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Intravenous chemotherapy
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Kesimpta and IVIG?
I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
pihokken
in
My MSAA Community
11 days ago
Success stories/advice after multiple miscarriages
Hi, I’ve had it confirmed today that I’m having a missed miscarriage. Should have been 7+5 weeks but the gestational sac was empty (I’ve had multiple scans over the past 12 days so it’s definitely over). This is now my third miscarriage so I can add the 1% recurrent miscarriage statistic to all these
Hi, I’ve had it confirmed today that I’m having a missed miscarriage. Should have been 7+5 weeks but the gestational sac was empty (I’ve had multiple scans over the past 12 days so it’s definitely over). This is now my third miscarriage so I can add the 1% recurrent miscarriage statistic to all these
Ctk123
in
Fertility Network UK
11 days ago
Follow up T3 question
Okay, so, it has only recently reached my consciousness that the fact that my thyroid "died" (I got a goiter and my TSH was only barely above "normal" so at first they didn't want to treat me even though I gained 30lbs in a month and lost all my body hair and on and on) at the exact same moment (literally
Okay, so, it has only recently reached my consciousness that the fact that my thyroid "died" (I got a goiter and my TSH was only barely above "normal" so at first they didn't want to treat me even though I gained 30lbs in a month and lost all my body hair and on and on) at the exact same moment (literally
BlueGreenWordyDoc
in
Thyroid UK
25 days ago
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Raised TNF alpha? Any advice
hi all Is this raised tnf my clinic haven't said it is they said I need ivig for my pgs embryo transfer. Looking at my results above are my TNF not elevated? If so what treatment or tests did you have to help you get your bfp? Thanks
hi all Is this raised tnf my clinic haven't said it is they said I need ivig for my pgs embryo transfer. Looking at my results above are my TNF not elevated? If so what treatment or tests did you have to help you get your bfp? Thanks
Poop84
in
Fertility Network UK
1 month ago
CLL + Bladder cancer + prostate cancer
I've been diagnosed with Cll since 2016 and been on Acalabrutinib for 2 years which is working really well along with monthly plasma ivig infusions. I'm 63 and male and fit and active. I just got diagnosed with Bladder cancer with a medium grade carcinoma. My uroligist has burnt the 2 spots she found
I've been diagnosed with Cll since 2016 and been on Acalabrutinib for 2 years which is working really well along with monthly plasma ivig infusions. I'm 63 and male and fit and active. I just got diagnosed with Bladder cancer with a medium grade carcinoma. My uroligist has burnt the 2 spots she found
Brucex100
in
CLL Support
1 month ago
Intralipids, IVIG experience?
Hi, is there any of you who suffered from a number of implantation failures and finally achieved successful pregnancy by using intralipids / IVIG? Any good (or bad) experiences of using them?
Hi, is there any of you who suffered from a number of implantation failures and finally achieved successful pregnancy by using intralipids / IVIG? Any good (or bad) experiences of using them?
WaitingforGabriel
in
Fertility Network UK
1 month ago
IVIg infusion clinic help
hello, I have been advised to do both intralipid and Ivig infusion for my next FET with immunotherapy. Our doctor is ok for us to do IVIG elsewhere to save money. I’m based in London and prices for IVIg are scary. I’ve read of people who travelled to do it abroad: where did you go? What countries/
hello, I have been advised to do both intralipid and Ivig infusion for my next FET with immunotherapy. Our doctor is ok for us to do IVIG elsewhere to save money. I’m based in London and prices for IVIg are scary. I’ve read of people who travelled to do it abroad: where did you go? What countries/
Oumil
in
Fertility Network UK
2 months ago
Help with rehab at home after acute phase of autoimmune encephalitis for my 16 year old
I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other departments, where they thought it was psychological, we were referred to the neurologists by the psychiatrist who after several tests diagnosed AE
I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other departments, where they thought it was psychological, we were referred to the neurologists by the psychiatrist who after several tests diagnosed AE
Cat29red
in
Encephalitis Society
2 months ago
Advice needed
Hi everyone - after a bit of advice from the collective brain :) We are incredibly lucky enough to have a little boy from our 6th transfer in 2021, and had 5 frozen embryos at the clinic should we decide to try for a sibling. We've now done 2 FETs with exactly the same protocol (steroids / intralipids
Hi everyone - after a bit of advice from the collective brain :) We are incredibly lucky enough to have a little boy from our 6th transfer in 2021, and had 5 frozen embryos at the clinic should we decide to try for a sibling. We've now done 2 FETs with exactly the same protocol (steroids / intralipids
Millbanks
in
Fertility Network UK
2 months ago
IVIG with CALR ET
Has anyone with ET/MPN ever received IVIG? I have ET and my platelets are in the mid to high 500k range on 1000mg HU daily. IVIG has a risk for blood clots but it appears to be one of the few things that might help with a severe neuropathy I’ve developed. My docs think I will be ok but I am quite nervous
Has anyone with ET/MPN ever received IVIG? I have ET and my platelets are in the mid to high 500k range on 1000mg HU daily. IVIG has a risk for blood clots but it appears to be one of the few things that might help with a severe neuropathy I’ve developed. My docs think I will be ok but I am quite nervous
George1976
in
MPN Voice
2 months ago
return of immune system
I achieved remission in May 2022 after a year of O & V. My immune system has still not returned and I’ve thankfully been given IVIG infusions to help me out. I was told my immune system would return one year after the completion of Obinutuzumab infusions and those ended in September of 2021. Has anyone
I achieved remission in May 2022 after a year of O & V. My immune system has still not returned and I’ve thankfully been given IVIG infusions to help me out. I was told my immune system would return one year after the completion of Obinutuzumab infusions and those ended in September of 2021. Has anyone
Cllinmaryland
in
CLL Support
3 months ago
arrhythmia and the flu and Covid vaccine
Hi all! I had a physical on Wednesday and since I hadn’t received my flu and Covid vaccine yet this year went ahead and got them. I came home and did a workout and felt fine until evening when fever and chills hit along with some mild sporadic heart arrhythmia. I took it easy the next couple days and
Hi all! I had a physical on Wednesday and since I hadn’t received my flu and Covid vaccine yet this year went ahead and got them. I came home and did a workout and felt fine until evening when fever and chills hit along with some mild sporadic heart arrhythmia. I took it easy the next couple days and
CoCoLuna11
in
CLL Support
3 months ago
Advice for managing adenomyosis
Hello fellow IVF warriors 💗 I wondered if anyone can give me some advice on how to manage adenomyosis whilst going through IVF? A bit of background on me: I started the IVF process in May 2022 after a year and half of trying naturally for our second child, who would be a sibling to our baby
Hello fellow IVF warriors 💗 I wondered if anyone can give me some advice on how to manage adenomyosis whilst going through IVF? A bit of background on me: I started the IVF process in May 2022 after a year and half of trying naturally for our second child, who would be a sibling to our baby
Sophia_Mama
in
Fertility Network UK
3 months ago
Brukinsa and Skin
I'm posting just for input from our group on a simple issue. I started Brukinsa on January 1, and I'm also on IVIG infusions once every four weeks since October 1. Last week from January 15 through January 20 I was in Boston for a two week blood and check up post the Jan 1 start on Brukinsa for three
I'm posting just for input from our group on a simple issue. I started Brukinsa on January 1, and I'm also on IVIG infusions once every four weeks since October 1. Last week from January 15 through January 20 I was in Boston for a two week blood and check up post the Jan 1 start on Brukinsa for three
wizzard166
in
CLL Support
3 months ago
Pulmonary Complications Post Lutetium-177-PSMA-617 Therapy in Metastatic Castration-Resistant Prostate Cancer #Pluvicto
We present the case of a patient with heavily pretreated metastatic castration-resistant prostate cancer (mCRPC) who underwent treatment with lutetium Lu-177 vipivotide tetraxetan (also known as 177Lu-PSMA-617) due to progressive disease despite multiple lines of therapy, including chemotherapy, hormonal
We present the case of a patient with heavily pretreated metastatic castration-resistant prostate cancer (mCRPC) who underwent treatment with lutetium Lu-177 vipivotide tetraxetan (also known as 177Lu-PSMA-617) due to progressive disease despite multiple lines of therapy, including chemotherapy, hormonal
God_Loves_Me
in
Advanced Prostate Cancer
7 hours ago
Still Struggling with a Full Plate
I wish I could say that I have a positive update to the numerous situations I'm dealing with, but I don't. Sometimes I'm amazed at how I manage to get up everyday. As for the situation with my ex-employer.......I got a letter from his attorney on May 3rd. demanding payment of $35K by June 15. Half
I wish I could say that I have a positive update to the numerous situations I'm dealing with, but I don't. Sometimes I'm amazed at how I manage to get up everyday. As for the situation with my ex-employer.......I got a letter from his attorney on May 3rd. demanding payment of $35K by June 15. Half
Stillstanding53
in
Anxiety and Depression Support
10 hours ago
Bowel and bladder problems after Radiotherapy
Hi, I am Maz and I am 76 years old, I still work but from home now. I have suffered with multiple sclerosis for over 40 years although apart from the early years it hasn't bothered me too much until 2013 when I was diagnosed with anal cancer stage T3. I underwent some chemo and a great deal of radiotherapy
Hi, I am Maz and I am 76 years old, I still work but from home now. I have suffered with multiple sclerosis for over 40 years although apart from the early years it hasn't bothered me too much until 2013 when I was diagnosed with anal cancer stage T3. I underwent some chemo and a great deal of radiotherapy
Maz131
in
Pelvic Radiation Disease Association
11 hours ago
Hair, brows and eyelashes!
Hi All! I was diagnosed in Nov of 2022 with stage 4b lung cancer and later, in May of 2023 with ovarian cancer. Not a metastisis but a second primary cancer. I’ve been a runner my whole life - almost 60 - and have lived a pretty “clean” life. So…all of this was pretty crazy. I had to go off the targeted
Hi All! I was diagnosed in Nov of 2022 with stage 4b lung cancer and later, in May of 2023 with ovarian cancer. Not a metastisis but a second primary cancer. I’ve been a runner my whole life - almost 60 - and have lived a pretty “clean” life. So…all of this was pretty crazy. I had to go off the targeted
SuziSch
in
My Ovacome
22 hours ago
Clear Cell Progression
Here is an update on my treatment for ovarian clear cell carcinoma, which I guess has now moved into Stage IV (started 1a). My taxol/carboplatin & Avastin chemotherapy treatment was discontinued after 3 infusions, as CT scan showed progression of tumors, and invasion into my liver. The doctors at UCSF
Here is an update on my treatment for ovarian clear cell carcinoma, which I guess has now moved into Stage IV (started 1a). My taxol/carboplatin & Avastin chemotherapy treatment was discontinued after 3 infusions, as CT scan showed progression of tumors, and invasion into my liver. The doctors at UCSF
Susi3
in
SHARE Ovarian Cancer Support
23 hours ago
A weighty issue saga
Greetings all, Let me start by saying I have always (for the last 60 years) been conscious of my weight. Even at 72, I am still 'hard wired' into dieting. Before starting hydroxy 3.5 years ago , I was 53kg and 164cm. My ideal range pre-hydroxy was in the 55-57kg range. Today I am 60kg. My hydroxy dose
Greetings all, Let me start by saying I have always (for the last 60 years) been conscious of my weight. Even at 72, I am still 'hard wired' into dieting. Before starting hydroxy 3.5 years ago , I was 53kg and 164cm. My ideal range pre-hydroxy was in the 55-57kg range. Today I am 60kg. My hydroxy dose
Goosebumps52
in
MPN Voice
1 day ago
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