Search
Search
About
Log in
Join
Experiences with
Intravenous immunoglobulin (IVIg)
Posts
Communities
509 public posts
Filter results
Brain shrinking
He has had steroids,
IVIG
, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis. Has anyone else experienced brain shrinkage??
He has had steroids,
IVIG
, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis. Has anyone else experienced brain shrinkage??
Kw55
in
Encephalitis Society
1 year ago
Question about IVIG infusion
My Dr says it is too soon to order
IVIG
infusion for me. I want to do some traveling this summer and would hate to get sick while on vacation. What is the criteria to get
IVIG
and does insurance/ medicare pay for these infusions.
My Dr says it is too soon to order
IVIG
infusion for me. I want to do some traveling this summer and would hate to get sick while on vacation. What is the criteria to get
IVIG
and does insurance/ medicare pay for these infusions.
Snickers23
in
CLL Support
1 year ago
When to give up.....?
I know I have some immune issues and they've tried various options to treat them- prednisole, tacrolimus,
IVIG
, granocyte. How do you decide whether its worth keeping going or time to stop. Any advice or thoughts welcome, I'm so fed up today.
I know I have some immune issues and they've tried various options to treat them- prednisole, tacrolimus,
IVIG
, granocyte. How do you decide whether its worth keeping going or time to stop. Any advice or thoughts welcome, I'm so fed up today.
river242
in
Fertility Network UK
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Low IgE...
Background: I am having monthly
IVIG
ingusion after 6 months of chemo due to low immunoglobulin levels... today gave blood sample ans waiting for the results..First time seeing IgE result...Previously only receiving IgA/G/M
Background: I am having monthly
IVIG
ingusion after 6 months of chemo due to low immunoglobulin levels... today gave blood sample ans waiting for the results..First time seeing IgE result...Previously only receiving IgA/G/M
eekibin
in
CLL Support
1 year ago
Intralipids and IVIG
So if they don't work I'd end up using
IVIG
anyway which will further delay everything and increase cost! But maybe they will work... I'm finding it really distracting thinking of what to do every single day.
So if they don't work I'd end up using
IVIG
anyway which will further delay everything and increase cost! But maybe they will work... I'm finding it really distracting thinking of what to do every single day.
Skittles11
in
Fertility Network UK
1 year ago
update
we were sent back to home this saturday to have a follow up next after 2 weeks for his second infusion of
IVIG
and a repeat chest CT.
we were sent back to home this saturday to have a follow up next after 2 weeks for his second infusion of
IVIG
and a repeat chest CT.
Hidden
in
CLL Support
1 year ago
IVIG dose
Hi,, please guide me about the starting dose of
IVIG
injection and its maintenance dose?
Hi,, please guide me about the starting dose of
IVIG
injection and its maintenance dose?
ava1967ir
in
CLL Support
1 year ago
IVIG after heart surgery and stopping IBRUTIMIB
I know my case is exceptional, but what criteria did your doctors use to start you on
IVIG
? Does Medicare pay for
IVIG
100%? Most importantly, do you feel better and have more energy? Do you take
IVIG
at home or at a hospital? How often does everyone go for treatment?
I know my case is exceptional, but what criteria did your doctors use to start you on
IVIG
? Does Medicare pay for
IVIG
100%? Most importantly, do you feel better and have more energy? Do you take
IVIG
at home or at a hospital? How often does everyone go for treatment?
misterbee
in
CLL Support
1 year ago
PICSI or ZYMOT? also Intralipid or IVIG?
Also, regarding intralipid, is
IViG
or Humira meant to better, especially in terms of treating cyckotines? Evaluating these 2 points will really help us decide which clinic to go with, our current one or one in London.
Also, regarding intralipid, is
IViG
or Humira meant to better, especially in terms of treating cyckotines? Evaluating these 2 points will really help us decide which clinic to go with, our current one or one in London.
Annjali
in
Fertility Network UK
1 year ago
2 Questions about IVIG
Also, if a person were to need/get an
IVIG
infusion, does that mean they’d pretty much be needing them on repeat forever? Or can one or just a couple be enough? If the questions are annoyingly dumb, sorry! —Dave!
Also, if a person were to need/get an
IVIG
infusion, does that mean they’d pretty much be needing them on repeat forever? Or can one or just a couple be enough? If the questions are annoyingly dumb, sorry! —Dave!
DRM18
in
CLL Support
1 year ago
Zanubrutinib and water intake and sodium level
I was diagnosed in 1998 and given a small amount of prednisone and chlorambucil and have received nothing since except
ivig
which started in June2021 due to infections.
I was diagnosed in 1998 and given a small amount of prednisone and chlorambucil and have received nothing since except
ivig
which started in June2021 due to infections.
Bethsaida
in
CLL Support
1 year ago
CAR-T Trial Update #3
I will be resuming my
IVIG
infusions hopefully next week. I had blood work today. My hemoglobin remains low and my neutrophils are .80 (not so terrible). I am told these results are expected at this point. In three months, I will have the all-important bone marrow biopsy.
I will be resuming my
IVIG
infusions hopefully next week. I had blood work today. My hemoglobin remains low and my neutrophils are .80 (not so terrible). I am told these results are expected at this point. In three months, I will have the all-important bone marrow biopsy.
nvp815
in
CLL Support
11 months ago
Anyone received pre-op IVIG?
Has anyone heard of giving an immune compromised patient pre-op
IVIG
to help prevent infection? I was thinking about suggesting this to his surgeon.
Has anyone heard of giving an immune compromised patient pre-op
IVIG
to help prevent infection? I was thinking about suggesting this to his surgeon.
Ibru
in
CLL Support
1 year ago
IVIG and Illness
One is if I'm not on
IVIG
and continue with a trip I'm planning to the Philippines for one month leaving Feb 8, and I get sick in the Philippines, can
IVIG
help me if an infection has already started?
One is if I'm not on
IVIG
and continue with a trip I'm planning to the Philippines for one month leaving Feb 8, and I get sick in the Philippines, can
IVIG
help me if an infection has already started?
wizzard166
in
CLL Support
1 year ago
Rapid onset of burning in joints at rest and worse when moving
No amount of pain medication helps (including a compounded cream with baclofen and gabapentin), nor the
IVIG
or Rituxan. It has gotten to the point where it is very difficult to raise my arms, grasp a full 20oz glass of water, take off clothes, walk very far, etc.
No amount of pain medication helps (including a compounded cream with baclofen and gabapentin), nor the
IVIG
or Rituxan. It has gotten to the point where it is very difficult to raise my arms, grasp a full 20oz glass of water, take off clothes, walk very far, etc.
TiredNerd
in
NRAS
1 year ago
Cerebral syndrome of unknown origin
He tried 4-Aminopyridin, Acetazolamid, Tanganil and
IVIG
-infusions without effect. Under cortisone he had paradox effects where the symptoms twice got better on day 3 of the therapy, but worsened significantly after that and only improved slightly again after weeks.
He tried 4-Aminopyridin, Acetazolamid, Tanganil and
IVIG
-infusions without effect. Under cortisone he had paradox effects where the symptoms twice got better on day 3 of the therapy, but worsened significantly after that and only improved slightly again after weeks.
Unyielding
in
Ataxia UK
4 months ago
Granocyte protocol- any experience?
My clinic has tried prednisolone, tacrolimus,
IVIG
as well as clexane and aspirin. They now want to try a granocyte protocol which seems to be injections of a growing stimulant every 3 day.
My clinic has tried prednisolone, tacrolimus,
IVIG
as well as clexane and aspirin. They now want to try a granocyte protocol which seems to be injections of a growing stimulant every 3 day.
river242
in
Fertility Network UK
1 year ago
Bronchiectasis and use Pulmicort with tooth issues.
Not on
IVIG
. I am ok with my Ventolin as use an Aero chamber. Any advice would be welcome. Thank you.
Not on
IVIG
. I am ok with my Ventolin as use an Aero chamber. Any advice would be welcome. Thank you.
Dottie11
in
Lung Conditions Community Forum
1 year ago
New Here - Diagnosed FND - but only one leg
I recently had
IVIG
treatment (for my nerve damaged leg) and I regained mobility in both legs almost immediately. It was short lived (2 weeks) and mobility issues returned to both legs. Very frustrating 😞 Would love to hear from anyone else with a similar issue.
I recently had
IVIG
treatment (for my nerve damaged leg) and I regained mobility in both legs almost immediately. It was short lived (2 weeks) and mobility issues returned to both legs. Very frustrating 😞 Would love to hear from anyone else with a similar issue.
Hidden
in
Functional Neurological Disorder - FND Hope
1 year ago
Further problems with allergy - what to do?
I saw my GP again and he prescribed a blood test to check for various things, including whether there was an allergic reaction, and he also told me to talk to the doctor in charge of the day hospital where I have my monthly
IVIG
infusion.
I saw my GP again and he prescribed a blood test to check for various things, including whether there was an allergic reaction, and he also told me to talk to the doctor in charge of the day hospital where I have my monthly
IVIG
infusion.
Provence
in
CLL Support
1 year ago
1
2
3
4
...
26
Next page
10
20
Filter results
Clear filters
Posted in
All communities
CLL Support
179 results
ITP Support Association
147 results
Fertility Network UK
42 results
View top 10 communities
Sort by
Most Relevant
Newest