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neck stabilisation
Hi I have suffered with RA for 40 years & have various joint replacements, but am just about to go for the most scariest one, it will be at the London neurological hospital where they will put like a scaffolding (nuts & Bolts) through & round the top of the spine, which will mean no future movement of
Hi I have suffered with RA for 40 years & have various joint replacements, but am just about to go for the most scariest one, it will be at the London neurological hospital where they will put like a scaffolding (nuts & Bolts) through & round the top of the spine, which will mean no future movement of
Afcbsupporter
in
NRAS
8 years ago
GCA and double vision
Hi all I have been following this forum for over 2 years now and have found it to be excellent. This is my first post and I am hoping someone can help. I was diagnosed with suspected GCA in November 2013. Temporal Artery biopsy was negative but I had been on Pred for 3 weeks by then. I have subsequently
Hi all I have been following this forum for over 2 years now and have found it to be excellent. This is my first post and I am hoping someone can help. I was diagnosed with suspected GCA in November 2013. Temporal Artery biopsy was negative but I had been on Pred for 3 weeks by then. I have subsequently
Hidden
in
PMRGCAuk
8 years ago
Nu-drive lever drive question
Hi, I'm Nigel (new member), age 67, retired. I have CA of unknown type but I'm told there is a link to SCA5. We thought I'd got mitochondrial disease but now we’re not so sure! Got myself a wheelchair a few years ago and, recently, a pair of Nu-drive lever drives which allow me to propel the chair with
Hi, I'm Nigel (new member), age 67, retired. I have CA of unknown type but I'm told there is a link to SCA5. We thought I'd got mitochondrial disease but now we’re not so sure! Got myself a wheelchair a few years ago and, recently, a pair of Nu-drive lever drives which allow me to propel the chair with
NigelH
in
Ataxia UK
8 years ago
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Has anyone used a rollator (wheeled walker with seat)?
At the grand old age of 35 I am finding it harder to ignore the pain and work through it (not that I should have been doing that anyway). Overdoing it has bigger consequences than it used to. I am finally having an OT come to visit next week. My mum arranged for one to visit in my late teens and I had
At the grand old age of 35 I am finding it harder to ignore the pain and work through it (not that I should have been doing that anyway). Overdoing it has bigger consequences than it used to. I am finally having an OT come to visit next week. My mum arranged for one to visit in my late teens and I had
pinksugarmouse
in
NRAS
8 years ago
The Dreded PIP
Hi everyone, I have been in reciept of Disability Living allowance for quite a few years, I get low rate care and high rate Mobility. I was diagnosed with COPD when I was aged 30 I'm now 49. I also battle 32 other health problems and for one of my conditions (Avascular Necrosis) of my jaw joints I underwent
Hi everyone, I have been in reciept of Disability Living allowance for quite a few years, I get low rate care and high rate Mobility. I was diagnosed with COPD when I was aged 30 I'm now 49. I also battle 32 other health problems and for one of my conditions (Avascular Necrosis) of my jaw joints I underwent
mutt1
in
Lung Conditions Community Forum
8 years ago
Magnified pain
OMG I'm in a lot of pain everywhere Grrr! Now what do I do? Been taking 50mil Levothyroxine for 2 weeks for borderline hypo, I'm still not functioning very well, everything's such an effort. Luckily I had another blood test today at a pre-op apptmt for something else, the Sister was brilliant when I
OMG I'm in a lot of pain everywhere Grrr! Now what do I do? Been taking 50mil Levothyroxine for 2 weeks for borderline hypo, I'm still not functioning very well, everything's such an effort. Luckily I had another blood test today at a pre-op apptmt for something else, the Sister was brilliant when I
Hidden
in
Thyroid UK
8 years ago
Blurry vision / Double vision
Does any one else suffer from blurry vision or double vision with anxiety... I was just on the comouter reading an email and bam i saw blur which triggered anxiety but i calmed myself by breathing but im still scared.
Does any one else suffer from blurry vision or double vision with anxiety... I was just on the comouter reading an email and bam i saw blur which triggered anxiety but i calmed myself by breathing but im still scared.
mindovermatter03
in
Anxiety Support
8 years ago
Second opinion
Hi, I'm wondering if I should ask for a second opinion. I was diagnosed with unspecified poly arthritis 20 years ago and have gradually become disabled over that time.I also have osteoporosis due to long term steroid use for hypopituitarism, which I've been taking Alandronic acid for since January.My
Hi, I'm wondering if I should ask for a second opinion. I was diagnosed with unspecified poly arthritis 20 years ago and have gradually become disabled over that time.I also have osteoporosis due to long term steroid use for hypopituitarism, which I've been taking Alandronic acid for since January.My
Jo1855
in
Arthritis Action
8 years ago
Great I haven't got pmr but
so follow up to my post `is it or isn`t it polymyalgia well just lets say orthopaedic consultant said what I have now is not caused by polymyalgia , but I have a massive rotar cuff tear. unoperable ,unless total joint replacement , this not recommended as 10yrs too young. also have same problem in other
so follow up to my post `is it or isn`t it polymyalgia well just lets say orthopaedic consultant said what I have now is not caused by polymyalgia , but I have a massive rotar cuff tear. unoperable ,unless total joint replacement , this not recommended as 10yrs too young. also have same problem in other
katking
in
PMRGCAuk
8 years ago
Question about joint replacements
I have noticed that there are several in this forum that have had and need to have joint replacements. Is it because the disease has been perticularly agressive and the meds have not worked or not tolerated?
I have noticed that there are several in this forum that have had and need to have joint replacements. Is it because the disease has been perticularly agressive and the meds have not worked or not tolerated?
Simba1992
in
NRAS
8 years ago
MTP big toe joint fusion
I'd love to hear from anyone who's had this operation and whether they successfully returned to running. I had the op done last week and now recuperating wondering if I'll ever be able to run again 🏃🏻
I'd love to hear from anyone who's had this operation and whether they successfully returned to running. I had the op done last week and now recuperating wondering if I'll ever be able to run again 🏃🏻
Alty63
Graduate
in
Couch to 5K
9 years ago
A cautionary tale, remission?!
Just over three years ago I was having horrible face rashes which the rheumy said was lupus. They said I was in remission so I could come off infliximab and methotrexate - just like that! Within a month my RA was much worse and my knees (OA) wouldn't work. I became virtually housebound. The rheumy started
Just over three years ago I was having horrible face rashes which the rheumy said was lupus. They said I was in remission so I could come off infliximab and methotrexate - just like that! Within a month my RA was much worse and my knees (OA) wouldn't work. I became virtually housebound. The rheumy started
cathie
in
NRAS
8 years ago
Spinal fusion and spinal cord compression.
Hello I have lower half spinal fusion and upper spinal cord compression. Does anyone else
Hello I have lower half spinal fusion and upper spinal cord compression. Does anyone else
Flojo44
in
Thyroid UK
8 years ago
Hi I live in Washington and have behcet's
I have had symptoms since birth and now for 58 yrs this is very advanced I get vertigo strange eye burning that DRS and specialist say there is no reason for this pain today am having groin vein pain apply pressure it eases it but does not go away along with abdomen pain and some breathing distress.
I have had symptoms since birth and now for 58 yrs this is very advanced I get vertigo strange eye burning that DRS and specialist say there is no reason for this pain today am having groin vein pain apply pressure it eases it but does not go away along with abdomen pain and some breathing distress.
naturalist
in
Behçet's UK
8 years ago
Am back for discussions
I have only just resumed on this site after an absence of nearly a year. I was dx'd 13 years ago and am now having to address a change in meds which is proving very difficult. Until I had brain surgery as part of a Clinical Trial (which did not work out for me) in October 2014, I was doing well with
I have only just resumed on this site after an absence of nearly a year. I was dx'd 13 years ago and am now having to address a change in meds which is proving very difficult. Until I had brain surgery as part of a Clinical Trial (which did not work out for me) in October 2014, I was doing well with
froggatt55
in
Cure Parkinson's
8 years ago
Spine issues, post surgery, nerve pain
Has anyone had spine surgery at t12 l1 or L2-L3. I would like to hear from you. Or who has has spinal fusion and can share their experiences, recovery process and tips. I'm 7 months post op from major back surgery at those levels with fusion at T12-L1. I'm have new nerve pain in my feet and legs
Has anyone had spine surgery at t12 l1 or L2-L3. I would like to hear from you. Or who has has spinal fusion and can share their experiences, recovery process and tips. I'm 7 months post op from major back surgery at those levels with fusion at T12-L1. I'm have new nerve pain in my feet and legs
Jtal19305
in
Pain Concern
8 years ago
Inequality
I'm feeling down. My first knee replacement seems fine, but I now have to wait my turn for the second in order to be able to function properly. I can still hardly walk, cant really function on my own and have to rely on my long suffering partner. Normally I can cope with this all, waiting too for the
I'm feeling down. My first knee replacement seems fine, but I now have to wait my turn for the second in order to be able to function properly. I can still hardly walk, cant really function on my own and have to rely on my long suffering partner. Normally I can cope with this all, waiting too for the
cathie
in
NRAS
9 years ago
Vision problems still after loading doses
I still have bad vision problems.. Night blindness Constant static vision Halos at night around light Little flashes in vision Shimmering vision (like on a hot day mirage effect) Blurred vision Ghosting Double vision Tired eyes Has anyone also suffered with there vision when low on b12. My levels where
I still have bad vision problems.. Night blindness Constant static vision Halos at night around light Little flashes in vision Shimmering vision (like on a hot day mirage effect) Blurred vision Ghosting Double vision Tired eyes Has anyone also suffered with there vision when low on b12. My levels where
mullane_s86
in
Pernicious Anaemia Society
8 years ago
Diagnosis? Is this Ehlers-Danlos?
My health has slowly been in decline for several years. It started with multiple dislocations and chronic pain. I was told these were because I had Joint Hyper mobility Syndrome. Also shortly after I developed Asthma at 15 years old with absolutely no history of it! I coped for years but over the past
My health has slowly been in decline for several years. It started with multiple dislocations and chronic pain. I was told these were because I had Joint Hyper mobility Syndrome. Also shortly after I developed Asthma at 15 years old with absolutely no history of it! I coped for years but over the past
lissy_lou99
in
Ehlers-Danlos Support UK
9 years ago
Blood test results
Blood test results whilst an in patient for Bilateral Jaw Joint Replacement Surgery
Blood test results whilst an in patient for Bilateral Jaw Joint Replacement Surgery
mutt1
in
Thyroid UK
9 years ago
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