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went off Xgeva for a year, have to go back on it. Ideas or tips helpful
Hi, the short version is I’ve been dealing w stage 4 MBC since 2019/ 2020 with mets to the bones since 2020, including a thoracic spinal fracture which led to a spinal fusion. I was put on Xgeva for a couple of years and later read on Xgeva’s website that being on it long term is likely to increase
Hi, the short version is I’ve been dealing w stage 4 MBC since 2019/ 2020 with mets to the bones since 2020, including a thoracic spinal fracture which led to a spinal fusion. I was put on Xgeva for a couple of years and later read on Xgeva’s website that being on it long term is likely to increase
Verbena1
in
Bone Health and Osteoporosis UK
7 months ago
Update
Just got my blood test results: Testo less 0.1 ng/ML and PSA still undetectable. Tomorrow I’ll receive my next 3-month Lupron shot, which will finalize my 24-month ADT after prostate bed and whole pelvic radiation. In the meantime I also had lymphoma and received four R-CHOP chemo cycles, two cycles
Just got my blood test results: Testo less 0.1 ng/ML and PSA still undetectable. Tomorrow I’ll receive my next 3-month Lupron shot, which will finalize my 24-month ADT after prostate bed and whole pelvic radiation. In the meantime I also had lymphoma and received four R-CHOP chemo cycles, two cycles
Nusch
in
Advanced Prostate Cancer
7 months ago
Long time reader / first time poster…
Hello all, Been on here for quite some time reading about other men’s stories but have yet to get in the trenches until now. Not sure why; maybe just reluctance to accept my situation, even though my “situation” has fully accepted me. It’s been a bumpy road. PSA 12.5 at diagnosis 11/2019. Been checking
Hello all, Been on here for quite some time reading about other men’s stories but have yet to get in the trenches until now. Not sure why; maybe just reluctance to accept my situation, even though my “situation” has fully accepted me. It’s been a bumpy road. PSA 12.5 at diagnosis 11/2019. Been checking
MrWonderful4U
in
Advanced Prostate Cancer
8 months ago
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Medicare Advantage vs. Medicare+Medicare Supplement
Greetings, A little background: I have had 2 insurance policies, Cigna through my employer and Medicare Advantage. I'm now unemployed so will not have Cigna. I'm considering changing my Medicare Advantage to Medicare (part A & B) plus a Medicare Supplement plan (through Cigna, Blue Cross, United,
Greetings, A little background: I have had 2 insurance policies, Cigna through my employer and Medicare Advantage. I'm now unemployed so will not have Cigna. I'm considering changing my Medicare Advantage to Medicare (part A & B) plus a Medicare Supplement plan (through Cigna, Blue Cross, United,
MechD
in
Advanced Prostate Cancer
8 months ago
1st Time posting. Need suggestions please.
My husband was diagnosed in Jul 2021 PSA 41 at the time, multiple mets in bones. n1b and m1b Gleason 4+3=7. I've been reading and trying to get as much info as possible from this website. Last Oct PSA shot up to 19. Xtandi started and he also gets the 3monthly Prostap injections. PSA went back down
My husband was diagnosed in Jul 2021 PSA 41 at the time, multiple mets in bones. n1b and m1b Gleason 4+3=7. I've been reading and trying to get as much info as possible from this website. Last Oct PSA shot up to 19. Xtandi started and he also gets the 3monthly Prostap injections. PSA went back down
Akita123
in
Advanced Prostate Cancer
8 months ago
Preparation for Chemo Second Time
Looking for information on tips to survive a second treatment of chemo. I will be starting 10 rounds of chemo soon. What should I do to help get through this again. I did 6 rounds at the beginning of diagnosis. I know about the ice gloves for the hands. Not sure they worked as I still have problems with
Looking for information on tips to survive a second treatment of chemo. I will be starting 10 rounds of chemo soon. What should I do to help get through this again. I did 6 rounds at the beginning of diagnosis. I know about the ice gloves for the hands. Not sure they worked as I still have problems with
Islandboy2021
in
Advanced Prostate Cancer
8 months ago
Liver detox after chemo?
I am starting Taxotere next week and received some advice from a friend fighting serious colon cancer. He told me how he detoxed his liver after each cycle. He used TUDCA Bile salts and PectaSol from ECONugenics Company. https://econugenics.com/collections/pectasol?Wickedsource=Microsoft&Wickedid
I am starting Taxotere next week and received some advice from a friend fighting serious colon cancer. He told me how he detoxed his liver after each cycle. He used TUDCA Bile salts and PectaSol from ECONugenics Company. https://econugenics.com/collections/pectasol?Wickedsource=Microsoft&Wickedid
V10fanatic
in
Advanced Prostate Cancer
8 months ago
What day of cycle did you start steroids, clexane and intralipids / IVIG in FET cycles?
Hello Can you tell me your experiences with the above please? Thank you all x
Hello Can you tell me your experiences with the above please? Thank you all x
Skittles11
in
Fertility Network UK
8 months ago
health spa
As the end of my chemo radiation is in sight I have been wondering about treating myself to a break at some sort of health retreat or spa that includes helping cancer patients. Just wondering if anyone has any experience or recommendations? It would be nice to have something pleasant to look forward
As the end of my chemo radiation is in sight I have been wondering about treating myself to a break at some sort of health retreat or spa that includes helping cancer patients. Just wondering if anyone has any experience or recommendations? It would be nice to have something pleasant to look forward
Vitex
in
Oesophageal & Gastric Cancer
8 months ago
Sleep while taking Xtandi and Adt
Hello everyone, I am sure that this has been discussed on here before, I was unable to find any post to answer my question . I am taking Xtandi ( aprox 16 months) Lupron, I had chemo. My latest PSA was less then <0.01. It has been there for over a year now. ( See my profile for my journey.) My
Hello everyone, I am sure that this has been discussed on here before, I was unable to find any post to answer my question . I am taking Xtandi ( aprox 16 months) Lupron, I had chemo. My latest PSA was less then <0.01. It has been there for over a year now. ( See my profile for my journey.) My
JD-guy
in
Advanced Prostate Cancer
8 months ago
Clinical Trial Dallas UT Southwestern
Will begin a Pfizer starting on Monday. I will post more later as it goes. We are adding a drug to Xtandi to treat solid tumors. I have been on and off Xtandi a few times. I am chemo naive. In the past had a very heavy tumor load and received 3 rounds of Lu-177 from Ishita Sen, Fortis health in Delhi
Will begin a Pfizer starting on Monday. I will post more later as it goes. We are adding a drug to Xtandi to treat solid tumors. I have been on and off Xtandi a few times. I am chemo naive. In the past had a very heavy tumor load and received 3 rounds of Lu-177 from Ishita Sen, Fortis health in Delhi
pilot52
in
Advanced Prostate Cancer
8 months ago
Mum 86 treatment??
Hi my mum was diagnosed in August with lung cancer from fluid taken from around her lungs.She has had various scans/MRIs ane they have said all other areas are clear.She has had 3 biopsy the last under general aneasetic, where they also inserted a drainage tube for plural effusion to allow the fluid
Hi my mum was diagnosed in August with lung cancer from fluid taken from around her lungs.She has had various scans/MRIs ane they have said all other areas are clear.She has had 3 biopsy the last under general aneasetic, where they also inserted a drainage tube for plural effusion to allow the fluid
Hidden
in
The Roy Castle Lung Cancer Foundation
8 months ago
Post-prostatectomy cancer status + treatment
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
MakeItRainbows
in
Prostate Cancer Network
8 months ago
Early Readout on Xaluritamig (Amg 509)
From here https://www.amgen.com/newsroom/press-releases/2023/10/amgen-to-present-new-research-from-oncology-portfolio-and-pipeline-at-esmo-2023 “[i]Interim results from a Phase 1 study of AMG 509 (xaluritamig) will be presented during a Proffered Paper Oral Session (Abstract #1765O), demonstrating
From here https://www.amgen.com/newsroom/press-releases/2023/10/amgen-to-present-new-research-from-oncology-portfolio-and-pipeline-at-esmo-2023 “[i]Interim results from a Phase 1 study of AMG 509 (xaluritamig) will be presented during a Proffered Paper Oral Session (Abstract #1765O), demonstrating
Hidden
in
Advanced Prostate Cancer
8 months ago
Keytruda - year 4
So I’m pretty much closing the book on my 4th year on Keytruda (pembroluzimab). I’ve recently completely my 33rd Pembro infusion. Keytruda was my Hail Mary after running through most other SOC. My PSA was rising while on chemo the second time when I found out I had the markers that made me eligible
So I’m pretty much closing the book on my 4th year on Keytruda (pembroluzimab). I’ve recently completely my 33rd Pembro infusion. Keytruda was my Hail Mary after running through most other SOC. My PSA was rising while on chemo the second time when I found out I had the markers that made me eligible
Chugach
in
Advanced Prostate Cancer
8 months ago
parp for hrd positive?
hi ladies, I hope you all are doing well and as always I would like to thank everyone in this group for their great continued support throughout the years. To recap - my mom was diagnosed in 2018 - debunking, chemo - second lot of chemo in 2021 and avastin up until 2022 - now she just had a successful
hi ladies, I hope you all are doing well and as always I would like to thank everyone in this group for their great continued support throughout the years. To recap - my mom was diagnosed in 2018 - debunking, chemo - second lot of chemo in 2021 and avastin up until 2022 - now she just had a successful
Lind58
in
My Ovacome
8 months ago
Care oncology
Hi I have stage 4 lung cancer and today have just found out that they are going to stop my immunotherapy as I have had to many side effects anyway my choices are to go back on chemo for a bit or I might be able to go a clinical trial. I've heard and read up a bit care oncology has anyone on here had
Hi I have stage 4 lung cancer and today have just found out that they are going to stop my immunotherapy as I have had to many side effects anyway my choices are to go back on chemo for a bit or I might be able to go a clinical trial. I've heard and read up a bit care oncology has anyone on here had
Leni22
in
The Roy Castle Lung Cancer Foundation
8 months ago
Not where I expected to be
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hoehn
in
SHARE Metastatic Breast Cancer
8 months ago
IVIG - how soon does it benefit?
My husband - CLL, on Calquence since April 2021 - has begun a schedule of monthly IVIG, mainly because he had 2 life threatening infections late spring/early summer (staph that went rogue, followed by c. Diff thanks to months of antibiotics). His ID doc has said that the IG may likely have Covid antibodies
My husband - CLL, on Calquence since April 2021 - has begun a schedule of monthly IVIG, mainly because he had 2 life threatening infections late spring/early summer (staph that went rogue, followed by c. Diff thanks to months of antibiotics). His ID doc has said that the IG may likely have Covid antibodies
OaktownA
in
CLL Support
8 months ago
Chemo and social life
My husband and I are both freshly aware of his need to avoid getting ill due to low white blood cell count - his is only 1.93, and that's 10 days after his first treatment. He's opting to work from home (on the days that he's not wiped), but with holidays coming and plans to gather with family, we're
My husband and I are both freshly aware of his need to avoid getting ill due to low white blood cell count - his is only 1.93, and that's 10 days after his first treatment. He's opting to work from home (on the days that he's not wiped), but with holidays coming and plans to gather with family, we're
Tinuriel
in
Advanced Prostate Cancer
8 months ago
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