidney function had been declining for several years (although I hadn't been told!). After several more blood tests my GP referred me to the Renal team at East Sussex hospital. Today I spoke to one of the secreataries who told me they
I was diagnosed with CKD last November but, like so many others, my kidney function had been declining for several years (although I hadn't been told!). After several more blood tests my GP referred me to the Renal team at East Sussex hospital. Today I spoke to one of the secreataries who told me they
Rowdy17
in
Early CKD Support
3 years ago
CKD symptoms information
A little background before my question. I am going through testing for what was believed to be a neurological issues, at the same time believed I had a kidney infection as I was experiencing pain in the mid back and foamy urine. I had blood taken by the GP in Feb to check for any issues and it came back
A little background before my question. I am going through testing for what was believed to be a neurological issues, at the same time believed I had a kidney infection as I was experiencing pain in the mid back and foamy urine. I had blood taken by the GP in Feb to check for any issues and it came back
ScotBoy
in
Early CKD Support
3 years ago
I’m here to help and support
Hi everyone! I’m a live kidney transplant recipient - on Valentine’s Day 2019. Glad to help anyone who would like general information or suggestions on finding a live donor or have questions about my transplant procedure, recovery, etc.
Hi everyone! I’m a live kidney transplant recipient - on Valentine’s Day 2019. Glad to help anyone who would like general information or suggestions on finding a live donor or have questions about my transplant procedure, recovery, etc.
NKFcommunity
in
Finding a Living Donor: From Home
3 years ago
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Liver + Kidney Transplant + Nephrectomy is Terrifying
I have learned that I am most likely facing a liver and kidney transplant in the very near future due to my PKD. This will include a nephrectomy. This surgery is rather terrifying to me as it is so huge. Has anyone had experience with this same surgery?
I have learned that I am most likely facing a liver and kidney transplant in the very near future due to my PKD. This will include a nephrectomy. This surgery is rather terrifying to me as it is so huge. Has anyone had experience with this same surgery?
BeachLove
in
Kidney Transplant
3 years ago
Home sweet home!!
I am so delighted to report that after 57 days on a ventilator 40 in a coma and 3 months in hospital my amazing dad has come home to us! 🥰. From being told his life was 40/60 , 60 being most likely to loose his life. fighting Covid 19, 6 separate infection and 2 pnemonia's he is finally home with us
I am so delighted to report that after 57 days on a ventilator 40 in a coma and 3 months in hospital my amazing dad has come home to us! 🥰. From being told his life was 40/60 , 60 being most likely to loose his life. fighting Covid 19, 6 separate infection and 2 pnemonia's he is finally home with us
Pray4miracles
in
ICUsteps
3 years ago
Has anyone had Aquablation? Does ADT reduce prostate size enough to remove catheter?
I am one of those unlucky ones after biopsy I was not a candidate for RP due to my high GS 10. As a result my uro didn't even want to recommend surgery since the PCa was already out of the prostate. As a result I am still wearing the foley catheter. But now am considering surgery to open the channel
I am one of those unlucky ones after biopsy I was not a candidate for RP due to my high GS 10. As a result my uro didn't even want to recommend surgery since the PCa was already out of the prostate. As a result I am still wearing the foley catheter. But now am considering surgery to open the channel
Back2future
in
Advanced Prostate Cancer
3 years ago
Anyone used Prof J. Malone-Lee's approach for Chronic UTIs?
Hi, I've just discovered this book by Prof James Malone-Lee and wondered if anyone has had any luck in getting this type of treatment from the NHS? https://www.amazon.co.uk/Cystitis-Unmasked-James-Malone-Lee/dp/1910079634/ref=sr_1_1?dchild=1&keywords=cystitis&qid=1618603818&s=books&sr=1-1 I've currently
Hi, I've just discovered this book by Prof James Malone-Lee and wondered if anyone has had any luck in getting this type of treatment from the NHS? https://www.amazon.co.uk/Cystitis-Unmasked-James-Malone-Lee/dp/1910079634/ref=sr_1_1?dchild=1&keywords=cystitis&qid=1618603818&s=books&sr=1-1 I've currently
Chancery
in
Pelvic Pain Support Network
3 years ago
Lynparza
I know Lynparza comes with some horrible side effects. Have any of you heard of fever being one of them? My husband has developed a fever of 102. I called the on call Doctor he said to give him Tylenol to bring it down if and that if he’s not better by morning to bring him into the office. He also
I know Lynparza comes with some horrible side effects. Have any of you heard of fever being one of them? My husband has developed a fever of 102. I called the on call Doctor he said to give him Tylenol to bring it down if and that if he’s not better by morning to bring him into the office. He also
Fight11
in
Advanced Prostate Cancer
3 years ago
Neoadjuvant Androgen Deprivation Therapy in Prostate Cancer (with surgery)
Here is a link to a recent and fairly comprehensive multi-section set of articles on the use of neoadjuvant (i.e., treatment begun before the main treatment and continued alongside the main treatment) ADT. The articles are mainly about ADT and surgery, but also contain a small amount of information
Here is a link to a recent and fairly comprehensive multi-section set of articles on the use of neoadjuvant (i.e., treatment begun before the main treatment and continued alongside the main treatment) ADT. The articles are mainly about ADT and surgery, but also contain a small amount of information
AlanMeyer
in
Advanced Prostate Cancer
3 years ago
THINING SKIN AFTER KIDNEY TRANSPLANT
I have extremely thin skin since my transplant 17 months ago. I am still on high dosages of cellcept due to rejection issues. My arms, in particular, bruise very easily. Just scratching my arms will leave red marks that take weeks to disappear. I use Cera Ve moisturizer 2x a day and Eucerin Moisturizer
I have extremely thin skin since my transplant 17 months ago. I am still on high dosages of cellcept due to rejection issues. My arms, in particular, bruise very easily. Just scratching my arms will leave red marks that take weeks to disappear. I use Cera Ve moisturizer 2x a day and Eucerin Moisturizer
Norken
in
Kidney Transplant
3 years ago
Gripe Water - Does it work?
Hiya, first time, exclusively breastfeeding, Mum of an almost 6wk old little girl here. So far baba has been very calm and chilled but the last few days she’s been having some hellish screaming fits for apparently no reason, hard to console/feed/put down etc. think it’s Colic (?). Although I know there
Hiya, first time, exclusively breastfeeding, Mum of an almost 6wk old little girl here. So far baba has been very calm and chilled but the last few days she’s been having some hellish screaming fits for apparently no reason, hard to console/feed/put down etc. think it’s Colic (?). Although I know there
Redshoes28
in
Pregnancy and Parenting Support
3 years ago
Feeling rough
Hi everyone , As some of you know I’ve been struggling with a urine infection, I’m now at the end of taking a second round of antibiotics, I’ve also started taking d-mannose, it’s still on going, on top of this I’ve now got a chest infection. I honestly feel I’m falling to bits. My question is, should
Hi everyone , As some of you know I’ve been struggling with a urine infection, I’m now at the end of taking a second round of antibiotics, I’ve also started taking d-mannose, it’s still on going, on top of this I’ve now got a chest infection. I honestly feel I’m falling to bits. My question is, should
2013mayo
in
PMRGCAuk
3 years ago
Use of NSAID SOONER?
Pain Relief? How to manage, or try to manage. I have prescriptions for celecoxib and etoricoxib. I usually try to cope without either, then as pain gets worse try regular paracetamol. Only when I am desperate do I start with the NSAID. Is this the right approach? Should I start with the NSAID sooner
Pain Relief? How to manage, or try to manage. I have prescriptions for celecoxib and etoricoxib. I usually try to cope without either, then as pain gets worse try regular paracetamol. Only when I am desperate do I start with the NSAID. Is this the right approach? Should I start with the NSAID sooner
Gilliancheche
in
NRAS
3 years ago
I promised to share when info came out. It's good news.
Some of you know that I am in the second part of this Exceptional Responders study. There's some good and interesting news out of the first cohort. "The findings from a recent study of patients with cancer who had an exceptional response to chemotherapy are yielding new clues on the molecular changes
Some of you know that I am in the second part of this Exceptional Responders study. There's some good and interesting news out of the first cohort. "The findings from a recent study of patients with cancer who had an exceptional response to chemotherapy are yielding new clues on the molecular changes
Denzie
Volunteer
in
Lung Cancer Support
3 years ago
Does anyone with a kidney transplant ride a motorcycle? If so do you wear anything special to protect your new kidney? How long did you wait
Riding motorcycle
Riding motorcycle
KWT65
in
Kidney Transplant
3 years ago
My brothers kidney transplant
Hello everyone, I’m Steve and new here, I joined this community because my brother has some serious health problems with his kidney and is in need of a transplant, I wish to interact with people who with similar conditions to better understand how to overcome this both medically and emotionally... thanks
Hello everyone, I’m Steve and new here, I joined this community because my brother has some serious health problems with his kidney and is in need of a transplant, I wish to interact with people who with similar conditions to better understand how to overcome this both medically and emotionally... thanks
Lordsteve
in
Lung Conditions Community Forum
3 years ago
Which vaccine have you received and how did that go??
Does your transplant center recommend a certain vaccine like Moderna, Pfizer or Johnson Johnson?? Which one would be the best for kidney transplant or all the same?
Does your transplant center recommend a certain vaccine like Moderna, Pfizer or Johnson Johnson?? Which one would be the best for kidney transplant or all the same?
Dna4christ
in
Kidney Transplant
3 years ago
Back pain from Firmagon?
Hello! My father has gotten terrible back pain, to the point that he is almost not getting out of bed. He says that it is worse when he rises, but has gotten gradually worse over the last four weeks. Of course we are going to do scans to see it is has anything to do with the cancer, but I also wondered
Hello! My father has gotten terrible back pain, to the point that he is almost not getting out of bed. He says that it is worse when he rises, but has gotten gradually worse over the last four weeks. Of course we are going to do scans to see it is has anything to do with the cancer, but I also wondered
TheTopBanana
in
Advanced Prostate Cancer
3 years ago
Alternatives to Atorvastatin
Hi all, long story short, I was placed on Atorvastatin I. February after a Cardiac Arrest and then a TIA (lucky me). Turns out my cholesterol was 6.9. I tolerated the drug really well, and my cholesterol came down to 2.35, except it sent my liver into overdrive. My GP told me to stop the statin and have
Hi all, long story short, I was placed on Atorvastatin I. February after a Cardiac Arrest and then a TIA (lucky me). Turns out my cholesterol was 6.9. I tolerated the drug really well, and my cholesterol came down to 2.35, except it sent my liver into overdrive. My GP told me to stop the statin and have
Curlyman83
in
Different Strokes
3 years ago
egfr of 80
I was diagnosed about 18 months ago with stage 2 CKD with a eGFR of 57. Apart from high phosphate all my test results were normal. Today I received my 6 monthly test and my eGFR has gone up to 80. I am naturally delighted but do wonder if this is normal . I know that these numbers fluctuate so I will
I was diagnosed about 18 months ago with stage 2 CKD with a eGFR of 57. Apart from high phosphate all my test results were normal. Today I received my 6 monthly test and my eGFR has gone up to 80. I am naturally delighted but do wonder if this is normal . I know that these numbers fluctuate so I will
barneyfrances
in
Early CKD Support
3 years ago
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