Search
Search
About
Log in
Join
Experiences with
Islet cell transplant
Posts
Communities
3,706 public posts
Filter results
Progressive slecrosing chlongitis anyone ??????please
Hi everyone for years I have had raised liver fuction tests recently had a biopsy as I was told I had auto immune hepatitis but the results came back I have a very rare auto immune disease and there is no cure and very little is known about it it affects the bile ducts and they become blocked and stuff
Hi everyone for years I have had raised liver fuction tests recently had a biopsy as I was told I had auto immune hepatitis but the results came back I have a very rare auto immune disease and there is no cure and very little is known about it it affects the bile ducts and they become blocked and stuff
ezz2012
in
British Liver Trust
3 years ago
Waiting transplant
Hi all I am currently awaiting a liver transplant and my mind won’t stop I barely sleep , my wife worries constantly ( bless her this horrid disease has turned our lives upside down) I’m just reaching out there
Hi all I am currently awaiting a liver transplant and my mind won’t stop I barely sleep , my wife worries constantly ( bless her this horrid disease has turned our lives upside down) I’m just reaching out there
Pitmaster1
in
British Liver Trust
3 years ago
What makes transplant kidney last long
Can anyone above 10years + kidney transplant receipent kindly share their medicine protocol ...And food habits so that we could get some idea and learn from those experience .....
Can anyone above 10years + kidney transplant receipent kindly share their medicine protocol ...And food habits so that we could get some idea and learn from those experience .....
Kunalkath
in
Kidney Transplant
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
B12 Testing
My GP tested my B12 in late June and it was 248. She gave me a B12 (Cyanocobalamin) injection on June 30th without doing any other tests. I then went to see a neurologist and she couldn’t believe that the GP had not done more testing. The neurologist has me scheduled today for the following tests: B12
My GP tested my B12 in late June and it was 248. She gave me a B12 (Cyanocobalamin) injection on June 30th without doing any other tests. I then went to see a neurologist and she couldn’t believe that the GP had not done more testing. The neurologist has me scheduled today for the following tests: B12
Pain12345
in
Pernicious Anaemia Society
3 years ago
Six month scanxiety.
Just going through my six month scanxiety. Will have my six month ultrasound and AFP test on July 20. All prayers appreciated. For those who don’t know, I suffer from cirrhosis cause by my right sided heart failure. Yep, the heart affects many of our organs. My cirrhosis is well compensated and will
Just going through my six month scanxiety. Will have my six month ultrasound and AFP test on July 20. All prayers appreciated. For those who don’t know, I suffer from cirrhosis cause by my right sided heart failure. Yep, the heart affects many of our organs. My cirrhosis is well compensated and will
Bluegirl52
in
British Liver Trust
3 years ago
Introduction of myself, PMF, from China
Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation
Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation
merlisa
in
MPN Voice
3 years ago
Kidney Transplant Recipient Questions
What is a normal GFR 6 months after a kidney transplant? Is fluctuation in your creatinine and GFR normal at this stage?
What is a normal GFR 6 months after a kidney transplant? Is fluctuation in your creatinine and GFR normal at this stage?
Brownsfan22
in
Kidney Transplant
3 years ago
Kidney transplant
I have had a kidney transplant on the Tuesday 9th March and my kidney function is doing really well
I have had a kidney transplant on the Tuesday 9th March and my kidney function is doing really well
Naila_Bi1991
in
Kidney Dialysis
3 years ago
Kidney transplant and girdles
Hi everyone! I just had a transplant 6/3/2021. I wondering is it safe to wear a girdle? Do I have wait 6 months to a year to wear a girdle? Thanks in advance for the advice.
Hi everyone! I just had a transplant 6/3/2021. I wondering is it safe to wear a girdle? Do I have wait 6 months to a year to wear a girdle? Thanks in advance for the advice.
Diamondd7
in
Kidney Transplant
3 years ago
Recently diagnosed with MF
Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed stem cell transplant later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated. Given the recent diagnosis still taking
Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed stem cell transplant later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated. Given the recent diagnosis still taking
67Red
in
MPN Voice
3 years ago
Lung Transplant: “Dry Run”
Hi, Of the people who have had or are listed for a lung transplant, can you tell me how you coped with “dry runs” ( not sure what else to call them) I got called to Harefield, 2 days ago, as they potentially had suitable lungs for me. I had all the bloods, swabs, was prepped for theatre etc. Then it
Hi, Of the people who have had or are listed for a lung transplant, can you tell me how you coped with “dry runs” ( not sure what else to call them) I got called to Harefield, 2 days ago, as they potentially had suitable lungs for me. I had all the bloods, swabs, was prepped for theatre etc. Then it
mary1956
in
Lung Conditions Community Forum
3 years ago
Is weight loss possible post transplant while on immunosuppressants?
I am almost 4 months post kidney transplant and I have gained over 15 kg. I have been exercising consistently and eating healthy for over 6 weeks now but my weight won’t budge at all. I have read that immunosuppressants can really mess with one’s metabolism and fat burning, and being 49 and likely
I am almost 4 months post kidney transplant and I have gained over 15 kg. I have been exercising consistently and eating healthy for over 6 weeks now but my weight won’t budge at all. I have read that immunosuppressants can really mess with one’s metabolism and fat burning, and being 49 and likely
Tallyn
in
Kidney Transplant Patient Support
3 years ago
I have had enough
Yes my name is Randy have had kidney transplant for nine yours I became allergic to my immunosuppressant drug no I go once a month for an IV for 7 years now I have prostate cancer and cancer on my lip I do not want to do radiation and I don't want my lip cut off I ask myself is this worth it I just let
Yes my name is Randy have had kidney transplant for nine yours I became allergic to my immunosuppressant drug no I go once a month for an IV for 7 years now I have prostate cancer and cancer on my lip I do not want to do radiation and I don't want my lip cut off I ask myself is this worth it I just let
Randy1805
in
Kidney Transplant
3 years ago
Fed up and don't know we're to turn
Hello everyone! I have not been on here for such a very long time, I was diagnosed with NAFLD in November 2017, it quickly progressed to cirrhosis within a year, My consultant did not openly tell me I just thought I had a fatty liver with slight scarring and diet change ect was the way forward I later
Hello everyone! I have not been on here for such a very long time, I was diagnosed with NAFLD in November 2017, it quickly progressed to cirrhosis within a year, My consultant did not openly tell me I just thought I had a fatty liver with slight scarring and diet change ect was the way forward I later
Brightstar15
in
British Liver Trust
3 years ago
Tocilizumab treatment extension, and latest PET-CT scan results
Three weeks ago, I discovered (via this wonderful group) that the NHS had decided to extend Tocilizumab injections until March 2022 (and indeed, my suppliers, Lloyds’ Homecare, arranged a delivery whilst I was away visiting my mum). 2 days later, my Consultant emailed me to say that she
Three weeks ago, I discovered (via this wonderful group) that the NHS had decided to extend Tocilizumab injections until March 2022 (and indeed, my suppliers, Lloyds’ Homecare, arranged a delivery whilst I was away visiting my mum). 2 days later, my Consultant emailed me to say that she
Suzita76
in
PMRGCAuk
3 years ago
mpal leukaemia
Hi Would really love to hear from anyone who has experience with this rare type of leukaemia. My son was diagnosed in December 2020 and is about to undergo a bone marrow transplant
Hi Would really love to hear from anyone who has experience with this rare type of leukaemia. My son was diagnosed in December 2020 and is about to undergo a bone marrow transplant
su0906
in
Leukaemia Support
3 years ago
Neck Rigidity relief??
Hi All, I’m hoping someone might me able to help. My dad was diagnosed with PSP in March this year, he has lots of other health issues (diabetes, kidney transplant, neuropathy, heart issues) He’s suffered for a long time and we think his other health issues have masked the PSP He’s suffering really
Hi All, I’m hoping someone might me able to help. My dad was diagnosed with PSP in March this year, he has lots of other health issues (diabetes, kidney transplant, neuropathy, heart issues) He’s suffered for a long time and we think his other health issues have masked the PSP He’s suffering really
HipsterChick
in
PSP Association
3 years ago
“I think we’ll cure leukemia in my lifetime”
“Is there anything else you’d like to share about leukemia treatment? I'm very excited because I think we’ll cure leukemia in my lifetime. We’ve already come so far. For example, before 2000, patients with Philadelphia chromosome-positive acute lymphoblastic leukemia had a survival rate of 10%. Targeted
“Is there anything else you’d like to share about leukemia treatment? I'm very excited because I think we’ll cure leukemia in my lifetime. We’ve already come so far. For example, before 2000, patients with Philadelphia chromosome-positive acute lymphoblastic leukemia had a survival rate of 10%. Targeted
Manouche
in
MPN Voice
3 years ago
My PBC Journey
GI watched enzymes for 5 years 2015-2020. No symptoms except GI sent me to Ohio State in Dec of 2019 to make sure she wasn’t missing anything . Ordered MRI of liver—-best test to slice and dice liver. Found two spots of cancer on top ridge of liver and did a Microwave ablation to kill it. Successful
GI watched enzymes for 5 years 2015-2020. No symptoms except GI sent me to Ohio State in Dec of 2019 to make sure she wasn’t missing anything . Ordered MRI of liver—-best test to slice and dice liver. Found two spots of cancer on top ridge of liver and did a Microwave ablation to kill it. Successful
Miamomma
in
PBC Foundation
3 years ago
How are you living life with spouses both Vaccinated against Covid but one has a kidney transplant and one is healthy?
I cannot find direct information on this question where I am healthy and vaccinated against Covid19 and my spouse is vaccinated and has a kidney transplant but cannot make antibodies due to being on Cellcept antirejection med mainly. Do I live my life "normal" and he is living restricted like before
I cannot find direct information on this question where I am healthy and vaccinated against Covid19 and my spouse is vaccinated and has a kidney transplant but cannot make antibodies due to being on Cellcept antirejection med mainly. Do I live my life "normal" and he is living restricted like before
Gardner-NY
in
Kidney Transplant
3 years ago
1
...
45
46
47
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
701 results
Lung Conditions Community Forum
456 results
Kidney Transplant
431 results
View top 10 communities
Sort by
Most Relevant
Newest