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REMINDER: NRAS Live
Join us on Wednesday 25th September at 7pm for a discussion on how NRAS and The Wren Project support those with autoimmune conditions. We will be joined by members of The Wren Project, a fantastic initiative that offers listening support to people living with autoimmune diseases throughout the UK.
Join us on Wednesday 25th September at 7pm for a discussion on how NRAS and The Wren Project support those with autoimmune conditions. We will be joined by members of The Wren Project, a fantastic initiative that offers listening support to people living with autoimmune diseases throughout the UK.
Aribah-NRAS
NRAS
in
NRAS
4 days ago
Lupus and that X chromosome: any expert geneticists out there?🤔
From the Lupus UK website: ”…[i]Many of the genes responsible for the functioning of the immune system are located on the X chromosome. As females have two X chromosomes, whilst men only have one, they are more likely to inherit gene mutations that cause immune dysfunction. It is also recognised that
From the Lupus UK website: ”…[i]Many of the genes responsible for the functioning of the immune system are located on the X chromosome. As females have two X chromosomes, whilst men only have one, they are more likely to inherit gene mutations that cause immune dysfunction. It is also recognised that
Betty909090
in
LUPUS UK
5 days ago
New to lupus
So I was diagnosed in July this year with lupus and I'm trying to learn how to live with it. My symptoms were so bad that I had to miss some days at work. Then the consultant gave me some medication that worked well on month one but now all my symptoms are coming back. Obviously they are (consultant)
So I was diagnosed in July this year with lupus and I'm trying to learn how to live with it. My symptoms were so bad that I had to miss some days at work. Then the consultant gave me some medication that worked well on month one but now all my symptoms are coming back. Obviously they are (consultant)
Mandino974
in
LUPUS UK
6 days ago
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Rituximab
I’m due to have my first Rituximab infusion in a few weeks, I got diagnosed with anti CCP Rheumatoid Arthritis 3 years ago and have yet to find the right treatment. Does anyone have any experience of this drug and how it made you feel? I’m ever hopeful this will be the one.
I’m due to have my first Rituximab infusion in a few weeks, I got diagnosed with anti CCP Rheumatoid Arthritis 3 years ago and have yet to find the right treatment. Does anyone have any experience of this drug and how it made you feel? I’m ever hopeful this will be the one.
SG58
in
NRAS
7 days ago
Coming down my steroids
hi , haven’t posted for a while. I have now after 2 years come down to 2 and a half milligrams per day having slowly reduced from 50 milligrams per day and I have found my rheumatoid arthritis is now getting worse especially in my hands. My rheumatologist has suggested I reduce only by half a milligram
hi , haven’t posted for a while. I have now after 2 years come down to 2 and a half milligrams per day having slowly reduced from 50 milligrams per day and I have found my rheumatoid arthritis is now getting worse especially in my hands. My rheumatologist has suggested I reduce only by half a milligram
Shaza123
in
PMRGCAuk
7 days ago
Upcoming Summit.....
Autoimmune Community Summit 2024 -- if you Google this there is information about registering and topics to be discussed. This is a very informative association to belong to get notifications of upcoming events as well updates on autoimmune diseases.
Autoimmune Community Summit 2024 -- if you Google this there is information about registering and topics to be discussed. This is a very informative association to belong to get notifications of upcoming events as well updates on autoimmune diseases.
DonnaBoll
Administrator
in
PBC Foundation
8 days ago
PMR or Rheumatoid Arthritis?
I have been treated for PMR and been on prednisone since July 2021. I have had 13 infusions of Actemra over the past year. I have had many ups and downs, including being weaned very slowly off prednisone and having to go back on it. Although there is no proof, I truly believe that having two shoulder
I have been treated for PMR and been on prednisone since July 2021. I have had 13 infusions of Actemra over the past year. I have had many ups and downs, including being weaned very slowly off prednisone and having to go back on it. Although there is no proof, I truly believe that having two shoulder
A77bruin
in
PMRGCAuk
8 days ago
Require a Lupus Specialist
Hello can anybody help. I am looking for a lupus specialist. Sick. Of having bits chopped out of my vagina and body. Please I am now desperate. I am look for the best specialist in UK. Any idea whom I could approach? Thnk. U
Hello can anybody help. I am looking for a lupus specialist. Sick. Of having bits chopped out of my vagina and body. Please I am now desperate. I am look for the best specialist in UK. Any idea whom I could approach? Thnk. U
Hurtingpains
in
LUPUS UK
11 days ago
Milk thistle
Good morning, I was just wondering if anyone has tried milk thistle to try and improve cirrhosis of the liver and to add bile salts to the body?
Good morning, I was just wondering if anyone has tried milk thistle to try and improve cirrhosis of the liver and to add bile salts to the body?
Hidden
in
British Liver Trust
5 months ago
Southampton Lupus Centre of Excellence
Has anyone had experience of Dr Davidson at this clinic? I have my first appointment here next week, any pointers or advice?
Has anyone had experience of Dr Davidson at this clinic? I have my first appointment here next week, any pointers or advice?
IsleofWight1
in
LUPUS UK
11 days ago
Not Eating
Hi Everyone, I've not been on here for a while but could do with some advice. My partner has been in hospital twice over the last 3 years with alcoholic hepatitis (the second time his liver was failing but the steroids seemed to work) and he was back to normal. Almost a year on from his last hospital
Hi Everyone, I've not been on here for a while but could do with some advice. My partner has been in hospital twice over the last 3 years with alcoholic hepatitis (the second time his liver was failing but the steroids seemed to work) and he was back to normal. Almost a year on from his last hospital
MissS_Zebra9
in
British Liver Trust
5 months ago
Can B12 injections help with tinnitus symptoms?
Hello! I wondered if anybody had any experience with tinnitus and b12 deficiency please? I have hashimotos/ underactive thyroid that is now being successfully treated with NDT medication. I have also recently been diagnosed with b12 deficiency and have started b12 injections every other day for 3 weeks
Hello! I wondered if anybody had any experience with tinnitus and b12 deficiency please? I have hashimotos/ underactive thyroid that is now being successfully treated with NDT medication. I have also recently been diagnosed with b12 deficiency and have started b12 injections every other day for 3 weeks
MissMonty
in
Pernicious Anaemia Society
12 days ago
T4 High TSH Normal
I feel so unwell and fatigued. I was on 120 Levothyroxine and was reduced to 100 my Dr said my T4 was high but my TSH was normal. I can't sleep at night but tired all the time. My face is puffy and my stomach distended I have had an underactive thyroid for 28 years and was told my thyroid was the size
I feel so unwell and fatigued. I was on 120 Levothyroxine and was reduced to 100 my Dr said my T4 was high but my TSH was normal. I can't sleep at night but tired all the time. My face is puffy and my stomach distended I have had an underactive thyroid for 28 years and was told my thyroid was the size
Culnacille
in
Thyroid UK
12 days ago
What is an Autoimmune disease?
What is an Autoimmune disease? Answered by Samantha Lebsock Pharm D https://youtu.be/eWsU7CiY5a4 For information on LDN, go to https://linktr.ee/ldnrt Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses We have a list
What is an Autoimmune disease? Answered by Samantha Lebsock Pharm D https://youtu.be/eWsU7CiY5a4 For information on LDN, go to https://linktr.ee/ldnrt Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses We have a list
Shewulf
Administrator
in
LDN Research Trust
12 days ago
Shingles or lupus rash ?
Hello I was wondering if anybody had any insight on what this rash could be? I am prone to shingles and on prophylactic antivirals as I am primary immunocompromised with my lupus.Suffering quite a bit of stress at the moment with a poorly dog so not sure if it's just a flare of lupus or what it is?
Hello I was wondering if anybody had any insight on what this rash could be? I am prone to shingles and on prophylactic antivirals as I am primary immunocompromised with my lupus.Suffering quite a bit of stress at the moment with a poorly dog so not sure if it's just a flare of lupus or what it is?
Ava0
in
LUPUS UK
13 days ago
Liver stent
Hi.im new here .my husband was diagnosed with cirrhosis Nash last year.. fluid gathers very quickly and every 3/4weeks he has it drained.doctor is talking about a liver stent.has anyone had this and had it been successful.thanks
Hi.im new here .my husband was diagnosed with cirrhosis Nash last year.. fluid gathers very quickly and every 3/4weeks he has it drained.doctor is talking about a liver stent.has anyone had this and had it been successful.thanks
Gweans
in
British Liver Trust
5 months ago
I feel like crying ...
Hi Guys I need cheering up please. As you know I was dx with PA by my GP in Oct 2022 with a B12 0f 106 ng/L. Vitamin D and folate were also rock bottom. I had lots of symptoms including neurological symptoms such as heart palpitations, pins and needles, visual disturbances, facial neuralgia, extreme
Hi Guys I need cheering up please. As you know I was dx with PA by my GP in Oct 2022 with a B12 0f 106 ng/L. Vitamin D and folate were also rock bottom. I had lots of symptoms including neurological symptoms such as heart palpitations, pins and needles, visual disturbances, facial neuralgia, extreme
Wwwdot
in
Pernicious Anaemia Society
14 days ago
Query of whether I have Pernicious Anaemia
I have been told by one Dr that I have Pernicious Anaemia as my B12 was low this year and last year. My ferritin was also low. I had been on a high dose of PPis for 4 years and intermittently for many years before that. Intrinsic factor this year was negative and when I had a gastroscopy last year
I have been told by one Dr that I have Pernicious Anaemia as my B12 was low this year and last year. My ferritin was also low. I had been on a high dose of PPis for 4 years and intermittently for many years before that. Intrinsic factor this year was negative and when I had a gastroscopy last year
Jacklover
in
Pernicious Anaemia Society
16 days ago
13. The Grain of Truth [Coeliac disease]
[i]
13. The Grain of Truth
[/i] [i]Uncharted with Hannah Fry[/i] [i]Amid the desperation of war-starved Netherlands a doctor finds a way of curing a group of gravely ill children. His finding challenges accepted medical wisdom, and provokes opposition from Catholics. But why had the rest of
[i]
13. The Grain of Truth
[/i] [i]Uncharted with Hannah Fry[/i] [i]Amid the desperation of war-starved Netherlands a doctor finds a way of curing a group of gravely ill children. His finding challenges accepted medical wisdom, and provokes opposition from Catholics. But why had the rest of
helvella
Thyroid UK
in
Thyroid UK
16 days ago
No diagnosis
Hi. I've been ill for a few years and twice had blood tests for Lupus but as all came back clear I'm not sure what I can ask the GP to try next. He is adamant that's as bloods clear there isn't Lupus.Is he correct?
Hi. I've been ill for a few years and twice had blood tests for Lupus but as all came back clear I'm not sure what I can ask the GP to try next. He is adamant that's as bloods clear there isn't Lupus.Is he correct?
Pastalasta
in
LUPUS UK
16 days ago
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