Experiences with

Interstitial lung disease (ILD)

Hi everyone hope your all well I have a question for those of you who suffer with scarring of the lungs .I saw my consultant yesterday and unfortunately my scaring has progressed further since my first scan in 2019 when I was diagnosed with ILD .He is putting me forward to a committee of lung specialist

Hi everyone, I was diagnosed with Interstitial lung disease in 2021 as a result of rheumatoid arthritis. My lung function has progressively deteriorated since. I saw the consultant this morning who has suggested I have a bronchoalveolar lavage.

When I have read up on this antibody it has an association with interstitial lung disease (my husband has shortness of breath) and has a very poor prognosis especially in the first 6 months of diagnosis, however my husband is slowly improving after an extremely severe first flare up.

Hi there, I've had scleroderma for just over 5 years now and have pulmonary hypertension and ILD (interstitial lung disease). Over the past few months my bowel habits have changed.

I have received a letter from my rheumatologist that he has reviewed all of the baseline diagnostic test for monitoring my Scleroderma and found out from the CT scan that I am showing early signs of ILD (Interstitial Lung Disease), I am on my mycophenolate and nifedipine for Raynaud's.

Could this be related to my diagnosis of Lupus, Sjogren's, MCTD, Interstitial lung disease, or even Mobitz I or II?

my back story is that I have a 17yr old daughter with Interstitial Lung Disease (CHild) and she is Autistic too. She is a wonderful, good natured and loving young lady, and enjoys the craic too!

Could this be interstitial lung disease? My GP nor my rheumatologist have suggested this, but from my reading, it’s a possibility. I’m currently tapering prednisone for 40 mg.

Today I received a CT report that says I may have Interstitial Lung Disease. I have been researching to see the connection between PMR and that disease. The prognosis is not favorable. Has anyone else been diagnosed with this disease? Thanks for any help.

Good Evening, I have asthma and Interstitial Lung Disease (ILD). I use inhalers to manage my asthma; and ambulatory oxygen for my ILD. I am under Papworth Hospital for my ILD. Twice in recent months, I have been called by my surgery to have a COPD review.

Clinical manifestations is proximal muscle weakness, interstitial lung disease and a dermatitis (Mechanics Hands).

My wife (66) has diffuse systemic scleroderma with interstitial lung disease/fibrosis plus Raynaud's and GERD. Diagnosed in January but we are sure she's had it 2 years..

Clinical manifestations is proximal muscle weakness, interstitial lung disease and a dermatitis (Mechanics Hands).

Has anyone else been prescribed it for reasons other than interstitial lung disease?

Hi I have interstitial lung disease and have some lung removed due to lung cancer. However I do not need oxygen or inhaler(lung stats of 52 pev) and am generally well. However my rheumatologist has suggested that the cabin pressure might cause me an issue when flying.

I have interstitial lung disease and had a small part of lung removed due to lung cancer. My lung stats are 52 pev. I would like to fly short haul later in the year. My rheumatologist has suggested I may struggle with cabin pressure.

Hi not been on here for a long time as I've had nothing to say ,but I've a question I was diagnosed with non specific interstitial lung pneumonitis /hypersensitivity spectrum interstitial lung disease in 2020 heavy scaring to both lungs my consultant was brilliant in the first 2 yrs scans breathing

I need to know whether to continue taking algae-based calcium, with Vit. D and K for osteopenia. I was diagnosed a few years ago. I can't get much calcium from my diet because I can't stand milk or yogurt at all. I do eat a fairly healthy diet though still working on it. I do exercise but less than I

We are looking for anyone who would be willing to share their experience of the NTRK fusion positive mutation (Neurotrophic tropomyosin receptor kinase ) who are living within the UK. As this is a rare mutation, where less than 1% have this; it is important to capture how this directly affects the person

Hi I now have Bronchiectasis on the back of Pulmonary Fibrosis. Consequently I’ve had chest infections this winter which I haven’t really had before. I have a consultation coming up with my hospital consultant in a couple of weeks & knowing there are many on here with greater experience just wondering