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Rash on leg
Hey everyone, As mentioned previously, my mum is awaiting radiotherapy and has decided to go ahead. She has had a horrendous cough now for nine weeks and had numerous courses of anti biotics, which cannot be great. She is currently taken her third course of cotrimoxazole, which have not done much. I
Hey everyone, As mentioned previously, my mum is awaiting radiotherapy and has decided to go ahead. She has had a horrendous cough now for nine weeks and had numerous courses of anti biotics, which cannot be great. She is currently taken her third course of cotrimoxazole, which have not done much. I
Paulo1976
in
Lung Conditions Community Forum
2 days ago
Rash on leg
Hey everyone, As mentioned previously, my mum is awaiting radiotherapy and has decided to go ahead. She has had a horrendous cough now for nine weeks and had numerous courses of anti biotics, which cannot be great. She is currently taken her third course of cotrimoxazole, which have not done much. I
Hey everyone, As mentioned previously, my mum is awaiting radiotherapy and has decided to go ahead. She has had a horrendous cough now for nine weeks and had numerous courses of anti biotics, which cannot be great. She is currently taken her third course of cotrimoxazole, which have not done much. I
Paulo1976
in
Lung Conditions Community Forum
2 days ago
Rash on legs
Hey everyone, As mentioned previously, my mum is awaiting radiotherapy and has decided to go ahead. She has had a horrendous cough now for nine weeks and had numerous courses of anti biotics, which cannot be great. She is currently taken her third course of cotrimoxazole, which have not done much. I
Hey everyone, As mentioned previously, my mum is awaiting radiotherapy and has decided to go ahead. She has had a horrendous cough now for nine weeks and had numerous courses of anti biotics, which cannot be great. She is currently taken her third course of cotrimoxazole, which have not done much. I
Paulo1976
in
Lung Cancer Support
2 days ago
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update after 2 yrs on Lynparza and looking for suggestions...
Hello, just wanted to provide an update after meeting my care team today after completing 2 years on Lynparza (after chemo and debulking surgery for hgs stg3b OC) 1. Ca125 very low, that's good. Rest blood parameters are as usual just below normal reference ranges (Rbc, wbc etc; platelets are good though
Hello, just wanted to provide an update after meeting my care team today after completing 2 years on Lynparza (after chemo and debulking surgery for hgs stg3b OC) 1. Ca125 very low, that's good. Rest blood parameters are as usual just below normal reference ranges (Rbc, wbc etc; platelets are good though
Goodgirl98
in
My Ovacome
3 days ago
CA125 rising steadily
Hello everyone, I’m looking for people’s thoughts please . I was diagnosed with HGSOC in July 2022. Had 5 cycles of chemo ( 1 of carboplatin and taxol - allergic response to taxol , 4 of carbo) debulking operation in Jan 2023 , followed by 2 further rounds of carboplatin. I have been receiving Avastin
Hello everyone, I’m looking for people’s thoughts please . I was diagnosed with HGSOC in July 2022. Had 5 cycles of chemo ( 1 of carboplatin and taxol - allergic response to taxol , 4 of carbo) debulking operation in Jan 2023 , followed by 2 further rounds of carboplatin. I have been receiving Avastin
Norelo8
in
My Ovacome
3 days ago
One last push ..please...help for my Dad. NHS treatments no longer viable - Pca stage 4.
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
kikinini
in
Advanced Prostate Cancer
3 days ago
Metathesized Breast Cancer after 28 years
I had breast cancer in 1996. I was treated with a double mastectomy, hormonal therapy, and chemotherapy. I had no radiation. Now, in 2024, I have a metathesized breast cancer primarily in the bones with foci in my lungs, and thickening in my pleura. I feel fine, although my blood markers have been
I had breast cancer in 1996. I was treated with a double mastectomy, hormonal therapy, and chemotherapy. I had no radiation. Now, in 2024, I have a metathesized breast cancer primarily in the bones with foci in my lungs, and thickening in my pleura. I feel fine, although my blood markers have been
Notofu4me
in
SHARE Metastatic Breast Cancer
4 days ago
Genomics BRAF positive
Husband 54y.o., Gleason 9, 18/18 cores positive. Metastasis to lymph and pelvic bones. Genomics revealed BRAF positive. On orgovyx and nubeqa. Starts 28 sessions of radiation 7/22. Second round of radiation after short break will target mets. Chemo to follow that. Anyone have BRAF positive tumors and
Husband 54y.o., Gleason 9, 18/18 cores positive. Metastasis to lymph and pelvic bones. Genomics revealed BRAF positive. On orgovyx and nubeqa. Starts 28 sessions of radiation 7/22. Second round of radiation after short break will target mets. Chemo to follow that. Anyone have BRAF positive tumors and
Gallman5
in
Advanced Prostate Cancer
4 days ago
post surgery update, thank you
hi everyone, I posted on here when I was in hospital struggling with post operation issues. Thank you to everyone for your support and suggestions to help me get through. I’ve been home for about a week now and recovering really well, managing short walks and thank goodness bowel and stomach complications
hi everyone, I posted on here when I was in hospital struggling with post operation issues. Thank you to everyone for your support and suggestions to help me get through. I’ve been home for about a week now and recovering really well, managing short walks and thank goodness bowel and stomach complications
Sunsetime
in
My Ovacome
5 days ago
SCT journey update No.4
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell Transplant. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey. Wife and I were up about 3-4am ( to be fair, couldn’t sleep anyway ) The drive
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell Transplant. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey. Wife and I were up about 3-4am ( to be fair, couldn’t sleep anyway ) The drive
LFCLove
in
MPN Voice
5 days ago
Taxol-Anyone had experience with Taxol
I have ER+ Her2- metastatic breast cancer. Tumors at in my spine, pelvis and a couple ribs. Up to this point in time I have been on Hormonal therapy regimens and the latest one (Orserdu) has failed. My Dr. is now suggesting Taxol (Paclitaxel) IV Chemo treatment. Anyone have experience with this drug?
I have ER+ Her2- metastatic breast cancer. Tumors at in my spine, pelvis and a couple ribs. Up to this point in time I have been on Hormonal therapy regimens and the latest one (Orserdu) has failed. My Dr. is now suggesting Taxol (Paclitaxel) IV Chemo treatment. Anyone have experience with this drug?
DinNorCal
in
SHARE Metastatic Breast Cancer
5 days ago
primary tumor
I am BRAC2 positive with a G9 and mets to lungs. Started ADT March 23, two cycles of chemo last fall, currently on Nubeqa and Orgavix. Last PSA was .1. The nodules and lymph nodes are gone and I was turned down for radiation to the prostate. My diet is beyond clean, never thought I could do it, but I
I am BRAC2 positive with a G9 and mets to lungs. Started ADT March 23, two cycles of chemo last fall, currently on Nubeqa and Orgavix. Last PSA was .1. The nodules and lymph nodes are gone and I was turned down for radiation to the prostate. My diet is beyond clean, never thought I could do it, but I
muttonman
in
Advanced Prostate Cancer
5 days ago
Not dying was a good plan, but how to navigate the future is the next challenge
I appreciate that I have achieved remission with my cancer and I was thinking about the fact that my liver, even though I have cirrhosis, managed all of the chemo drugs I've had pretty successfully. In our patient groups we often see people who die quickly when a second problem appears. As a vote
I appreciate that I have achieved remission with my cancer and I was thinking about the fact that my liver, even though I have cirrhosis, managed all of the chemo drugs I've had pretty successfully. In our patient groups we often see people who die quickly when a second problem appears. As a vote
nash2
Partner
in
Living with Fatty Liver and NASH
5 days ago
looking for input - RIsing PSA with Negative PSMA Pet scan
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
ND1988
in
Advanced Prostate Cancer
6 days ago
Devastated. Mom has begun hospice.
Hi all,I guess I'm just here for support and to get my story out. My mom was diagnosed with stage 3c ovarian around May 2022. She had symptoms for about 3 months before which her primary care doctor thought was a bacterial infection. My mom kept going back to her and saying there is no way that a
Hi all,I guess I'm just here for support and to get my story out. My mom was diagnosed with stage 3c ovarian around May 2022. She had symptoms for about 3 months before which her primary care doctor thought was a bacterial infection. My mom kept going back to her and saying there is no way that a
Chatterbox76
in
My Ovacome
6 days ago
Acupuncture, Icing & Chemo Fibromyalgia
What has been your experience with using acupuncture and icing to prevent or treat Fibromyalgia, either generally or specifically from prostate cancer chemo treatment. Pros, cons, advice?
What has been your experience with using acupuncture and icing to prevent or treat Fibromyalgia, either generally or specifically from prostate cancer chemo treatment. Pros, cons, advice?
cesanon
in
Advanced Prostate Cancer
6 days ago
Chemo Docetaxel
My husband is in year 7 since RP and ADT Drugs, NUBEQA and Zytiga, all of which eventually failed. He is now having 6 rounds of Docetaxel … My question is: has anyone gone into a period of remission after being on Docetaxel? As of last Auxium scan mid June no visible spread into a major organ or bones
My husband is in year 7 since RP and ADT Drugs, NUBEQA and Zytiga, all of which eventually failed. He is now having 6 rounds of Docetaxel … My question is: has anyone gone into a period of remission after being on Docetaxel? As of last Auxium scan mid June no visible spread into a major organ or bones
JolleySprings
in
Advanced Prostate Cancer
6 days ago
Tumor Marker (CEA)
Hello, My CEA jumped from 86.9 in January to 359 now. Is this the tumor marker that isn’t necessarily specific to breast cancer and can have all sorts of things cause it to be elevated? For example, I have some neuropathy and swelling in my legs and I know TMs can be affected by inflammation. Doxil
Hello, My CEA jumped from 86.9 in January to 359 now. Is this the tumor marker that isn’t necessarily specific to breast cancer and can have all sorts of things cause it to be elevated? For example, I have some neuropathy and swelling in my legs and I know TMs can be affected by inflammation. Doxil
atoth17
in
SHARE Metastatic Breast Cancer
6 days ago
After 3 o/clock
Such hassle , chemist can't get prescription, even though I was told on Monday to get them from chemist. Rang surgery,Secretary had me in tears, said I never gave them hospital letter given them in December . No wonder it wasn't on my notes. My daughter rang hospital, spoke chemo department and they
Such hassle , chemist can't get prescription, even though I was told on Monday to get them from chemist. Rang surgery,Secretary had me in tears, said I never gave them hospital letter given them in December . No wonder it wasn't on my notes. My daughter rang hospital, spoke chemo department and they
mag123ben
in
MPN Voice
7 days ago
ASXL1 mutation 39% Worried about MF turning into leukemia
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
Hello Everyone, I have almost taken Rux for more than 7 years. and added interferon during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of interferon. China site only available Rux in the markets. and I also have the ASXL1
merlisa
in
Fight MPN
7 days ago
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