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Steroid use in Glioblastoma Battle
Good Morning Everyone. I was just wondering what kind of steroid doses people are on for countering the swelling on the brain around the tumour. My dad (a 78 year old diagnosed in October) had to stop radiotherapy 5 sessions into a course of 15 in January after an initially successful debulking. We cut
Good Morning Everyone. I was just wondering what kind of steroid doses people are on for countering the swelling on the brain around the tumour. My dad (a 78 year old diagnosed in October) had to stop radiotherapy 5 sessions into a course of 15 in January after an initially successful debulking. We cut
Hast23388
in
Glioblastoma Support
2 years ago
Any strategies for minimizing side effects of IMRT Radiation or making therapy more effective?
Starting IMRT radiation in 2 weeks. VMAT 20 sessions
Starting IMRT radiation in 2 weeks. VMAT 20 sessions
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Prostap (Lupron) Effects
Diagnosed 11 years ago, I am T3b non-metastatic and have had one month of Bicalutamide and six months of Prostap (Lupron). Indeed my PSA has dropped dramatically and my testosterone is currently not in production mode. This is common treatment prior to IMRT. The effects have been quite severe. Apart
Diagnosed 11 years ago, I am T3b non-metastatic and have had one month of Bicalutamide and six months of Prostap (Lupron). Indeed my PSA has dropped dramatically and my testosterone is currently not in production mode. This is common treatment prior to IMRT. The effects have been quite severe. Apart
Jon1923
in
Advanced Prostate Cancer
2 years ago
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Healthy Foods To Eat while doing IMRT
I am in the second week of IMRT and my body is going nuts with bloating and constipation. Been taking Simeticona and and Movicol(sachets thatcontain macrogol) as well as a change of diet (no fried foods , no cruciferous vegetables ,alcohol) sine a week before treatment and i am constantly constipated
I am in the second week of IMRT and my body is going nuts with bloating and constipation. Been taking Simeticona and and Movicol(sachets thatcontain macrogol) as well as a change of diet (no fried foods , no cruciferous vegetables ,alcohol) sine a week before treatment and i am constantly constipated
Mischa1111111
in
Advanced Prostate Cancer
2 years ago
Other experiences of late stage glioblastoma
My husband of thirty years who is a little older than me and in his mid 60s has glioblastoma. He began hospice and palliative care at home in mid-October and they didn’t think he would make Christmas. He has done really well but I am exhausted. The cancer is definitely taking hold of him now. He sleeps
My husband of thirty years who is a little older than me and in his mid 60s has glioblastoma. He began hospice and palliative care at home in mid-October and they didn’t think he would make Christmas. He has done really well but I am exhausted. The cancer is definitely taking hold of him now. He sleeps
Endstage
in
Glioblastoma Support
2 years ago
Renal Biopsy Gone Wrong
After a week in
intensive
care
, and 5 blood transfusions, I am now home recovering. I am still in incredible pain and it appears that the hematoma has to break up and go on its own or there is a chance of reopening the wound. All of this for a simple 3 hour and back to normal procedure.
After a week in
intensive
care
, and 5 blood transfusions, I am now home recovering. I am still in incredible pain and it appears that the hematoma has to break up and go on its own or there is a chance of reopening the wound. All of this for a simple 3 hour and back to normal procedure.
MSWwv
in
Kidney Disease
2 years ago
Clarification on the timing of ADT
Just started my IMRT treatment. Beginning with the 2nd RT,I started taking Bicalatumida 50 mg for 10 days and then i will get the injection of Decapeptyl 22.5 mg and will continue for taking evry 6 months for a total of 18 months. I am what would be considered in the states intermediate unfavorablewith
Just started my IMRT treatment. Beginning with the 2nd RT,I started taking Bicalatumida 50 mg for 10 days and then i will get the injection of Decapeptyl 22.5 mg and will continue for taking evry 6 months for a total of 18 months. I am what would be considered in the states intermediate unfavorablewith
Mischa1111111
in
Advanced Prostate Cancer
2 years ago
I got a new heart!
My recovery didn't go entirely smoothly and I experienced acute rejection very early on, meaning I spent four weeks in
intensive
care
and ten weeks in hospital overall - just got home last week.
My recovery didn't go entirely smoothly and I experienced acute rejection very early on, meaning I spent four weeks in
intensive
care
and ten weeks in hospital overall - just got home last week.
laura_dropstitch
Heart Star
in
British Heart Foundation
2 years ago
Living with Endo.
I was in
intensive
care
for three days. I have had eight more surgeries since then, I have also had confirmation that I have stage 4 endometriosis between my vagina and anus, I think they call this the Douglass Pouch.
I was in
intensive
care
for three days. I have had eight more surgeries since then, I have also had confirmation that I have stage 4 endometriosis between my vagina and anus, I think they call this the Douglass Pouch.
Hidden
in
Endometriosis UK
2 years ago
Sensitive post- fertility journey finally over family completed ❤️
After one night in
intensive
care
unit she was allowed to join me in my room in Neonatal ward. We were discharged today.
After one night in
intensive
care
unit she was allowed to join me in my room in Neonatal ward. We were discharged today.
Jess1981
in
Fertility Network UK
2 years ago
Worry wart
Good Morning All , I started my Eligard ( 6 month )on Dec.9 2021, Zytiga ,(250mg ) Prednisone ( 5 mg) on a low fat breakfast on Feb. 1 2022. My Testosterone is at 9ng/dl . My PSA was at 4.19 on Dec. 2021 . My primary dx was gleason 4+3 downgraded to 3+4 by John Hopkins . I had Sbrt , 5 sessions on 2016
Good Morning All , I started my Eligard ( 6 month )on Dec.9 2021, Zytiga ,(250mg ) Prednisone ( 5 mg) on a low fat breakfast on Feb. 1 2022. My Testosterone is at 9ng/dl . My PSA was at 4.19 on Dec. 2021 . My primary dx was gleason 4+3 downgraded to 3+4 by John Hopkins . I had Sbrt , 5 sessions on 2016
reconjj
in
The Roy Castle Lung Cancer Foundation
2 years ago
Start of 36 mo of ADT?
I started on 36 months of ADT in Feb 2020 (Neoadjuvant) followed by 44 sessions of IMRT from May 2020 to July 2020 with Continuous ADT from Feb to now. When does the 36 months start from? From the first injection in Feb or from the finish of IMRT in July. I’ve found conflicting answers on line.
I started on 36 months of ADT in Feb 2020 (Neoadjuvant) followed by 44 sessions of IMRT from May 2020 to July 2020 with Continuous ADT from Feb to now. When does the 36 months start from? From the first injection in Feb or from the finish of IMRT in July. I’ve found conflicting answers on line.
Dracus
in
Prostate Cancer Network
2 years ago
Frustrated with hospital
He was then given a further appointment after contacting secretary at the end of March as was extremely worried about everything & what was the future going forward I also had several questions about some things leading up to his ending up in
intensive
care
.
He was then given a further appointment after contacting secretary at the end of March as was extremely worried about everything & what was the future going forward I also had several questions about some things leading up to his ending up in
intensive
care
.
Leia01
in
British Liver Trust
2 years ago
update....
hi all. has been a week since my initial post. thanks again for all the helpful and supportive ideas. i now have 2 weeks until my 'in person' appt with my onc. she is near impossible to get on the phone. but i will definitely devote my appt to discussing palliative care. and the new mets to my
hi all. has been a week since my initial post. thanks again for all the helpful and supportive ideas. i now have 2 weeks until my 'in person' appt with my onc. she is near impossible to get on the phone. but i will definitely devote my appt to discussing palliative care. and the new mets to my
kokopelli2017
in
SHARE Metastatic Breast Cancer
2 years ago
Confursed about the Cure?
I am writing from Spain with universal health care . I received a diagnosis and second opinion from Uiversity of Navara for curative treatment and of course one favored RP . The first opinion IMRT + 18months ADT. I am scheduled for RD (dont know when)but on the report I see possible T3? That to
I am writing from Spain with universal health care . I received a diagnosis and second opinion from Uiversity of Navara for curative treatment and of course one favored RP . The first opinion IMRT + 18months ADT. I am scheduled for RD (dont know when)but on the report I see possible T3? That to
Mischa1111111
in
Prostate Cancer Network
2 years ago
Trying to cope…
In October 2021, my dad was diagnosed with a terminal Glioblastoma. In the same week, we also found out my mum had bowel cancer. Both underwent a operation. Mum is now hopefully all clear and hasn’t needed any chemo. Dad hasn’t been as lucky and now lives in a care home, receiving palliative care. I’
In October 2021, my dad was diagnosed with a terminal Glioblastoma. In the same week, we also found out my mum had bowel cancer. Both underwent a operation. Mum is now hopefully all clear and hasn’t needed any chemo. Dad hasn’t been as lucky and now lives in a care home, receiving palliative care. I’
Shanice1997
in
Glioblastoma Support
2 years ago
Severe back pain, update
I have Lupus plus Fibromyalgia, head tumour, pituitary gland tumour, getting over cancer etc and due for
intensive
care
afterwards. The anesthetist laughed at my woeful pain killers, I haven’t had a proper nights sleep for years due to the pain.
I have Lupus plus Fibromyalgia, head tumour, pituitary gland tumour, getting over cancer etc and due for
intensive
care
afterwards. The anesthetist laughed at my woeful pain killers, I haven’t had a proper nights sleep for years due to the pain.
Iona467
in
Pain Concern
3 years ago
Intensive Care for 102 days
https://www.theguardian.com/lifeandstyle/2021/nov/17/a-moment-that-changed-me-after-102-days-in-
intensive
-
care
-i-finally-came-home This is an interesting read.
https://www.theguardian.com/lifeandstyle/2021/nov/17/a-moment-that-changed-me-after-102-days-in-
intensive
-
care
-i-finally-came-home This is an interesting read.
Copse77
in
ICUsteps
3 years ago
thanks to all....and curious about palliative care?
thanks so much to all of you for your thoughtful and caring replies. you are an amazing group of women, but i already knew that! yesterday i gave an overview...a lengthy one at that...lol. today i will be more specific.... the deterioration of my spine is progressing rapidly the past couple months.
thanks so much to all of you for your thoughtful and caring replies. you are an amazing group of women, but i already knew that! yesterday i gave an overview...a lengthy one at that...lol. today i will be more specific.... the deterioration of my spine is progressing rapidly the past couple months.
kokopelli2017
in
SHARE Metastatic Breast Cancer
2 years ago
Blood in stool after RT of prostate and Pelvis
I asked same question few months ago. I had IMRT in nov 2019 on prostate and pelvis , seminal vesicules: Prostate 60 GY in 20 fractions and pelvis 48 GY boost. Technique IGRT dyamic arctherapy... Starting January 2022, I started having occasional red blood spots on toilet paper. I have no constipation
I asked same question few months ago. I had IMRT in nov 2019 on prostate and pelvis , seminal vesicules: Prostate 60 GY in 20 fractions and pelvis 48 GY boost. Technique IGRT dyamic arctherapy... Starting January 2022, I started having occasional red blood spots on toilet paper. I have no constipation
Karmaji
in
Advanced Prostate Cancer
2 years ago
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