Kesimpta and IVIG?: I have had many... - My MSAA Community

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Kesimpta and IVIG?

pihokken profile image
7 Replies

I have had many infections over the last 4 months. I have been on Kesimpta for 2years.

Anyone else have that problem?

Any luck with immuno therapy?

Thank you!

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pihokken profile image
pihokken
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7 Replies
kdali profile image
kdali

I wasn't given any options except stopping the med.

pihokken profile image
pihokken in reply tokdali

what did you switch to ?

kdali profile image
kdali in reply topihokken

Mavenclad. I just finished in Dec 🎉

Juleigh21 profile image
Juleigh21

kesimpta has caused nothing but havoc in my body. I have had sepsis and many UTIs just to name a few infections I've had since starting it. I am on no meds at the moment and am considering IVIG.

Brindisi1 profile image
Brindisi1 in reply toJuleigh21

Following ivig. Any research you have done? dr agreeable? Am 77 don't want current drugs Think smoldering ms

Juleigh21 profile image
Juleigh21 in reply toBrindisi1

I have two doctors that are in favor of it. My new MS neurologist did give me all the side effects and blood clots are one of them. I would love my body to be able to fight these infections on their own without adding another medication unless absolutely necessary. The UTIs are very concerning. it doesn't seem as though the antibiotics ever clear one before the next one comes.

Brindisi1 profile image
Brindisi1 in reply toJuleigh21

I don't have utis but probable relapse. Don't want steroids affect my bones. Thought I knew MSer who used to do infusions solely for MS. My neuro said steroids only thing that relieves I flammation. Doing good diet turmeric etc & was foing well then a reversal. but apparently it was Not enough.Just looking for another solution. Need to read what I googled on big computer.

Hope you get relief. UT I no fun

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