Which Treatment

[MyCheesecake]

Hi,,I'm 67 and have been diagnosed with Chronic Pancreatitis since 2011,but had symptoms since a child. It's chronic inflammation of the pancreas causing calcium deposits, fibrosing of the pancreas tissue which damages the tissue &nerve networks which causes constant pain for 75% of people with CP. It's also caused pancreas Exocrine Insufficiency, the enzymes it makes to breakdown & metabolize food so I have to take pancreas enzymes every time I eat, but even then there's malabsorption so don't get all the nutrients needed. It's a progressive uncureable degenerative rare disease that's causes constant physical pain& mental due to the ignorance of the disease by almost all Drs, even GIs. But now it's caused complications, I have calcium deposits through out my body, in my arteries, kidneys & widespread inflammation. I had a cervical fusion in 2011 &was told to take high amounts of calcium &d3. Stopped the calcium when I got a kidney full of stones, but then I had toxic levels of d, so stopped taking d. Found out if you don't take d with k2 it won't stick to the bone but float around in the blood. So after finding calcium in my arteries started taking k complex. But during that my Chronic Pancreatitis progressed so I'm homebound, in pain, no energy, partly from malabsorption partly from depression. But I'm going to continue to go downhill from the CP. Now I was diagnosed with 3rd stage Osteoporosis &they wanted me to start Reclast IV fusion treatment, but I research everything medical now, I was gaslighted & misinformed when I got Chronic Pancreatitis so I never just do or take what Drs tell me. I got burned to many times. So researched Reclast IV fusion &other osteoporosis treatments & Reclast has scary & sometimes permanent side effects, all the treatments had bad side effects. & since I can eat only a very limited kind of food& avoid a lot of drugs that cause stomach & pancreas issues, all the phosphate drugs had warnings of stomach pain . I'm end stage Chronic Pancreatitis &have stones in my pancreas & kidneys, calcium deposits through out, &now,3rd stage Osteoporosis with a high chance of a leg , hip, or spine fracture, which is already degenerative &have scoliosis of the lumbar area. I told them no. I already have a low quality of life &who knows how many more years left from the CP progression, kidney functions going down. But after years of the few Drs who knew about &treat my CP telling me to hang in there, it's been over 10 years of hanging in there & I just can't deal with anything else. Is there supplements that might help, I can't exercise because I'm too sick& it causes more pain& that&eating certain foods that au naturel way to build bone, but that's not an option. Is there any new treatments for osteoporosis out there that I & my Drs don't know about? I don't have the physical or mental energy to go thru all that stuff on top of what I already have to. I was referred to Palliative care by my pancreas specialist but was turned down due to all the flags in my medical records from so many ER visits in severe pain , but since they only know how to test& treat Acute Pancreatitis which tests were normal, so they didn't know why I was in pain even though I had 2 diagnosis of Chronic Pancreatitis in my record. They "don't know why your in pain" along with ?? drug seeker in my file, so they see that & see CP& nope. So now they want me to get this scary treatment on top of all the all my health issues. Don't know if anyone can help me. I've been in a Chronic Pancreatitis support group on line for 4 years& it really hasn't helped me, I couldn't give encouragement to new comets because I knew what lies ahead for them . Pain, & progression of CP.

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[GardenerJH]

Have you seen a functional medical doctor? If not that would be a suggestion. I don’t take calcium supplements there is enough in my food. I do take collagen peptides, the COMB micro supplements and eat my prunes daily. I take no prescription medications. These doctors and pharmaceutical companies can really hurt you.

[Hidden in reply to GardenerJH]

Thanks for that. I've looked into functional Drs but most aren't covered by Medicare &the few that are order a lot of tests that aren't covered . And we don't have the money to pay for tests& treatments that they order. I've seen a nutritionist for my Chronic Pancreatitis, can't eat a lot of the stuff. &I already have loose stools from the Chronic Pancreatitis so no prunes. Prunes&collagen peptides help bones? I'm taking k2 which helps bind the d, but I think between the widespread inflammation &years with toxic d levels which my then Dr shrugged off& told me to stop the D supplements. But high D can also cause osteoporosis. It's hard to find a Dr that's really knowledgeable about how vitamins & hormones all need others to work. Yes,functional medicine Drs know more about that than most,do they have on line functional Drs? All was so focused on my Chronic Pancreatitis which causes malabsorption,none thought about my bones,tho they should've. My Medicare insurance was the one who said I needed a DEXA scan. All those years where this was left to progress, just like my CP. Have no faith in 98% of most Drs, been burned or blown off by ignorance in the medical community here. Osteoporosis on top of calcium deposits through out my body, on top of chronic pain, malabsorption caused by my CP& Exocrine Pancreatic Insufficiency. How much can a body lose functions. I guess everyone else here is on one of the treatments since you were the only one to reply to my question of alt treatments. So thank you for taking the time to reply to me.

[Hydrangea2023]

Have a friend who has similar condition in that she has also given up going from medication to another medication which doesn't work. IF drs could just be truthful it would help a great deal. My friend finally move to Beijing, China as her husband was transferred there by Corporate. She turned to Chinese medicine and accupture. According to her their method of treating the body is totally different than other countries. I know she did acupuncture and started taking quite a few herbs, some may have been specifically Chinese. She had a very significant turn around as she felt she could deal with life again at ate of 64. I failed to ask her in depth exactly what she was doing or how she was being treated. She was fatally killed in an automotive accident in Italy. Would to be able to possible consider speaking to a Chinese, legitimate Chineses practitioner who has worked in China and where ever you are located at, US, Europe, ect. ect. Wish there there things that. we could provide you with to help. IT's amazing yes how much doctors do not disclose all information about drugs. They will simply say oh, well everyones body's different. Stem cell are the latest news I'm medicine and chelation is also prevalent to clear blood that circulate through the body. I understand the frustration. I wish you the best. I understand with pain often women and some men suffer with false promises about medication.