Experiences with

Interstitial lung disease (ILD)

Hi everyone hope your all well I have a question for those of you who suffer with scarring of the lungs .I saw my consultant yesterday and unfortunately my scaring has progressed further since my first scan in 2019 when I was diagnosed with ILD .He is putting me forward to a committee of lung specialist

Hi everyone, I was diagnosed with Interstitial lung disease in 2021 as a result of rheumatoid arthritis. My lung function has progressively deteriorated since. I saw the consultant this morning who has suggested I have a bronchoalveolar lavage.

Hi there, I've had scleroderma for just over 5 years now and have pulmonary hypertension and ILD (interstitial lung disease). Over the past few months my bowel habits have changed.

When I have read up on this antibody it has an association with interstitial lung disease (my husband has shortness of breath) and has a very poor prognosis especially in the first 6 months of diagnosis, however my husband is slowly improving after an extremely severe first flare up.

Could this be related to my diagnosis of Lupus, Sjogren's, MCTD, Interstitial lung disease, or even Mobitz I or II?

I have received a letter from my rheumatologist that he has reviewed all of the baseline diagnostic test for monitoring my Scleroderma and found out from the CT scan that I am showing early signs of ILD (Interstitial Lung Disease), I am on my mycophenolate and nifedipine for Raynaud's.

Could this be interstitial lung disease? My GP nor my rheumatologist have suggested this, but from my reading, it’s a possibility. I’m currently tapering prednisone for 40 mg.

Today I received a CT report that says I may have Interstitial Lung Disease. I have been researching to see the connection between PMR and that disease. The prognosis is not favorable. Has anyone else been diagnosed with this disease? Thanks for any help.

Good Evening, I have asthma and Interstitial Lung Disease (ILD). I use inhalers to manage my asthma; and ambulatory oxygen for my ILD. I am under Papworth Hospital for my ILD. Twice in recent months, I have been called by my surgery to have a COPD review.

Clinical manifestations is proximal muscle weakness, interstitial lung disease and a dermatitis (Mechanics Hands).

Clinical manifestations is proximal muscle weakness, interstitial lung disease and a dermatitis (Mechanics Hands).

My wife (66) has diffuse systemic scleroderma with interstitial lung disease/fibrosis plus Raynaud's and GERD. Diagnosed in January but we are sure she's had it 2 years..

Has anyone else been prescribed it for reasons other than interstitial lung disease?

Hi I have interstitial lung disease and have some lung removed due to lung cancer. However I do not need oxygen or inhaler(lung stats of 52 pev) and am generally well. However my rheumatologist has suggested that the cabin pressure might cause me an issue when flying.

I have interstitial lung disease and had a small part of lung removed due to lung cancer. My lung stats are 52 pev. I would like to fly short haul later in the year. My rheumatologist has suggested I may struggle with cabin pressure.

I was surprised to read that this medicine can cause interstitial lung disease such as pulmonary fibrosis. I don’t remember it being mentioned on the forum. Of course some diseases with stop you from communicating freely. Any comments? Jumbo4

Hi not been on here for a long time as I've had nothing to say ,but I've a question I was diagnosed with non specific interstitial lung pneumonitis /hypersensitivity spectrum interstitial lung disease in 2020 heavy scaring to both lungs my consultant was brilliant in the first 2 yrs scans breathing

Hi Thank you for letting us join the forum. My husband was diagnosed with NSCLC adenocarcinomo yesterday. We found the secondary’s in his bones first then had to search for the primary which has took a few weeks. He will apparently be offered immunotherapy then chemotherapy. We are still getting our

Hello, First post, not sure what to write really but I figure "hello" is a good start. I'm 59M. You never have to ask a Yorkshireman where he's from... 'cos he's already told you ;) I have lung cancer that has metastasised to my liver, just diagnosed last month. Had a bad cough in November (didn't

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