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Intravenous chemotherapy
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IVIG makes cells drop severely
Sharing some info on my ET experience…. CALR type 2 here with severe neuropathy that came on after 4 years of peg. Could be a coincidence or from the peg, not sure. I also have an antibody that is known to attack nerves called myelin associated glycoprotein. Traditionally it is known to only effect
Sharing some info on my ET experience…. CALR type 2 here with severe neuropathy that came on after 4 years of peg. Could be a coincidence or from the peg, not sure. I also have an antibody that is known to attack nerves called myelin associated glycoprotein. Traditionally it is known to only effect
George1976
in
MPN Voice
14 days ago
IVIG and prednisone luck with PGS tested embryos after Multiple failed implantation
hi About to cycle soon and wanted to hear some positive stories if anyone had immune treatment with steroids. I'm due to have a Hycosy for my uterus to check there's no issues then cycle the month after.
hi About to cycle soon and wanted to hear some positive stories if anyone had immune treatment with steroids. I'm due to have a Hycosy for my uterus to check there's no issues then cycle the month after.
Poop84
in
Fertility Network UK
20 days ago
IVF transfer protolols (adenomyosis / endometriosis)
Hey there fellow warriors. I am agonising over IVF transfer protocols. After a year of batch stimming I am very fortunate to have 3 euploid blastocysts on ice ready to transfer. I have had five failed transfers (x2 miscarriages, 3 BFNs) and feel like I have tried everything already in terms of protocols
Hey there fellow warriors. I am agonising over IVF transfer protocols. After a year of batch stimming I am very fortunate to have 3 euploid blastocysts on ice ready to transfer. I have had five failed transfers (x2 miscarriages, 3 BFNs) and feel like I have tried everything already in terms of protocols
Falafelrovers
in
Fertility Network UK
1 month ago
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itp(information)
Hi all, I have been dealing with Itp since December 2022. My numbers fluctuate from 50k-76k. In march 2024 I had an Ivig infusion with decadron 10mg to increase platelets for a dental surgery. Before the infusion my platelets were 76k. I have done 3 tests from march till now and platelets are decreasing
Hi all, I have been dealing with Itp since December 2022. My numbers fluctuate from 50k-76k. In march 2024 I had an Ivig infusion with decadron 10mg to increase platelets for a dental surgery. Before the infusion my platelets were 76k. I have done 3 tests from march till now and platelets are decreasing
05Pink
in
ITP Support Association
2 months ago
Immune issues with donor eggs
Hi there,I'm just wondering if any of you have been successful with using donor eggs if you have an auto immune issue or have elevated NK cells and/or cytokines. I'm worried that we will go down the donor route and then fail anyway because of my immune issues despite any embryos being good quality.
Hi there,I'm just wondering if any of you have been successful with using donor eggs if you have an auto immune issue or have elevated NK cells and/or cytokines. I'm worried that we will go down the donor route and then fail anyway because of my immune issues despite any embryos being good quality.
Anisha29
in
Fertility Network UK
2 months ago
IvIg Infusions
Finished my IvIg infusions this week. After my two infusions (been doing this for almost 3 years) I’m getting more and more fatigued as time goes by. It takes me up to 3-5 days to get over. It has done a wonderful job at keeping me well. I certainly don’t want to come across as ungrateful. Any pointers
Finished my IvIg infusions this week. After my two infusions (been doing this for almost 3 years) I’m getting more and more fatigued as time goes by. It takes me up to 3-5 days to get over. It has done a wonderful job at keeping me well. I certainly don’t want to come across as ungrateful. Any pointers
robster1
in
My MSAA Community
2 months ago
Recurrent implantation failure - please give me hope
Hello my lovely support team. I'll try and keep this rotten history of mine very very brief.......43 years old, all embryos created between 40-42. Trying since I was 36. Just one natural chemical at 41yo. So far, 5 failed transfers of 6 good-decent embryos. All bfn, no chemicals or anything else. 4 collections
Hello my lovely support team. I'll try and keep this rotten history of mine very very brief.......43 years old, all embryos created between 40-42. Trying since I was 36. Just one natural chemical at 41yo. So far, 5 failed transfers of 6 good-decent embryos. All bfn, no chemicals or anything else. 4 collections
Joeysjourney
in
Fertility Network UK
2 months ago
Early results of the Pirtobrutinib, Obinituzumab, Venetoclax trial I'm on have just been published
Dr. Jain of M.D. Anderson has published an oral abstract in advance of the European Hematological Association Congress June 13-16, 2024: https://library.ehaweb.org/eha/2024/eha2024-congress/422268/nitin.jain.combined.pirtobrutinib.venetoclax.and.obinutuzumab.in.first-line.html [i]
Abstract: S164
Dr. Jain of M.D. Anderson has published an oral abstract in advance of the European Hematological Association Congress June 13-16, 2024: https://library.ehaweb.org/eha/2024/eha2024-congress/422268/nitin.jain.combined.pirtobrutinib.venetoclax.and.obinutuzumab.in.first-line.html [i]
Abstract: S164
SeymourB
in
CLL Support
2 months ago
Action too late
I very well can understand your Frustration. My IVIG introduction was very late, not considering my close to 0 Immunity. The result was as well Double Pneumonia, unbelievable hurting caught for 6 month, which produced a Hernia. After being on a Roller-Coaster I have moe or less settled and try the
I very well can understand your Frustration. My IVIG introduction was very late, not considering my close to 0 Immunity. The result was as well Double Pneumonia, unbelievable hurting caught for 6 month, which produced a Hernia. After being on a Roller-Coaster I have moe or less settled and try the
Traudel
in
CLL Support
2 months ago
Kesimpta and IVIG?
I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
pihokken
in
My MSAA Community
3 months ago
Success stories/advice after multiple miscarriages
Hi, I’ve had it confirmed today that I’m having a missed miscarriage. Should have been 7+5 weeks but the gestational sac was empty (I’ve had multiple scans over the past 12 days so it’s definitely over). This is now my third miscarriage so I can add the 1% recurrent miscarriage statistic to all these
Hi, I’ve had it confirmed today that I’m having a missed miscarriage. Should have been 7+5 weeks but the gestational sac was empty (I’ve had multiple scans over the past 12 days so it’s definitely over). This is now my third miscarriage so I can add the 1% recurrent miscarriage statistic to all these
Ctk123
in
Fertility Network UK
3 months ago
Follow up T3 question
Okay, so, it has only recently reached my consciousness that the fact that my thyroid "died" (I got a goiter and my TSH was only barely above "normal" so at first they didn't want to treat me even though I gained 30lbs in a month and lost all my body hair and on and on) at the exact same moment (literally
Okay, so, it has only recently reached my consciousness that the fact that my thyroid "died" (I got a goiter and my TSH was only barely above "normal" so at first they didn't want to treat me even though I gained 30lbs in a month and lost all my body hair and on and on) at the exact same moment (literally
BlueGreenWordyDoc
in
Thyroid UK
3 months ago
Raised TNF alpha? Any advice
hi all Is this raised tnf my clinic haven't said it is they said I need ivig for my pgs embryo transfer. Looking at my results above are my TNF not elevated? If so what treatment or tests did you have to help you get your bfp? Thanks
hi all Is this raised tnf my clinic haven't said it is they said I need ivig for my pgs embryo transfer. Looking at my results above are my TNF not elevated? If so what treatment or tests did you have to help you get your bfp? Thanks
Poop84
in
Fertility Network UK
3 months ago
CLL + Bladder cancer + prostate cancer
I've been diagnosed with Cll since 2016 and been on Acalabrutinib for 2 years which is working really well along with monthly plasma ivig infusions. I'm 63 and male and fit and active. I just got diagnosed with Bladder cancer with a medium grade carcinoma. My uroligist has burnt the 2 spots she found
I've been diagnosed with Cll since 2016 and been on Acalabrutinib for 2 years which is working really well along with monthly plasma ivig infusions. I'm 63 and male and fit and active. I just got diagnosed with Bladder cancer with a medium grade carcinoma. My uroligist has burnt the 2 spots she found
Brucex100
in
CLL Support
4 months ago
Boner during shower
My husband has been on Nubeqa and has Zoladex shots since November ( 2023 ) . He finished chemo on April 18 ( 2024 ) . He has had many issues even before treatment with getting an erection and low sex drive ( doctor said it was from enlarged prostate ) . He is having a weird thing that has been occurring
My husband has been on Nubeqa and has Zoladex shots since November ( 2023 ) . He finished chemo on April 18 ( 2024 ) . He has had many issues even before treatment with getting an erection and low sex drive ( doctor said it was from enlarged prostate ) . He is having a weird thing that has been occurring
positive-thinking
in
Advanced Prostate Cancer
4 hours ago
I need all the help I can get.
Hi,This is my first post. My brother has recently been diagnosed with a Glioblastoma grade 4. It's been alot to take in as I'm sure you can all understand. He starts Radiotherapy and Chemotherapy next Monday 22nd July. I have a few questions that I hope can be answered. Firstly I want to say how incredible
Hi,This is my first post. My brother has recently been diagnosed with a Glioblastoma grade 4. It's been alot to take in as I'm sure you can all understand. He starts Radiotherapy and Chemotherapy next Monday 22nd July. I have a few questions that I hope can be answered. Firstly I want to say how incredible
Melon44
in
Glioblastoma Support
15 hours ago
plural effusion
I nave plural effusion in my left lung metastasis from ovarian cancer. I had a surgery last September 23 with WATS. Now I’m on strong chemo but this plural effusion is the same. I had five line of carboplatin, Bevacizumab, zentabun. Noting helps. I will try 3-4 more and if it’s not change I will stop
I nave plural effusion in my left lung metastasis from ovarian cancer. I had a surgery last September 23 with WATS. Now I’m on strong chemo but this plural effusion is the same. I had five line of carboplatin, Bevacizumab, zentabun. Noting helps. I will try 3-4 more and if it’s not change I will stop
Green999
in
My Ovacome
20 hours ago
Bad flareup :(
Hiya everyone; Yesterday I had the worst flareup I've ever had :(. I had friends round for the weekend and I took about 6 Loperamide so I could eat 'normally'. I have done this before and it usually works to prevent the diarrhoea and urgency. Well, it did that, but it seems that I had a partial bowel
Hiya everyone; Yesterday I had the worst flareup I've ever had :(. I had friends round for the weekend and I took about 6 Loperamide so I could eat 'normally'. I have done this before and it usually works to prevent the diarrhoea and urgency. Well, it did that, but it seems that I had a partial bowel
RoseTyler
in
Pelvic Radiation Disease Association
1 day ago
Zoladex to what age?
I'm 77 have had P/S since 2014 and am told thats it as to any furtehr treatment. Had Chemo - failed after seven. Had radiotherapy seemed to be positve but now suffering from Lymphodemia and having a bowel issue. (R/T causal). Not exactly randy given my age, and co-morbidities, so is there any point
I'm 77 have had P/S since 2014 and am told thats it as to any furtehr treatment. Had Chemo - failed after seven. Had radiotherapy seemed to be positve but now suffering from Lymphodemia and having a bowel issue. (R/T causal). Not exactly randy given my age, and co-morbidities, so is there any point
positive-thoughts
in
Advanced Prostate Cancer
2 days ago
question/new info/latest
Helllo! Hoping everyone is doing ok and hanging in there. I had a positive echo stress test. My insurance denied the oncologists request so had an echo and the. A stress test. I failed it so they fought for the echo stress test. Now I need a catheterization because my heart isn’t pumping the way
Helllo! Hoping everyone is doing ok and hanging in there. I had a positive echo stress test. My insurance denied the oncologists request so had an echo and the. A stress test. I failed it so they fought for the echo stress test. Now I need a catheterization because my heart isn’t pumping the way
MPNJunebug
in
MPN Voice
2 days ago
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