Kidney Transplant Recipient Questions

[Brownsfan22]

What is a normal GFR 6 months after a kidney transplant? Is fluctuation in your creatinine and GFR normal at this stage?

[AndrewT]

Dear Brownsfan22,

can I just say, before I answer your question..... Don't Panic, You Will Be Fine!

I don't Blame you for being, rather confused, 'everyone' giving Information- some of it apparently quite 'Contradictory'.

Relax, my friend, and take a 'Tip' out of my book..... I was Transplanted in July 2013, after almost exactly Four Years on Dialysis. The 'Results', to begin with are- almost inevitably 'All Over The Place'..... and, in the overall scheme of 'things' Six Months is really NOT long- especially if you 'Feel Well'.

Our Thoughts are with you, my friend.

AndrewT

[Brownsfan22 in reply to AndrewT]

Thank you so much for your reply. It is great information thanks for the well wishes.

[WYOAnne NKF Ambassador]

Congrats on your transplant!!Most on this site will tell you it is pretty common for the first year for your creatinine to jump around. Those first two years I actually had 2-3 transplant biopsies. Nephrologist was concerned that it could be rejection with my increased creatinine. It never was but took awhile for my creatinine to be stable. Today I am 21+ years post transplant and my creatinine is very stable at 0.8 - 1.0.

Best of luck to you!

[Brownsfan22 in reply to WYOAnne]

Thank you that is very reassuring to hear. Thanks for taking the time to respond!

[Gotthecall_123]

Hi the firs year at least there are many med adjustments and your labs will fluctuate especially creatinine and GFR Davw

[Brownsfan22 in reply to Gotthecall_123]

Thanks so much for taking the time to answer my questions, that is very reassuring to hear as I was very concerned.

[Gotthecall_123 in reply to Gotthecall_123]

Of course you were concerned may i ask what your GFR is?

[Brownsfan22 in reply to Gotthecall_123]

My GFR is 37 Creatnine 1.93

[Gotthecall_123 in reply to Brownsfan22]

Ok people usually wait until gfr is around 12%-10% their doctors won’t put you on earlier in most cases 💚

[LisaSnow in reply to Gotthecall_123]

Brownsfan has already gotten a transplant.

[Bax509]

I'm a new transplant as of June 14 this year. I received a living donor kidney, and had no previous antibodies, had never been on dialysis before - in short, I am extremely lucky and all outcomes were predicted to be less risky for me. On admission for surgery, my creatinine was 4.6, my GFR was 10%. At discharge it was 0.96. 3 days later it was 1.66 and GFR was only 58. I had/have a low-grade rejection treated with high dose steroids. It's been up and down since then and I have learned not only from my own experience as a nurse and a caregiver for my Dad who had 2 transplants that it can indeed be a roller coaster especially in this initial phase where my body is adjusting to the alien and the meds. My transplant coordinator told me to ignore GFR right now - that it is not a significant indicator of anything so soon post transplant. Also every individual can react differently to transplant - no matter the predicted outcomes. So it's been a lesson in patience for me and reminds me to look to the long game. Good luck to you!

[Brownsfan22]

Thank you for the response it makes me feel better to hear these stories.