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Announcing the launch of the 2023 COVID-19 GRA Pediatric Survey
Please see below from the Patient Engagement Team at the GRA - please take a few moments to complete this important survey. You can find further information or ask questions through the website and email details below. Thank you. Dear Collaborators and Friends: The COVID-19 Global Rheumatology
Please see below from the Patient Engagement Team at the GRA - please take a few moments to complete this important survey. You can find further information or ask questions through the website and email details below. Thank you. Dear Collaborators and Friends: The COVID-19 Global Rheumatology
Alida_Bennett
LUPUS UK
in
LUPUS UK
1 year ago
Does endo cause daily pain even when on desogestrel
I'm struggling with daily pelvic pain since my dignotic lap where endo was found but not removed. I've been on desogestrel pill since November and have no periods but yet have this daily pelvic pain. More specifically does anyone else get more pain in the lower right side of pelvis? Sometimes I have
I'm struggling with daily pelvic pain since my dignotic lap where endo was found but not removed. I've been on desogestrel pill since November and have no periods but yet have this daily pelvic pain. More specifically does anyone else get more pain in the lower right side of pelvis? Sometimes I have
me94
in
Endometriosis UK
1 year ago
Should I be worried? CT scan shows Splenomegaly since I got COVID.
OK, now I am scared! I had COVID-19 this past Dec.,I was in the hospital 5 days due to hypoxia. (post COVID) and a CT scan showed my Spleen is enlarged and
pressing on my left kidney
. My urine elimination has changed now and
I have to "push" it out by tightening my muscles
otherwise I
OK, now I am scared! I had COVID-19 this past Dec.,I was in the hospital 5 days due to hypoxia. (post COVID) and a CT scan showed my Spleen is enlarged and
pressing on my left kidney
. My urine elimination has changed now and
I have to "push" it out by tightening my muscles
otherwise I
RandyM
in
CLL Support
1 year ago
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covid thoughts
this has been a “messy” covid with me spluttering and coughing for the last two full days and nights. Gone through so many hankies but my oxygen is at 94% on waking and pulse at 72 so fundamentally not too bad. My pattern seems to be with covid that all my other niggles die down and I naively think
this has been a “messy” covid with me spluttering and coughing for the last two full days and nights. Gone through so many hankies but my oxygen is at 94% on waking and pulse at 72 so fundamentally not too bad. My pattern seems to be with covid that all my other niggles die down and I naively think
TheBoys
in
NRAS
1 year ago
Research shows blood cancer patients generate strong T cell immunity after SARS-CoV-2 vaccination
Today, the Doherty Institute in Melbourne, Australia, released a statement about a research study that shows that
blood cancer patients highly benefit from COVID-19 vaccinations which boost their levels of T cells, irrespective of their B-cell numbers and antibody response
. It found that [i]"
Today, the Doherty Institute in Melbourne, Australia, released a statement about a research study that shows that
blood cancer patients highly benefit from COVID-19 vaccinations which boost their levels of T cells, irrespective of their B-cell numbers and antibody response
. It found that [i]"
CLLerinOz
Administrator
in
CLL Support
1 year ago
belimumab
hello, I have my first belimumab injection next week. Does anyone have any tips? I’m a bit nervous because I had a different biologic years ago for cancer treatment and found it pretty hard going.
hello, I have my first belimumab injection next week. Does anyone have any tips? I’m a bit nervous because I had a different biologic years ago for cancer treatment and found it pretty hard going.
Fernlife
in
LUPUS UK
1 year ago
Update on timeline for Spring 2023 COVID-19 boosters
We've updated our article on the COVID-19 vaccination programme with the dates for the Spring 2023 booster programme. A summary of the timeline: - People who are eligible will start receiving invitations to book soon (due to bank holidays you may not receive your letter until after the 11th April).
We've updated our article on the COVID-19 vaccination programme with the dates for the Spring 2023 booster programme. A summary of the timeline: - People who are eligible will start receiving invitations to book soon (due to bank holidays you may not receive your letter until after the 11th April).
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
Quick update for people newly getting letters about COVID-19 treatment eligibility
Last week there was a lot of discussion from people saying they've received letters or emails telling them that they are eligible for free lateral flow tests and/or COVID-19 treatments when they hadn't been eligible before. Just a quick update to say that it was confirmed that more people have been
Last week there was a lot of discussion from people saying they've received letters or emails telling them that they are eligible for free lateral flow tests and/or COVID-19 treatments when they hadn't been eligible before. Just a quick update to say that it was confirmed that more people have been
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
"Long Covid" FYI
Listen from 20mins if you want to skip the beginning, its very technical. And apparently the video link is not working so go to Youtube and type in Professor Clancy, long covid and immunity A great interview with prof. Robert Clancy. He is a retired Australian clinical immunologist in the field
Listen from 20mins if you want to skip the beginning, its very technical. And apparently the video link is not working so go to Youtube and type in Professor Clancy, long covid and immunity A great interview with prof. Robert Clancy. He is a retired Australian clinical immunologist in the field
TonyB1972
in
AF Association
1 year ago
recent Covid infection and sle activity
hello everyone! So I’ve had sle since I was 13- it was rough then but then it was mild all along. I tested positive for Covid about 3 days ago - annoying sore throat, congestion and body aches, now feeling better but I’m starting to feel like my joints, specially my elbow and knees are aching. I’m
hello everyone! So I’ve had sle since I was 13- it was rough then but then it was mild all along. I tested positive for Covid about 3 days ago - annoying sore throat, congestion and body aches, now feeling better but I’m starting to feel like my joints, specially my elbow and knees are aching. I’m
Jamzie
in
LUPUS UK
1 year ago
anyone been tested for perimenopause?
hey - just got my period again 11 days after I started the last one. It’s not the first time in the last 2 years that I’ve had a really short period like this but it’s definitely the shortest - and I thought there was nothing y around this data that could have set it off -8 don’t have covid, haven’t
hey - just got my period again 11 days after I started the last one. It’s not the first time in the last 2 years that I’ve had a really short period like this but it’s definitely the shortest - and I thought there was nothing y around this data that could have set it off -8 don’t have covid, haven’t
ForABabyPanda
in
Endometriosis UK
1 year ago
anyone been tested for perimenopause?
hey - just got my period again 11 days after I started the last one. It’s not the first time in the last 2 years that I’ve had a really short period like this but it’s definitely the shortest - and I thought there was nothing y around this data that could have set it off -8 don’t have covid, haven’t
hey - just got my period again 11 days after I started the last one. It’s not the first time in the last 2 years that I’ve had a really short period like this but it’s definitely the shortest - and I thought there was nothing y around this data that could have set it off -8 don’t have covid, haven’t
ForABabyPanda
in
Fertility Network UK
1 year ago
Covid
Also know of 7 people who came away from a wedding with covid.
Also know of 7 people who came away from a wedding with covid.
Wantplaytennis
in
NRAS
1 year ago
Did Covid vaccination cause Fb/ME/CFS?
Hi everyone. Just wondering if there is anyone else out there who's Fb/ME/CFS started after their Covid vaccination!?
Hi everyone. Just wondering if there is anyone else out there who's Fb/ME/CFS started after their Covid vaccination!?
Bethenny
in
Fibromyalgia Action UK
1 year ago
Finasteride reversion
I've been on finasteride for almost a year for BPH with excellent results, reducing nighttime activity from 4-5x to 1-2, but for the last week or so I've reverted to 4-5x every night. Has anyone else experienced this? No habits changed or other drugs introduced. I'm trying to investigate the possibility
I've been on finasteride for almost a year for BPH with excellent results, reducing nighttime activity from 4-5x to 1-2, but for the last week or so I've reverted to 4-5x every night. Has anyone else experienced this? No habits changed or other drugs introduced. I'm trying to investigate the possibility
Rayjack2710
in
Men's Health Forum
1 year ago
Covid antivirals - why?
NHS have told me I have a condition that entitles me to antivirals for Covid. But haven't told me what is or which are the qualifying condition(s). GP doesn't know either. I think this is off! Makes me worry, and I'm not easily fazed. Is it an existing condition, if so which, or is it a new condition
NHS have told me I have a condition that entitles me to antivirals for Covid. But haven't told me what is or which are the qualifying condition(s). GP doesn't know either. I think this is off! Makes me worry, and I'm not easily fazed. Is it an existing condition, if so which, or is it a new condition
Coppernob
in
Aspergillosis and Rare Fungal Infection Support
1 year ago
Starting treatment soon.
First of all, I'm hep c positive, diagnosed decades ago. Everything has been 'good' until recently. I had some bloodwork done about a month ago. My liver enzymes spiked (they've always been good), so my GI doctor ordered a fibroscan. The result was a 13, so I was diagnosed as F3 via the scan. Since
First of all, I'm hep c positive, diagnosed decades ago. Everything has been 'good' until recently. I had some bloodwork done about a month ago. My liver enzymes spiked (they've always been good), so my GI doctor ordered a fibroscan. The result was a 13, so I was diagnosed as F3 via the scan. Since
keith_kar
in
British Liver Trust
1 year ago
covid
hi all. I have severe asthma. Which I have had for many years. I had covid in June last year. Followed by chest infection, then I was hospitalised with RSV. I spent all of Xmas in hospital after I also got flu a few weeks after that , I have never been right since I had covid. I went to the post
hi all. I have severe asthma. Which I have had for many years. I had covid in June last year. Followed by chest infection, then I was hospitalised with RSV. I spent all of Xmas in hospital after I also got flu a few weeks after that , I have never been right since I had covid. I went to the post
Denae011
in
Lung Conditions Community Forum
1 year ago
Dr appt updates
Saw my pulmonologist on Tues. “Why haven’t you been using your Cpap?” Me: “Sometimes I feel claustrophobic and it’s hard to breathe. I also have had shortness of breath since I had Covid last June after coming home from our trip.” This led her to have me do a 6 minute walking test - my oxygen didn’t
Saw my pulmonologist on Tues. “Why haven’t you been using your Cpap?” Me: “Sometimes I feel claustrophobic and it’s hard to breathe. I also have had shortness of breath since I had Covid last June after coming home from our trip.” This led her to have me do a 6 minute walking test - my oxygen didn’t
PWilli
in
My MSAA Community
1 year ago
Vaccination, Paxlovid decrease risk of long Covid, studies show
Vaccination, Paxlovid decrease risk of long Covid, studies show By Janelle Chavez, CNN Published 11:00 AM EDT, Thu March 23, 2023 https://www.cnn.com/2023/03/23/health/long-covid-vaccination-paxlovid/index.html https://www.cnn.com/2023/03/23/health/long-covid-vaccination-paxlovid/index.html#:~:text
Vaccination, Paxlovid decrease risk of long Covid, studies show By Janelle Chavez, CNN Published 11:00 AM EDT, Thu March 23, 2023 https://www.cnn.com/2023/03/23/health/long-covid-vaccination-paxlovid/index.html https://www.cnn.com/2023/03/23/health/long-covid-vaccination-paxlovid/index.html#:~:text
lankisterguy
Volunteer
in
CLL Support
1 year ago
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