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Lung transplant assessment
I am on the lung transplant list. One of the tests to get on the list was the 6 minute walk test. This I could do. However now I wouldn’t be able to, as despite 24 hour oxygen, just walking a few steps and I have to stop as my oxygen levels plummet to between 60 & 70%. After 30 seconds, they recover
I am on the lung transplant list. One of the tests to get on the list was the 6 minute walk test. This I could do. However now I wouldn’t be able to, as despite 24 hour oxygen, just walking a few steps and I have to stop as my oxygen levels plummet to between 60 & 70%. After 30 seconds, they recover
mary1956
in
Lung Conditions Community Forum
3 years ago
Hepatic Encephalopathy
What more can they do for hepatic encephalopathy. My relative is on rifaxim twice a day and lactose 3 times a day but still has symptoms. Some days are better than others. Sadly he can’t have a liver transplant as he has cancer and has been told he has months there for want to make sure that he has
What more can they do for hepatic encephalopathy. My relative is on rifaxim twice a day and lactose 3 times a day but still has symptoms. Some days are better than others. Sadly he can’t have a liver transplant as he has cancer and has been told he has months there for want to make sure that he has
Albw
in
British Liver Trust
3 years ago
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updat
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updated 8/12/21] August 11, 2021 TABLE OF CONTENTS 1) Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? 2) The COVID Booster Vaccine Study
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updated 8/12/21] August 11, 2021 TABLE OF CONTENTS 1) Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? 2) The COVID Booster Vaccine Study
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
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elevated ALP ALT AST
hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnosed with PTLD and recurrent PBC was put on ursodiol which within a few months lowered levels almost to normal but unfortunately my most recent blood work showed ALP of 196 and ALT of44 AST 44 all very elevated. due to gastrointestinal
hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnosed with PTLD and recurrent PBC was put on ursodiol which within a few months lowered levels almost to normal but unfortunately my most recent blood work showed ALP of 196 and ALT of44 AST 44 all very elevated. due to gastrointestinal
azzurra
in
PBC Foundation
3 years ago
New to this
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Highwaywomble
in
Kidney Cancer Support
3 years ago
New To this site
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Highwaywomble
in
British Liver Trust
3 years ago
Kidney Donation Difficulty
What are your stories regarding finding a kidney donor? Are you guys having difficulty finding a kidney donor ? I'm doing my research on kidney transplant donation rate. Thank you.
What are your stories regarding finding a kidney donor? Are you guys having difficulty finding a kidney donor ? I'm doing my research on kidney transplant donation rate. Thank you.
DrKeptiocal
in
Kidney Disease
3 years ago
Join us for our next online supporter event, celebrating 60 years of BHF-funded research
Join us on Wednesday 22 September at 4pm for the last of our 60th birthday special editions - Live & Ticking – The Heart Transplant Story Professor Sir Nilesh Samani, BHF Medical Director, will be celebrating 60 years of BHF-funded research and shining a light on some of our achievements over the last
Join us on Wednesday 22 September at 4pm for the last of our 60th birthday special editions - Live & Ticking – The Heart Transplant Story Professor Sir Nilesh Samani, BHF Medical Director, will be celebrating 60 years of BHF-funded research and shining a light on some of our achievements over the last
Helen_BHF
Partner
in
British Heart Foundation
3 years ago
Kidney transplant caregiver
Kidney transplant caregiver
Kidney transplant caregiver
Dogdaysummer
in
Kidney Transplant
3 years ago
A Measure of Health with SLE Lupus
Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 43, after 2 years of marriage. It affected my left lung (pulmonary fibrosis--doctors were preparing me for a lung transplant but refused it). At this time I was being treated with cyclosporine in preparation for the transplant
Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 43, after 2 years of marriage. It affected my left lung (pulmonary fibrosis--doctors were preparing me for a lung transplant but refused it). At this time I was being treated with cyclosporine in preparation for the transplant
UKMoss
in
LUPUS UK
3 years ago
It is a gift to be who you truly are
As divine timing would have it, earlier this year, a 3 part course on ‘Building Sangha’ popped into my inbox. The call of my inner knowing found me signing up without hesitation via ‘Alternatives’ for this trio of 90 minute virtual sessions with Malcom Stern. Malcolm is a psycho-therapist of 30 years
As divine timing would have it, earlier this year, a 3 part course on ‘Building Sangha’ popped into my inbox. The call of my inner knowing found me signing up without hesitation via ‘Alternatives’ for this trio of 90 minute virtual sessions with Malcom Stern. Malcolm is a psycho-therapist of 30 years
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
3 years ago
BK virus and Low WBC
Hi - my dad received a kidney transplant about 4 months ago and at first everything looked great. But recently it showed he had the BK virus. First they lowered his CellCept dose and two weeks later the virus had increased. So they removed CellCept completely and his virus levels were coming down. However
Hi - my dad received a kidney transplant about 4 months ago and at first everything looked great. But recently it showed he had the BK virus. First they lowered his CellCept dose and two weeks later the virus had increased. So they removed CellCept completely and his virus levels were coming down. However
Nyc147
in
Kidney Transplant
3 years ago
Intrinsic factor and parietal cell antibody positive but MMA normal is it PA?
I have intrinsic factor abs and anti parietal cells but methylmalonic acid level is normal. B12,folate, hb are all in range.I have Hashis and a range of B12 deficiency systems Could anyone please advise if there is ever a situation when a GP would not prescribe B12 given the ap and IFabs? I am beginning
I have intrinsic factor abs and anti parietal cells but methylmalonic acid level is normal. B12,folate, hb are all in range.I have Hashis and a range of B12 deficiency systems Could anyone please advise if there is ever a situation when a GP would not prescribe B12 given the ap and IFabs? I am beginning
Aumshantii
in
Pernicious Anaemia Society
3 years ago
Long term antibiotic treatment with Amoxicillin-Clav ( a form of augmentin. Taking a large does every day 500mg twice a day. Cause rls?
Let me explain. I was on dialysis for 5 and 1/2 year’s when I received a kidney transplant. For about 3 months after surgery it seemed my rls had almost gone. Then because I have a neurogenic bladder I started getting uti that required hospitalization and even got sepsis so the last time the infectious
Let me explain. I was on dialysis for 5 and 1/2 year’s when I received a kidney transplant. For about 3 months after surgery it seemed my rls had almost gone. Then because I have a neurogenic bladder I started getting uti that required hospitalization and even got sepsis so the last time the infectious
ESRDRLS
in
Restless Legs Syndrome
3 years ago
First Stem Cell Transplant Appointment done
Thanks to everyone who replied to my first post on this. My husband and I stayed over in Southampton and we got home today. To my great relief, the consultant was extremely approachable and excellent at explaining things. I didn't ask all of my questions as these initial discussions are being done over
Thanks to everyone who replied to my first post on this. My husband and I stayed over in Southampton and we got home today. To my great relief, the consultant was extremely approachable and excellent at explaining things. I didn't ask all of my questions as these initial discussions are being done over
Otterfield
in
MPN Voice
3 years ago
Study shows low or undetectable immune response to double COVID-19 vaccination in patients with impaired immune systems
The first data from the ongoing OCTAVE (Observational Cohort Trial-T-cells Antibodies and Vaccine Efficacy in SARS-CoV-2) study show that a significant proportion of clinically at-risk patients with certain immunocompromised or immunosuppressed conditions mount a low or undetectable immune response after
The first data from the ongoing OCTAVE (Observational Cohort Trial-T-cells Antibodies and Vaccine Efficacy in SARS-CoV-2) study show that a significant proportion of clinically at-risk patients with certain immunocompromised or immunosuppressed conditions mount a low or undetectable immune response after
2greys
in
Lung Conditions Community Forum
3 years ago
Covid -19, still a big risk for some.
Some time ago, I wanted to post up a warning about the various covid vaccines, and of the lack of protection they might offer for some. Back in April, (not long after I had my first covid-19 vaccine), news began to filter through on the “Royal Free Hospital London, Liver Transplant Support Group” Facebook
Some time ago, I wanted to post up a warning about the various covid vaccines, and of the lack of protection they might offer for some. Back in April, (not long after I had my first covid-19 vaccine), news began to filter through on the “Royal Free Hospital London, Liver Transplant Support Group” Facebook
Richard-Allen
in
British Liver Trust
3 years ago
First Appointment re Stem Cell Transplant
This week I have my first appointment with a stem cell transplant specialist. I haven't made up my mind yet and I'm seeing this as a fact finding appointment. I've made a list of questions to ask: What exactly does it involve, step by step? What can go wrong? And if something goes wrong, what is the
This week I have my first appointment with a stem cell transplant specialist. I haven't made up my mind yet and I'm seeing this as a fact finding appointment. I've made a list of questions to ask: What exactly does it involve, step by step? What can go wrong? And if something goes wrong, what is the
Otterfield
in
MPN Voice
3 years ago
Kidney transplant 17 yrs. survived Covid 3/2020 and still have antibodies. Unvaccinated wondering if others concerned with immune response.
Unsure if I should get the vaccine as I have antibodies.
Unsure if I should get the vaccine as I have antibodies.
homerontherange
in
Kidney Transplant
3 years ago
It's back
Hi this is my first post on this forum I had bad psoriasis until I got a heart transplant last year and it cleared up totally it was brilliant and I really thought because of the immusupprestants it would stay away, how wrong I was after stopping the steroids it's back with a vengeance totally gutted
Hi this is my first post on this forum I had bad psoriasis until I got a heart transplant last year and it cleared up totally it was brilliant and I really thought because of the immusupprestants it would stay away, how wrong I was after stopping the steroids it's back with a vengeance totally gutted
Thanksnhs
in
Beyond Psoriasis
3 years ago
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