Search
Search
About
Log in
Join
Experiences with
Interstitial lung disease (ILD)
Posts
Communities
44,321 public posts
Filter results
Arrhythmia Alliance - Hearts of Ghana Program
The A-A Hearts of Ghana programme team that headed out to Accra provided much needed training to local cardiac professionals, and also performed cardiac surgery to patients who would not otherwise have access to these lifesaving treatments. For future missions to take place, the programme is in desperate
The A-A Hearts of Ghana programme team that headed out to Accra provided much needed training to local cardiac professionals, and also performed cardiac surgery to patients who would not otherwise have access to these lifesaving treatments. For future missions to take place, the programme is in desperate
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
6 months ago
PATIENT EXPERIENCE OF ADJUVANT CHEMOTHERAPY AFTER SURGERY
NIVOLUMAB will shortly be assessed by the Scottish Medicine Consortium (SMC) for use in NHS Scotland in combination with platinum-based chemotherapy for the neoadjuvant (treatment given before surgery) for resectable non-small cell lung cancer in adults. We have been invited to provide a Patient Group
NIVOLUMAB will shortly be assessed by the Scottish Medicine Consortium (SMC) for use in NHS Scotland in combination with platinum-based chemotherapy for the neoadjuvant (treatment given before surgery) for resectable non-small cell lung cancer in adults. We have been invited to provide a Patient Group
RoyCastleHelpline
Roy Castle
in
The Roy Castle Lung Cancer Foundation
9 months ago
cardioversion
All was going well after my cardioversion on Thursday until Sunday when my heart was all over the place really bad not sure what was going on, sat it out for a couple of hours seemed to settle and then off again felt quite ill and was worried about other arythmia’s went to urgent care to get it checked
All was going well after my cardioversion on Thursday until Sunday when my heart was all over the place really bad not sure what was going on, sat it out for a couple of hours seemed to settle and then off again felt quite ill and was worried about other arythmia’s went to urgent care to get it checked
Patchwork123
in
AF Association
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Avacopan (Tavneos®) is accepted for use within NHSScotland.
The Scottish Medicines Consortium (SMC) has completed its assessment of Avacopan and, following review by the SMC executive, advises NHS Boards and Area Drug and Therapeutics Committees (ADTCs) on its use in NHSScotland. Full details posted here: https://www.scottishmedicines.org.uk/media/7938/avacopan-tavneos-final-oct
The Scottish Medicines Consortium (SMC) has completed its assessment of Avacopan and, following review by the SMC executive, advises NHS Boards and Area Drug and Therapeutics Committees (ADTCs) on its use in NHSScotland. Full details posted here: https://www.scottishmedicines.org.uk/media/7938/avacopan-tavneos-final-oct
JaneLE
Administrator
in
Vasculitis UK
6 months ago
Had paroxysmal since 2016
I’m a 68 yo male and have had 5 or 6 AF episodes since 2016 and one in the last 2 years. Docs put me on Multaq (anti arrhythmia) and Eliquis 2 years ago and the last episode was this past June was diagnosed as Atrial Flutter. Normal sinus rhythm was restored about 10 minutes after a calcium blocker
I’m a 68 yo male and have had 5 or 6 AF episodes since 2016 and one in the last 2 years. Docs put me on Multaq (anti arrhythmia) and Eliquis 2 years ago and the last episode was this past June was diagnosed as Atrial Flutter. Normal sinus rhythm was restored about 10 minutes after a calcium blocker
RoyMac
in
AF Association
6 months ago
Coronary artery calcification, osteoporosis and B12 deficiency- what to do next ?
I have just been found to have coronary artery calcification incidentally when having a Lung Healthcare scan. This information was passed to my GP who wants to put me on statins (Atorvastatin 20mg daily). I have no idea of the severity or extent of the calcification, only that it was found. I don't
I have just been found to have coronary artery calcification incidentally when having a Lung Healthcare scan. This information was passed to my GP who wants to put me on statins (Atorvastatin 20mg daily). I have no idea of the severity or extent of the calcification, only that it was found. I don't
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
6 months ago
Prognosis Stage
My husband had throat cancer and was cleared in 2017. Then lung cancer last year, was cleared but its now returned.He is currently receiving Immunotherapy as chemotherapy wasn't helping. My question is why when we ask the consultant or her Registrar for a prognosis they don't know, we haven't been told
My husband had throat cancer and was cleared in 2017. Then lung cancer last year, was cleared but its now returned.He is currently receiving Immunotherapy as chemotherapy wasn't helping. My question is why when we ask the consultant or her Registrar for a prognosis they don't know, we haven't been told
Hidden
in
The Roy Castle Lung Cancer Foundation
1 year ago
Thrombocytopenia
Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is very low platelet count and can cause bruising and excessive bleeding. Diagnosed with PBC in 2018. Just wondered if anyone else has this as I know that we can be prone to more than one autoimmune condition.
Hi all, I have just been diagnosed with autoimmune thrombocytopenia, which is very low platelet count and can cause bruising and excessive bleeding. Diagnosed with PBC in 2018. Just wondered if anyone else has this as I know that we can be prone to more than one autoimmune condition.
nunbrook
in
PBC Foundation
7 months ago
nubequa
Question for anyone taking Nubequa. How long did it take to get PSA nondectable… or did it ever reach that low point? My husband began with it & Lupron in January. PSA was 14 and 6 months later only down to 4.3 He does not have a prostate … Journey began in 2017. All clear at time of surgery. Biochemical
Question for anyone taking Nubequa. How long did it take to get PSA nondectable… or did it ever reach that low point? My husband began with it & Lupron in January. PSA was 14 and 6 months later only down to 4.3 He does not have a prostate … Journey began in 2017. All clear at time of surgery. Biochemical
JolleySprings
in
Advanced Prostate Cancer
9 months ago
Phenylethylamine is NOT Palmitoylethanolamide! They are both called PEA. I take Palmitoylethanolamide
SAGoodmanthis is for you: Phenylethylamine is NOT Palmitoylethanolamide! They are both called PEA. I take Palmitoylethanolamide
I originally posted this a year ago. You should check out the comment on that thread also
. https://healthunlocked.com/cure-parkinsons/posts/148290658/phenylethylamine-is-not-palmitoylethanolamide-they-are-both-called-pea-i-take-palmitoylethanolamide
SAGoodmanthis is for you: Phenylethylamine is NOT Palmitoylethanolamide! They are both called PEA. I take Palmitoylethanolamide
I originally posted this a year ago. You should check out the comment on that thread also
. https://healthunlocked.com/cure-parkinsons/posts/148290658/phenylethylamine-is-not-palmitoylethanolamide-they-are-both-called-pea-i-take-palmitoylethanolamide
Bolt_Upright
in
Cure Parkinson's
9 months ago
Thoughts on preventing more arryrhmias. Now 2 ablations down, on having been persistently in AF
Just checking in , after my review with my Electrophysiologist . 2nd Ablation was Feb 23rd 2022. He says I am doing very well, for where I was in persistent and a lot of arrythmias, when he ablated. Also on my asking about prognosis that hopefully this will now sustain, with v short episodes of AF
Just checking in , after my review with my Electrophysiologist . 2nd Ablation was Feb 23rd 2022. He says I am doing very well, for where I was in persistent and a lot of arrythmias, when he ablated. Also on my asking about prognosis that hopefully this will now sustain, with v short episodes of AF
Turquoise19
in
AF Association
6 months ago
Warning, ugly face
I am not diagnosed with Lupus, but I do have Ehlers Danlos Syndrome and Generalised multi joint Osteoarthritis, fibromyalgia and am hypothyroid.However, I am trying to get to the bottom of the terrible sores that come up on my face and neck. They can be terrible and then clear up a bit, but never fully
I am not diagnosed with Lupus, but I do have Ehlers Danlos Syndrome and Generalised multi joint Osteoarthritis, fibromyalgia and am hypothyroid.However, I am trying to get to the bottom of the terrible sores that come up on my face and neck. They can be terrible and then clear up a bit, but never fully
Lozza812
in
LUPUS UK
7 months ago
Update after cardiac catheterization.
First a BIG THANK YOU for all the advice and support. I felt you with me every step of the way. The catheterization showed no narrowing of the major cardiac arteries. But head cardiologist came and said all my symptoms were classic heart attack and clearly something was blocked...so i have a bucket
First a BIG THANK YOU for all the advice and support. I felt you with me every step of the way. The catheterization showed no narrowing of the major cardiac arteries. But head cardiologist came and said all my symptoms were classic heart attack and clearly something was blocked...so i have a bucket
agingfeminist
in
PMRGCAuk
6 months ago
Whole-body shaking
Hello, I have a question regarding whole-body shaking and would be grateful for any information you could give me. Five years ago when I was 49 I was diagnosed with Parkinson's disease. My only symptom was that within a few months my whole body suddenly became very slow. It was bi-lateral, and equally
Hello, I have a question regarding whole-body shaking and would be grateful for any information you could give me. Five years ago when I was 49 I was diagnosed with Parkinson's disease. My only symptom was that within a few months my whole body suddenly became very slow. It was bi-lateral, and equally
Daisies22
in
Cure Parkinson's
9 months ago
Covid vaccines and Lupus Flare - up
Everytime I get a Covid shot I get a painful Lupus Flare- up for 4 to 5 months . In the 30 years of having Lupus I have never been so sick as since I have been taking Covid shots . I am thinking I will wait at least 1 year , if not longer for another one .
Everytime I get a Covid shot I get a painful Lupus Flare- up for 4 to 5 months . In the 30 years of having Lupus I have never been so sick as since I have been taking Covid shots . I am thinking I will wait at least 1 year , if not longer for another one .
seabreezegirl
in
LUpus Patients Understanding and Support
7 months ago
Some advice re draining fluid?
11m post transplant. Had a clinic at QE today. Not feeling too good, feeling tired, bloated etc. Have gained about 8-10kg since March. They (bless 'em) fitted me in for an ultrasound, and found "pockets of free fluid." Is this the same as ascites? Can you get ascites after transplant...? Didn't
11m post transplant. Had a clinic at QE today. Not feeling too good, feeling tired, bloated etc. Have gained about 8-10kg since March. They (bless 'em) fitted me in for an ultrasound, and found "pockets of free fluid." Is this the same as ascites? Can you get ascites after transplant...? Didn't
taar
in
British Liver Trust
9 months ago
Paroxysmal and permanent Afib
Does anybody know when paroxysmal Afib becomes permanent? I was diagnosed with paroxysmal Afib towards the end of 2022, after I had been fitted with a Linq loop recorder. I was only ever having short episodes lasting up to 8 hours, then on 13th October just gone I started with an episode which is still
Does anybody know when paroxysmal Afib becomes permanent? I was diagnosed with paroxysmal Afib towards the end of 2022, after I had been fitted with a Linq loop recorder. I was only ever having short episodes lasting up to 8 hours, then on 13th October just gone I started with an episode which is still
Beatle45
in
AF Association
6 months ago
Coincidentally ...
.. a new study on CVD risk factors in men with PCa [1]: "
The Burden of Uncontrolled Cardiovascular Risk Factors in Men With Prostate Cancer: A RADICAL-PC Analysis
" The study found that most men with PCa have modifiable CVD risk factors. Although the authors recognize that CVD risk is
.. a new study on CVD risk factors in men with PCa [1]: "
The Burden of Uncontrolled Cardiovascular Risk Factors in Men With Prostate Cancer: A RADICAL-PC Analysis
" The study found that most men with PCa have modifiable CVD risk factors. Although the authors recognize that CVD risk is
pca2004
in
Fight Prostate Cancer
9 months ago
Ipsen and IRLAB enter exclusive worldwide licensing agreement aimed to improve the lives of people living with Parkinson’s disease
Mesdopetam is being assessed in Phase IIb clinical trials as a potential treatment option for people living with Parkinson’s disease (PD) experiencing levodopa-induced dyskinesia (LID). It is estimated that approximately 40-50 percent of people living with PD will experience LID after five years of initiating
Mesdopetam is being assessed in Phase IIb clinical trials as a potential treatment option for people living with Parkinson’s disease (PD) experiencing levodopa-induced dyskinesia (LID). It is estimated that approximately 40-50 percent of people living with PD will experience LID after five years of initiating
Farooqji
in
Cure Parkinson's
9 months ago
... what, then, do we die of?
New study of SEER data below [1]. The old comforting words that men with PCa "die with the disease, not of it" does not apply once mets occur, of course, but is largely true for local disease (the majority of cases in the U.S., due to screening practices.) It has long been known that men with PCa
New study of SEER data below [1]. The old comforting words that men with PCa "die with the disease, not of it" does not apply once mets occur, of course, but is largely true for local disease (the majority of cases in the U.S., due to screening practices.) It has long been known that men with PCa
pca2004
in
Fight Prostate Cancer
9 months ago
1
...
99
100
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5610 results
British Liver Trust
4427 results
Advanced Prostate Cancer
4312 results
View top 10 communities
Sort by
Most Relevant
Newest