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Hi. I've been ill for a few years and twice had blood tests for Lupus but as all came back clear I'm not sure what I can ask the GP to try next. He is adamant that's as bloods clear there isn't Lupus.Is he correct?
Hi. I've been ill for a few years and twice had blood tests for Lupus but as all came back clear I'm not sure what I can ask the GP to try next. He is adamant that's as bloods clear there isn't Lupus.Is he correct?
Pastalasta
in
LUPUS UK
16 days ago
Inherited APS ?
Hi everyone, I hope you are having the best day you can! I have APS, being Lupus Anticoagulant Positive. As some of you will remember, the day we moved back home on the 3/6/23 (after the post-fire refurb) my husband had a stroke. Luckily not a serious stroke. He was hospitalised and off work a while
Hi everyone, I hope you are having the best day you can! I have APS, being Lupus Anticoagulant Positive. As some of you will remember, the day we moved back home on the 3/6/23 (after the post-fire refurb) my husband had a stroke. Luckily not a serious stroke. He was hospitalised and off work a while
WendyWoo50
in
Hughes Syndrome APS Forum
16 days ago
Help with test results
Thyroid function test Serum TSH level < 0.01 mu/L [0.3 - 5.0]; Below low reference limit Serum free T4 level 50.4 pmol/L [7.9 - 16.0]; Above high reference limit Thyroid function test Serum free triiodothyronine level 13.1 pmol/L |3.8 - 6.0]; Above high reference limit ANTI THYROID PEROXIDASE 65
Thyroid function test Serum TSH level < 0.01 mu/L [0.3 - 5.0]; Below low reference limit Serum free T4 level 50.4 pmol/L [7.9 - 16.0]; Above high reference limit Thyroid function test Serum free triiodothyronine level 13.1 pmol/L |3.8 - 6.0]; Above high reference limit ANTI THYROID PEROXIDASE 65
Capture1
in
Thyroid UK
17 days ago
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Underactive thyroid???
I was diagnosed recently with underactive thyroid and prescribed Levothyroxine. I wasn’t happy about taking any medication without further investigation so requested a T3 blood test. My results were T4 = 10.9, TSH = 2.82, T3 = 3.1 From this I gather that the TSH and T3 are within the normal range
I was diagnosed recently with underactive thyroid and prescribed Levothyroxine. I wasn’t happy about taking any medication without further investigation so requested a T3 blood test. My results were T4 = 10.9, TSH = 2.82, T3 = 3.1 From this I gather that the TSH and T3 are within the normal range
Sperlonga7
in
Thyroid UK
17 days ago
FDA grants fast track designation to CAR T-cell therapy for SLE
FDA grants fast track designation to CAR T-cell therapy for SLE Caribou's CB-010 candidate designed for treatment-resistant lupus by Andrea Lobo, PhD The U.S. Food and Drug Administration (FDA) has granted fast track designation to Caribou Biosciences‘ CAR T-cell therapy CB-010 for systemic lupus
FDA grants fast track designation to CAR T-cell therapy for SLE Caribou's CB-010 candidate designed for treatment-resistant lupus by Andrea Lobo, PhD The U.S. Food and Drug Administration (FDA) has granted fast track designation to Caribou Biosciences‘ CAR T-cell therapy CB-010 for systemic lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
18 days ago
pmr, arthritis and fibromyalgia
would like to know if any one out there has been diagnosed with fibromyalgia, and can develop from all the other pain issues we experience ie, arthritis, pmr, degenerative disease, and taking prednisone long term, 8!years
would like to know if any one out there has been diagnosed with fibromyalgia, and can develop from all the other pain issues we experience ie, arthritis, pmr, degenerative disease, and taking prednisone long term, 8!years
arvine
in
Pain Concern
18 days ago
Support for men living with lupus
We are excited to partner with The Wren Project to pilot a group listening space specifically designed for men living with lupus. Launching this October, we will be inviting eight men living with lupus to join an online listening group to share and explore the physical and emotional impact of living
We are excited to partner with The Wren Project to pilot a group listening space specifically designed for men living with lupus. Launching this October, we will be inviting eight men living with lupus to join an online listening group to share and explore the physical and emotional impact of living
nakita_cambow
Moderator
in
LUPUS UK
19 days ago
fell kt/v test
hey I had a uti that doesn’t want to go away I’m just finishing my second round of antibiotics. I ask dialysis center that will the Kt/v test be affected that I’m hardly making urine only did 100 ml in 24 hours before uti I had a nice urine stream .well they said no it won’t effect it we’ll call today
hey I had a uti that doesn’t want to go away I’m just finishing my second round of antibiotics. I ask dialysis center that will the Kt/v test be affected that I’m hardly making urine only did 100 ml in 24 hours before uti I had a nice urine stream .well they said no it won’t effect it we’ll call today
Beachgirl32
in
Kidney Dialysis
6 months ago
?PMR onset Rheumatoid Arthritis
I have been just been diagnosed with ‘PMR onset Rheumatoid arthritis.’ I was put on 15mg steroids initially, which was increased to 20mg after 3 weeks as still in so much pain, and also added in 15mg s/c Methotrexate. I’m still confused by the diagnosis as I had no previous history of PMR! I had all
I have been just been diagnosed with ‘PMR onset Rheumatoid arthritis.’ I was put on 15mg steroids initially, which was increased to 20mg after 3 weeks as still in so much pain, and also added in 15mg s/c Methotrexate. I’m still confused by the diagnosis as I had no previous history of PMR! I had all
bronigel
in
PMRGCAuk
19 days ago
Anaemia anyone?
I am wondering if anyone with PMR and/or GCA (both of which I've got/had) has also been diagnosed with anaemia. I notice that Pernicious Anaemia is another autoimmune condition. My GP called me in as my monthly blood tests had suggested I might have anaemia. He's running more tests but of course I'm
I am wondering if anyone with PMR and/or GCA (both of which I've got/had) has also been diagnosed with anaemia. I notice that Pernicious Anaemia is another autoimmune condition. My GP called me in as my monthly blood tests had suggested I might have anaemia. He's running more tests but of course I'm
DogAgilityObsessed
in
PMRGCAuk
20 days ago
Fatique, Liothyronine, dosage and bloodtest results.
Hello, I hope all are well. Reposting as I've finally managed to secure my bloodtest results as a system issue between hospital pathology and patient access.. I'm still under the local Endocrine consultant, finding the right dose of liothyronine. My last amendment saw my dose decreased from 60 mcg
Hello, I hope all are well. Reposting as I've finally managed to secure my bloodtest results as a system issue between hospital pathology and patient access.. I'm still under the local Endocrine consultant, finding the right dose of liothyronine. My last amendment saw my dose decreased from 60 mcg
Hoopy83
in
Thyroid UK
20 days ago
Has anyone had these symptoms?
I’m on 200 Levothyroxine and just had a blood test. It’s out of range again. I’ve developed bad joint pains in pretty much all joints and it’s got progressively worse. In addition I’m getting cold hands and feet with pins and needles that also is causing pain. Felt very dizzy last week and ended up
I’m on 200 Levothyroxine and just had a blood test. It’s out of range again. I’ve developed bad joint pains in pretty much all joints and it’s got progressively worse. In addition I’m getting cold hands and feet with pins and needles that also is causing pain. Felt very dizzy last week and ended up
Pinkbutton
in
NRAS
22 days ago
organizing
I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and Rare Liver Diseases Director, Kristin Hatcher, from the Global Liver Institute. She is trying to lobby for a routine liver panel to be part
I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and Rare Liver Diseases Director, Kristin Hatcher, from the Global Liver Institute. She is trying to lobby for a routine liver panel to be part
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Underactive thyroid
I've had an underactive thyroid for 20 years, lm on 100mg thyroxine but last years and this years test show lm abnormal readings of TSH level 0.35 - 5.5, should my dose be increased as my health this year feels dreadful hair falling out, extreme fatigue and other bloods this test have affected my liver
I've had an underactive thyroid for 20 years, lm on 100mg thyroxine but last years and this years test show lm abnormal readings of TSH level 0.35 - 5.5, should my dose be increased as my health this year feels dreadful hair falling out, extreme fatigue and other bloods this test have affected my liver
Linann
in
Thyroid UK
23 days ago
Watch Now - Successful Travel with MS
MSAA's newest webinar is now available to watch on our video page! Traveling with multiple sclerosis can present some unique challenges. Watch this discussion with Dr. Yolanda Wheeler for helpful tips to make your trip by boat, bus, plane, or even cruise ship enjoyable. Watch now by visiting MSAA's
MSAA's newest webinar is now available to watch on our video page! Traveling with multiple sclerosis can present some unique challenges. Watch this discussion with Dr. Yolanda Wheeler for helpful tips to make your trip by boat, bus, plane, or even cruise ship enjoyable. Watch now by visiting MSAA's
DanaMSAA
Partner
in
My MSAA Community
23 days ago
UCTD?
Hello ,Has anyone noticed that there now appears to be no reference to UCTD on the Lupus uk website. Spoke to someone there today who had heard of UCTD but didn't know what it was? And only talked about MCTD? Is UCTD still a recognised lupus connected diagnosis?
Hello ,Has anyone noticed that there now appears to be no reference to UCTD on the Lupus uk website. Spoke to someone there today who had heard of UCTD but didn't know what it was? And only talked about MCTD? Is UCTD still a recognised lupus connected diagnosis?
Narni21
in
LUPUS UK
23 days ago
Osteo or rheumatoid arthritis in fingers
At the same time as being diagnosed with rheumatoid arthritis, I started getting sharp pain and swelling in the joints closest to finger tips. I was told this is osteoarthritis (while it is also acknowledged that RA can affect any joint). The pain is getting worse and I expect that if I do contact my
At the same time as being diagnosed with rheumatoid arthritis, I started getting sharp pain and swelling in the joints closest to finger tips. I was told this is osteoarthritis (while it is also acknowledged that RA can affect any joint). The pain is getting worse and I expect that if I do contact my
Gottarelax
in
NRAS
23 days ago
confused about high b12 but now have PA
I started having small fiber neuropathy several years ago after being exposed to Lyme and Mold. Spent a lot of time treating with herbs to put both into remission, but I still deal with the small fiber neuropathy in my feet, my lips have a blue tinge to them as to the moons on my thumb nails. I just
I started having small fiber neuropathy several years ago after being exposed to Lyme and Mold. Spent a lot of time treating with herbs to put both into remission, but I still deal with the small fiber neuropathy in my feet, my lips have a blue tinge to them as to the moons on my thumb nails. I just
SunriseDaily
in
Pernicious Anaemia Society
23 days ago
What type of hypothyroidism do I have,?
My mother had a goitre and my sister born with no functioning thyroid. I realise I had thyroid problems from childhood but not treated until nearly 50 50 is this hashimotos or autoimmune considering familial connection?
My mother had a goitre and my sister born with no functioning thyroid. I realise I had thyroid problems from childhood but not treated until nearly 50 50 is this hashimotos or autoimmune considering familial connection?
Dodds
in
Thyroid UK
24 days ago
Blood Test Results advice please!
I have now had Blue Horizon Thyroid and Vitamin test results. Blood was taken 24 hrs after last Thyroxine and early in morning on Sept 3rd). I am on 75gms Thyroxine daily for Underactive Thyroid and am currently not taking any Vitamins or supplements. Vit D(25 OH)
I have now had Blue Horizon Thyroid and Vitamin test results. Blood was taken 24 hrs after last Thyroxine and early in morning on Sept 3rd). I am on 75gms Thyroxine daily for Underactive Thyroid and am currently not taking any Vitamins or supplements. Vit D(25 OH)
Rolbo
in
Thyroid UK
24 days ago
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