Please see below from the Patient Engagement Team at the GRA - please take a few moments to complete this important survey.
You can find further information or ask questions through the website and email details below.
Thank you.
Dear Collaborators and Friends:
The COVID-19 Global Rheumatology Alliance (GRA) is continuing our campaign to improve the care for people with rheumatic diseases around the world, including children! We are grateful for your trust in our cause and the support you have provided us with our previous patient-facing surveys.
We are thrilled to share with you the announcement of our new 2023 COVID-19 GRA Pediatric Survey! Our goal is to enrich our understanding of how COVID-19 infections and vaccines have impacted the lives of children living with a rheumatic disease.
With this study, we hope to understand:
Caregiver decision making regarding COVID-19 vaccinations for their children
Children’s experiences with the COVID-19 pediatric vaccines
Long-term symptoms of COIVD-19 infections in children
Participants are eligible for the GRA COVID-19 Pediatric Survey if:
They are 18 years of age or older
AND
They are the caregiver of a child less than 18 years of age with a diagnosis of a pediatric rheumatic disease
NOTE: Participants may complete the survey on behalf of their child regardless of whether or not their child had COVID-19 infection or received a COVID-19 vaccine.
Click here to access the survey:
mailchi.mp/744faa3d2af0/new...
Or copy and paste the link into your browser: rheum-covid.org/pediatric-s...
The survey is available in multiple languages!
What you can do to help?
Adding the COVID–19 Global Rheumatology Alliance link to your websites
Emailing your members our email
Advertising the survey in your publications or newsletters
Sharing information via social media platforms such as Twitter, Instagram and Facebook.
We have created a communications toolkit that you can access to promote the survey with your members. Please feel free to customize it with your logo.
We thank you sincerely for your continued commitment with the GRA and providing the best care for people with rheumatic diseases.
HAVE QUESTIONS?
Visit our website at rheum-covid.org or email us at rheum.covid@gmail.com.
With appreciation,
The COVID-19 Global Rheumatology Alliance (GRA) – Patient Engagement Team
