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What is palliative care and how can it help you?
Listen to Dr. Jared Weiss, Lung Cancer Section Chief at Lineberger Comprehensive Cancer Center, explain palliative care and why it should be started as soon as you are diagnosed with lung cancer. https://vimeo.com/745625648
Listen to Dr. Jared Weiss, Lung Cancer Section Chief at Lineberger Comprehensive Cancer Center, explain palliative care and why it should be started as soon as you are diagnosed with lung cancer. https://vimeo.com/745625648
AmyKamp
Partner
in
Small Cell Lung Cancer Support
2 years ago
Radiation and Large Median Lobe
I went to my first Urologist appointment because of urinary problems. A DRE discovered a lump that was diagnosed as Gleason 7 (3+4). It was also discovered that I had a large median lobe that was likely the cause of my slow stream and urgency. There was a discussion between my Urologist (wanted to
I went to my first Urologist appointment because of urinary problems. A DRE discovered a lump that was diagnosed as Gleason 7 (3+4). It was also discovered that I had a large median lobe that was likely the cause of my slow stream and urgency. There was a discussion between my Urologist (wanted to
BanjoPicker
in
Prostate Cancer Network
2 years ago
First Post
I have been reading everything I can here, but still feel a little terminology and technically lacking. What would be helpful in helping new members is very very basic terms until they get up to speed. I have several questions. I am gleason 8, de novo, lymph node involvement in pelvic region, and one
I have been reading everything I can here, but still feel a little terminology and technically lacking. What would be helpful in helping new members is very very basic terms until they get up to speed. I have several questions. I am gleason 8, de novo, lymph node involvement in pelvic region, and one
Sam2346
in
Advanced Prostate Cancer
2 years ago
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Neanderthal DNA on Chromosome 12 Protective against Covid 19
The relative risk of needing
intensive
care
is reduced by ∼22% per copy of the Neandertal haplotype (under the rare disease assumption, odds ratio [OR] = 0.78, 95% CI 0.71 to 0.85).
The relative risk of needing
intensive
care
is reduced by ∼22% per copy of the Neandertal haplotype (under the rare disease assumption, odds ratio [OR] = 0.78, 95% CI 0.71 to 0.85).
Palmetto
in
CLL Support
2 years ago
Podcast discussing contributing factors to autoimmune conditions
Hi everyone, I was listening to this episode by Dr Rangan Chatterjee - who was speaking to Dr Gabor Maté about trauma, illness and healing - and I thought it was really interesting. In particular, later on in the programme, they were talking about autoimmune conditions and some of the contributing factors
Hi everyone, I was listening to this episode by Dr Rangan Chatterjee - who was speaking to Dr Gabor Maté about trauma, illness and healing - and I thought it was really interesting. In particular, later on in the programme, they were talking about autoimmune conditions and some of the contributing factors
JammieDodger3
in
NRAS
2 years ago
IMRT WITHOUT SPACEOAR PROTECTION (EPE) WORRIED ABOUT RECTUM PROBLEMS (PROCTITIS) & IMRT (20x,28x,???) vs SBRT
I am going to have to have IMRT for 20 treatments at UCLA as opposed to the 5 Sbrt treatments as the EPE on reread on my Biopsy identified the extracapsular extension. My Ro thinks that: Not to have spaceoar as it may trap the Extracapsular extension microscopic cancer cells . IMRT has more data than
I am going to have to have IMRT for 20 treatments at UCLA as opposed to the 5 Sbrt treatments as the EPE on reread on my Biopsy identified the extracapsular extension. My Ro thinks that: Not to have spaceoar as it may trap the Extracapsular extension microscopic cancer cells . IMRT has more data than
JWS13
in
Prostate Cancer Network
2 years ago
Father’s MO now recommending adding Zytiga
Hi all, my dad is nearly three years from diagnosis of Gleason 9 with evidence of spread to local lymph nodes (see profile). Has had IMRT concurrent with 3 years of lupron. Latest PSA 0.03, <0.02 6 months prior. Original plan from MO was to do Lupron for 3 years which would end 2/23. His recent appointment
Hi all, my dad is nearly three years from diagnosis of Gleason 9 with evidence of spread to local lymph nodes (see profile). Has had IMRT concurrent with 3 years of lupron. Latest PSA 0.03, <0.02 6 months prior. Original plan from MO was to do Lupron for 3 years which would end 2/23. His recent appointment
mooman80
in
Advanced Prostate Cancer
2 years ago
New Member. Like to know , explore, LCHF diet for vegetarian
Read other posts and explore receipes
Read other posts and explore receipes
Skinnyblue
in
Low-Carb High-Fat (LCHF)
1 year ago
Radiation a second time? Recurrent PC
I recently had a PSMA scan done that showed my recurrence is in the prostate and three Iliac nodes ( none enlarged). I had IMRT done 17 years ago, my question is anyone familiar with doing a targeted course of radiation a second time? I will be doing Provenge after the first of the year then researching
I recently had a PSMA scan done that showed my recurrence is in the prostate and three Iliac nodes ( none enlarged). I had IMRT done 17 years ago, my question is anyone familiar with doing a targeted course of radiation a second time? I will be doing Provenge after the first of the year then researching
wat380bjw
in
Advanced Prostate Cancer
2 years ago
Stuck between deciding on IMRT CONDENSED and SBRT with 4 months ORGOVXY- Have Jan 12th date to make decision for UCLA (meet with Dr. Kishan)
I will give you the facts as I know them and who recommends each therapy:
1. I live near UCLA so convenience is not a factor ,however 20 IMRT treatments is more than 5 SBRT Treatments.
2.
Dr. Howard Sandler, (Cedars -Sinai) -RO,
Dr. Rana McKAY
-
UCSD -MO ,
Dr.
I will give you the facts as I know them and who recommends each therapy:
1. I live near UCLA so convenience is not a factor ,however 20 IMRT treatments is more than 5 SBRT Treatments.
2.
Dr. Howard Sandler, (Cedars -Sinai) -RO,
Dr. Rana McKAY
-
UCSD -MO ,
Dr.
JWS13
in
Prostate Cancer Network
2 years ago
IMRT CONDENSED -4 Months ADT VS SBRT -4 Months ADT
The finding of the ECE after review by MSK increased my cancer to higher risk by my RO's. They are split , one recommending IMRT with 4 months rather than SBRT alone. The other recommending SBRT with 4 months ADT.
RO says their is more long term data with IMRT Condensed (20 treatments)
The finding of the ECE after review by MSK increased my cancer to higher risk by my RO's. They are split , one recommending IMRT with 4 months rather than SBRT alone. The other recommending SBRT with 4 months ADT.
RO says their is more long term data with IMRT Condensed (20 treatments)
JWS13
in
Prostate Cancer Network
2 years ago
Sacrum tumors grown after IMRT.
This is the wife. He has advanced PC with mets to bones, had Orch last year and been stable until Feb 22. All other bone mets still stable. Recently went from castrate sensitive to castrate resistant. Finished 5 days IMRT Nov 11. Sacrum tumors has actually grown according to scans. RO said on
This is the wife. He has advanced PC with mets to bones, had Orch last year and been stable until Feb 22. All other bone mets still stable. Recently went from castrate sensitive to castrate resistant. Finished 5 days IMRT Nov 11. Sacrum tumors has actually grown according to scans. RO said on
Pops78
in
Advanced Prostate Cancer
2 years ago
ECE and CRIBRIFORM FOUND IN PATH REVIEW OF MSK BIOPSY BY UCSF
I am scheduled for SBRT at UCLA for 1/12/ 2023. However , UCSF did a path review of MSK's Biopsy report, and indicated that UCSF found additionally : 1
. the presence of "expansile cribriform subtype"
2. the "possible identification of extracapsular extension" described below:
I am scheduled for SBRT at UCLA for 1/12/ 2023. However , UCSF did a path review of MSK's Biopsy report, and indicated that UCSF found additionally : 1
. the presence of "expansile cribriform subtype"
2. the "possible identification of extracapsular extension" described below:
JWS13
in
Prostate Cancer Network
2 years ago
Proctitis from Radiation
I had 27 sessions of IMRT in 2019 for prostate cancer. Even though I had the SpaceOAR procedure, I believe I have some rectal damage. Every now and then when I wipe after a bowel movement, there will be a bit of raw blood. I did have hemorrhoid surgery in 2008 but didn't see any blood through the years
I had 27 sessions of IMRT in 2019 for prostate cancer. Even though I had the SpaceOAR procedure, I believe I have some rectal damage. Every now and then when I wipe after a bowel movement, there will be a bit of raw blood. I did have hemorrhoid surgery in 2008 but didn't see any blood through the years
Hidden
in
Prostate Cancer Network
2 years ago
Probiotics for Radiation Associated GI Side Effects ?
I’m on round 4 / 28 of IMRT to my prostate, pelvic lymph nodes and right hip. Things are generally going well except for some mild nausea and abdominal cramping. Some have suggested taking probiotics. I’m not a yogurt fan so don’t want to try that. Other suggestions for brands I might try? TIA
I’m on round 4 / 28 of IMRT to my prostate, pelvic lymph nodes and right hip. Things are generally going well except for some mild nausea and abdominal cramping. Some have suggested taking probiotics. I’m not a yogurt fan so don’t want to try that. Other suggestions for brands I might try? TIA
AlvinSD
in
Advanced Prostate Cancer
2 years ago
Understanding Palliative Care
I received a email today: There is a lot of confusion when it comes to palliative care.
Many people equate the term palliative care with hospice
, but the two terms are not interchangeable. Palliative care is a medical approach that can be applied at any stage of disease – even at the time of
I received a email today: There is a lot of confusion when it comes to palliative care.
Many people equate the term palliative care with hospice
, but the two terms are not interchangeable. Palliative care is a medical approach that can be applied at any stage of disease – even at the time of
Gcf51
in
Cure Parkinson's
2 years ago
Neuro-palliative care in PD. This will help late stagers expecially.
this is my neuro mvmnt dr. type/copy paste this below in u-tube search as this is blocked on this site....hang tough, be your own dr, because noone else will...or can... Palliative Care for Individuals with Parkinson’s Disease: Podcast with Benzi Kluger
this is my neuro mvmnt dr. type/copy paste this below in u-tube search as this is blocked on this site....hang tough, be your own dr, because noone else will...or can... Palliative Care for Individuals with Parkinson’s Disease: Podcast with Benzi Kluger
beehive23
in
Cure Parkinson's
2 years ago
Any Miracles out there ?
Hello , Christmas time around the corner . Anyone here have similar to my cancer . Oligo-metatastic to 1 pelvic lymph node . Had 3 fractions SBRT to the tumor , then 25 imrt to the entire pelvic field . . Tall Allen sent me a link in the past that there is hope for a cure in this situation . I would
Hello , Christmas time around the corner . Anyone here have similar to my cancer . Oligo-metatastic to 1 pelvic lymph node . Had 3 fractions SBRT to the tumor , then 25 imrt to the entire pelvic field . . Tall Allen sent me a link in the past that there is hope for a cure in this situation . I would
reconjj
in
Advanced Prostate Cancer
2 years ago
Dad has lung cancer
My dads diagnosed stage 3 today and said he wouldn’t be able to have treatment as chemo would make him really ill and surgery Isn’t an option due to being 7cm and in lymph nodes. I think I sort of expected he wouldn’t be ok for treatment as he is only 7.5 stone and has severe spine curvature, osteoporosis
My dads diagnosed stage 3 today and said he wouldn’t be able to have treatment as chemo would make him really ill and surgery Isn’t an option due to being 7cm and in lymph nodes. I think I sort of expected he wouldn’t be ok for treatment as he is only 7.5 stone and has severe spine curvature, osteoporosis
Smersh
in
The Roy Castle Lung Cancer Foundation
2 years ago
ICU intensive care/Covid and Osteoporosis
Hello, this is a bit of a left field one, and it has come as a complete shock, but on top of all my other post-covid pneumonitis debilitations I have now been diagnosed with osteoporosis. It seems some of the bones in my spine are not what they should be and are pinching nerves, and this is contributing
Hello, this is a bit of a left field one, and it has come as a complete shock, but on top of all my other post-covid pneumonitis debilitations I have now been diagnosed with osteoporosis. It seems some of the bones in my spine are not what they should be and are pinching nerves, and this is contributing
Gooddaysunshine
in
ICUsteps
2 years ago
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