Protein in Urine should I be concerned?

[CJT37]

I have high levels of protein in my Urine, I’ve felt like I have had a urine infection, but other than Protein and a sore back on my left side when I need to pee, there a no indications of an infection.

I have Lupus panniculitis/profundus and my GP doesn’t appear interested.

What can I do and should I be concerned?

[Choccy8]

Hi CJT, the sore back sounds a bit worrying if it's in the kidney area. Could you get in touch with your rheumatologist?

[KayHimm]

Do you have SLE with the panniculitis?

[CJT37 in reply to KayHimm]

I have the symptoms and test on the cusp of the blood counts.

I contacted my GP who’s dismissed me so going to go back again 🙄

[KayHimm in reply to CJT37]

You should discuss with your GP what the significance is. They have their radar up. They can explain reasoning. It all depends on how much protein and what else is in the urine.

I think if they weren’t concerned, you can feel reassured. Do you know the amount?

I had blood and protein in urine once, so I can relate.

Xk

[CJT37 in reply to KayHimm]

I went to my determatologist who is now sending away a sample of my urine.

[KayHimm in reply to CJT37]

Great. Always best to proactive. Keep in touch.

[Jmiller623]

This needs to be addressed immediately. Call your rheumatologist and let them know. If you start swelling or get short of breath (more than usual) in the meantime, I suggest you go to your A&E.

Not to be alarmist but protein loss in urine in someone with lupus should absolutely be addressed with efficiency.

Please keep us up to date with any developments. Sending hugs your way. ❤️xx

[KayHimm in reply to Jmiller623]

JMiller - does this apply if she has not been diagnosed with SLE?

With my UCTD the protein was sure handled as something to be immediately followed up.

Just wanted to make sure you noticed.

By the way, looks like I have cancer. Big shock.

😍😍

[Jmiller623 in reply to KayHimm]

Large protein in the urine in anyone with an autoimmune disease or even otherwise should cause some concern. I’d work it up immediately even for a healthy person if it was a large amount protein. But in someone who already has autoimmune issues, I think I might expedite the work up. She might be developing SLE.

I’m so sorry to hear about your recent finding. What kind of cancer? Sending hugs. ❤️xx

[KayHimm in reply to Jmiller623]

Texting you now

[KayHimm in reply to Jmiller623]

I see. Makes sense

[MEGS53 in reply to KayHimm]

Hi Kay. So sorry to hear about the cancer dx. Please feel free to PM me if I can help in any way. I had breast cancer a year or so ago (not that you've indicated this to be the dx) and I'm more than happy to help if I can.

Sending hugs, 🤗🤗🤗

[KayHimm in reply to MEGS53]

Ahh .. thanks Meg. Will text you. 😍😍

[Krazykat26 in reply to KayHimm]

Big 🤗🤗🤗🤗to u Kay 🤝 I'm so sorry to hear your shocking news. Sending 💜n thinking of ya at this difficult time 🌈😽😽xx

[KayHimm in reply to Krazykat26]

Thank you dear KK. A bit of a shock. Will know more in the coming days. If there ever was a time I needed a kind-hearted surgeon, it was Monday morning. And no matter how this goes, I won’t ever forget that hug.

😍🥰

[Roarah in reply to KayHimm]

Oh Kay my thoughts are with you let me know if u need anything at all!

[KayHimm in reply to Roarah]

Thanks Roarah. And I will.

[panther50 in reply to KayHimm]

So sorry to hear this Kay. Sending you lots of love and best wishes.

[KayHimm in reply to panther50]

Thank you very much. Just waiting for the doctor to call with biopsy results. Long day ..

😍

[CJT37 in reply to Jmiller623]

My dermatologist took a sample of my Urine today fingers crossed, my bloods for kidney function seemed normal from my bloods taken on 19th

[Jmiller623 in reply to CJT37]

That’s great news that your renal function doesn’t show any sign of decline. I sure hope there is no protein today. Very happy that your dermatologist is following up. Please let us know how you get along after today. ❤️xx

[baba]

I agree with Jmiller. This needs proper investigation.

[Pollynolongerinagony]

thank you for posting your concern, you have prompted me to get mine checked next time it happens. bless you, and good luck, polly

[WinterSwimmer]

High levels of protein in the urine in someone with lupus could be nephritis, which can be very serious. Even if you don't have a formal diagnosis of lupus - please pursue this. Don't leave it.

[Krawlins]

This is interesting to me, I’ve just had yet another water infection, last one 6 months ago, I don’t go many months without getting one and this has been the same since a child, I’m now 60!I first went in the late pm and did the sample when I arrived at the surgery, it was dipped- no infection, I was so surprised as it felt like I had one. Two weeks later it still did, but this time first wee of the morning and as per usual protein and white blood cells. I nearly always have blood and protein with my infections. In early 2020 or was it 2019 I had bladder scan and all was fine, I had kidney stones on ultrasound but these had gone by time of this next scan. I constantly have pain where kidneys are, my next appt is with urology over the phone, I can only question them again as to why I keep getting protein and blood and so many infections?

I don’t have positive ANA for lupus but have just suspected I might have that or something similar due to a myriad of issues.

Good luck on your journey and trying to establish the cause of your protein

Kay

[CJT37]

My dermatologist took a Urine sample and has sent this to be examined. Hopefully get the results soon

[panther50 in reply to CJT37]

I’ve had multiple urine infections, that were like this so hopefully that’s all it is, but even that does need treatment especially with back pain as they are usually concerned it can develop into a kidney infection. Sounds like you’ll get answers soon.