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Inflammatory arthritis & pulmonary embolisms?
After years of x-rays on multiple joints (looking for osteoarthritis) & countless blood tests (looking for rheumatoid factor) - all of which returned negative results - I was finally diagnosed with Seronegative Inflammatory Arthritis in January. My Rheumatologist first tried methotrexate and then leflunomide
After years of x-rays on multiple joints (looking for osteoarthritis) & countless blood tests (looking for rheumatoid factor) - all of which returned negative results - I was finally diagnosed with Seronegative Inflammatory Arthritis in January. My Rheumatologist first tried methotrexate and then leflunomide
YorkieBard
in
NRAS
2 months ago
REMINDER! Northern Ireland Lupus Group and LUPUS UK Virtual Volunteering Event - 26th June 7pm!
Don't forget, if you live in Northern Ireland and are interested in volunteering, there is a great opportunity to learn about how you can get involved! The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until
Don't forget, if you live in Northern Ireland and are interested in volunteering, there is a great opportunity to learn about how you can get involved! The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until
michaellasmith
Administrator
in
LUPUS UK
2 months ago
PAIN PATH studies
Many people with rheumatoid arthritis suffer from pain every day. NRAS are working with researchers at Keele University to undertake two new studies to improve how pain is treated in people with rheumatoid arthritis and other types of inflammatory arthritis. The first study involves people with inflammatory
Many people with rheumatoid arthritis suffer from pain every day. NRAS are working with researchers at Keele University to undertake two new studies to improve how pain is treated in people with rheumatoid arthritis and other types of inflammatory arthritis. The first study involves people with inflammatory
Aribah-NRAS
NRAS
in
NRAS
2 months ago
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Accept nothing question everything...with the proviso that you are well informed
Everything that I have been complaining about for 8 years has now been seen on MRI. The private MRI that I paid for last week. Some of the best money I have ever spent. Not only do I have 'florid' synovitis in my hands, I have widespread enhanced bone erosions in both hands and feet. I also have
Everything that I have been complaining about for 8 years has now been seen on MRI. The private MRI that I paid for last week. Some of the best money I have ever spent. Not only do I have 'florid' synovitis in my hands, I have widespread enhanced bone erosions in both hands and feet. I also have
Mmrr
in
NRAS
2 months ago
Low red cell count but eat lots of red meat!
Hello again, just wanted to check this out with people as I do get quite tired in the afternoon and need to rest. Is this anaemia and so do I supplement with iron? Is there a good one for people with hashimotos?I have been told I have weak digestion and I feel I don't absorb things like iron very well
Hello again, just wanted to check this out with people as I do get quite tired in the afternoon and need to rest. Is this anaemia and so do I supplement with iron? Is there a good one for people with hashimotos?I have been told I have weak digestion and I feel I don't absorb things like iron very well
Pinkpetite
in
Thyroid UK
2 months ago
people with parents of lupus
hey!! im a teen living with a mum struggling with lupus + bipolar and i would love to learn more about lupus and what it affects so i can easily help my mum better !! if anyone could help and give tips thats so so appreciated :)
hey!! im a teen living with a mum struggling with lupus + bipolar and i would love to learn more about lupus and what it affects so i can easily help my mum better !! if anyone could help and give tips thats so so appreciated :)
b99lover
in
LUPUS UK
2 months ago
Gulten free diet with lupus
Hi just been researching gulten free diet for lupus to help with inflamation. Is anyone doing this or tried it and found any benefit. Id be really interested to hear peoples experiences. Thank you
Hi just been researching gulten free diet for lupus to help with inflamation. Is anyone doing this or tried it and found any benefit. Id be really interested to hear peoples experiences. Thank you
Flows
in
LUPUS UK
2 months ago
New lupus treatment trial recruiting now
This post has been sponsored by Bristol Myers Squibb. A new trial is assessing whether a type of immunosuppressant is safe and effective for people with SLE (systemic lupus erythematosus). This trial is recruiting now. You can find out more information about the trial in our article here: https://lupusuk.org.uk
This post has been sponsored by Bristol Myers Squibb. A new trial is assessing whether a type of immunosuppressant is safe and effective for people with SLE (systemic lupus erythematosus). This trial is recruiting now. You can find out more information about the trial in our article here: https://lupusuk.org.uk
Debbie_kinsey
Administrator
in
LUPUS UK
2 months ago
Thyroid Scan
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis I’m curious to know what would show up on the scan to indicate autoimmune thyroid disease as opposed to it being caused by subacute thyroiditis.
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis I’m curious to know what would show up on the scan to indicate autoimmune thyroid disease as opposed to it being caused by subacute thyroiditis.
Dizzy444
in
Thyroid UK
2 months ago
I made another MS video….
Hi everybody! I made a review video of my favorite MS related creators on YouTube. Enjoy! MULTIPLE SCLEROSIS ALL STARS on YT that you can trust! https://youtu.be/ocsFgWVw9rA
Hi everybody! I made a review video of my favorite MS related creators on YouTube. Enjoy! MULTIPLE SCLEROSIS ALL STARS on YT that you can trust! https://youtu.be/ocsFgWVw9rA
irhunter
in
My MSAA Community
2 months ago
Advanced prostate cancer
Hey there,I'm just seeing if I can get any insight on this from anyone living this now.My father is 70 and was recently diagnosed with prostate cancer and there was a spot on his rob as well from it.I don't know what stage it is but he is currently on hormone therapy and gets injections every 3 months
Hey there,I'm just seeing if I can get any insight on this from anyone living this now.My father is 70 and was recently diagnosed with prostate cancer and there was a spot on his rob as well from it.I don't know what stage it is but he is currently on hormone therapy and gets injections every 3 months
Catdog1111
in
Advanced Prostate Cancer
6 months ago
Arthritis and P.A
Today the g.p. has told me that the mri I had shows arthritis in my upper back and neck. He says its likely to be osteoarthritis rather than rheumatoid arthritis. I told him I have pain every day and it's bad. I also have pain in my hip, elbow and hands. He said to have more blood tests and see the physio
Today the g.p. has told me that the mri I had shows arthritis in my upper back and neck. He says its likely to be osteoarthritis rather than rheumatoid arthritis. I told him I have pain every day and it's bad. I also have pain in my hip, elbow and hands. He said to have more blood tests and see the physio
Suesue246
in
Pernicious Anaemia Society
2 months ago
URSO and Fatigue
Question about URSO….is it really better to take your dose at two different times? I read that the liver works the bile through your body more while you are sleeping. I am much better at remembering by medication in the morning, as sometimes I am not home at dinner time. Is it ok to take it all at
Question about URSO….is it really better to take your dose at two different times? I read that the liver works the bile through your body more while you are sleeping. I am much better at remembering by medication in the morning, as sometimes I am not home at dinner time. Is it ok to take it all at
Gaspereaux
in
British Liver Trust
6 months ago
Fibroscan
Hi, I've posted asking this before, but unfortunately didn't get any response. I'm wondering if anyone can tell me where I can get a private Fibroscan? I'm in the UK. I have been referred to Hepatology due to the surgeon seeing "extensive fibrotic changes" of my liver during gallbladder surgery back
Hi, I've posted asking this before, but unfortunately didn't get any response. I'm wondering if anyone can tell me where I can get a private Fibroscan? I'm in the UK. I have been referred to Hepatology due to the surgeon seeing "extensive fibrotic changes" of my liver during gallbladder surgery back
Givemecoffee
in
British Liver Trust
6 months ago
Too much b12?
As a coeliac I don’t absorb b12 and after much stress with doctors I had the 2wks of loading doses and one every 3 mths with doctor. I pay for an injection in the other months and take Clean b12 tablets daily. As I thought your body can’t overdose I’ve been taking two b12 at night instead of one, and
As a coeliac I don’t absorb b12 and after much stress with doctors I had the 2wks of loading doses and one every 3 mths with doctor. I pay for an injection in the other months and take Clean b12 tablets daily. As I thought your body can’t overdose I’ve been taking two b12 at night instead of one, and
Palum
in
Pernicious Anaemia Society
2 months ago
Late diagnosis of asbestosis
My Dad is 96 and has had progressive lung disease for many years. He's a non-smoker and I always wondered about the cause. On 16 October this year he was referred to a respiratory consultant for the first time. She took a detailed work history (again, the first one to do so) and we realised just how
My Dad is 96 and has had progressive lung disease for many years. He's a non-smoker and I always wondered about the cause. On 16 October this year he was referred to a respiratory consultant for the first time. She took a detailed work history (again, the first one to do so) and we realised just how
tchouli
in
Lung Conditions Community Forum
10 months ago
Not PCa related but sounds like a very promising approach
When I read "advanced pancreatic cancer" and "overall disease control of 94%" in the same document...I feel like smiling.... https://ascopost.com/news/april-2024/advanced-pancreatic-cancer-oncolytic-virus-based-immunostimulatory-gene-therapy-plus-chemotherapy/
When I read "advanced pancreatic cancer" and "overall disease control of 94%" in the same document...I feel like smiling.... https://ascopost.com/news/april-2024/advanced-pancreatic-cancer-oncolytic-virus-based-immunostimulatory-gene-therapy-plus-chemotherapy/
Maxone73
in
Advanced Prostate Cancer
4 months ago
High-intensity Exercise Can Reverse Neurodegeneration in Parkinson’s Disease
In fact, after six months of exercise, the neurons actually had grown healthier and produced stronger dopamine signals. Dopamine is a chemical that helps brain cells communicate with each other. The researchers published their findings in npj Parkinson’s Disease on February 9. https://medicine.yale.edu
In fact, after six months of exercise, the neurons actually had grown healthier and produced stronger dopamine signals. Dopamine is a chemical that helps brain cells communicate with each other. The researchers published their findings in npj Parkinson’s Disease on February 9. https://medicine.yale.edu
Farooqji
in
Cure Parkinson's
6 months ago
Seronegative arthritis
Is it possible to be medically retired if you have seronegative arthritis and trigeminal neuralgia?
Is it possible to be medically retired if you have seronegative arthritis and trigeminal neuralgia?
PurpleDuckie
in
PMRGCAuk
2 months ago
The paradigm has shifted - castrate resistance.
It now appears that I’ve entered the land of castrate resistance and further ADT vacations are no longer in the plan. My T level recovered much more quickly during the last vacation than during previous vacations, and my PSA rose correspondingly. At 4 months my T level was 325 and my PSA was 4. Another
It now appears that I’ve entered the land of castrate resistance and further ADT vacations are no longer in the plan. My T level recovered much more quickly during the last vacation than during previous vacations, and my PSA rose correspondingly. At 4 months my T level was 325 and my PSA was 4. Another
fireandice123
in
Advanced Prostate Cancer
6 months ago
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