Experiences with

Intravenous chemotherapy

Our daughter has had 4 rounds of ivig. Her brain swelling (basal ganglia) has practically returned to normal however her behavioural issues indicate scarring to the frontal lobe and loss of executive function. The neurologists have suggested stopping monthly ivig as the inflammation has gone down. I'm

Hi Friends, I've been in remission for almost 4 years, after Ibrutinib and V and O. My Immunoglobulin levels have been on the decline for 6 months. Not crazy low but I was sick alot this year and I'm usually not. Went to the Pulmonologist for 6 month long chest congestion. Had numerous tests, imaging

My daughter 22 fell ill with encephalitis in July this year. She responded very well to IVIG and steroids for 5 days. She left hospital feeling well enough to return to Uni and work. She has autoimmune encephalitis seronegative. In late August she deteriorated and returned to hospital in September

Greetings Everyone. Just thought I would give a brief update on my journey. As some may recall, I have CLL and AHIA. I got Covid though what impact that had on AHIA becoming severe was/is unclear. I entered the hospital on September 11th. Quickly my hemoglobin dropped to 3.4. I spent 20 days in the

Hello everyone, I’m seeking advice and support regarding my 4-year-old son’s condition. He is an incredibly active child with no major symptoms apart from a persistently low platelet count. Here’s a summary of what we’ve been through: Initial Hospitalization: Around 15 days back, my son was admitted

I just came back from a fabulous trip visiting my sisters, one lives in France, the other in Italy. On the way back the plane was full of people coughing. Not surprising 2 days after returning, I tested positive for Covid. Called my oncologist but nurse told me he doesn’t prescribe paxlovid anymore because

Hi everyone. Just wanted to update those that responded to my plight of CLL/AHIA and COVID and seek additional thoughts since, at this level I have low expertise. I am still in the hospital (15 days now) because my hemoglobin will not stabilize. I get blood transfusions and hemoglobin goes up some,

Hi fellow travelers, I have questions about IVIg. I never had IgG levels checked at diagnosis, in 2014. I’ve had frequent infections over the years, and then my CLL “bloomed” in late ‘22 and I started Acalabrutinib. I’ve been on it a year and a half. Recently, when discussing my immunity, (especially

I was diagnosed with CLL in 2002 & been on wait & watch until recently. Treatment with FCR is imminent but only after a severe skin infection has cleared up. Dermatologist took 2 biopsies which the Pathologist reported skin infection/rash was Hypersensitive Dermatitis. I had an IV when I had a CT

Hello - I had another consultation on Nov 1 with Dr. Eugene Kwon at the Mayo Clinic. This was a few weeks after completing 18 weeks of chemo using taxetere plus carboplatin. A PSMA PET CT scan at the Mayo showed that the chemo reduced the prostate cancer in the abdomen, although PSA remains above

I was diagnosed with GIST Cancer IV in 2018. It's a very rare Sarcoma Cancer. I am treated with oral chemo that is a targeted drug. I have to have MRI's every 6mos and as of now it is stable. I was already stage IV at diagnosis to my liver & stomach.

Steage 4, gleason 9, 49 at diagnosis pelvice mets and possibly more mets. Only signs were urinating blood guys n gore... 2.5ish years into adt, did chemo, dit radio therapy. PSA went from 20 to under 0.1 but as soon as went down it's only ever risen Slowly but constantly. This week I'm urinating blood

my dad is on lynparza since September his recent scan showed some marginal changes in three areas but everything else is stable. Does that mean it’s not working or can it take longer, he has a somatic BRCa2 gene. He is handling it well and ALP decreased. Can radiation be helpful for the areas - or should

Just had bloodwork done which shows 5 slow consecutive rises in PSA - latest is 0.7, so still very minor. But the predictable continuous rise with a PSA doubling time now of about 6.4 months. Heres my updated graph with PSA on the y axis on a log scale, and time on the X axis with 3 month intervals.

hello, I just had a pet scan after my PSA went from .3 to 5.68 in 3 months time and it revealed 3 spots that my onc feels we should radiate. I am 3 years into this and have had 6 rounds of chemo and am currently on daro+ lupron. It took 6 weeks to get the scan and results and now my consult is in

A new study in The American Journal of Pathology found that inhibition of the sterol regulatory element of binding (SREB) can reinduce sensitivity to the drug docetaxel, commonly used to treat prostate and other cancers. These findings show promise to improve the efficacy of docetaxel-based chemotherapy

Hi all I had my thyroid removed at the beginning of May due to it's size and the fact it was growing behind my oesophagus and down into my chest area. This has resulted in a paralysed vocal cord with all the issues that creates, but I wondered if any of you good people could explain my results to me

MY PSA rose quickly to 16, after about a year it held fairly steady around one, using Orgovyx and Zytiga, It now has more than tripled in about a month. I think I should try Xtandi, even though I'm quite anemic. At 87 my MO feels I can't handle chemo. I agree. Any thoughts? Poollover

Here is a general toxicity ranking for the drugs you listed, considering overall toxicity across systems, including liver, kidney, cardiovascular, and other potential toxicities. The ranking is organized from most toxic to least toxic, with explanations. --- Toxicity Ranking for Overall Toxicity 1. Cabazitaxel

My dad is on about year 20 with prostate cancer. He has failed Docetaxel and Pluvicto within the last year. His PSA 60. Scan showed 60 spots in his bones with 15-20 being bigger. He is starting chemo next week again? Anyone have positive experience with Cabazitaxel/Jetvana?