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Juvenile idiopathic arthritis
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I've got UAT , OSTIO ARTHRITIS AND FIBROMYALGIA does anyone else have these together I find it really difficult to know which problem is causing issues for me as alot of issues overlap I find this incredibly frustrating anyone got any ideas help please
I've got UAT , OSTIO ARTHRITIS AND FIBROMYALGIA does anyone else have these together I find it really difficult to know which problem is causing issues for me as alot of issues overlap I find this incredibly frustrating anyone got any ideas help please
PENNYODELL29
in
Thyroid UK
3 years ago
Is fibromyalgia a disability?
I’m having issues with universal credit are saying I’m not disabled with fibromyalgia and osteoarthritis in my hip and need a replacement. Had a heart attack and several other diagnoses. Causing me so much stress.
I’m having issues with universal credit are saying I’m not disabled with fibromyalgia and osteoarthritis in my hip and need a replacement. Had a heart attack and several other diagnoses. Causing me so much stress.
michl14
in
Fibromyalgia Action UK
3 years ago
Continuation of Tocilizumab treatment in UK needed- Help or advice needed please.
I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of any advice or help from my Rheumatology consultant, I am hoping someone on this forum could advise me. NICE still hasn’t rethought it’s advice
I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of any advice or help from my Rheumatology consultant, I am hoping someone on this forum could advise me. NICE still hasn’t rethought it’s advice
Suzita76
in
PMRGCAuk
3 years ago
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Tendons - calcium
Hi I was wondering if anyone had calcium in their shoulder tendons?? If so what helped it?? An ultrasound found I had this condition plus osteoarthritis. I’m really struggling with this condition it is extremely painful to move arm and can’t sleep on that arm. I’ve had surgery 12 years on that shoulder
Hi I was wondering if anyone had calcium in their shoulder tendons?? If so what helped it?? An ultrasound found I had this condition plus osteoarthritis. I’m really struggling with this condition it is extremely painful to move arm and can’t sleep on that arm. I’ve had surgery 12 years on that shoulder
Maggie153
in
PMRGCAuk
3 years ago
Reminder to new MTX users - your sensitivity to the sun is likely to be increased.
The weather has been so awful that I had forgotten that I had read about this side-effect. Yesterday, I enjoyed a lovely, lazy day watching the bees buzzing around the dandelion flowers in my knee height grass (we're doing No May May) and basking in the weird warmth of the shining orb. I now resemble
The weather has been so awful that I had forgotten that I had read about this side-effect. Yesterday, I enjoyed a lovely, lazy day watching the bees buzzing around the dandelion flowers in my knee height grass (we're doing No May May) and basking in the weird warmth of the shining orb. I now resemble
Hidden
in
PMRGCAuk
3 years ago
Is there any support I can find in Punjabi?
My mum's main language is Punjabi and I would like to see if there is any support for her with her arthritis. She is in pain daily and has helped in terms of medication and some physiotherapy but her condition seems to be getting worse. I think she could really benefit from knowing there are other people
My mum's main language is Punjabi and I would like to see if there is any support for her with her arthritis. She is in pain daily and has helped in terms of medication and some physiotherapy but her condition seems to be getting worse. I think she could really benefit from knowing there are other people
hira123
in
NRAS
3 years ago
Tocilizumab
If, as I understand it, NHS England only funds this drug for one year per individual then I will reach the end of my allocation in late July. It has taken months on this drug to cover the reduction in Prednisolone and I am now down to my lowest level ever. My Ophthalmologist is also discussing reducing
If, as I understand it, NHS England only funds this drug for one year per individual then I will reach the end of my allocation in late July. It has taken months on this drug to cover the reduction in Prednisolone and I am now down to my lowest level ever. My Ophthalmologist is also discussing reducing
AncientMariner
in
PMRGCAuk
3 years ago
A further update on the old taper journey ...
Hello again friends on this long and treacherous journey, I am reporting back with some good news, yay! While I have remained on the three weekly (rather than weekly or fortnightly) tocilizumab routine, my inflammation has remained under control, so far. I have just moved to 1.75mgs pred on my cautious
Hello again friends on this long and treacherous journey, I am reporting back with some good news, yay! While I have remained on the three weekly (rather than weekly or fortnightly) tocilizumab routine, my inflammation has remained under control, so far. I have just moved to 1.75mgs pred on my cautious
LemonZest11
in
PMRGCAuk
3 years ago
Carrie Ann Inaba "Sjogren's syndrome, lupus, fibromyalgia, rheumatoid arthritis, "and I have the markers for antiphospholipid syndrome"
(You may need to sign up for a free patient account, I find their emails to be VERY informative) https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
(You may need to sign up for a free patient account, I find their emails to be VERY informative) https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
Piscesdreamer
in
Hughes Syndrome APS Forum
3 years ago
Rheumatoid arthritis
Hi I'm looking to know can I take lansoprazole as I normally did with me starting Methotrexate injection last week I wasn't sure
Hi I'm looking to know can I take lansoprazole as I normally did with me starting Methotrexate injection last week I wasn't sure
Eva9
in
NRAS
3 years ago
Final stages of tapering
New to this forum! I am an otherwise healthy 67 year old male (apart from some osteoarthritis), who has experienced GCA and PMR over the past two years. During the GCA phase, my prednisone dose was 55 mg/d. I have been tapering down fairly successfully, until recently. I am now at 2 mg/d, but experiencing
New to this forum! I am an otherwise healthy 67 year old male (apart from some osteoarthritis), who has experienced GCA and PMR over the past two years. During the GCA phase, my prednisone dose was 55 mg/d. I have been tapering down fairly successfully, until recently. I am now at 2 mg/d, but experiencing
Marinescience
in
PMRGCAuk
3 years ago
Should I see the doctor?
I've recently had a blood test as I've be diagnosed with rheumatoid arthritis. I'm on medication for that but I have pain in my ankles that the medication doesn't seem to be helping. The blood test checked many things including my thyroid levels: TSH. 1.3. 0.27 - 4.20 T4 Total 67.9 66-181 FT4 11.6
I've recently had a blood test as I've be diagnosed with rheumatoid arthritis. I'm on medication for that but I have pain in my ankles that the medication doesn't seem to be helping. The blood test checked many things including my thyroid levels: TSH. 1.3. 0.27 - 4.20 T4 Total 67.9 66-181 FT4 11.6
HermitageGardens
in
Thyroid UK
3 years ago
Experiencing sleep difficulties? Try cutting out caffeine (coffee, tea, chocolate, cola ...)
https://www.arthritis.org/health-wellness/treatment/treatment-plan/disease-management/food-and-drug-interactions I was looking at the possible interactions of drugs used for rheumatoid arthritis, and noticed that caffeine is contra-indicated with prednisone (and presumably prednisolone). I know that
https://www.arthritis.org/health-wellness/treatment/treatment-plan/disease-management/food-and-drug-interactions I was looking at the possible interactions of drugs used for rheumatoid arthritis, and noticed that caffeine is contra-indicated with prednisone (and presumably prednisolone). I know that
Hidden
in
PMRGCAuk
3 years ago
Take part in a research project in chronic pain and employment
I am a doctoral researcher at Heriot-Watt University. I am looking to understand the employment experiences of people living with chronic pain -associated or not to other conditions (eg. fibromyalgia, arthritis, neuropathies) in Scotland. Please, see my attached flyer. Get in touch directly. Thanks in
I am a doctoral researcher at Heriot-Watt University. I am looking to understand the employment experiences of people living with chronic pain -associated or not to other conditions (eg. fibromyalgia, arthritis, neuropathies) in Scotland. Please, see my attached flyer. Get in touch directly. Thanks in
chronicpainSTEM
Researcher
in
Pain Concern
3 years ago
Falling over issues.
Morning all, I have fybro, rheumatoid arthritis, and arthritis but appear to be falling over often and breaking bones. I am 53 and it's getting me down. Does anyone else suffer with this? Thank you for any opinions and advice in advance.
Morning all, I have fybro, rheumatoid arthritis, and arthritis but appear to be falling over often and breaking bones. I am 53 and it's getting me down. Does anyone else suffer with this? Thank you for any opinions and advice in advance.
S21lyb
in
Fibromyalgia Action UK
3 years ago
rheumatoid arthritis
Hi I am new here, I was just referred to a Rheumatologist because my rhfactor came back at 32 and my ana test was 320 but all other tests were normal. Is this similar to anyone else? My doctor thinks I have rheumatoid arthritis
Hi I am new here, I was just referred to a Rheumatologist because my rhfactor came back at 32 and my ana test was 320 but all other tests were normal. Is this similar to anyone else? My doctor thinks I have rheumatoid arthritis
Hurting2012
in
NRAS
3 years ago
Carrie Ann Inaba "Sjogren's syndrome, lupus, fibromyalgia, rheumatoid arthritis, "and I have the markers for antiphospholipid syndrome' "
https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
Piscesdreamer
in
LUPUS UK
3 years ago
Had anyone had the Covid antibody test?
Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be covered 35-55% for the Covid vaccine. I am taking three of these. It recommended an antibody test - it was the SARS COVID anti spike test I think
Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be covered 35-55% for the Covid vaccine. I am taking three of these. It recommended an antibody test - it was the SARS COVID anti spike test I think
christine2715
in
PMRGCAuk
3 years ago
Wooried about running ??
I have never run before so slightly worried about my knees. I think i have mild arthritis, so concerned it will get worse if i do the Couch to 5 k I'm 67 female, with no health issues and not on any meds Anyone have any tips, as i really want to do this Thanks in advance Eve
I have never run before so slightly worried about my knees. I think i have mild arthritis, so concerned it will get worse if i do the Couch to 5 k I'm 67 female, with no health issues and not on any meds Anyone have any tips, as i really want to do this Thanks in advance Eve
EveJ54
in
Couch to 5K
3 years ago
15Years......
After 15 and countless Rheumatologist I have been diagnosed with Psoriatic Arthritis. I now being screened to go on a Biological. Let’s hope I finally get some relief.
After 15 and countless Rheumatologist I have been diagnosed with Psoriatic Arthritis. I now being screened to go on a Biological. Let’s hope I finally get some relief.
LesJames
in
Beyond Psoriasis
3 years ago
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