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New NICE Guidance released.
The Department of Health has asked the National Institute of Health and Care Excellence (NICE) to produce guidance on using topotecan, pegylated liposomal doxorubicin hydrochloride, paclitaxel, trabectedin and gemcitabine in the NHS in England and Wales. The Appraisal Committee has considered the evidence
The Department of Health has asked the National Institute of Health and Care Excellence (NICE) to produce guidance on using topotecan, pegylated liposomal doxorubicin hydrochloride, paclitaxel, trabectedin and gemcitabine in the NHS in England and Wales. The Appraisal Committee has considered the evidence
SoniaOvacome
in
My Ovacome
11 years ago
PBC: Medicare "2 year wait"
Hello and positive thinking to all my sisters and brothers with PBC, I am 59 years old. I have been on Soc.Sec. Disability since 11/12. I am losing my insurance (COBRA) in 1/14 after being led to believe I could get an 11 month extension. Social Security is telling me I have to wait 25 months from
Hello and positive thinking to all my sisters and brothers with PBC, I am 59 years old. I have been on Soc.Sec. Disability since 11/12. I am losing my insurance (COBRA) in 1/14 after being led to believe I could get an 11 month extension. Social Security is telling me I have to wait 25 months from
CindiA
in
PBC Foundation
11 years ago
Disappointment Personified
Well, I went to the St Andrews Parkrun this morning all full of vim and vigour, promising this would be a good one. 23 minutes should keep Aftabs at bay for a little while longer. The first two km went according to plan - a little over schedule but definitely heading for a PB. Unfortunately, I let
Well, I went to the St Andrews Parkrun this morning all full of vim and vigour, promising this would be a good one. 23 minutes should keep Aftabs at bay for a little while longer. The first two km went according to plan - a little over schedule but definitely heading for a PB. Unfortunately, I let
Malcy
Graduate
in
Couch to 5K
11 years ago
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Forgive me friends..for I have sinned...
After graduating at the parkrun last Saturday, I managed to let life, work, apathy and the weather stop me having a run this week!! I kicked myself this morning and got going, I did my first post grad run by returning to week 1 run 1 of the C25K again, what I did was the 5 min warm up walk, then on the
After graduating at the parkrun last Saturday, I managed to let life, work, apathy and the weather stop me having a run this week!! I kicked myself this morning and got going, I did my first post grad run by returning to week 1 run 1 of the C25K again, what I did was the 5 min warm up walk, then on the
katee1958
Graduate
in
Couch to 5K
11 years ago
Disability Living Allowance/Attendance Allowance codes
Might help if you can find your code before form filling or interviews Disability Living Allowance/Attendance Allowance DIALOGUES AND INPUT CODES DESKAID For use by all DLA and AA staff Disability codes End reason types Exclusion reasons Payability adjustment reason types Payment adjustment types Payment
Might help if you can find your code before form filling or interviews Disability Living Allowance/Attendance Allowance DIALOGUES AND INPUT CODES DESKAID For use by all DLA and AA staff Disability codes End reason types Exclusion reasons Payability adjustment reason types Payment adjustment types Payment
Offcut
in
Fibromyalgia Action UK
11 years ago
5 month anniversary, and ParkRuns
I realised today that I first started trying to run 5 months ago. Thinking back after today's fun run I remember how 'hard' it was to run for 1 minute, and how blissful it was to walk for 90 seconds. I didn't feel like a runner, just a real 'hammy'. I always knew I could finish the C25K, which I did
I realised today that I first started trying to run 5 months ago. Thinking back after today's fun run I remember how 'hard' it was to run for 1 minute, and how blissful it was to walk for 90 seconds. I didn't feel like a runner, just a real 'hammy'. I always knew I could finish the C25K, which I did
Nerdio
Graduate
in
Couch to 5K
11 years ago
still on the eds and benign hypermobility question
I have congenital hernia,congenital dislocated hips,twisted spine and osteo arthritis hyper mobility in practically all of my joints.my teeth were very crooked but i have had them removed and now have some false teeth,hammer toes. at sheffoeld i got diagnosis of hyper mobile EDS/benign joint hypermobility.prior
I have congenital hernia,congenital dislocated hips,twisted spine and osteo arthritis hyper mobility in practically all of my joints.my teeth were very crooked but i have had them removed and now have some false teeth,hammer toes. at sheffoeld i got diagnosis of hyper mobile EDS/benign joint hypermobility.prior
Hidden
in
Ehlers-Danlos Support UK
11 years ago
Havin fun with a microscope LIKE really
Anyway a was looking at my mucus a coughed up and there was large and small blood cells in my mucus ... Anyone know out about if a should be taking iron ... As a don't fancy anisocytosis and issue is why no one as told me about this given all my blood test and what part as asbestos fibrils or hydrated
Anyway a was looking at my mucus a coughed up and there was large and small blood cells in my mucus ... Anyone know out about if a should be taking iron ... As a don't fancy anisocytosis and issue is why no one as told me about this given all my blood test and what part as asbestos fibrils or hydrated
Hidden
in
Lung Conditions Community Forum
11 years ago
As Questran is off limits for the time being, I spoke to my hepatologist who suggest I can substitute Questran Light, colestipol or
general cholestymamine. I can't guarantee that the spellings are correct! I know what Questran Light is like, has anybody used either of the other two? If so, what comments do you have on taking them?
general cholestymamine. I can't guarantee that the spellings are correct! I know what Questran Light is like, has anybody used either of the other two? If so, what comments do you have on taking them?
Pat_H
in
PBC Foundation
11 years ago
I have to decide between a Total Wrist Joint Replacement or a Fusion for severe Ra erosion
.Can someone who has had the joint replaced, offer any advice , experience or recommendations please ?.
.Can someone who has had the joint replaced, offer any advice , experience or recommendations please ?.
Hermia
in
NRAS
11 years ago
Karmic news
The bad news is the increased pain I've had over the past few months is because the next
joint
up from the
fusion
is deteriorating rapidly. He doesn't want to operate again yet..... His advice: build up core strength, general fitness and lose weight and go back when sciatica becomes severe.
The bad news is the increased pain I've had over the past few months is because the next
joint
up from the
fusion
is deteriorating rapidly. He doesn't want to operate again yet..... His advice: build up core strength, general fitness and lose weight and go back when sciatica becomes severe.
Fusion8d
in
Lung Conditions Community Forum
11 years ago
Waiting Diagnosis
I've had the 'shakes' since a head injury nearly 40 years ago. Over the years I've had several 'episodes' where I walked into walls, fell up and down steps and stairs, knocked pans off the hob, dropped things...... I now have RA and need joint replacements which adds to everything else. My latest
I've had the 'shakes' since a head injury nearly 40 years ago. Over the years I've had several 'episodes' where I walked into walls, fell up and down steps and stairs, knocked pans off the hob, dropped things...... I now have RA and need joint replacements which adds to everything else. My latest
Zhez
in
Ataxia UK
11 years ago
Hello, Everyone
Hello, I'm Springsong I'm a 34yr old mum with both Aspergers Syndrome & Hypermobility Syndrome/EDS Hypermobility type (depending on which DR I see depends on what they call it). I'm also on the Autism forum as my eldest daughter has Autism but thought I'd join here as both my girls are currently
Hello, I'm Springsong I'm a 34yr old mum with both Aspergers Syndrome & Hypermobility Syndrome/EDS Hypermobility type (depending on which DR I see depends on what they call it). I'm also on the Autism forum as my eldest daughter has Autism but thought I'd join here as both my girls are currently
Springsong
in
Ehlers-Danlos Support UK
11 years ago
What is Hypermobility?
I was at my first Physio appointment last week to get Acupuncture for my neck, shoulder and back pain. When I was going over my symptoms and history etc. I told her that when I lift/move my shoulders they do a 'popping' and 'clicking', like it is popping from the joint. After telling her this, she
I was at my first Physio appointment last week to get Acupuncture for my neck, shoulder and back pain. When I was going over my symptoms and history etc. I told her that when I lift/move my shoulders they do a 'popping' and 'clicking', like it is popping from the joint. After telling her this, she
charlie_red
in
Fibromyalgia Action UK
11 years ago
Quick help needed
Having a really bad flare gp put me on dhc continus 120mg and pregabin 75mg does any body know if can take paracetamol with this? Its a beautful day and im on sofa wrapped up like its winter full of cold sores an one very very painful arm thats cold n hurts when i breath please someone help xxxx
Having a really bad flare gp put me on dhc continus 120mg and pregabin 75mg does any body know if can take paracetamol with this? Its a beautful day and im on sofa wrapped up like its winter full of cold sores an one very very painful arm thats cold n hurts when i breath please someone help xxxx
danie
in
LUPUS UK
11 years ago
help with pain relief
Hi,I am new to this and even tho i have been like i am now for six years iv tried to deal with things myself and with my families help.I went to work just over 6 years ago and after then iv never been the same since!!! i started with burning pain and pain in my back,leg and bum and after a few days in
Hi,I am new to this and even tho i have been like i am now for six years iv tried to deal with things myself and with my families help.I went to work just over 6 years ago and after then iv never been the same since!!! i started with burning pain and pain in my back,leg and bum and after a few days in
sharonb45
in
Pain Concern
11 years ago
Gingko biloba and possible links to Thyroid and Liver Cancers
Gingko biloba extracts are frequently mentioned across the various herbal/alternative medicine sites. Indeed, I have been tempted to try it myself for a non-thyroid reason. So any concern over its safety has to considered carefully. This paper comes from a reputable source and suggests the very
Gingko biloba extracts are frequently mentioned across the various herbal/alternative medicine sites. Indeed, I have been tempted to try it myself for a non-thyroid reason. So any concern over its safety has to considered carefully. This paper comes from a reputable source and suggests the very
helvella
Thyroid UK
in
Thyroid UK
11 years ago
ted or ocular myasthenia gravis
hi for the past yr i have been having problems with my eyes, after images, double vision, floaters, migrain with aura,muscles weakness inmy arms and legs, trouble swallowing, being slightly confused , anxiety really bad,thyroid levels have been ok, have had a follow up app today at the eye dept, my
hi for the past yr i have been having problems with my eyes, after images, double vision, floaters, migrain with aura,muscles weakness inmy arms and legs, trouble swallowing, being slightly confused , anxiety really bad,thyroid levels have been ok, have had a follow up app today at the eye dept, my
hanandhen
in
Thyroid UK
11 years ago
Is there a difference between hypermobility syndrome and ehler danlos syndrome?
I have had a formal diagnosis of hypermobility syndrome but have recently been told by some people that this is the same as EDS hypermobility type and by some that it's different. I do know that I have lots of gastric problems due to my HMS and I bruise very easily. Is there a difference between the
I have had a formal diagnosis of hypermobility syndrome but have recently been told by some people that this is the same as EDS hypermobility type and by some that it's different. I do know that I have lots of gastric problems due to my HMS and I bruise very easily. Is there a difference between the
missteal
in
Ehlers-Danlos Support UK
11 years ago
diabetese....knee joint pain..
Before I give the tips,I would like to share my experience.In the year 2000 my wife had severe knee joint pain such as she was unable to go to our bedroom upstairs.She used to crawl like a lizard on the stairs to reach bedroom or to be lifted and taken.After exhausting all medications,Allopathic,Ayurvedic
Before I give the tips,I would like to share my experience.In the year 2000 my wife had severe knee joint pain such as she was unable to go to our bedroom upstairs.She used to crawl like a lizard on the stairs to reach bedroom or to be lifted and taken.After exhausting all medications,Allopathic,Ayurvedic
kamtadale
in
Diabetes India
11 years ago
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