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Juvenile idiopathic arthritis
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Covid vaccination and rheumatoid arthritis
Hi everyone, I'm not sure if this has been already discussed on here as I haven't been on here much. I suffer from rheumatoid arthritis and currently taking cimzja injection pen and will also be starting on methotrexate very soon, mean while I will also be getting a steroid injection. Just wanted to
Hi everyone, I'm not sure if this has been already discussed on here as I haven't been on here much. I suffer from rheumatoid arthritis and currently taking cimzja injection pen and will also be starting on methotrexate very soon, mean while I will also be getting a steroid injection. Just wanted to
Flowers2020
in
NRAS
3 years ago
Tocilizumab extension
Hi I wrote a couple of weeks ago asking if anyone had been told that their tocilizumab was being extended. I’ve heard nothing from rheumatology or G.P but today I’ve had a txt from the company that deliver the injections to say they are delivering early March. Not sure if it’s the normal 8 weeks supply
Hi I wrote a couple of weeks ago asking if anyone had been told that their tocilizumab was being extended. I’ve heard nothing from rheumatology or G.P but today I’ve had a txt from the company that deliver the injections to say they are delivering early March. Not sure if it’s the normal 8 weeks supply
Devoid
in
PMRGCAuk
3 years ago
Stuck
I have been on 24 mgs deflazacort (and up to 40gs) for 3 months because of a flare. I am trying to reduce by 10 percent per fortnight but I don't seem to be making any headway: Lower back, groin, knee, shoulder pain and fatigue. I was diagnosed in August 2018 and from 15mgs I reduced with very few symptoms
I have been on 24 mgs deflazacort (and up to 40gs) for 3 months because of a flare. I am trying to reduce by 10 percent per fortnight but I don't seem to be making any headway: Lower back, groin, knee, shoulder pain and fatigue. I was diagnosed in August 2018 and from 15mgs I reduced with very few symptoms
bBarnabus
in
PMRGCAuk
3 years ago
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Am I a vulnerable person?
Are people with Fibro, Diverticular Disease, and Arthritis considered as vulnerable? During the first lockdown, I wasn't sure about registering on my local council listing and now I am even more confused. Is anyone able to give me any advice, please? Thanks.
Are people with Fibro, Diverticular Disease, and Arthritis considered as vulnerable? During the first lockdown, I wasn't sure about registering on my local council listing and now I am even more confused. Is anyone able to give me any advice, please? Thanks.
GillieGG
in
Fibromyalgia Action UK
3 years ago
Hi I'm new here.
I was diagnosed with psoriatic arthritis September last year. Currently taking methotrexate. Anyone else suffer with this horrible disease?
I was diagnosed with psoriatic arthritis September last year. Currently taking methotrexate. Anyone else suffer with this horrible disease?
NJW92
in
Pain Concern
3 years ago
Having a wobble
Had a phone call today (no previous letter) with appointment for Pfizer vaccine tomorrow. Was really surprised as I'm 75 ......no special circumstances.... and didn't expect to be called yet. It took me by surprise. I came off pred last March after 5 years and have been OK but haveo osteoarthritis
Had a phone call today (no previous letter) with appointment for Pfizer vaccine tomorrow. Was really surprised as I'm 75 ......no special circumstances.... and didn't expect to be called yet. It took me by surprise. I came off pred last March after 5 years and have been OK but haveo osteoarthritis
Wenben
in
PMRGCAuk
3 years ago
Just a few questions as new to rheumatoid arthritis
Morning everyone I would just like to ask a few questions as this is me just starting my 4th week with sulfasalazine and don't want to keep asking my gp is it okay to take vitamins and joint care supplements also I have been trying to stick to a anti inflammatory diet that am finding really boring should
Morning everyone I would just like to ask a few questions as this is me just starting my 4th week with sulfasalazine and don't want to keep asking my gp is it okay to take vitamins and joint care supplements also I have been trying to stick to a anti inflammatory diet that am finding really boring should
Hidden
in
NRAS
3 years ago
Osteoporosis & Fosamax
I’ve had osteopenia for years & was recently told at 74 that I have osteoporosis on my left hip. I have always taken calcium supplements, exercise etc My Question is has anyone had experience with Fosamax I’m worried about the side effects. I’m already on warfarin & Plaquenil, have APS & arthritis &
I’ve had osteopenia for years & was recently told at 74 that I have osteoporosis on my left hip. I have always taken calcium supplements, exercise etc My Question is has anyone had experience with Fosamax I’m worried about the side effects. I’m already on warfarin & Plaquenil, have APS & arthritis &
loretta1106
in
Hughes Syndrome APS Forum
3 years ago
The guardian now about rheumatoid drugs
https://www.theguardian.com/world/2021/jan/07/covid-arthritis-drugs-could-help-save-lives-of-seriously-ill--patients-research-finds?CMP=Share_AndroidApp_Other Looks like Tociluzmab and Sarilumab may be helpful in covid treatment on a larger study.
https://www.theguardian.com/world/2021/jan/07/covid-arthritis-drugs-could-help-save-lives-of-seriously-ill--patients-research-finds?CMP=Share_AndroidApp_Other Looks like Tociluzmab and Sarilumab may be helpful in covid treatment on a larger study.
allanah
in
NRAS
3 years ago
Nervous
Sorry I'm going a bit off piste but I feel very scared. My husband has had trouble with his mobility and memory for a couple of years and yesterday got a diagnosis of Normal postural Hydrocephalus. He has been advised to have a lumber puncture to drain some fluid to see if it temporarily improves with
Sorry I'm going a bit off piste but I feel very scared. My husband has had trouble with his mobility and memory for a couple of years and yesterday got a diagnosis of Normal postural Hydrocephalus. He has been advised to have a lumber puncture to drain some fluid to see if it temporarily improves with
Suet3942
in
PMRGCAuk
3 years ago
Benepali
I have inflammatory arthritis and will start Benepali treatment soon. Has it been successful for people and does it cause weight gain?
I have inflammatory arthritis and will start Benepali treatment soon. Has it been successful for people and does it cause weight gain?
Gerardina
in
NRAS
3 years ago
Do you work at least 15hrs per week and have inflammatory arthritis? Please consider applying for this clinical trial
Is working with arthritis a problem for you? The University of Salford is looking for volunteers for the WORK WELL study, funded by Versus Arthritis. The study is testing two ways of giving work advice and work rehabilitation for working people with arthritis. Treatment is provided remotely, either
Is working with arthritis a problem for you? The University of Salford is looking for volunteers for the WORK WELL study, funded by Versus Arthritis. The study is testing two ways of giving work advice and work rehabilitation for working people with arthritis. Treatment is provided remotely, either
Shivam-NRAS
NRAS
in
NRAS
3 years ago
How to deal with arthritis pain.
Happy New Year EH! This is my first question. I have a few conditions but my first question is about arthritis and how others deal with it. My hands are in constant pain and it makes work and home life quite difficult. I am wondering how do others deal with this?
Happy New Year EH! This is my first question. I have a few conditions but my first question is about arthritis and how others deal with it. My hands are in constant pain and it makes work and home life quite difficult. I am wondering how do others deal with this?
Spazzoid
in
Fibromyalgia Action UK
3 years ago
Newby
New here. Rheumatoid Arthritis blood test was negative. Waiting for another blood test in direction Osteoporosis. Someone else pointed me here. I started a plant based diet and it helps me tremendously as my fatigue went down the hill. But I have pain in my left elbow little above and right hand finger
New here. Rheumatoid Arthritis blood test was negative. Waiting for another blood test in direction Osteoporosis. Someone else pointed me here. I started a plant based diet and it helps me tremendously as my fatigue went down the hill. But I have pain in my left elbow little above and right hand finger
Sonne66
in
Fibromyalgia Action UK
3 years ago
New treatment for knee osteoarthritis?
Hi, i wondered if anyone can help me source the origin of a bbc programme earlier in 2020 which showed a woman in her 30's who was suffering badly from arthritis in her knee(s?). She mentioned that she had been very active, an amateur sportswoman , who , i think, also ran her own exercise class business
Hi, i wondered if anyone can help me source the origin of a bbc programme earlier in 2020 which showed a woman in her 30's who was suffering badly from arthritis in her knee(s?). She mentioned that she had been very active, an amateur sportswoman , who , i think, also ran her own exercise class business
Ainsdale2010
in
Arthritis Action
3 years ago
Can anyone recommend a mattress for back ache
I have rheumatoid arthritis and osteoarthritis , every night I take 2 Co-codamol for my backache before bed, bit always wake up and have to take more after about 4 hours, I’m thinking of trying a new mattress to see it that helps, any ideas welcome, Thank you Julie
I have rheumatoid arthritis and osteoarthritis , every night I take 2 Co-codamol for my backache before bed, bit always wake up and have to take more after about 4 hours, I’m thinking of trying a new mattress to see it that helps, any ideas welcome, Thank you Julie
jools34
in
NRAS
3 years ago
Rheumatoid arthritis
Do you get any relief from rheumatoid arthritis. I am in constant pain in my shoulders hands and knees. I am on my fifth week of hydroxychloroquine. I have cut out a lot of foods .eating healthy . I take paracetamol when the pain get really bad. People say it can take up to twelve weeks for
Do you get any relief from rheumatoid arthritis. I am in constant pain in my shoulders hands and knees. I am on my fifth week of hydroxychloroquine. I have cut out a lot of foods .eating healthy . I take paracetamol when the pain get really bad. People say it can take up to twelve weeks for
Indersisive71
in
NRAS
3 years ago
A lovely day with the grandaughters
She has JIA (
Juvenile
idiopathic
Arthritis
) and I'm pretty sure it makes her more feisty. Hope you've all had a good day. Alicia 😊🌈
She has JIA (
Juvenile
idiopathic
Arthritis
) and I'm pretty sure it makes her more feisty. Hope you've all had a good day. Alicia 😊🌈
Hidden
in
Positive Wellbeing During Self-Isolation
4 years ago
PMR or Arthritis
Is it possible to have a relatively mild case of pmr? Some years ago I had PMR and was on prednisone for two years. I now have some of the symptoms but I don’t know whether it’s a mild case of PMR or a bad case of osteo arthritis. My PMR started in the hips and then spread to the shoulders. My present
Is it possible to have a relatively mild case of pmr? Some years ago I had PMR and was on prednisone for two years. I now have some of the symptoms but I don’t know whether it’s a mild case of PMR or a bad case of osteo arthritis. My PMR started in the hips and then spread to the shoulders. My present
Crowsfeet
in
PMRGCAuk
3 years ago
Fingers
Hi I have been diagnosed with PMR a couple of months ago, I'm 45 Currently striking the balance with Pred and Methotrexate Hoping the Meth will allow me to wean of the Pred One thing my Rummy told me was non of his patients suffer with pain in the fingers I suffer greatly, especially the first few
Hi I have been diagnosed with PMR a couple of months ago, I'm 45 Currently striking the balance with Pred and Methotrexate Hoping the Meth will allow me to wean of the Pred One thing my Rummy told me was non of his patients suffer with pain in the fingers I suffer greatly, especially the first few
evzi75
in
PMRGCAuk
3 years ago
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