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Being Mortal Book by Atul Gawande
I want to thank those folks who suggested I read "Being Mortal" especially chapters 5-8. We are meeting with my Dad's oncologist on July 5 and his palliative care doctor on July 8th and I plan to use a lot of what I read during this conversation. My father's pain has returned with a vengeance since June
I want to thank those folks who suggested I read "Being Mortal" especially chapters 5-8. We are meeting with my Dad's oncologist on July 5 and his palliative care doctor on July 8th and I plan to use a lot of what I read during this conversation. My father's pain has returned with a vengeance since June
lgutman
in
Advanced Prostate Cancer
29 days ago
Overcoming Pneumonia Susceptibility
I flunked my first docetaxel infusion in late 2022 and a week later developed pneumonia resulting in me carried by ambulance to the hospital. As I said in my bio, I was told that another six hours without intervention, I would have been lost. I spent four days there with "tank car" loads of vancomycin
I flunked my first docetaxel infusion in late 2022 and a week later developed pneumonia resulting in me carried by ambulance to the hospital. As I said in my bio, I was told that another six hours without intervention, I would have been lost. I spent four days there with "tank car" loads of vancomycin
TuffNuttoCrack
in
Advanced Prostate Cancer
1 month ago
A catchup on my hospital outcome
Hi everyone as promised a catch up on my visit to hospital on Wednesday. Unfortunately the biopsy was not clear it is confirmed I have adenocarcenoma of the lung. To be referred to oncology for radiotheraphy , if this makes me ill will just be left with palliative care treatment. So have to have
Hi everyone as promised a catch up on my visit to hospital on Wednesday. Unfortunately the biopsy was not clear it is confirmed I have adenocarcenoma of the lung. To be referred to oncology for radiotheraphy , if this makes me ill will just be left with palliative care treatment. So have to have
katieoxo60
in
Lung Conditions Community Forum
2 months ago
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Specialist appointment
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had
intensive
care
for sepsis and lmy liver.
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had
intensive
care
for sepsis and lmy liver.
Oasisman
in
British Liver Trust
6 months ago
Offered palliative care only
Dear all, Writing to ask if anyone may have an answer to this: My mum 76 years old who was very active and healthy, currently living in Chile deteriorated very quickly while I was visiting last Christmas 2023. Left body side weak so after an emergency visit to neurologist and imaging got discovered
Dear all, Writing to ask if anyone may have an answer to this: My mum 76 years old who was very active and healthy, currently living in Chile deteriorated very quickly while I was visiting last Christmas 2023. Left body side weak so after an emergency visit to neurologist and imaging got discovered
NJRV
in
Glioblastoma Support
2 months ago
IBS/Covid/Stress - Help!
Hi, I've just come across this forum and I'm hoping that you kind folks can give me a virtual hug and some kind words. To sum it up as briefly as possible, I am 48 and have had IBS for 28 years. Its always there in the background but I used to get serious flare ups that lasted for months if there was
Hi, I've just come across this forum and I'm hoping that you kind folks can give me a virtual hug and some kind words. To sum it up as briefly as possible, I am 48 and have had IBS for 28 years. Its always there in the background but I used to get serious flare ups that lasted for months if there was
MidnightReader
in
IBS Network
2 months ago
My Cancer Journey Repost
It's time for a repost of my two-part cancer journey diary. Some "starting the journey readers" might find it helpful. Originally posted as two Health Unlocked "replies" - maybe I should make them an actual full "post". So I am pleased to report that
other than fatigue, I feel sort of normal right
It's time for a repost of my two-part cancer journey diary. Some "starting the journey readers" might find it helpful. Originally posted as two Health Unlocked "replies" - maybe I should make them an actual full "post". So I am pleased to report that
other than fatigue, I feel sort of normal right
JohnInTheMiddle
in
Advanced Prostate Cancer
2 months ago
Early detection is a must!
Once I came around and needed to be moved to a less
intensive
care
I was told there was no bed for me, I returned home and had to return twice a day for iv antibiotics. I was lucky and after a couple of days a district nurse became available to complete the antibiotics.
Once I came around and needed to be moved to a less
intensive
care
I was told there was no bed for me, I returned home and had to return twice a day for iv antibiotics. I was lucky and after a couple of days a district nurse became available to complete the antibiotics.
Anniesparkles
in
Meningitis Now
3 months ago
Experience/Opinions on: Pembrolizumab + Lenvatinib for NEPC/SCPC
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
skiingfiend
in
Advanced Prostate Cancer
2 months ago
refusing treatment how fast do people decline?
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
Bluescarf123
in
British Liver Trust
2 months ago
My story
My beautiful sister in law has after a long journey been diagnosed with PSP initially a Parkinson diagnosis a year ago after many falls, but in February a consultant neurologist confirmed this awful disease. She is now at the Palliative care stage. It's heart breaking watching her decline.
My beautiful sister in law has after a long journey been diagnosed with PSP initially a Parkinson diagnosis a year ago after many falls, but in February a consultant neurologist confirmed this awful disease. She is now at the Palliative care stage. It's heart breaking watching her decline.
Flowers2024
in
PSP Association
3 months ago
Fibro symptom
At times everything is so overwhelming before becoming sick I studied for years at university and the working in
intensive
care
unit and now half of the time I barely know what day it is. Does anyone else feel like this ? Gentle hugs to you all
At times everything is so overwhelming before becoming sick I studied for years at university and the working in
intensive
care
unit and now half of the time I barely know what day it is. Does anyone else feel like this ? Gentle hugs to you all
Jillgib
in
Fibromyalgia Action UK
8 months ago
Surviving cancer: some options for you to consider
I just want to share with you all, that I was diagnosed with a T3 (5cm) Tumour called Adenocarcinoma, situated in the junction of the lower oesophagus and upper G. I (stomach) in January. Last year I kept complaining of : chest pains, sore tongue and throat, thick mucus and not being able to gain weight
I just want to share with you all, that I was diagnosed with a T3 (5cm) Tumour called Adenocarcinoma, situated in the junction of the lower oesophagus and upper G. I (stomach) in January. Last year I kept complaining of : chest pains, sore tongue and throat, thick mucus and not being able to gain weight
Artiquety
in
Oesophageal & Gastric Cancer
3 months ago
update from Ruffabug (End of life plan)
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
Ruffabug
in
Restless Legs Syndrome
3 months ago
Just saying hello as a new member
I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low risk) breast cancer back in 2014 and underwent surgery for a lumpectomy and a subsequent regimen of 6 1/2 weeks of m-f radiation. I thought all
I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low risk) breast cancer back in 2014 and underwent surgery for a lumpectomy and a subsequent regimen of 6 1/2 weeks of m-f radiation. I thought all
CatLoverinthe206
in
SHARE Metastatic Breast Cancer
3 months ago
Palliative care
We have a home visit booked for this afternoon for a palliative care plan to be put together. Does anyone have any words of wisdom or tips for us please? Thank you in advance x
We have a home visit booked for this afternoon for a palliative care plan to be put together. Does anyone have any words of wisdom or tips for us please? Thank you in advance x
Italiansunsets
in
PSP Association
3 months ago
Hiccups
What medication can be used to cure persistent hiccups? Patient is not mobile and incontinent. No idea when death may occur. Or how. Hiccups are making him vomit. Wits end and hardly any sleep trying to cope. Palliative care in day for washing and pad changes. District nurse, when rarely tracked down
What medication can be used to cure persistent hiccups? Patient is not mobile and incontinent. No idea when death may occur. Or how. Hiccups are making him vomit. Wits end and hardly any sleep trying to cope. Palliative care in day for washing and pad changes. District nurse, when rarely tracked down
Fred12344
in
British Liver Trust
4 months ago
I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Barnclown
in
Restless Legs Syndrome
4 months ago
Fear of pooing during surgery
Will take immodium before op and wear tenalady but expected to go to
intensive
care
after so won't be in control Anyone been through the same and any advice? Thankyou for reading Honey x
Will take immodium before op and wear tenalady but expected to go to
intensive
care
after so won't be in control Anyone been through the same and any advice? Thankyou for reading Honey x
honey1958
in
IBS Network
10 months ago
hypothyroidism+long covid +immune d/o +breast cancer
They kept me alive with T3 in
intensive
care
for two weeks. I haven’t the slightest idea how much they gave me. Clearly, I need more than I have been giving myself. I am wondering about what I should do to improve my cellular function and immune response with T3.
They kept me alive with T3 in
intensive
care
for two weeks. I haven’t the slightest idea how much they gave me. Clearly, I need more than I have been giving myself. I am wondering about what I should do to improve my cellular function and immune response with T3.
BlueGreenWordyDoc
in
Thyroid UK
4 months ago
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