Experiences with

Intravenous chemotherapy

Hi fellow travelers, wondering if anyone has has a major outbreak of canker sores? I’m traveling in sunny climes and got too much sun (I know: bad on Calquence! I wasn’t as careful as I should’ve been and have truly learned my lesson!) Got rashy all over then a day later I have a big sore on the inside

Hi everyone (apologies for long post) I hope this update is reassuring for people who are struggling. I have had some really dark times with infertility and sometimes I valued seeing messages like these, other times I struggled. Whichever camp you are in I get it but I did want to come on and give an

I was dx with CLL in 2015 and have been on w& w since. Most of the time I feel fine and I don't remember I have it. My WBC climbed by 1000's with every checkup since then, but not rapidly enough to warrant treatment. Then, mysteriously, for the last year ( one checkup every 4 mos), my WBC started going

I was dx with CLL in 2015 and have been on w& w since. Most of the time I feel fine and I don't remember I have it. My WBC climbed by 1000's with every checkup since then, but not rapidly enough to warrant treatment. Then, mysteriously, for the last year ( one checkup every 4 mos), my WBC started going

When I originally joined this site, I became a regular contributor for a number of years. Then without my realizing it, the daily emails stopped. I must have been extra busy with work when that happened, because I didn't notice it immediately. Then a good while after that I realized that I hadn't

I have had a mild chest infection since the 20th June.  Producing mucus mainly in the morning for the first few hours.  Then clears during the rest of the day to sporadic coughing and mucus.  The history of this infection is below: Was initially prescribed Amoxicillin 500mg capsules - 42 capsule - take

So it looks like I have come down with myasthenia gravis, a neuromuscular condition, possibly induced by diltiazem. My question is about next steps. Anyone with stories of corticosteroid, emg or ivig? Thanks so much. Just FYI it is difficult to type now so please excuse brevity

I have been receiving infusions of IVIG (immunoglobulin) on a monthly basis for many years for a immune deficiency disorder. I have noticed hair growth around my temples that is not my natural hair color or texture. I wonder if this is a result of the infusions of the donor antibodies I receive. Has

I am W/W for 5 years. I do get IVIg every10 weeks for the last year. I am not sure when the best time to get my RSV vaccine in between the infusion time line. My blood work is stable except IgG

I’m a 26 year old male that was in the army and became ill at 24 years old with myocarditis and LVEF reduced to 10% and experienced complete heart block and needed emergency pacemaker fitted(now have an ICD fitted). LVEF has fluctuated massively through 2.5 years of intensive treatment and now sits roughly

Our daughter has had 4 rounds of ivig. Her brain swelling (basal ganglia) has practically returned to normal however her behavioural issues indicate scarring to the frontal lobe and loss of executive function. The neurologists have suggested stopping monthly ivig as the inflammation has gone down. I'm

Hi Friends, I've been in remission for almost 4 years, after Ibrutinib and V and O. My Immunoglobulin levels have been on the decline for 6 months. Not crazy low but I was sick alot this year and I'm usually not. Went to the Pulmonologist for 6 month long chest congestion. Had numerous tests, imaging

My daughter 22 fell ill with encephalitis in July this year. She responded very well to IVIG and steroids for 5 days. She left hospital feeling well enough to return to Uni and work. She has autoimmune encephalitis seronegative. In late August she deteriorated and returned to hospital in September

Hello to all you I have had Diverticular Disease/ IBS for the last 5 years or so I can't recall when it started I think my problem started about 2018 when I had B/Cancer had operation followed by chemo/radiotherapy I am still taking a 1mg of the stuff tablet form Anastrazole and will be on that until

In my last appointment with MO on 12/12, we discussed a variety of developments over the last few years, including the PATCH trial, low dose estrogen, BAT, and other things. My MO kept reverting to what the FDA has approved. I know they approve drugs and devices and procedures, but they weigh in more

hi it’s been a while since I posted. I left the site cause my CLL transformed into non Hodgkin’s lymphoma presenting as anaplastic stage four . It was a stressful time and after having palliative chemo which finished in august I presented with a complete response to the treatment obviously this is

Hi, I’ve had ovarian cancer for 15 years. During that time I have had 2 surgeries and 6 separate rounds of chemotherapy. My disease has slowly been working its way up the body. I have now been told it is in the skull. Has anyone had any experience of this sort of spread?

originally diagnosed with Stage1 clear cell ovarian cancer following full hysterectomy and appendectomy and removal of tumour on ovary in February 2020. I had 6 sessions of chemotherapy. Carboplatin/ Paxitaxol. Just over 12 months later a CT scan revealed cancer cells at the top of my omentum. 6 more

I'm wondering if anyone has successfully applied for ESA as a cancer patient. I have a history of cancer and have now developed cardiomyopathy as a side effect of the chemo and radio. I applied for ESA as I have had to stop teaching. When completing the ESA50 Capability for Work Questionnaire, I ticked

Hi! I got an interesting question from one of you guys, and I think it could be an interesting topic for us all. What kind of research would you fund ?(if you could direct your donations, of course) Short-Term Goals: - Fund research into drug repurposing, including AI-based systems to accelerate the