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Kidney diseases in childhood
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cortisol/underactive thyroid
Out of interest, if your cortisol is high in the morning, would taking your levothyroxine in the morning make you feel even more stressed/twitchy?
Out of interest, if your cortisol is high in the morning, would taking your levothyroxine in the morning make you feel even more stressed/twitchy?
Puddingym
in
Thyroid UK
4 months ago
looking for input - RIsing PSA with Negative PSMA Pet scan
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
ND1988
in
Advanced Prostate Cancer
1 month ago
Borderline/low cortisol child
Hello lovely people, I posted last week about my 9 year old daughter being diagnosed with autoimmune hypothyroidism. I received some great support from this community and wonder whether you could perhaps offer me some further wisdom please. It transpires that she also has a cortisol level that is just
Hello lovely people, I posted last week about my 9 year old daughter being diagnosed with autoimmune hypothyroidism. I received some great support from this community and wonder whether you could perhaps offer me some further wisdom please. It transpires that she also has a cortisol level that is just
figster
in
Thyroid UK
1 month ago
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Minor change in psa - reason to be concern?
Hi, My dad just got an update on his PSA #. 3 weeks ago his PSA was 0.37, our family went on vacation, and he just got back and had his blood work done again. All enzymes normal, but PSA ticked up slightly to 0.47. Is this concerning at all? I thought PSA was suppose to trend to undetectable levels
Hi, My dad just got an update on his PSA #. 3 weeks ago his PSA was 0.37, our family went on vacation, and he just got back and had his blood work done again. All enzymes normal, but PSA ticked up slightly to 0.47. Is this concerning at all? I thought PSA was suppose to trend to undetectable levels
Cafu6
in
Advanced Prostate Cancer
1 month ago
in remission and stable
I have AIH/PBC and Barrett’s oesophagus I have been in remission for about 18months , interested to hear how long anyone else has stayed in remission? I am still on 3mg budesonide, mycophenolate and urso and numerous other tablets, unfortunately I am getting a lot of IBS does anyone else suffer with
I have AIH/PBC and Barrett’s oesophagus I have been in remission for about 18months , interested to hear how long anyone else has stayed in remission? I am still on 3mg budesonide, mycophenolate and urso and numerous other tablets, unfortunately I am getting a lot of IBS does anyone else suffer with
Suecong
in
British Liver Trust
1 month ago
Lupus diagnosis after taking hydroxychloriquine for 14 months
Hi guys, hope everyone is well. Since getting diagnosed with lupus last month one thing has been really bothering me... As bit of a back story I was diagnosed with RA a few years ago. Over the last 6-8 months I've been amassing a bunch of other symptoms which last month resulted in my RA diagnosed
Hi guys, hope everyone is well. Since getting diagnosed with lupus last month one thing has been really bothering me... As bit of a back story I was diagnosed with RA a few years ago. Over the last 6-8 months I've been amassing a bunch of other symptoms which last month resulted in my RA diagnosed
Diagnosis_Collector
in
LUPUS UK
6 months ago
Continued Journey
Day +14: I am presently unhooked from my medication pole. It is a great feeling to be able to be more mobile around my “suite”. Accommodations here quite nice considering what most hospital rooms are like. it has been a rough go with a certain amount of nausea, lack of energy, and G.I. situations
Day +14: I am presently unhooked from my medication pole. It is a great feeling to be able to be more mobile around my “suite”. Accommodations here quite nice considering what most hospital rooms are like. it has been a rough go with a certain amount of nausea, lack of energy, and G.I. situations
FiArt12X
in
CLL Support
1 month ago
Blood Test for MS Activity Gets FDA Breakthrough Designation
The US Food and Drug Administration (FDA) has granted breakthrough device designation to the Elecsys Neurofilament Light Chain (NfL) test for multiple sclerosis (MS). November, 2023
Made by Roche, the test is intended to be used as an aid in detection of disease activity in adults aged 18
The US Food and Drug Administration (FDA) has granted breakthrough device designation to the Elecsys Neurofilament Light Chain (NfL) test for multiple sclerosis (MS). November, 2023
Made by Roche, the test is intended to be used as an aid in detection of disease activity in adults aged 18
BettysMom
in
My MSAA Community
6 months ago
Subcutaneous combination therapy improves ‘good on’ time in Parkinson’s
Primary analyses from this phase 3 clinical trial of the investigational, subcutaneous infusion of levodopa/carbidopa (LD/CD) (ND0612) showed that treatment in doses of up to 720 mg/90 mg per day, supplemented with oral levodopa provided almost 2 additional hours per day of “Good On” time without troublesome
Primary analyses from this phase 3 clinical trial of the investigational, subcutaneous infusion of levodopa/carbidopa (LD/CD) (ND0612) showed that treatment in doses of up to 720 mg/90 mg per day, supplemented with oral levodopa provided almost 2 additional hours per day of “Good On” time without troublesome
Farooqji
in
Cure Parkinson's
1 month ago
Ultrasound result and am now panicking
Hi, I wonder if anyone could offer some words of wisdom, I had an ultrasound yesterday and the sonographer said I had some fat in my liver, nothing to worry about. A week for results to GP. Phone call today from receptionist for urgent bloods, in a week and appt with GP, in 2 weeks. Asked to speak to
Hi, I wonder if anyone could offer some words of wisdom, I had an ultrasound yesterday and the sonographer said I had some fat in my liver, nothing to worry about. A week for results to GP. Phone call today from receptionist for urgent bloods, in a week and appt with GP, in 2 weeks. Asked to speak to
Owlie
in
British Liver Trust
1 month ago
Low cortisol
rheumatologist referred me to endocrinologist as Cortisol levels low He booked me in for a synacthen test. Which I had 3 weeks ago. I havnt got an appointment with him till end of August. I contacted his secretary who spoke to him and he said that level was inadequate and to continue with 5 mg of
rheumatologist referred me to endocrinologist as Cortisol levels low He booked me in for a synacthen test. Which I had 3 weeks ago. I havnt got an appointment with him till end of August. I contacted his secretary who spoke to him and he said that level was inadequate and to continue with 5 mg of
Creamtea
in
PMRGCAuk
1 month ago
update
Update on my post “What should I do”, thank you for all your helpful replies. I had my COVID Jab and no after effects from that. I am seeing the Surgery Nurse to have my leg dressed twice a week.The haematoma is slow to heal due to the blood thinning medication but Hopefully it will heal soon. I heard
Update on my post “What should I do”, thank you for all your helpful replies. I had my COVID Jab and no after effects from that. I am seeing the Surgery Nurse to have my leg dressed twice a week.The haematoma is slow to heal due to the blood thinning medication but Hopefully it will heal soon. I heard
Macas
in
PMRGCAuk
1 month ago
results
good morning, just to let use know I had my liver scan and got results early, so was told am now compensated from decompensated which is great and apperently have been for months because am not yellow and ascites have gone 🤷♀️ meld score down to 12, so all is good news, am done with google I honestly
good morning, just to let use know I had my liver scan and got results early, so was told am now compensated from decompensated which is great and apperently have been for months because am not yellow and ascites have gone 🤷♀️ meld score down to 12, so all is good news, am done with google I honestly
Kingbilly3
in
British Liver Trust
1 month ago
North not South
Psa at dx 139. Orgovyx and Nubeqa dropped it to 62.93 Started Docetaxil #1 Psa 23.91 #2 Psa 11.41 #3 Psa 7.15 #4 Psa 4.15 #5 Psa 2.38 #6 Psa 1.66 MO wanted to continue to 8. I agreed . There was a 6 week delay before #7. I took a Psa test right before 7 and it had dropped to 0.841 pleasantly
Psa at dx 139. Orgovyx and Nubeqa dropped it to 62.93 Started Docetaxil #1 Psa 23.91 #2 Psa 11.41 #3 Psa 7.15 #4 Psa 4.15 #5 Psa 2.38 #6 Psa 1.66 MO wanted to continue to 8. I agreed . There was a 6 week delay before #7. I took a Psa test right before 7 and it had dropped to 0.841 pleasantly
APK3
in
Advanced Prostate Cancer
1 month ago
Gleason 6 Treatment options .
Has anyone experienced Monotherapy - LDR Brachytherapy , without , EBRT or ADT . for Grade1 ( Gleason Score 3+3=6 Prostate Cancer ? OR LDR With EBRT Only ?
Has anyone experienced Monotherapy - LDR Brachytherapy , without , EBRT or ADT . for Grade1 ( Gleason Score 3+3=6 Prostate Cancer ? OR LDR With EBRT Only ?
Conlig1940
in
Advanced Prostate Cancer
1 month ago
What about stiffness
I think some of you already know that mom has contractures post her accident and cant move much. Recently her PT said - get her some muscle relaxant and omg what a difference. But i cant give it everyday. Please advise what folks are doing for stiffness and muscular issues please. She does get a massage
I think some of you already know that mom has contractures post her accident and cant move much. Recently her PT said - get her some muscle relaxant and omg what a difference. But i cant give it everyday. Please advise what folks are doing for stiffness and muscular issues please. She does get a massage
mymomhaspd
in
Cure Parkinson's
1 month ago
ATP and NAD+ Deficiency in Parkinson’s Disease
Laurie Mischley authored... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9961646/#abstract-a.l.b.stitle Results from this pilot study contribute to a growing body of evidence that PD is not a brain disease, but a systemic metabolic syndrome with disrupted cellular energetics and function in peripheral
Laurie Mischley authored... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9961646/#abstract-a.l.b.stitle Results from this pilot study contribute to a growing body of evidence that PD is not a brain disease, but a systemic metabolic syndrome with disrupted cellular energetics and function in peripheral
JayPwP
in
Cure Parkinson's
1 month ago
normal gamma-gt and cirrhosis?
hello, I went to the GP today to discuss concerns about drinking. I’ve cut down significantly but am concerned about having already done irreversible damage. Historically my results have always been normal (last blood test in March). She said that if gamma-gt is normal, cirrhosis is unlikely, but did
hello, I went to the GP today to discuss concerns about drinking. I’ve cut down significantly but am concerned about having already done irreversible damage. Historically my results have always been normal (last blood test in March). She said that if gamma-gt is normal, cirrhosis is unlikely, but did
Soph9987
in
British Liver Trust
1 month ago
can loading doses cause liver enzymes to go up
hello All, I received some blood work back and I noticed my liver enzymes are high alt and ast. I am injecting EOD now and on 6th week. just curious because thats the only thing that has changed since my last blood work is I am now doing injections not just oral liquid sublingual. thank you for any
hello All, I received some blood work back and I noticed my liver enzymes are high alt and ast. I am injecting EOD now and on 6th week. just curious because thats the only thing that has changed since my last blood work is I am now doing injections not just oral liquid sublingual. thank you for any
JesusMercy60
in
Pernicious Anaemia Society
1 month ago
REMINDER! Harrogate Lupus Group - Coffee and Chat meeting - 2nd March 10.30am
REMINDER! Saturday 2nd March, the Harrogate Lupus Group will be meeting at 10.30am, at the Woodlands Methodist Church Hall, 71 Wetherby Road, Harrogate, HG2 7SG. We will be joined by Frances Pearson, who will be talking about her ideas on the Lupus Observatory. Everyone is welcome to join! If you
REMINDER! Saturday 2nd March, the Harrogate Lupus Group will be meeting at 10.30am, at the Woodlands Methodist Church Hall, 71 Wetherby Road, Harrogate, HG2 7SG. We will be joined by Frances Pearson, who will be talking about her ideas on the Lupus Observatory. Everyone is welcome to join! If you
michaellasmith
Administrator
in
LUPUS UK
6 months ago
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